Young and Afraid

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  • steelrose
    steelrose Member Posts: 3,798
    edited October 2014

    Marie,

    I see that you were only relating to Jacob! 

    No one here means any harm, quite the opposite! And I think Jacob shows a lot of maturity in sorting through all the different points of view, and doing what's right for him. 

  • TikPandora
    TikPandora Member Posts: 12
    edited October 2014

    It seems like my topic has exploded!

    But in reality, a biopsy would truly be the only definitive answer.  This is definitely the truth.  Not only am I glad that I got replies telling me to trust my doctor, but I am glad I also got replies telling me to keep going on.  It is important to get varying replies and answers, as not all people respond to things in the same way.  If I was truly high risk, perhaps the suggestions to keep going on would actually prompt me to do so.  Those suggestions could save a life!!!

  • MusicLover
    MusicLover Member Posts: 4,225
    edited October 2014

    Jacob, What you further described about your lump may be the reason that your doctor feels certain that it is not breast cancer.  Breast cancer does not grow off of the skin of someone's breast.  I think you have enough information here now to make your own decision. Best wishes.

  • Winnymac
    Winnymac Member Posts: 40
    edited October 2014

    I have read these posts as everyone trying to be helpful, not meaning to scare anyone. Yes, we all have had different experiences and yes we try to relate to the person but not intentionally to be self serving or mean. I guess I thought sharing experiences and offering support were the point of the boards. I am sure none of us ever expected to be here and male breast cancer can and does get dismissed sometimes so I believe men may have to be a little more pro active. However, in Jacob's case, his doctor did know and took it seriously, happy ending. We are very very glad for you Jacob Smile

    Linda

  • Winnymac
    Winnymac Member Posts: 40
    edited October 2014

    I have read these posts as everyone trying to be helpful, not meaning to scare anyone. Yes, we all have had different experiences and yes we try to relate to the person but not intentionally to be self serving or mean. I guess I thought sharing experiences and offering support were the point of the boards. I am sure none of us ever expected to be here and male breast cancer can and does get dismissed sometimes so I believe men may have to be a little more pro active. However, in Jacob's case, his doctor did know and took it seriously, happy ending. We are very very glad for you Jacob Smile

    Linda

  • 1NippledBandit
    1NippledBandit Member Posts: 78
    edited October 2014

    I hate to even say this given your propensity to hypochondria.  I was diagnosed at 37 years old.  I went to my first doctor about the lump when I was 35.  He told me it was nothing.  A year later I moved and went to see different doctor for strep and mentioned it to him.  He also said it was nothing.  I was somewhat put at ease, but was still uncomfortable with the appearance of my nipple and the lump (I was having nipple retraction).  A year later I happened to squeeze through a doorway while helping someone move and I brushed the nipple and felt excruciating pain.  I went back to the 2nd doctor and insisted it get checked.  A man-o-gram and an ultrasound were done.  I was referred to a surgeon.  She told me it looked "suspicious" and ordered a biopsy.  I had cancer for 2 years and was misdiagnosed by 2 separate doctors.  The surgeon recognized it immediately as cancer but didn't tell me until after she confirmed it with testing.  Nipple retraction is close to a 99% positive sign of breast cancer.

    Again, I hate to mention this to you, but just because a doctor says it is nothing does not mean it is nothing.  They are human and can make mistakes, especially when it comes to male breast cancer, because it is so rare.  I hope it is nothing, but I would press for a man-o-gram and an ultrasound before I rested easy.  Doctors practice medicine because they don't always get it right.

    Best of luck,

    Brent

  • TikPandora
    TikPandora Member Posts: 12
    edited October 2014

    Well, I went to see another doctor today.  Yet again, she was familiar with the concept of male breast cancer and had treated it before.

    The first thing she asked me after feeling the lump, was if I consumed a lot of caffeine.  Well, yeah.  Soda is one of my favorite things after all.    After saying that she thought that might be the culprit, she told me that she was going to order an ultrasound/mammogram just so we can come to a conclusion and so I could put my mind at ease.

    This is going to take place next Friday, and I'm kind of afraid.  That's a week from now...another whole week of being in the dark.

  • Ariom
    Ariom Member Posts: 6,197
    edited October 2014

    Jacob, that's a good thing! The waiting is just awful, we all had to do it and agree it's the worst, but it is a means to an end and the odds are still very much in your favor, for a B9 outcome. Try to keep busy this week and it will be Friday before you know it. Let us know how you get on!

  • 1NippledBandit
    1NippledBandit Member Posts: 78
    edited October 2014

    Glad you are getting tests done.  Prepare yourself for a painful experience.  The ladies who do Mammograms love to get male victims and in my opinion, relish the thought of administering this test on men.  Don't complain... this just makes them pull harder.  ;)

    Let us know the results.  Hope that they are negative.

  • steelrose
    steelrose Member Posts: 3,798
    edited October 2014

    Good luck, Jacob! I hope you'll finally be able to put this all behind you very soon. And tell those mammo ladies to be nice to you or else... grrr...

  • TikPandora
    TikPandora Member Posts: 12
    edited October 2014

    I know I'm going to regret doing this, and I'm sure a bunch of scary replies are coming...but...

    After a few days of thinking, and a therapy appointment, I decided to cancel the testing on Friday.  The odds of a 21 year old male having breast cancer after being told it was nothing by two doctors is just too low for me to spend nearly $2000 on.  My insurance has the highest deductible in existence, and as a college student, I just can't afford to pay that out of pocket...especially when the appointments themselves are already making me kick myself.  The 'lump' as I call it, also doesn't really seem to fit a cancerous description.  I will continue to closely monitor it, but at this point I just can't take the financial risk.

  • Ariom
    Ariom Member Posts: 6,197
    edited October 2014

    No way are we going to give you a hard time over making that decision. You followed through and got 2 opinions, that really is, all you need to do.

    Keep an eye on it and if you see any changes, just go back and have it looked at. I wish you all the very best!

  • 1NippledBandit
    1NippledBandit Member Posts: 78
    edited October 2014

    It's your decision, but I advise against it.  Best of luck.

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited October 2014

    Planned Parenthood, and many other organizations, offer free mammograms to all comers. You would probably have to describe that you have been following a lump and can't afford a mammogram. BTW, around here, a self-pay mammogram costs $400. Might be cheaper to call around for quotes than going through your insurance.

    But you are right.... the likelihood is small but Mr. Bandit is quite convincing.

    All the best,

    *susan*

  • steelrose
    steelrose Member Posts: 3,798
    edited October 2014

    Jacob,

    Ultimately, it's your call of course. But keep a close eye on it... the chances are slim but not impossible. Wishing you all the very best!

    Rose.

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited October 2014

    Tik it is u r decision we will b here good luck

  • TikPandora
    TikPandora Member Posts: 12
    edited November 2014

    Well, I have an update on the situation.

    Yesterday while I was doing my daily routine of squeezing and prodding, I somehow managed to pop whatever it was. I wasn't expecting it, but drainage was successful.

    I guess it wasn't anything to worry about after all...

  • steelrose
    steelrose Member Posts: 3,798
    edited November 2014

    Great news, Jacob! Enjoy the holidays:)

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