Herceptin only for my mom? Help needed!

Options
bethere4mom
bethere4mom Member Posts: 2

Hi there, I am here for my beloved mom. English is not my native language so hopefully I can express myself clearly.

In Jan this year in my home country, my mom was diagnosed with stage1A breast cancer(ER-, PR-, HER2+), the tumors were found in her left breast sizing 1.5×1 cm and 0.2×0.2 cm. Back then I was 6 months pregnant so my mom decided she was not going to tell me about it. She went through left mastectomy and waited about one week and then told me everything. I still remember the day my mom told me about the cancer, it was snowing and I was so heartbroken. In Feb., my mom started chemo (and I couldn’t be with her) AC->T, and the chemo (6 cycles) finished end of May, the same date as my son was born. They did a FISH test and knew it is HER2+, but since my mom was so down both physically and psychologically so she decided not to do Herceptin. (Her doctor didn’t suggest her to do that either) Besides, she wanted to come here as soon as possible to see her first grandchild.

Before she came here, she did a regular checkup and the doctor suspect there might be a metastasis in her 7th rib on her left (based on CT and bone scan) I couldn’t believe it and started to do research online, that’s how I found here. Finally my parents were here last month and I took my mom to see the oncologist. Again, they did a CT, and thank goodness there is nothing suspicious at all!! But the oncologist did strongly recommend my mom to get Herceptin, once every three weeks for one year.

We would like for her to get Herceptin, but we are not sure about the side effect. My mom is 56, she was quite active (exercise daily and paid attention to her diet that’s why it was devastating for her when she knew she got breast cancer), but she hated chemo so much. Her teeth got loose, she lost
her hair (they grew back now). The oncologist said there won’t be as much side effect as chemo like nausea, hair loss etc., but I still would like to know what you think. Are any of you going through Herceptin only? What side effects do you have? Will it be better than chemo?

Sorry for the tedious post, I don’t know how to express my love to my mom. But I would rather it is me not her get the cancer! I was so helpless, scared and now I know I need to be strong for my mom and my newborn son.

Thank you in advance! And I respect you all!

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2014

    So sorry for what you and your mother are going through! 

    We wanted to welcome you to our community and share a few content pages that may be helpful to you.

    This would be a good place to start.

    http://www.breastcancer.org/treatment/targeted_the...

    We are thinking of you! 

    The Mods

  • Sassa
    Sassa Member Posts: 1,588
    edited October 2014

    I was diagnosed in 2006.  I had 4 AC and had a rough time with it.  I then had 1 year of herceptin.

    Herceptin was easy compared to the AC.  I regained my energy and started working out again.

    My only side effects were a drippy nose, weak finger and toe nails, and I always had a slight chill about half way through the infusion and lasting for about two hours after the infusion ended.

    Both the adriamycin and herceptin have cardiotoxicity risks.  Your mother will be monitored regularly (usually electrocardiograms done before the start of the herceptin and every three months during the year. 

    I had no heart issues with the herceptin and many of us don't have the heart issues.

  • bethere4mom
    bethere4mom Member Posts: 2
    edited October 2014


    Thank you Sassa and kayb for your kind reply! It really gives us hope that her life will be normal!

    My mom lost her confidence after the mastectomy and didn't want to talk about it at all. The first thing I did for her when she arrived at US was to buy a breast form to make her feel normal. I know she still have fears against chemo/ Herceptin, but I will let her know what you experienced.

Categories