When diagnosed- did you share with family & friends?

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  • resigned
    resigned Member Posts: 36
    edited October 2014

    Here's the problem. I told only a few people, my ex husband, my fiance, my family, a few friends. But then they told other people and now everyone in our small town seems to know. Everyone says "i can't believe YOU of all people have cancer!" because I'm so healthy. I'm so tired of people I haven't told trying to talk to me about it. I don't want to talk about it I just want to deal with it and I'm the only person who has to do that so just leave me alone! That's pretty much my feeling right now. I think you should be very careful who you tell. Tell them if you want them to keep it to themselves otherwise everyone will know. 

  • Quilter1
    Quilter1 Member Posts: 3
    edited October 2014

    That's the same day I got that dreaded call.  I immediately told my husband because he is my rock.  My two sons and daughter in-law were my next call.  I wanted so bad to tell my mom but she was on a cruise and I was not going to ruin the last few days of her cruise.  I think at this point most people who know me now know that I'm on a journey that wasn't my choice but never the less a journey I am facing.  

    I just lost my dearest friend to this monster 3 weeks before I received my call.  It hit me like a ton of bricks.  I don't think I'm any where near as strong as my dearest friend was and felt that I truly wanted the support of my friends and family.

    I think everyone is different in how they feel and what they choose to share with others.  I think you will know deep inside who you wish to share your journey with.  We share the dreaded date of the call, maybe we can share our journey together.

    Hugs,

    Ginny

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited October 2014

    I got the call at work, phoned my husband right away.  After work, we phoned our 2 grown children and the next day I called my sister (she was responsible for telling my other siblings, but not because I asked her to.  LOL)

    I told my boss when I knew that I would be out for surgery and told HR since I had to have FMLA paperwork completed.  I told the company owner when my surgery was done and I knew my stage.  Once I found out I needed chemo, I was torn about who to tell.  I  decided to tell noone while I was in treatment and believe it or not....not one person commented on my wig, except to tell me how awesome my new haircut was.  LOL  Once I finished treatment, I have felt more comfortable sharing my experience....just couldn't do it while I was in treatment.  Somehow, I felt that I needed to preserve my energy and keeping everyone updated felt like an energy zapper to me. 

    Everyone has to decide how big their "circle" is and sometimes you have no choice about telling people if it is more obvious you are ill.  Whatever you decide to do will be right for you.

    Best, MsP

     


     

  • Ariom
    Ariom Member Posts: 6,197
    edited October 2014

    Oh Blessings, I love your posts! You have a great turn of phrase!

    I found I was blabbing to just about everyone, because I was just so shocked by it, I think. I had moved to a new area and didn't have my usual group of girlfriends around me.

    I didn't reconstruct, but I have no problem showing my scar to those who ask about it. It's one way to get women to do self exams, or have a Mammogram! lol.

    I was very fortunate, apart from one ex work colleague, who had the same Dx as I had a few years earlier, no one said anything stupid or hurtful to me. I was gobsmacked when this woman asked me what reconstruction I was having and when I told her I wasn't reconstructing, she spat out at me "How can you bear to look at yourself!" Needless to say she's no longer on my Christmas card list! It's a good thing I am very comfortable with my decision and how I look.

    There is no right or wrong way to do this, just your own way!

  • edwards750
    edwards750 Member Posts: 3,761
    edited October 2014

    resigned - I can so relate to your problem with the town crier spreading the news about your condition. My neighbor did the very same thing. Everyone in my cove and even X neighbors all knew. I was mad too. It wasn't her story to tell. She blabs her personal business so I guess she figures everyone else's is fair game. I don't thing for a second she meant to hurt me but she did. Ditto on people quizzing you and dispensing advice. Then there are those who avoid you because you have the plague or contagious. 

    As the years have passed since my DX nearly 4 years ago I have gotten past my invasion of privacy. Lesson learned though I don't tell her anything personal. 

    Diane 

  • sandcastle
    sandcastle Member Posts: 587
    edited October 2014

    Diane......I think people like create a Soap Opera.........Living in a Community a lot of that happened to me......I now will not let others invade my space......Liz

  • vbishop
    vbishop Member Posts: 616
    edited October 2014

    I told my husband, my kids, my sisters, and my brother.  Then I started a blog, mainly as therapy for me, but the family continues to read it and share with friends.  During the middle of tests, surgery, and recovery, the blog was a great way to keep everyone informed without having to repeat myself a zillion times, and I didn't have the phone ringing night and day.  Best thing I ever did.  I still have it; don't update it as often as I use to, but it's still therapeutic.

  • Mouche
    Mouche Member Posts: 63
    edited October 2014


    I told my husband first, then a few days later my family, friends and a few co-workers.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2014

    I immediately shared iwth those who would be most scared for me: my daughter, (my husband was there during the lumpectomy so he knew before I did--the doc came and shared the results), my mom, my bro and sis. I sent out an email to very close colleagues the next morning, since they knew I was going in for the procedure and knew I was worried.  I shared with close friends as I could muster the strength, one at a time.  I did not share with everyone I knew: I didn't want them calling, emailing, asking about how I was doing as I found quickly that each time I had to answer the question I got terrified all over again.  Some colleagues never knew I went through tx, and that's the way I wanted it. It's a Need To Know situation for me.  And intensely personal.  Even some of my close friends didn't understand I didn't want to talk on the phone (because they kept wanting me to reassure them) and were upset with me.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2014

    I'm curious about those who posted that you are angry that others shared your news with their extended circle. Did you specifically ask them not to tell anyone else?  I ask this because I've had this happen before, and I've been on both sides of the situation.  If you did not specifically say "please don't share this," then I wonder how you can be upset?  Many people (and I include myself in this group) prefer not to have to repeat a thing like this over and over.  It takes some of the burden away if others share my story among themselves. That said, it's also bizarre to find out that, for example, one's hair stylist or grocery store clerk knows, and I begin to question how the game of "Telephone" reached so far.  But I would never be surprised for a relative to tell other relatives, or for my neighbors to share the story.  Wouldn't you consider it passive-aggressive not to tell each other?  Have you been on the end of the story when every relative or neighbor knew except you? Would the "patient" (or other subject of the story) wonder why all her loved ones were offering to help, but you never came to her aid?  Then it seems we are venting because that particular person didn't ask about us. I think we can all see the myriad sides of this social dance, if we take a moment to do so. That's tough to do when one is in the middle of the struggle, however.

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