Had my lumpectomy and SNB on tues. Terrified to get the results

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jovigal
jovigal Member Posts: 41

All went really smoothly with surgery.  Really, those who are waiting, the lumpectomy/SNB wasn't that bad.  Surgery time was 105 minutes total.  There was a lot of radiology "stuff" to go through before hand but nothing painful so that was all good!  They told be the results would take a week from pathology, but then on Friday I got the "feeling" that they were in so I called and left a message.  I got a call back from the triage nurse saying everyone was at a conference but she had talked to my dr. and my pathology report was in along with a couple of other patients reports.  She told me the dr. would call me during a break or sometime after 5 that night.  I waited and waited with my heart pounding out of my chest and never got the call.  

Now the weekend is over and all I can think is she didn't call because it's bad news and she wants to tell me in person at our appointment tomorrow!

Comments

  • RedReading
    RedReading Member Posts: 2,143
    edited October 2014

    You are definitely putting the cart before the horse jovigal. Do NOT predict bad news for yourself as part of this journey relies on a positive and hopeful attitude. I'm sure the doc just got called away or something equally simple. If it makes you feel any better, I waited 23 days for my pathology, which is fairly normal where I live. Keep your chin up - you'll know for sure very soon.

    {{{jovigal}}}

  • jovigal
    jovigal Member Posts: 41
    edited October 2014

    Thanks RedReading!  I go back and forth.  Hard to feel positive all the time.  When I got the horrible news my tumor was "small" 1.8cm and grade 1.  But MRI showed it at 2.5cm and BAM I'm at least going to be stage 2. I think that through me for a loop that was hard to recover from.

    Anyway, thanks for the encouraging words.  I am trying hard to go in tomorrow believing the best :)

  • momand2kids
    momand2kids Member Posts: 1,508
    edited October 2014

    The waiting is hard-- and the weekends are the worst--I waited almost 3 weeks after my lumpectomy and I was out of my mind... 

    remember, sometimes things are smaller after surgery than in the MRI-- that recently happened to me with a thyroid nodule... so don't get too far ahead of yourself.  You will know tomorrow-- and you will be able to deal with whatever comes.   I am 6 years out and really doing great!!!

    good luck

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited October 2014


    Hi Jovigal,

    Just wanted to say "hang in there."  I know how stressful the waiting can be.  I wanted to let you know that on the scan, my tumor appeared to be about 2 cm.  After the lumpectomy, the pathology report indicated that it was a little less than 1 cm! 

    Tomorrow will be here before you know it ... please let us know the results and how you're doing.

    hugs,

    Bren

  • jovigal
    jovigal Member Posts: 41
    edited October 2014

    The results were not what I had hoped for.  Tumor 2.4 extensive vascular invasion. 3/4 nodes positive.  Margins not clean.  I'm a wreck.  I feel like I'm not gonna live to see my boys grow.  

  • momand2kids
    momand2kids Member Posts: 1,508
    edited October 2014

    Hi

    I am sorry that you did not get the result you hoped for.  But there are many here who have had your dx, done treatment and are thriving.   With positive nodes, chemo may be likely, which is a good weapon to have.  Now you and your docs can make a plan--- I know this feels very hard, but once you have a plan of action and can start executing, you will feel more in control.

    hugs all around

  • zha-an
    zha-an Member Posts: 31
    edited October 2014

    oh sweetie...I'm so sorry that you were one of the unlucky 20%. I remember how devastated I was to receive that call. My surgeon had been so sure it would be benign and I allowed myself to hope....

    even with positive nodes you can beat this! There are many effective treatments. There may be rough days to get through but i/we are here for you and will do what we can to support your journey.... Process your shock, express your fears, assemble your medical and support teams and move forward one step at a time. Will they do a re-excision to get clean margins or knock remaining cells out w chemo or radiation? Have they given you a plan yet? I'm new on this journey and have found the waiting to be the hardest part. Now that a plan is coming together I am handling my Dx better. Hopefully that will work for you as well. Make sure your medical oncologist is someone you trust and can talk to. My first one didn't do it for me so I met w another one yesterday and she's a keeper! If I can do anything to help from afar just message me. With a lot of help you can do this!

    zha-an

    there are many smart women on this forum who have walked this path before us..continue to reach out....

  • aMtn4me
    aMtn4me Member Posts: 34
    edited October 2014

    jovigal, I don't have any words of wisdom or experience to give you other than I am thinking of you and wishing the best for your treatment and recovery.  I think momand2kids and zha-an gave you the best advice so far, so keep coming here and reaching out....we all know the feelings of devastation but you're not alone here!

  • jovigal
    jovigal Member Posts: 41
    edited October 2014

    Thanks everyone.  I have good and bad days.  When the surgeon gave me the results she made me think I would have mets.  My bone scan and CT were clear (except for 1 small lung nodule that they are not worried about) but I don't trust the scans and tests anymore.  My lymphs were "clear" on the MRIs and ultrasound but not so when they took them out.  My tumor was 1.5cm and grade 1 to begin with and now after lumpectomy it's 2.4 cm and grade 2.  I'm surprised I'm still ER/PR+!!  Just seems like everything they told me at the beginning ended up being way wrong, gave false hope and I was blindsided with my actual path report.  I'm not angry.  I'm just distrustful.

    Next step is mastectomy then chemo then rads.

    I'm scared of all future scans now :(

  • Holeinone
    Holeinone Member Posts: 2,478
    edited October 2014

    jovigal, it sucks ! I wish they would do a better job explaining to ladies that UNTIL they get in there, and remove the tissue, they don't everything. 

    I was convinced I would have 1 node positive. I did not have a MRI. Turned out 6 nodes, matted & fused together, cancer growing on the outside. Very scary indeed. 

    The next year will be bumpy. Chemo is hard. I finished 10 months ago. The side effects of chemo varies. Some ladies report that it was minor for them. Connect with the ladies here on BCO that are going through chemo the same time as you. Share your grief. I am sure you have a wonderful family & good friends. They will never "get it" because they are not living it. The ladies here get it.

  • aMtn4me
    aMtn4me Member Posts: 34
    edited October 2014

    Sorry that you're having to deal with this. I understand the not trusting anything! I am still dealing with that myself and can relate. This dx kind of makes you distrust everything but you can and will get through this. Not easy that's for sure. If you want to just vent then go ahead and if you want to cry do so but keep picking yourself up and trying again. Sending you cyber hug!

    Debbie

  • cp418
    cp418 Member Posts: 7,079
    edited October 2014

    jovigal - I had a very similar experience as you. I was initially told stage 1 because they missed the positive lymph node during ultrasound screening. Then during pre-op chest x-ray find lung nodule which also showed on PET scan.  So I was bumped to stage 4 until a lung biopsy was performed and confirmed it was benign fibroma.  They never sent me to a pulmonary specialist and no one listened to my medical hx of multiple bronchitis illness.  Next, I had a lumpectomy and 1 positive sentinel node after removing total 18 nodes.  Oh and we don't know if we got a clear margin so we need to repeat the surgery.  Would I trust again - not likely, which is why I ask lots of questions and research to be informed.  Just take one day at a time and come here for support.  There are many women who have done the same journey you are about to begin.  Best wishes and Hugs, Joann

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited October 2014

    jovial I am so sorry you have to go through this.  I was told I was stage 1 and 4 different doctors didn't feel there was any lymph node involvement.  My tumor on ultrasound was 1.5cm.  I thought it was just going to be lumpectomy and radiation.  Um no - my tumor turned out to be 2.8 cm and I had one lymph node out of three positive. So that put me at stage IIb.  That bought me a ticket to chemo and I was devastated.  I swore up and down I was not doing chemo and here I am already halfway through.  Hang in there this road stinks, but you'll get the proper treatment and put this beast behind you.

    Nancy

  • Racy
    Racy Member Posts: 2,651
    edited October 2014

    jovigal, I'm so sorry you are on this rollercoaster. Hold onto the good news that your recent scans were clear. This is not an easy process but your cancer is definitely treatable. Keep in touch here and the ladies will guide you through every step. 

    Look after your emotional wellbeing and general health as you proceed with treatment. This will give you the strength you will need to make it through.

    Most of us found treatment doable, though not fun and there are many survivors here.

    Tomorrow marks the fourth anniversary of my diagnosis. Though I still think about cancer and mourn having gone through it, my life is otherwise very good.

  • AGL
    AGL Member Posts: 3
    edited October 2014

    Its hard to stay positive all the time jovigal, but who doesn't worry when things aren't going right.  I call it being HUMAN and the great thing about being humans is that we have HOPE. So think of the hope you have and let that HOPE bring you happy thoughts and just remember no matter what the news there is always HOPE. Keeping you in my thoughts.

  • Quilter1
    Quilter1 Member Posts: 3
    edited October 2014

    I truly understand where you are coming from.  I don't feel like I'm getting answers in a timely manner or at all for that matter.  I don't think some doctors understand how we feel.  Hugs and tomorrow is almost here.

  • jovigal
    jovigal Member Posts: 41
    edited October 2014

    Thank you all for your support.  I hate that we are all here.  I hate how terrified I feel all the time. And I hate statistics!  

    Guess I'm in the anger mode today.  LOL

  • momand2kids
    momand2kids Member Posts: 1,508
    edited October 2014

    I think it is common for the results to change after surgery--- they just cannot know everything until they get in there-- I was a 1.2 cm girl, stage one on testing--- turned out to be 2.5 cm stage two afterwards.  Ironically, with my thyroid, they thought it was 25 going in, but it turned out to  be 1.7cm--so sometimes it works in reverse.  

    it is terrifying, but it gets better.  I highly recommend getting some ativan from your doc to help you get through the next few weeks.  the testing, dr. visits, etc. can be exhausting and draining.  the ativan will calm you down.  If you need a sleep aid, ask for that too.... you need all the help you can get right now.  You won't need it forever, but now is a good time to have it.  I rarely used the ativan but I liked having it in my pocket.  

    Hang in there-- it will get beter

  • thrifty1
    thrifty1 Member Posts: 67
    edited October 2014

    Hi jovigal...I'm new here too. Just had my lumpectomy and SN biopsy yesterday.  Now the agonizing wait for Monday's dr appt.  Wondering if he will have the Oncote score results at that time too or what.  You are in my prayers girl. I agree hard to stay positive all the time.  But keep pressing in and fighting!

  • thrifty1
    thrifty1 Member Posts: 67
    edited October 2014

    Hi jovigal...I'm new here too. Just had my lumpectomy and SN biopsy yesterday.  Now the agonizing wait for Monday's dr appt.  Wondering if he will have the Oncote score results at that time too or what.  You are in my prayers girl. I agree hard to stay positive all the time.  But keep pressing in and fighting!

  • Snowgirl63
    Snowgirl63 Member Posts: 83
    edited January 2015

    Can someone please tell me what superior and inferior superficial margins are. No doctor available over the holidays and having so much anxiety over my pathology report?

  • tgtg
    tgtg Member Posts: 266
    edited January 2015

    snowgirl--"Anterior" and "posterior" margins are the ones on the front and back edges of the tumor and its surrounding tissue. It also has inferior and superior margins--lower and upper ones.

  • thejoyk
    thejoyk Member Posts: 5
    edited January 2015

    I'm scheduled for lumpectomy which says partial mastectomy on my paper work and SNB in the morning. I was planning on going back to normal activities on Wednesday, but I've heard a couple of horror stories just today and I'm wondering what to really expect. I'm a single parent with an 8 and 11 year old, so I really need a heads up.

  • tgtg
    tgtg Member Posts: 266
    edited January 2015

    thejoyk--Here's a non-horror story to counterbalance the ones you heard yesterday. My lumpectomy (officially termed a "partial mastectomy") on a Monday morning, and on Wednesday morning I felt fine and went to the gym, worked out (legs and cardio only--no arm work) for 90 minutes, and felt great afterwards. A lot of the speed of your recovery depends on the physical shape you are in and also on having no adverse reactions to anesthesia or other meds, Just take your return to normalcy one step at a time, and do what you feel up to doing.

  • Professor50
    Professor50 Member Posts: 220
    edited January 2015

    I'll add my non-horror story. I had my lumpectomy on the Tuesday before Thanksgiving. On Thursday I was happily eating Thanksgiving dinner with all the trimmings and feeling a little guilty that everyone was doing all the work. My doctor simply said, "No jiggling" so I did alot of walking instead of running. I also wore a jogging bra 24-7 for the first few days. I was back running a couple miles in the morning of the following Tuesday. I really did feel pretty much normal once I stopped taking the prescription pain killers and switched to plain old tylenol.

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