Results seen on Hospital Patient Portal after Surgery
I had my surgery on Oct 23. MX with Tissue Expanders... MRI indicated DCIS with additional very small mm lesions in two different areas of the same breast... see my breast surgeon on Friday, ... decided for the heck of it to log into the patient portal of the hospital...any help with this would be greatly appreciated...I am a wreck now.. isn't that too long to wait??? In my mind I should be seeing an oncologist asap???
Final: MALIGNANT NEOPLASM OF LOWER-INNER QUADRANT OF FEMALE BREAST
Final: SECONDARY AND UNSPECIFIED MALIGNANT NEOPLASM OF LYMPH NODES OF AXILLA AND UPPER LIMB
Final: UNSPECIFIED ESSENTIAL HYPERTENSION
Final: DISORDER OF BONE AND CARTILAGE, UNSPECIFIED
Someone, anyone know what this all means... please..
Comments
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So sorry that you got this information thru the portal and didn't have a face to face with your doctor to go over it with you and answer your questions…it leaves more questions than answers. It will help when you know the Estrogen/Progesterone, HER2 status, Grade, Stage and type of cancer and have a plan to fight this beast. These details will help paint the picture so you know what you're facing. You can always call your surgeon on Monday and see if you can either get in sooner or get a referral to an oncologist so you can ask questions? However, most oncologists don't start other treatments until you've had a little time to heal from your surgery so Friday is probably not too long to wait. After surgery my doctor wanted to do additional testing - Breast MRI and PET scan before I started chemo and I needed a port put in so I didn't see my oncologist for about a month after surgery. I had my surgery on August 6th, got my port on Sept. 17th and started chemo on Sept. 19th so that would be 5 - 6 weeks after surgery. Hang in there…this is the toughest time, (((Hugs))) Maureen
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Dear Positive,
Pretty hard to be positive with that news staring you in the face. What a shock! I'm feeling for you, girl. It looks like you have more than DCIS, that's one thing that seems to be in the report. Hypertension? Is he talking about high blood pressure? Disorder of bone and cartilage? I have no idea what kind of disorder would be obvious from a mastectomy, but I'm not a surgeon.
I don't think you have to rush your appointment, but if you feel too much anxiety, then I'd try to get in early. You might feel a lot better knowing what the heck is going on with your diagnosis. So sorry you have this big shock.
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I wonder if you could talk to your primary care doctor on the phone just to get those couple of things clarified for some peace of mind?
I had surgery mid August and did chemo at the end of Nov. I think Friday is soon enough for that but if you need info there should be someone who could at least talk on the phone. Hang in there. Scary times for sure.
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I do have high blood pressure and I do have osteopenia. I guess those two references have to do with that... but my fear are the first two...the first I already knew, which is why I was having a mastectomy...I knew I was having sentinel node biopsy as well, so does that second reference mean that they did the biopsy and it was positive for cancer and took more lymph nodes which were also positive? The SECONDARY AND UNSPECIFIED MALIGNANT NEOPLASM OF LYMPH NODES OF AXILLA AND UPPER LIMB is scaring me a little as I don't know too much about this.. I assume that entire phrase means that my sentinel lymph nodes was positive and other lymph nodes were taken as well and are positive for cancer..or am I misreading this entirely and it means some other cancer in addition to the unspecified malignant neoplasm....I know none of you can answer anything for sure and I won't know until I call my doctor but it really helps to get info from people on here that might have experienced the same thing...
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TP, That would worry me too and I would be anxious to have it explained. I hope you can call someone tomorrow. Here we have a nurse hotline to keep people from going to emerg if it isn't necessary. They would probably interpret that to you with a warning that they don't have a complete history. To me it looks like you might have a positive axillary lymph node and upper arm lymph node?
This stuff is so stressful and I hope you find out soon so you know what you are dealing with. Take care of yourself and take anti anxiety meds if you have to.
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You haven't heard from your surgeon at all? I had BMX on Oct 22 and my surgeon called me when the pathology came back to tell me that although my lymph nodes were clear (I too had SNB) that the tumors was upgraded from grade 1 to grade 3 so I'd need to meet with an oncologist and may need chemo. They set my appt up with the oncologist even, whic is scheduled for tomorrow. I went to surgeon on Friday to have drains removed but nurse did it. I didn't even see surgeon. I have post op appt with surgeon this next Thursday. I guess I'm a bit surprised that if your diagnosis changed after surgery that they didn't call you. I'd call them. The not knowing is horrible!!
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TP....Call your Surgeon tomorrow. Let them know what/how you found out. Ask to speak with the Dr. ASAP! You are paying him for a service. Be polite but insistive! Sometimes these reports are uploaded at the last minute on a Friday. Now take a deep breath..... Yes this scary.....but they have to wait for you to heal before doing any treatments. Most breast cancer has been in our bodies for up to 8-10 years before it has been seen on a mammo. MRI's can pick up much but micro invasion it may not. That would be my Guess with your Lymph Nodes. I know with me my tumor size read 9-10 mm in the Mammo, MRI, & US. Also my biopsy read DCIS. But in my Surgical Report my tumor was 2.8 cm & I had micro invasion. Many on these boards have had their Diagnosis change after the Surgical Biopsy comes back. Unfortunately! I'm sorry you had to find out this way! But now you can prepare ?'s & make sure you write them down so you don't forget. Keep us posted & I hope you get the answers early tomorrow!
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Hugs. Sorry you had to get your information that way. I think the unspecified means that the pathology isn't back yet on whether it's ER/PR neg or pos, as well as HER2. Also "neoplasm" is, I believe, just another word for tumor. My path report called it that too. I realize that it's new information that you weren't expecting. Also, I had positive nodes and responded very well to chemo. Keep on top of the doc for answers. Update us when you can. Linda
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