October 2014 Surgery Sisters

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  • colbelli
    colbelli Member Posts: 16
    edited October 2014

    thinking of you and sending virtual hugs!

  • Fourminor
    Fourminor Member Posts: 354
    edited October 2014

    OceanSky, Love your pug!!! Pugs are great dogs.  The video is cute!

    I have two cats, one of which I call my angel, who has been sleeping at my feet pretty consistently since my diagnosis in August.  I found him on the street as a kitten 7 years ago and subsequently went through a bad breakup where he made me laugh every day.  I feel he is pretty intuitive to me and his post op cuddling proves it.  

    I also have a 1 year old lab/pit mix who is a sweetheart, but not the brightest dog I have known.  I did worry about her jumping on me, but my son was the one who did that.  

    Haven't heard about keeping your animals out of the house for this.  You can ask your doc to be sure, but I'd just ban him curling up on your chest or under your arms.  Most likely if he's smart, he will know something happened to you and will understand. 

  • colbelli
    colbelli Member Posts: 16
    edited October 2014

    Thanks for raising this topic we have three dogs two of which are nearly always touching me.  I did just order fresh dog beds for them but had not discussed them being in the house or bed with me with the ps.  I has been concerned about them jumping on me...maybe this is a good job for some of the people that asked if I need anything.     Thx again...good stuff.  Colene

  • colbelli
    colbelli Member Posts: 16
    edited October 2014

      I just ranted yesterday about breast cancer awareness month.........I'm aware!     The car wash in my area painted pumpkins pink -not pretty...pepto  pink! And will donate  a portion of a deluxe treatment _after you buy basic wash from them_ to breast cancer awareness...Again.....very aware!    How about the socks, lanyards, hats, etc that are for sale with no proceeds to any group?       Marketing madness...This is a disease. Not a profit builder.  My mission and yours if you choose to accept it.. omit the sock and car wash and  find a friend who is late getting their mammogram and get them to go.....If they are all current...tell them to find one and do the same.    This is my ask to all who offer help...I also don't refuse their offer to pick up a pizza for me post surgery! 

    Thanks all for the therapy!

    Colene

  • OceanSky
    OceanSky Member Posts: 165
    edited February 2015

    jbdayton, That's what the surgeon told my sister who also had a double mastectomy.  No Dog in the house! No one told me that.  My sisters surgeon also told her the house had to be scrubbed top to bottom.  No one told me that.

    Jbdayton, did your surgeon say how long the dog had to be out of the house?

    Am thinking of sending the dog to his 'sitter'...A very expensive plan because I have 2 surgeries 10 days apart.  Uggg.  He also has to take medication 3 times a day.  Am thinking I should do it though.  

  • OceanSky
    OceanSky Member Posts: 165
    edited February 2015

    Fourminer, thanks for sharing about your pets!  I'm an animal lover too and work with rescue dogs...Fostering etc..

    Colene, I don't think my dog would 'understand' me shutting him out.  He is a literal cling on and always seeks me out.  He would just sit outside the door and cry.  Think it's different if you have more than one dog...They can hang with each other.

    Think this is a serious topic though, at least for me.  

    Anyone who sees their surgeon today...If you ask about this please let me know.  I'm up on Monday so need to figure this one out.

  • Akitagirl
    Akitagirl Member Posts: 142
    edited October 2014

    Hi Everyone,

    Very interesting discussion about dogs - I have two, plus a cat, plus two daughters (importance not necessarily in that order...on most days :-)  Let us know what the advice is!  Also, it would be interesting to see what different BS recommendations are in different parts of the country.  Colorado is a well-known dog state, so I will be surprised if my BS recommends temporary banishment.

    Well, the end of October surgeries are coming up.  I start my last week of work on Monday, and admit to actually looking forward to some time off.  Would have never chosen this reason, but I guess I'll just make lemons into lemonade.  October 28th is coming soon, and I think I have finally come to terms with the BMX and with losing my left nipple.  As stubborn as I have been, I finally came to sanity when I received my MRI results this week.  There is a new lesion 3 mm directly under my nipple with a subtle linear tract extending all the way to the nipple.  Guess there is no saving it.  Before I found out about my PTEN mutation, I probably would have considered taking the risk and just watching it for change, but with this knowledge, it would be stupid of me to leave any cancer cells standing ready for uninhibited replication! 

    I also think I have come to a decision about what to do with the nipple space.  Instead of creating a new one or tattooing a nipple - I am seriously considering designing a beautiful tattoo of some sort - perhaps roses to show beauty and pain, or thistle, or perhaps dogwood blossom...  At any rate, there is a new sense of peace and significance.  

    Have a great weekend, everyone!

    Akitagirl

  • Sacnaillady
    Sacnaillady Member Posts: 59
    edited October 2014

    hi all. Posting from my hospital bed! Things went good. My flap is doing great, lots of blood flow no leaks. I would say I'm in the B CUP range. I have felt pretty crapy until today I have not eaten much.  Hopefully today. They may let me go today or by tomorrow for sure. The only thing that we wrong during my 12 hour surgery was that they took the first flap from my right buttock and it could not be used to the had to go to my left. I now have giant soar scars on both cheeks. Anyway. Just checkin in. I'm alive and well. 

  • Togetherness
    Togetherness Member Posts: 202
    edited October 2014

    Hello, just checking in on everyone.  I am doing much better no more fevers, arm movement is better and best of all off the pain meds. I still am having terrible back spasms.  Dr. said it was the tissue expanders settling in and pushing on nerves and muscles. I go back to the dr on Tuesday.  Gonna take one more week off work to rest ad let my body heal.  It will be two weeks since surgery on Tuesday.  I don't think I am ready to state the fill yet with the TE.  We will see what he says.  I will follow his lead this time.  I usually boss him around and look where it as gotten me...... Lol. One must be patient through this process and I am not.  Trust me I gave learned to listen to my body and that is key.  Hope everyone has a restful weekend.

  • Fourminor
    Fourminor Member Posts: 354
    edited October 2014

    ouch on the butt cheeks Sacnaillady!  Glad to hear the overall objective was successful.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    So sorry to hear the details of your MRI results, Akitagirl but glad you are feeling a sense of peace about your decision. (Hug.) 

    I wasn't given any instructions about animals in the house - no one even asked, but then I'm only dealing with lx and ALND. My cat sticks pretty close to us and would certainly be very unhappy to be banished from the bedroom - he sees it as his duty to be there with us when anyone's ill. My feeling is that our bodies are used to our usual germs and whatever's floating around the house and I'm not going to sweat it, when I do have surgery. As for scrubbing the house from top to bottom - it is NOT going to happen! Get real.

  • Swoobs
    Swoobs Member Posts: 82
    edited October 2014

    I'm on day 10 post op

    I had the dye the day before and I'm not into sugar coating anything

    I hated it ....very painful for 2 minutes then it's over 

    My dog has been by my side since day 3 ,she knew something was "off"

    My daughter lifted her several times for me to pet her to calm her then I used hand sanitizer 

    By day three she was my pillow for my one arm !!!!!

    image

  • SCMom
    SCMom Member Posts: 112
    edited October 2014

    Hi Swoobs - is everything still going smoothly for you?  You went home the same day of your surgery and had your drains out in 3 days...is everything else progressing so smoothly?  And if you don't mind my asking, are you happy with your implants and how they look?  Not trying to be nosy, I'm having the same surgery next week!

    My surgeons never said anything about pets.  I have a yorkie that can't get on my bed unless he's lifted up, but I think I will find him to be extra comforting for me after surgery. I imagine that I'll be more exposed to germs that my son will bring home from school!  And I'm with Hopeful on scrubbing the house...I do have the time but it ain't gonna happen!

    Question...I went and looked at recliners at my local Rent a Center...they were pretty comfy and just over $100 for a months rental which includes pick up and delivery. I'm just concerned about the sanitary-ness of it...nothing in the store seemed particularly clean and of course I have no way of knowing where it's been in the past. Is there a good way to sanitize a recliner?  Thanks ;)

  • horsemom
    horsemom Member Posts: 96
    edited October 2014

    SCmom

    I'm having the same surgery the week after you and am also very curious about swoobs recovery. 

    As far as the recliner...I would Lysol it, then throw a fitted twin sheet over it. That's what they do at my MILs senior home and it seems to work and fit well. 

  • SCMom
    SCMom Member Posts: 112
    edited October 2014

    Horsemom, I'd be so happy if my recovery went as smoothly as Swoobs seems to be going, and she looks great in her picture!  I'm hoping that I'll feel good enough to give daily updates after my surgery. Thanks for the advice on the recliner...a friend had also mentioned Lysol, I hadn't realized it worked so well!

  • Swoobs
    Swoobs Member Posts: 82
    edited October 2014

    hi ladies

    I would use Lysol wipes and clean the crap outta that rental chair....do not go without a recliner!!!!!

    I did come home same day! The biggest complaint is my right side had the lymph node biopsy sooooo my implant is kinda "stuck" between the pocket and the "hole" from the biopsy....I'm told it's ok and to keep massaging my implant into place, it is working but slowly.

    My lefty is awesome by day she fell into place....

    My drains were out day 3 today is day 10 and I do have a wee bit of fluid around my implants

    I can brush my teeth shower dress light tidy of house 

    But no cleaning cooking laundry etc etc

    Pecs too angry to do anything else

    My boobs are a rainbow of bruised colours but otherwise look great

    My dressing came off day 3 just left with steri strips which have all fallen off from showering (since day7)

    I'm wearing a sports bra since day 8  to try and get fluid off and keep implants shaped

    You'll love the doggy company I know I am

    Any other questions ask away

    I will say I was TERRIFIED I've recovered very well with no issues and no surprizes I'm shocked it's been this smooth....I've had amazing support my daughter stayed with my husband the first 3 nights and they were amazing and very loving

  • SCMom
    SCMom Member Posts: 112
    edited October 2014

    Swoobs, thank you SO MUCH, I can't tell you how reassuring it is to read about your recovery. I'm terrified and while I know everyone recovers differently I'm going to pray that mine goes as smoothly as yours. Please keep us posted!

  • Swoobs
    Swoobs Member Posts: 82
    edited October 2014

    I'll be checking in every day now, so feel free to ask for reassurance 😁

    This is about 16hours after surgery!(look close drains on each side large ones)

    I used 12 hour slow release gravol pills for first 5 days, (not sure this is accessible in the USA )it helped me with the pain meds and I had an appetite

    So I ate bananas (obvious) baby food in junior jars like apricot and prune 

    Soup and crackers

    Toast and peanut butter 

    image

  • SCMom
    SCMom Member Posts: 112
    edited October 2014

    Thank you Swoobs!  You look adorable and happy in this picture, certainly not like someone who just had this major surgery 16 hours earlier. I had to google gravol pills, in the US they go by Dramamine. I'll have to ask my doctor about that, the less prescription medicines the better. Are you on pain medication still?  With the steri strips gone do you have  stitches still or have your incisions completely closed up? Is lymph node biopsy the same as lymph node removal?  I'm wondering if I'll have the same issue with one implant gravitating towards my armpit. But then again if that's the worst of my problems after surgery I'd be thrilled!

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited October 2014

    Yes, I was the one that said the radioactive isotope SNB injections felt like bee stings. I had 2 injections in each areola. Ouch for sure, but it only lasts 5 seconds. Don't panic! It's not like somebody is pouring alcohol in a cut...that would hurt like hell. This is only a short sting, so relax! You can get some Emla cream anesthetic if your doctor orders it. Two radiologists did my injections at the same time so it would be over quicker, but of course it was a double sting. (They do it around your nipples in the areola.) They massaged after the injections and that helped it feel better quicker. It stings because the material they inject has a different Ph than your body. (I've heard that sometimes they don't inject it into the areola and instead inject it into another place on your breast which is less "stingy" because there aren't so many nerves there.) Some lucky women claim they got isotopes and didn't feel a thing.

    The blue dye is a different injection completely. It doesn't hurt. You can get it before surgery instead of isotopes or during surgery even if you already had isotopes or not at all. 

    OceanSky, most of us are not told to avoid our house pets during recovery. There are lots more germs in the hospital than in your house. Do you have young kids? They can be a little hot bed of virus and bacteria from other daycare or elementary school friends. You sure don't want to get a cold and sneeze or cough with fresh incisions ...ouch, ouch, ouch!

    I know some women like Jbdayton who had awful healing issues and extraordinary precautions had to be taken. I have another friend who kept getting infections and she was told to cover her furniture with clean sheets, bathe with special soap and to stay isolated from kids and pets.There's little cross-contamination between animal illnesses and humans but that being said, you should avoid cleaning up after your dog. Let somebody else take care of that. Same with cats. Stay away from the cat box. Let somebody else take on that task for the first couple of weeks.

    I had a serious infection for several weeks and was on strong IV antibiotics even at home, but was never told to keep my cats away. In fact, I usually had at least one or two on my lap at all times. However, if your doctor says differently, I'm sure you will follow his advice, as you should.

     

  • SCMom
    SCMom Member Posts: 112
    edited October 2014

    Sandra, I have Emila cream for when I get my port accessed...do you think I can go ahead and use it on my areoles?  Or my entire breasts in case they do the injections somewhere else?  

  • Swoobs
    Swoobs Member Posts: 82
    edited October 2014

    yes they took lymph nodes  so yes same thing

    My stitches on the outside are gone yes very very bruised

    Are you having alloderm ?

    And are you having saline silicone or gummy bears?

    The implant will move it's come along way in the last 48 hours

    I'm taking Advil during the day (mostly b/c the implant issue)

    I take a sleep aid and btw I'm on my back 95% still.

    I also take a narcotic at night before bed for pain similar to T3

    Not bad for day 10

  • SCMom
    SCMom Member Posts: 112
    edited October 2014

    once again Google is my friend, I didn't know what alloderm was. I don't think I'm having it, my PS never mentioned it.  I have 24 year old implants in now, so I hope it will be as simple as taking them out and popping the new ones in. I dont know what type or even size of implants I'll be getting...I tried discussing size with the PS last week and hopefully made it clear to him what I did and didn't want...I don't want to wake up from surgery to any huge surprises!

    Not bad at all for day 10, you should be so happy!  

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited October 2014

    Swoobs, I think what you had was the radioisotope injection, not blue dye. Isotopes sting, blue dye doesn't hurt. Some people assume they got isotopes and say it didn't hurt. Having gone through it, I don't see how someone can say they didn't feel a thing. I suspect what they got was blue dye, not isotopes. OR, they are super-humans with a sky high pain threshold. I had read about SNB prior to my BMX and asked my breast surgeon for Emla cream. He was surprised and said I wouldn't need it and that most people said they hardly felt a thing. When I had the injections and certainly DID feel something, it frightened me. I was not prepared for it and kind of panicked, thinking there was something wrong with me. Tears sprang out - and I'm sure my blood pressure shot sky high. Of course, as I said before, it doesn't last long and it certainly isn't the worst thing in the world. But, when you aren't expecting anything and get a big dose of SOMETHING, it is scary.

    After surgery when I spoke to the doctor about it, he apologized and said when I asked him at first, weeks before surgery, he thought I would just have the blue dye. Sure do wish he'd thought to tell me when he changed his mind. I made him understand that a woman is already pretty upset knowing she is going to have surgery without an unpleasant "surprise" like that. We are prepared to feel pain after our surgery and though we want it to go away, we know that it's normal. We deal with it better because we were expecting it. He promised he would never tell a patient that SNB was painless. It might not be. 

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    Good for you, Sandra. Women all over the region owe you a big thank you for speaking out.

  • 3littlebirds
    3littlebirds Member Posts: 101
    edited October 2014

    I saw the PS yesterday and got the last of my stitches out. Right side looks really good but the left side didn't like the tape and is red and angry looking. Otherwise, things look good and I go back for follow-up in two months.

    An interesting side note: I had heard that sometimes medical insurance will pay for post mastectomy bras. I asked my PS, and she told me that since I had reconstruction, they probably wouldn't cover bras. I called my insurance company, and it turns out they will cover them. They will pay for a one time purchase of prostheses or bras, up to $1000, 90% in network and 60% out of network. I just need a prescription from the PS. I know I am a smaller size than I was and will need new bras, so it was definitely worth the phone call. Even if I go out of network (like to Norsdstrom, for example, where they have surgical fitters), 60 % is better than 0%! 

  • Galsal
    Galsal Member Posts: 1,886
    edited October 2014

    Rented a lift chair recliner from a Medical Equipment store for the first two surgeries.  They get sanitized and it was $150/mo. By third surgery I just bought a used Lazy Boy one.

  • Swoobs
    Swoobs Member Posts: 82
    edited October 2014

    I'm assuming you are having a mastectomy scmom?

    So they will need something to hold the pocket and flap together before they can add the implant.

    Are they attaching it to your pecs?

    Sandra yes, that's what I had! And it hurt very much the tech tried to tell me I'd feel a bee sting

    I told her my friend had it the week before and I knew better!

    Like I said it killed....briefly

    Laying in the scanner after was very annoying the day before surgery

    There were a 100 other ways I envisioned me and my boobs spending their last day!

    A massage ,a dinner date,  a movie , a mani/pedi but not THAT!

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited October 2014

    Good idea, Galsal. Hadn't thought of that.

    Recliners don't have to be real expensive. If you look around you can find them for about what it would cost to rent one for 6-8 weeks. Some of the moderate priced furniture stores (Rooms To Go?) even have them on sale fairly often. Since the holidays are coming, you'll find deals. I've also seen them for less than $200 at Big Lots.

  • OceanSky
    OceanSky Member Posts: 165
    edited October 2014

    Swoobs, cute dog and pj's. 

    Glad everyone is recovering well.

    The pet issue...  On Monday I have the double mastectomy but I don't get the 'immediate' implants until 10 days later from the PS.  From his end I'll be wrapped up like a mummy with instructions not to shower or touch the bandage for a week until I come in for my one week check.

    So the PS nurse wasn't too concerned about the dog, meaning he wouldn't be able to get near the incision.

    The mastectomy surgery though is different.  Not much in the way of bandaging, so I'll go with what at least 2 surgeons I know of have stated...No dog.  It will be very hard.  My dog is a cling on.  Hand sanitizer is on the list though.

    So is the dye the same thing as tracer?  

    As for scrubbing the house...I'd like to do a great job, but my goal is to have the main part of the house look good.  Have discouraged people from bringing food, I don't like seeing people when I feel crummy.

    Sandra, no kids, just my husband and the dog.  You're right, animals don't transfer disease to people but in terms of infecting an open wound I think they're pretty powerful germ carriers.  Regardless of choice on it, I think sanitizer is a great idea.

    Keep healing...

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