The Hermit Club

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  • SallyS70
    SallyS70 Member Posts: 947
    edited October 2014

    Teresia, welcome.

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited October 2014

    Welcome  teresia

     Mom i am sorry,  that is the way it was for mr on chemo 4 ever with breaks if i wanted. I am metastatic,   a mass on my chest wall, lymph nodes undrr my arm n in my chest, my bone in lots of places, in the lung n in the lining of the lungs.


    Still on oxygen.  Hang in there. Get a 2nd opinion  if u want but figure out why u want one

    Hugs

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Mommy- I am with the others here in terms of "what" part of your treatment did they consider not finished? I looked at your footnote and you seem to have been through a lot of treatment, but we all go through such different treatment plans, it is hard to know. 

    I have known several people in CT who had to get consults from Sloan Kettering in NYC. When you live in a smaller city, sometimes  you have to go elsewhere for better information to the places that specialize in this day and day out. Many people where I live go to Houston or Phoenix to the cancer treatment centers there. I went to Scottsdale to have a very specialized radiation treatment for my care during my treatment.

    You live close enough you could get down to Sloan assuming your husband can take the day off and go with you. Or if that is not do-able, get yourself over to the Yale New Haven community as they have some excellent medical care associated with that group. They may also be able to look at your lung films and suggest if you need any other tests to rule out mets.

    I am sorry you are having such a hard time about this. Doctors often are not good at helping us to understand. This is a very frightening thing to hear. Let us know how else we can help?

  • Teka
    Teka Member Posts: 10,052
    edited November 2014
  • Moderators
    Moderators Member Posts: 25,912
    edited October 2014

    Hello Teresia, and welcome to Breastcancer.org! We're sorry for the circumstances that bring you here, but so glad that you found us.

    The Mods

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Welcome Teresia- sorry you found yourself in this situation, but glad you are joining in this thread. We have many here in active treatment, some post and we try to help each other and are there on the good days and not so good day. Let us know how we can help you. Really nice caring group of ladies here.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014
  • magdalene51
    magdalene51 Member Posts: 2,214
    edited October 2014

    M0mmy, I agree – get a second opinion. I'm so thankful that I had a CT 3 years ago that found 2 lesions in the left lung, because if they hadn't found them then, and only found them now, they would have been very concerned that they were mets. As it is, they had a 3 year old CT to compare and see that they are unchanged. Talk about fortuitous! Why was I getting a CT scan 3 years ago? That's a story for another day.

    Welcome, Teresia, we Hermies aren't very social irl (that's "in real life") but we like each other so we socialize here. Well, except for Jazzy. She's out there doing stuff, so we live vicariously through her. I tell people all my friends live in my computer. Sadly, that is the truth. But Hermies rock.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited October 2014

    Welcome Teresia.

    Jazzy, I go to a branch of the Yale group and since I started treatment there, its been nothing but hassles off and on. Problems with the billing and so forth!

    Hubby's gonna look at our insurance to see if they allow a second opinion.

    Never had any of the lymph nodes tested when I had my surgery because BS didn't want to risk me possibly getting lymphademia.

    The onco even came out several times and said she doesn't know if they are cancer or not because the size is too small to test. My hubby had raised the subject of why weren't they testing the spots if they were so concerned they might be cancer. My onco gives me weird looks every time I ask questions about my care and I tell her that I have been doing alot of research on my own about my situation, its like she wants me to stop trying to be informed.

  • Bippy625
    Bippy625 Member Posts: 890
    edited October 2014

    mommy, I am sorry to hear of your issues. Seems like docs just do not get it.  progression scares me so much.  There were also tiny spots on my liver, but too small to test......i only saw this after reading my scans myself, no one even mentioned it!  So....I guess it could be cancer. I do not really want to know ...hopeful it will clear up with herceptin.  I did not even tell DH. Always in the back of my mind is, what if it already has spread?  Depressing.

    ..made PS consult appt. for November 10.  Next chemo is Halloween, hahahaha. Kinda down now mentally, Got no energy to sugar coat my feelings....not being negative, just not expending myself on being cheery. Not sleeping well either, meh.  

    I am baking and cooking today, and hope to see a friend too, maybe it will cheer me a bit.  

    have a great Wednesday Hermies!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Mommy- sorry the Yale folks have not taken good care of you. Get an apt at Sloan Kettering. I think going to the experts in your area will give you a better answer about what is going on.

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited October 2014

    If the insurance won't allow a second opinion, the next CT Scan shows that these spots are gone, I'm telling the onco I want off for longer than a few months!! Tired of feeling like all that I am doing with my life is going to endless doctor appointments!

    Next time I go I am going to raise the question about my having had bronchitis a few times when I was younger and about 8 yrs ago I had a bout of pneumonia. I'm thinking it could be scar tissue from that and not the spread of cancer, seeing that so far all signs of these spots are showing that they aren't growing and that they have become stable at this point according to the report from the hospital.

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    *Good Morning Hermits*

    https://scontent-a-iad.xx.fbcdn.net/hphotos-xpa1/v/t1.0-9/9976_698384190271493_8418612082648395243_n.jpg?oh=7b4547eb2f27b4833fb780ccc5e3aada&oe=54EA1379

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited October 2014
  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Mommy- you are right that you could have something else there related to other chronic conditions in the past. Good to discuss your respiratory history with the docs.

    Are you calling your insurance company about the second opinion? I have done them a couple time and they were always covered. But each carrier and plan is different.

    I have seen adults around today in costumes. A mad hatter at the PO, a woman with fairy wings at the place I stopped for lunch. LOL!

  • Lily55
    Lily55 Member Posts: 3,534
    edited October 2014

    Clocks already gone back in Europe.............................

    I am stress - ed. best part through a bottle of red wine tonight but its organic so thats ok.......lol 

    Feel totally unanchored.......sad churning and very wobbly...............

  • camillegal
    camillegal Member Posts: 16,882
    edited October 2014

    Hi everyone, wrote a big  post lost it damn.

    Oh Lily try so hrd to just stay seated with u'r legs up, and don't forget the wine.

    Welcom Teresia sorry it's for here but this is a great group of women. And well u won't be cured but remission is wonderful to hear.

    MOmmy I don't get this whole node thing, how could they possible not test any of them--I mean I alay thought they at least biopsy or something I never asked but my BS told me he took 38 out and how many I guess didn't look good, I don't know how they can tell how many to take, but maybe he thought they all looked goo? I really don't understand any of this. Please don't think I'm trying to scare u but when u talk to u'r Dr. ask WHY he didn't take any out, it could be for a good reason.

    Jazzy that's a great present u'r getting u'rself. I love him--good thinking.

    Teka good u put some fun stuff on here too. I hope u'r doing OK.

    OK I'm knocked ut here

    I had more D this week and my poor SIL wanted me to go to the hospital because of my color, he sees a difference my color is bad enough without more criticism so I didn't go--he always means well LOL

    OK everyone have a good nite and happy coffee morning.


     

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    Time to watch *The Mysteries of Laura* on TV.

    BBL

  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited May 2015
  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited May 2015
  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Lilli- I remember the time change in Europe is earlier. I went to Italy in 2009 and while we were there, they changed the clocks, then when I got home end of October, they changed in the US. Between those two and the coming and going through 7 time zones, I was kind of a mess that fall for awhile. 

    Enjoy the wine, sometimes it really takes the edge off a hard day......

    Teka- always been a fan of Debra Messing, although I have not seen her new show yet.

    Cami- is your D better?

    Onco- our cranes come for the red and green chili.

    Sally- how are you doing? I was thinking about you today.

    Mags, Bippy, Monis, Maiden?

    Finished my strategic planning class tonight. Got called for a meeting/interview with the city to discuss a project they have starting soon and looking for someone to help with. That is late tomorrow, and will find out if that may be a good fit for my next gig.

    Time for bed ladies. Wishing you all a reasonable day tomorrow.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Teka- I want this recliner!

    image

  • Teka
    Teka Member Posts: 10,052
    edited November 2014
  • magdalene51
    magdalene51 Member Posts: 2,214
    edited October 2014

    Hanging in there, Jazzy. Chemo #6 has been really hard on me. Thanks for asking.

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited October 2014

    mad so sorry but its almost over

    jazzy I want one too are you buying

    mommy on understand why would they take notes and not checking me out are you sure what exactly did the doctor say about the nodes it makes no sense

    I have no idea what's wrong with me I feel really good except for not being able to breathe no pain I feel good I'm just really emotional crying over the littlest things and maybe it's not little things don't know of course the twins are making fun of me cuz I'm crying


  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Blondie- as someone who has lived with chronic asthma her whole life, I know how frightening it is to not be able to breathe. I am sorry you are not feeling well, and it is upsetting you so. Tell the twins to leave you alone. Hugs sister.

    Cami- I wish I could by everyone a recliner. I think all the women here deserve one and more!

    Mags- I am sorry you are having a rough time with this last one. I hope you are resting and taking good care of yourself. Thank god this part is over for you.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014
  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited October 2014

    Hubby was supposed to check on the insurance thing but work got nuts for him.

    Cami, they didn't test any of the nodes for the worry that I might develop lymphdemia and the spots on the lungs were not much bigger than they are. There were a few that have disappeared already but they keep the fearmongering going about the ones that are still there. In addition to these spots, the cyst I had one one of my ovaries had resolved itself.

    Hubby said he's taking the day off the next time I see my onco to get to the bottom of this crap. He's tired of them giving me the run around! He's good at catching her in changing her story. He's caught her several times when he's been able to go!

  • Teka
    Teka Member Posts: 10,052
    edited November 2014

    MO,

    The following was on my copy of *Surgical Pathology Report* which I read, could've knocked me over with a feather, then I asked MO.  

    _________________________________________________________________________________

    Foci suspicious for lymphvascular invasion are present.

    _________________________________________________________________________________

    I had sentinel node biopsy.   Cancer Free!!

  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited October 2014

    Another reason I'm getting frustrated with the onco is because she keeps trying to imply because I was a Stage IV is why they are keeping me on it. I've done some looking into a Stage IV diagnosis and from what I gather it only means that it this crap has the potential to spread elsewhere fast, but they only found it in the left breast and nothing has shown up on any CT Scan that it is spreading!

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