October 2014 Surgery Sisters

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  • Swoobs
    Swoobs Member Posts: 82
    edited October 2014

    TRAILS do you have gummy,silicone,or saline?

    My right pec is so angry from the lymph node and implant that it won't "fall" into place

    It's been 2 weeks so I'm hoping one more week of rest and healing I'll see a difference

    I'm sorry you are out if sorts....as far as returning to work I hope after the first day back you find it "normal"

    Mine aren't Perky mine feel small lol compared to before!

  • Swoobs
    Swoobs Member Posts: 82
    edited October 2014

    SCMOM thinking of you tonight, hope you get some sleep!!!!

    Good luck I'll be looking for you to give updates

  • Su-CQ51
    Su-CQ51 Member Posts: 137
    edited October 2014

    Welcome Trails!

    Glad you're doing well Lilith!  Thanks for checking in!   Fingers crossed for a good night's sleep. :)

  • Trails
    Trails Member Posts: 22
    edited October 2014

    Swoobs, I have gummies. I think my pecs are super tight as well, although I can't tell what's muscle and what's implant right now! Everything is just very tight. The best way I can describe it. I'm not even sure what to expect when they "fall" into place, but my PS says it will be 6 weeks before they look right and I "wont even know they're there". I'm at just over 2 weeks and they haven't changed much in appearance, except the bruises have gone and they're slightly less swollen, especially into the armpits.

    Hope your pec settles down soon!

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2014

    Trails-

    We just wanted to say a quick hello, and welcome to Breastcancer.org! This is a wonderful community full of wonderful members, we're glad to see you here.

    The Mods

  • Galsal
    Galsal Member Posts: 1,886
    edited October 2014

    Thanks to all for the calming thoughts and good wishes.  That pink bus best be stopping by here so I can go in with the others scheduled for today!  Yes, nervous nervous.  But glad too - right side TE has been telling me it's time to get out of there!

    Much love and blessings to all having procedures today!

  • Akitagirl
    Akitagirl Member Posts: 142
    edited October 2014

    Thinking of you Galsal, SCmom and Barefootmom - we'll be on the bus with you (on a plane for me today ;-).  Let us know how things are going when you can.  

    Thank you everyone for your advice - Vitamin C and Zinc, here I come!  My ear is really hurting, hence why I am up at 0430.  I guess walking back from the theatre to the hotel in the cold rain didn't help.  Sigh.  Need to find a drugstore before I jump back on the plane today, as 4 hours in the air with blocked Eustachian tube would not be a good idea.

    Lillith - I am so glad to hear you are doing well and I must say that homemade chicken noodle soup sounds really good right now!  Good job remembering Sandra's wise words.  :-)

    Good luck Thursday ladies!!!!

  • Lilith08
    Lilith08 Member Posts: 163
    edited October 2014

    Slavrich, I have one drain on each side--that's for PBMX with SNBs. I wondered if it's because I didn't have any TE placement or other recon, but that's just my guess. I asked in the recovery room, but the nurse didn't know the reason and I didn't think to ask again.

  • Su-CQ51
    Su-CQ51 Member Posts: 137
    edited October 2014

    How are you feeling compared to your lumpectomy Lillith?   I'm having my UMX and ALND next week.   My BS said recovery will be same but I would think it would be more recovery.   I'm thinking the lymph node removal will drive me crazy since I'm still having arm pain from the sentinel node removal .    I wish that the surgeon had time to come by and ask if we have any questions about our surgery and then give answers.   Wishing you  clear sentinel nodes!   Take care and gentle hugs :)

    Hope your flight goes well Akitagirl.   Maybe some vitamin C and zinc lozenges would help for takeoff and landing issues?   Take care!

    Good luck tomorrow LauraW, LeeLee and Davida!   Speedy recoveries and wishing you clear nodes Davida!

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    Akitagirl - see if you can find "Earplanes" or something similar, either in a drug store or in a shop at the airport. They help equalize the pressure in your ears when flying and can make a world of difference. Good luck. 

    And good luck to all today.

  • Lilith08
    Lilith08 Member Posts: 163
    edited October 2014

    Hi, All,
    Does anyone here have experience with taking blood pressure on the ankle/calf? I'm going to need to get my own BP monitor and it would be good to know what to get. 

    Meantime, the visiting nurse measured my BP and said it was 160/90. Just about enough to freak me out, as I've never had anything like that. We're wondering if it could be a reaction to Keflex antibiotic, as it's related to penicillin and I am allergic to that. But I've also had Keflex for previous surgeries without problems. 

    Am going to call the doctor's office now to see what they think....

  • Lilith08
    Lilith08 Member Posts: 163
    edited October 2014

    Su-CQ51, apart from being freaked out at the moment by my blood pressure, I'd say the pain with the MX is much less than it was with the LX. More of a discomfort, really. I expect the recovery will be longer, though.

  • Su-CQ51
    Su-CQ51 Member Posts: 137
    edited October 2014

    Thanks Lilith!  Sorry you're having blood pressure issues.   I'm glad you're calling your Dr. and hopefully it's a temporary issue related to your recent surgery.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited October 2014

    Attention: All of you who are fresh out of surgery

    SIT DOWN. I don't care what you want to do. SIT DOWN. You can get up to go to the bathroom every couple of hours. Yes, you are going to get stiff. Move to another place...the sofa, a bed...a recliner if you get restless. Change the configuration of the pillows supporting your body. Sometimes that's all you need to fool your body into thinking it's been moved to another place. Yes you are going to feel tempted to go to the kitchen and make a sandwich (or throw a load of laundry in) rather than ask someone else for help. DON'T DO IT. The most important thing you can do in the first week is to glue your arms to your side and your ass to the recliner and stay there! Your body has just been through a massive assault. All your energy needs to go towards healing. Your body cannot heal properly if you are using your energy to _______ (fill in the blank.) Don't raise your arms any higher than your shoulders. I don't care if you CAN...you SHOULDN'T. Don't wash your hair or blow dry it unless you can do it bending over so you don't have to raise your arms. Wear button up things. Don't wear tops that pull on over your head unless somebody else is dressing you! No, you may not go to the store or out to dinner. No you may not take a walk in the neighborhood. Sit down and take a nap! THAT'S what you CAN do.

    Just because you can, doesn't mean you should.

  • mefromcc
    mefromcc Member Posts: 188
    edited October 2014

    Sandra4611, I see you have implants. I just had BMX without reconstruction. I will have a DIEP next year. My BS wants me to move my arms above my head, and in and out. So I guess it depends on what type of surgery you had. I saw my BS this AM for my first post op visit. My path report was clean for any more cancer (relief). But my drains are still in (rats).

  • Sharpei
    Sharpei Member Posts: 37
    edited October 2014

    I think this is where I belong.

    Had a NSMx Oct. 3rd with TE. The next day PS comes in and says we will be going to the OR in three weeks to debride necrotic tissue. Doesn't look like the nipple will survive, either. Tomorrow is three weeks, but she had moved that window out to six at the ten day visit. We are still waiting for the skin to declare itself. 

     I saw her two weeks ago, the BS last week.

    One drain was removed on sixth day, second on tenth.

    But the nipple is navy blue. Is this the methylin dye? Was it dumped on?

    I had a lumpectomy with sentinel node dissection ten years prior for similar DCIS diagnosis. The blue was very faint although it did not all go away for almost five years.

    The 6 weeks of radiation I had ten years ago is probably whey the nipple did not make it. The PS had discussed the latissimus flap before examining me, but found my skin "supple" and we agreed to do the expander.

    300 cc's in the expander now, with another 350 planned in 60cc increments.

    I hope to learn more tomorrow when I see the PS for the first time in two weeks. I feel great. Maybe a little tired. I call this my quiet recovery as I do not lift anything over five pounds with my arm.

    But I call this alien on my chest auditioning to be my new bosom Sharpei for characteristics she shares with the dog. She is not my bosom buddy yet. I nearly fainted the first time I saw her. Luckily the Visiting Nurse was with me and I got to a soft place to lie down before crashing on the tile floor. I am 68 and not squeamish. I have never felt faint before. It felt like flashbulbs flashing all over, like a red carpet! Walking the red carpet naked with poor pathetic Sharpei!

    I have been reading these boards as I wonder what I might learn tomorrow. I feel the need to be informed. I do not have a support group or know anyone with a situation like this. The navy blue part is about 2" x 2". What will go in there? I do not understand? Will I need a latissimus flap and therefore be back where I was three weeks ago but with another incision and more drains?

    I do not want to feel sorry for myself. I am trying to be accepting. Patient. I am renovating a condo in Florida and it is starting to be cold and gray here in RI and I am wondering if I will have to stay here into the winter. I have lots of quiet projects to do while I recover, except when will that be? Why does Sharpei look like this? I took my first shower this week after finally figuring out how to protect her. Clean hair is very important to me! I have been going out for a shampoo but the stylist is terrible.

    I had a makeover last year, lost a nice chunk of weight, got a beautiful new wardrobe. It would be nice to have a figure. But is it worth it? Everyone seems to say yes. Not doing reconstruction seems like a kind of failure or maybe giving in to oldness (at my husband's 45th college reunion a guy asked me if I was a trophy wife! Yes, I am. 40 years married. I have earned my trophy!).

    My friends don't get it, although they are kind, compassionate, loving. Not sure I get it, either. 

    I am feeling overwhelmed, I guess. Am I going to be doing plastic surgery for the next year? All for a little cupcake? (Plan is to reduce and lift the healthy Breast. No one wanted to do bilateral. Do I hope DCIS pops up on that one so she can go, too?). 

    Thank you. A lot of stuff here.

    The lovely thing is my cats "know" and have been at my side as a palace guard, gentle and adoring. One has been sleeping on my chest since a kit and she has finally gotten back there, on the safe side. She purrs her head off.

    My husband went on a foreign business trip on my fourth day after surgery. A friend came to stay with me, and by then I was up, in control of the drains. I have had almost no pain.

    That's my story. I am part of the October Crowd.

    Sharpei

  • Lilith08
    Lilith08 Member Posts: 163
    edited October 2014

    Sharpei, you do have a lot going on! I'm so glad you decided to join us instead of keeping quiet behind the curtains. (And I love your Sharpei story. I think I have a little bit of that going on with my right side, and maybe it's the stress of seeing that for the first time this morning that's got me down today.)

    I'm afraid I don't know anything about the blue. Maybe someone else will help.

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2014

    Welcome to BCO Sharpei. You do have a lot to think about. You have joined a group of kind and knowledgeable individuals here at BCO.

    We can understand that the information and
    decision making process can be daunting. You
    could read the Reconstruction
    stories
    and options on BCO and ask questions. Or go to the Breast Reconstruction Topics.

    We wish you all the best.

    The Mods

  • Sharpei
    Sharpei Member Posts: 37
    edited October 2014

    Thank you.

    I forgot to add that I am now cancer free once again. I may be prescribed an aromatase inhibitor to suck out all my remaining estrogen. Don't my bones want estrogen? What about my skin? And do I have to go back to hot flashes and bad sleep? I dealt with that for twenty years already.

    Sharpei

  • Slavrich
    Slavrich Member Posts: 50
    edited October 2014

    Thanks Sandra-That's the new plan. I really want this skin and nipple to survive and that is what the  PS said to do.

  • Slavrich
    Slavrich Member Posts: 50
    edited October 2014

    Lilith08: I have had the almost the same blood pressure readings. I have had BP problems in the past-but never this high. The Dr. said it can be a response to pain, but I started a new script today to stabalize and bring the numbers down a bit. I never thought of an allergic reaction. Previously, during chemo, my BP was high one time and close to perfect the next. I can do relaxation techniques and bring it down. While I appear and feel OK, I think I'm holding in a lot of stress. No-one has ever mentioned taking ankle readings though. My potassium has been low since chemo and being on 25 mg. of hydrochlorothorizide (water pill), so the new BP med is one that does not affect potassium level.

    Have you had BP problems previously?

  • laurie2025
    laurie2025 Member Posts: 117
    edited October 2014

    Lilith - you take good care of yourself now!!

  • laurie2025
    laurie2025 Member Posts: 117
    edited October 2014

    Hi Sharpei,

    I am taking Arimidex, and yes, hot flashes and thinning hair may indeed be in your future.  Hopefully you won't have the side effects I've been blessed with.

    ;)

  • horsemom
    horsemom Member Posts: 96
    edited October 2014

    a couple interesting things about my upcoming surgery...

    1) PS says I'll be taking a shower before I leave the hospital (usually stay one night)

    2) Lifting restriction of 15 lb

    3) sentinel node radioactive dye will be injected during surgery-not before

    4) anesthesia is TIVA (total intravenous) - some say this reduces nausea

    I just thought I'd share as some of these are very different than what I've been reading.  Although I doubt I'll be lifting 15 lbs!  But I'm sure glad about the others. 

  • laurie2025
    laurie2025 Member Posts: 117
    edited October 2014

    Sharpei - I've added you to the group, welcome!  breastcancer.org is a wonderful place, the message board are filled with knowledgeable people, all willing to lend an ear, a shoulder, and advice if they can!!

  • hummingbirdlover
    hummingbirdlover Member Posts: 421
    edited October 2014

    Hello! Surgery went well yesterday and I am resting at home. The tracer for the SNB was not bad at all and although I'm sore and stiff I have to say I don't feel as horrible as I imagined I would! Sentinel node came back clear but they will still send to pathology to make sure and also to confirm that there were 3 seperate tumors rather than 1 large one and if those two things come out good than no chemo or rads. Still unanswered questions but it feels good to have surgery behind me. The drains are a bit annoying but my sister is a nurse and is here helping me for a few days. Take care of yourselves and good luck to upcoming surgery gals!!

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    Hummingbird, glad to hear you're home and all went well. Thanks for the update - as well as the reminder that I need to make food for my over-wintering hummingbirds :)

  • Galsal
    Galsal Member Posts: 1,886
    edited October 2014

    I'm in the Squishy Club now!!!    That bus was the most fun with the group of those having surgery today.  Got home about 1pm.  All went well.  It's notable that this is the first surgery I've do well after. Since the surgery this morning, I've not slept yet today.  Only just now tired enough to do so.  Left side with Percocet I rate at a 2.  Right side with Percocet I rate a 3/4.  More work was done on that side.  This time there wasn't a problem getting the IV into my hand, although they did need to use a 24 gauge needle.  Post Op took at least one hour longer than normal as they were training an RN on the use of their EMR system. 

    The implants are Natrelle Style 20 Found Smooth Silicone High Profile, 700cc. 

  • Lilith08
    Lilith08 Member Posts: 163
    edited October 2014

    horsemom, it's interesting that they'll let you shower before going home--I was told 24 hours, and I wasn't at the hospital 24 hours post-op. I do like the idea of still being at hospital for that first shower, though! I actually waited about 36 hours, and it felt so good to be clean again. I don't know that I'll take a full shower every day--it was tiring, but I did it myself.

    Weight limit 15 lbs?!? That seems way too much! I was told 8 lbs, which is roughly a gallon of milk. I've only lifted a not-quite full half-gallon of almond milk, and that feels like more than enough. Some others here have mentioned a 5-lb weight limit.

    Sentinel node radioactive dye--are you sure they are doing the radioactive part in the OR? I had the radioactive isotope injected an hour before surgery was scheduled (but then surgery was delayed by almost two hours); once the isotope was injected, I was slid into some sort of imaging machine that took about 5 minutes to create a picture of some sort. For the record, as I know the radioactive injections have been a topic of interest, I had four injections on each side. I don't know exactly how close they were to the areola, but imagine the four corners of a square as the injection sites, fairly close to that area. They weren't pleasant, but survivable. It helped knowing ahead of time that some people have had a lot of pain, and there was also an extra nurse in the room who offered her hand to squeeze :)   The blue dye was used in the OR, and I think that's what I've read before. I got the impression that the radio. isotope is always used, and the blue dye is optional.

    I don't know about total intravenous anasthesia, but if it offers less nausea, that sounds like a winner! Mind you, my nausea really wasn't too bad at all and they managed it pretty quickly.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    Has anyone heard anything from OceanSky? I hope she's doing o.k.

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