Just Diagnosed 10/3/2014

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Quilter1
Quilter1 Member Posts: 3
edited November 2014 in Just Diagnosed

Just Diagnosed 10/3/2014 with IDC, <1cm, Stage I, Grade 3, mets, ER-/PR-, HER2+

I'm so confused over this entire process.  Knowing this is in me I just want it out and the process seems so slow :(  Is it just me?  I went to see the surgeon last Thursday and she wanted another test done and once the result is back I will go see her for the treatment plan.  It's already been ten days since they told me I had it and all I keep thinking is I want it out.

I've read so much material and the words that grab me are invasive, grade 3 and HER2+.  My heart and soul are telling me just take them both.  The first word out of my surgeons mouth was lumpectomy.  Do I have a choice in the decision?  Has anyone else gone against the surgeons recommendation?  For those with invasive, grade 3, HER2+ what direction did you go and why?

I've had no MRIs, CAT scans, etc.  Are those done after surgery?  If they don't take the lymph nodes until you have surgery, how do they decide on a treatment plan or is that done after surgery as well?  After reading so much I still feel like I don't know anything.

I also don't feel scared which might seem strange, I think it's because I'm focused on getting it out of me.  I'm sure this is all going to hit me like a ton of bricks at some point.

Comments

  • wrenn
    wrenn Member Posts: 2,707
    edited October 2014

    Sorry you have this frightening diagnosis. It is very scary in the beginning so coming here will really help to calm you somewhat. I found my lump in mid June last year and had surgery mid August. That to me seemed to go quickly. We don't know how long the cancer has been there so there isn't that much of an urgency (except psychological of course) to get it out.

    Overall lumpectomy has same outcome as mastectomy but you do have a choice if you would prefer mastectomy. All of the decisions are yours to make.

    I am curious about "mets" you put in your post. Do you mean that is something you fear or were told you had?

    Keep reading here and come back for support to help you through it. Take care.

  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited October 2014

    Dear quilter,

    This feeling that you just want it out is understandable, but is not really that important right now.  There are more ways to eliminate the cancer than cutting it out, but it takes time for the proposed treatment plan to develop.  In other words, the doc needs more facts.  If you have mets ?, that plays into it.  I had all sorts of scans before surgery--in fact, I had chemo before surgery.  

    This is the hardest time, well, the second hardest time.  The hardest time is waiting to hear whether it's cancer.  The second hardest time is waiting to gather all the facts for your doc to propose a treatment approach.  You can either take, leave it, or do a combination of treatments, but it's way too early to know that yet.  I hope this is helpful in easing your anxiety that you have to do something (or decide something) immediately.  You don't. 

    BTW, my first cancer diagnosis, I had a lumpectomy and radiation.  That seems to have been the right decision since that cancer has not returned 15 years later.  My second cancer diagnosis, a second primary (meaning a completely different cancer), I've had chemo and surgery, a mastectomy, and that seems to be the right decision since I'm now NED (remission). 

  • cjnoe70
    cjnoe70 Member Posts: 1
    edited October 2014

    Quilter1 -

    I was diagnosed  on August 26th, and am scheduled for a lumpectomy on November 7th. I've had multiple MRIs, scans and biopsies, and the waiting is difficult. But, the more information you and your doctors  have upfront, the better, I suppose. 

    I cried the first time I heard "invasive" because it sounded so severe. But once it was explained to me (it's just that a lump has formed outside of the lobule or duct) I felt better. For some reason invasive makes it sound like it spread, or had taken over the whole breast. Turns out that it's clinical stage I, at least until the path comes back from surgery.

    It's a difficult decision to make, and I was sure I would elect for a bilateral mastectomy. But once all the test results came in, I opted for the least invasive surgery. The decision is ultimately yours. Arm yourself with information and research. 

    Best of luck on the journey.

  • miami4ever
    miami4ever Member Posts: 2
    edited October 2014

    Got the news on October 16th...I have breast cancer. I cant stop crying and asking God why.  I've told my sisters and mom...no one else. My doctor has been available to answer all the questions and has given lots of information.  But I'm still trying to process the diagnosis and all the medical jargon.  I have next appointment on Wednesday with doctor and medical team. So many decisions. 

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2014

    Hello quilter and miami4ever, 

    We are sorry that you have joined the club nobody wants to be in, but we welcome you warmly to this amazing group of individuals. We are all here to help guide you through your journey.

    Gentle hugs, 

    The Mods

  • Ladybug725
    Ladybug725 Member Posts: 2
    edited October 2014

    I was told on Friday October 17th. I knew I was a higher risk since my mother is a 16 year survivor  and passes the BRAC mutant gene on to me. I thought with all the preventive I did with mammograms and breast MRI's every year, it wouldn't happen to me. Boy, I got hit with a emotional roller coaster that day.  I've been to couple appointments with my breast specialist, and still waiting, seems like forever. My oncology report came back : IDC 2.9cm, stage 2 with negative er, pgr, her2. With possible lymph node involvement. My doctor's office is making my appointments with the radiologist and oncologist plus a body scan. I'm also trying to learn the new cancer dialog but feel like I'm walking through a fog. 

  • LCH033
    LCH033 Member Posts: 83
    edited October 2014

    Got the confirmation at 8:55 tonight; the core biopsy confirms cancer. Scared but ready to beat this; full MRI of both breasts and meeting with my Oncologist afterwards to discuss next steps.

    Thank God for the circle of support, plethora of factual  information and answers here. I'm 46 and my paternal Grandmother had and died of breast cancer; I know with the age of medical advances we are in now I will beat this but WOW! I feel like I am in a tornado of emotion and fear!

  • nursiellp
    nursiellp Member Posts: 17
    edited October 2014

    New to this thread so hi to you all.  I had a bx on 10/15 to remove to micro calcifications and a large mass that popped up in a 3 month period.  Have about a 2 1/2" incision with a bunch of sutures.  That's small in the scheme of things because on Monday. The results were +IDC.  I have done a lot of research on the subject (hey, I'm a nurse, it's what we do best!). From what I read a lumpectomy and maybe radiation is just as effective for getting rid of the cancer if It's not an inherited thing.  Unfortunately, I am not a candidate for a lumpectomy because  1) I have a history of many biopsies for microcalcifications and lumps and bumps, all B9 and  2) I have large breasts and cosmetically it wouldn't look right.  I'm seeing plastics next Mon. for them to do reconstruction @ time of surg.  Probably expanders.

    My BS told me they would 1st take me to radiology to do sentinel node mapping then to the OR.  They will take out the sentinel nodes, send them to path for frozen section (they get results in 10-15 mins.).  If they come back + then they will do a node dissection then plastics come in and does his thing. Sounds like it's going to be a long surgery.

    After that I will be going to a Oncologist.  They can't make TX plan until they know if it's in the nodes.  If it is then I will get testing to check for mets, (bone scan, MRI, etc.).  I know it's going to take a while for this to happen but, hey, the CA isn't going anywhere. 
    Hope you find this helpful as to a time line.

  • nursiellp
    nursiellp Member Posts: 17
    edited October 2014

    I just decided to start eating healthy.  Having spaghetti and a salad.  Salad is green.  Haven't had anything green pass these lips in a long time.  lmao

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2014

    I'm just bumping to bring this back to the original subject matter and poster Quilter1.

    I'm very sorry about your diagnosis; I can understand your fear. I wonder what has happened since this original post, and if you have a response to the poster's question about why you included "mets" in your fears.  Have you been able to learn more yet from your doctors about your diagnosis?  It sounds like you have a lot of new terms to 'come to terms' with. There are plenty of women on here who have walked in your shoes and can offer support to your particular areas of diagnosis.  Best to ya.

  • kay03
    kay03 Member Posts: 2
    edited October 2014

    its so scary I know. I'm 27 and was just told I have the same type but grade 2. I'm getting the brca gene testing done and if that positive I'm cutting both off. If negative just cutting this crud out and some lymph nodes to see if its spread. And yes you wait until those results come back of lymph nodes to determine staging. And treatment comes somewhere in that time too.

  • karen1971
    karen1971 Member Posts: 37
    edited November 2014

    i am 43 and i was just diagnosed with stage 2, grade 3 invasive breast cancer. i've been through the surgeries already. now i am waiting to see if my lump is fast aggresive or slow agrresive. i have to do the genetic testing yet and then  what treatments i have to do yet.

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