Survival rates by stage for TN

CherryHill
CherryHill Member Posts: 42

I cant find any specific survival statistics for TNs according to stage. Does it exist?

The only thing I found is lifemath calculator. Anyone knows other sources of info?

Comments

  • LydiaHouse
    LydiaHouse Member Posts: 11
    edited October 2014

    I have the same question>  No answers, even from the oncologist.  

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited October 2014

    I think about this sometimes but try not to get to hung up on it. My Oncologist told me that without chemo there was approximately a 60-65% chance it wouldn't come back but with chemo it was raised to 78-81%. I'd like to feel as confident as he is but I'm still nervous They say the further out from treatment you get the easier it becomes but for some reason I've been pretty fearful the past few months. This coming January will be two years since my diagnosis and I think one reason I'm more nervous is they say IF TNBC recurs it usually does in the first three years. Maybe someone with more knowledge about your question will know more than me though. Try not to get too hung up on stats though!

  • CherryHill
    CherryHill Member Posts: 42
    edited October 2014

    That's approximately what my oncologist told me. 50% chance of success after the surgery and 80% chance after adding chemo and radiation in my case. I wish she was right, though I suspect things aren't so good. Maybe there is a recommendation for MOs not to give bad numbers to their patients? Oh, I am really paranoid with this BC taking over my life. But seriously, I am afraid that 80% in my case is wishful thinking. 

    For example, when I go through research data on TN related issues (like "radiation after mastectomy for TN", or "lymphatic and vascular invasion effect on TN survival"), the numbers are dire. Like, less than 50% surviving 5 years with stage two. I just hope that data in these research articles is outdated and chances are better.

    Well, it's a lottery after all.

  • placid44
    placid44 Member Posts: 497
    edited October 2014

    CherryHill,

    My onc said my survival chances are 85 percent. I am stage 2b also. I had one positive node. She said my chances would have been a little better if I had had a complete response to chemo (I had a good partial response - shrank 77 percent andki67 dropped from 70 to 17.) I would have had worse chance if more nodes or not a good response to chemo. 

  • CherryHill
    CherryHill Member Posts: 42
    edited October 2014

    Placid44, 

    Thanks for sharing your info!

    I don't know how I responded to chemo as my tumor was removed prior to it. My Ki67 is 92% (sigh), but I try to see it in a positive way - aggressive tumors respond to chemo better.

    I wonder what other TNs heard from their oncologists. 

  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited October 2014

    Cherry, I too had my mastectomy before chemo so I don't know how I responded either. At the time I felt like I just wanted the tumor out! I was a Stage 2A and I didn't even ask what the Ki67 was. Maybe I don't even want to know. My tumor was 3.5 cm's but I had no nodes involved. But even though you had nodal involvement they removed it. All we can do is trust the doctors as they each know our individual case. We could all have the same diagnosis and stage but our bodies are all different. 

  • WalleGator
    WalleGator Member Posts: 102
    edited October 2014

    My oncologist told me that without chemo I was at 78% it wouldn't come back. With chemo 86%. He had a website for doctors he accessed to show me. Thought that was interesting and maybe it will help.Just looked up in my notes...it was adjuvantonline.com. Hope that helps someone.

  • CherryHill
    CherryHill Member Posts: 42
    edited October 2014

    CelebrateLife, 

    I think there is a mistake in the article, look. Healthline is writing about triple negative but uses statistics from American Cancer Society, and by going back to the source you see the statistics are for all breast cancers, not only lucky TNs.

  • eileenpg
    eileenpg Member Posts: 467
    edited October 2014

    I'm new to this board. My MO went into adjuvantonline and told me my chance of reaccurance was 71.5% with no chemo. With chemo it was 79.9. It I did a harder core chemo it was 81.9%.  He did not think the side effects of the chemo were worth the extra 2%.  Also,of that 100 %, 7% of the group did not make the full 10 year study. So,that number is basically out of 93%. I have no idea what a ki67 is? Is that what they call your fish score?

    I think we all now have a number on our head which most people don't have for getting cancer.

  • simplelife4real
    simplelife4real Member Posts: 563
    edited December 2014

    I was stage 2b (one confirmed lymph node by biopsy) and had neoaduvant taxol and ac. At surgery, I had no cancer found in breast but still had cancer in two lymph nodes (one was a "micromet"). My MO told me after surgery and completing radiation that I had a 10% to 15% chance of getting mets and a 5% chance of local recurrence. What she told me seems to fit with all the research I have done on my particular case. I like to think that with each day that passes, my chances of mets go down a little bit! Every day without a diagnosis of mets is a good day in my book.

  • dissie
    dissie Member Posts: 1
    edited January 2015


    I had 2cm tumor,idc, 1 lymph node. did bilateral mastectomy. i

    n the middle of 4 rounds of AC then will have 12 taxol treatments. wonder what that makes my chances? dr said after chemo will monitor blood work every 3 mo then every 6 mo. bloodwork was great when I had tumor during physical, so how do we know what to look for with recurrence?? don't you just HATE having to know all these terms?!?!

  • simplelife4real
    simplelife4real Member Posts: 563
    edited January 2015

    Dissie, the best people to ask what your survival rate is (if you really want to know) are your MO and your BS. They have your exact info and can tell you what the statistics are for your particular case. I think each day that goes by without being diagnosed with stage IV is great! The way I look at it, it's a day closer to being 5 years out.

  • wrenn
    wrenn Member Posts: 2,707
    edited January 2015

    My oncologist only gives general statistics. They were 30% chance of recurrence without chemo and 20% if i had chemo. I decided to be the 70% who don't have recurremce. :)

  • placid44
    placid44 Member Posts: 497
    edited January 2015

    Ki67 is the proliferation rate, ie, how fast the cancer cells are dividing and the tumor is growing. Higher rates are more aggressive tumors. Less than 10 percent is slow growing. 10-20 percent is intermediate. Above 20 percent is fast growing. Mine was 70 percent. Aggressive is not good, but the upside is that chemo targets fast-proliferating cells, so often works better on fast growing tumors. Not always, though. Sometimes the tumor is resistant to the chemo

  • JJ62
    JJ62 Member Posts: 65
    edited February 2015

    A good friend of mine, survivor of childhood leukemia and now an oncology nurse put it like this- "They are just numbers, what it boils down to is you live, or you die". She and her mother (who at the time of my bc diagnosis was 10 years out from advanced ovarian cancer, which she was unable to complete chemo for, and not given a good prognosis) where and are my inspiration.

    For some reason we love our numbers. I was told post chemo I had a 75% chance of making it. 10 months later I got my BRCA 1 results and pursued more surgery. I thought I made healthy choices before. I try and make even more now. I have a good friend with bc, NOT tn, who was diagnosed with spinal mets at the start (2.5 yrs ago). TNTC (to numerous to count) She has thrown everything she can at it conventionally, and alternatively. We share an oncologist who was not optimistic on her odds. Her blood results have bounced around, but her back pain recently led to a scan showing a significant reduction in the size and number of "lesions". Dietary and lifestyle changes, and in her 50's her current goal is a half marathon next fall! She lost 60 lbs and is embracing everyday! Her oncologist is taking notes!

    Stay positive, savour the moment! "Life is good" was my motto before BC and will always be. When the bumps come along, big and small, well- "s*** happens" gets added.

    Happy Valentines! Take care of yourselves!

  • Cracked
    Cracked Member Posts: 2
    edited March 2015

    I am a member of this website.  There are some ladies that are like 8-10 years out from Cancer treatment.  Some before they were called triple negative.
    http://www.tnbcfoundation.org/ 

    I had chemo first, then lumpectomy then radiation.  It amazes me how across the U.S. how the treatment differs.  Some docs want surgery first and some chemo first.   I am currently PCR or NED depending on what you call it.  I just want to stay that way.  The only thing I have read that is true across the boards is if we make it 3 years without reoccurrence it's like 5 years for regular breast cancer and can expect to stay NED.

    I have not seen any chart, paper, article nothing about survival rates by 3NBC stages, maybe someday.

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