Diagnosed 10/6/14

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Nursie
Nursie Member Posts: 28
edited October 2014 in Just Diagnosed

hi everyone,

I have invasive ductal carcinoma. I'm scared out of my mind. I meet with plastics tomorrow and the onco on Wednesday. My mind is mush, my family is heartbroken and I have fears I can't even let them know I'm having  

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  • Morwenna
    Morwenna Member Posts: 1,063
    edited October 2014

    Sorry to hear your news. It sucks indeed, but, you WILL start to feel less panicked once you start active treatment, and although it is a white-knuckle rollercoaster of a ride, you WILL get through this deal and out the other side. 

    There are so many supportive women on this board, that whatever you are thinking, feeling, fearing, others who have been or are going through it currently, and who will totally get it are here 24/7 to listen.

    So come as often as you need. Ask questions. Read the info pages. Rant away if you want. It will be okay. xx

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2014

    Nursie: Try not to let yourself take a nosedive.  You don't give a lot of info on this thread about the rest of your diagnosis (as you don't even have all the stats yet of course), but know that you may well be saying someday, as I do "I had IDC."  This diagnosis does not have to be what you might be worried it can be.  So hang in there as best you can, listening to your docs and collecting info (and getting copies of reports because there is a good chance you'll be bombarded with information and not be in a state to remember it all while you're in the appointments).  I read on another thread that you said the doc won't release your reports.  That's not legal; I'm sure you know that.  You are entitled to that information.

    It's clear you want to talk about this with people who understand where you're at in your journey - and there is nearly always someone here to listen.  Best to you as you move through this.

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  • Maureen1
    Maureen1 Member Posts: 614
    edited October 2014

    (((Nursie))) so very sorry you've had to join us but as others have said, you will find a lot of good information and support on these boards as you start your journey…we know how it feels to be blindsided by this beast, the fear and shock were so overwhelming for me when I first got the news, I couldn't stop crying, I couldn't sleep, and my mind was racing as I thought of all the worse case scenarios. Thankfully my medical team was supportive and quickly developed a treatment plan that gave me some sense of control. And, they made sure I had what I needed to sleep and calm down - medications are not a bad thing when you need them! I hope you have your treatment plan soon, I'll keep you in my thoughts and prayers, (((Hugs))) Maureen

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  • Nursie
    Nursie Member Posts: 28
    edited October 2014

    thank you all! I now know why they wouldn't release the reports to me. They were waiting for pathology because the mammo and sono both said "high probability of malignancy" and they didn't want me to freak out. When I met with them they have me all the reports. I'm keeping a notebook and folder with everything in it and taking notes,

    I'm 37 and have a 6 year old son.  Not sure what to tell him yet. I am a very positive person and I constantly make jokes about everything. I do look on the bright side and I know it will all be ok. Just scary! 

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  • mdg
    mdg Member Posts: 3,571
    edited October 2014


    Take a deep breath.  My son was 4 when I was diagnosed.  I waited to tell people anything until I had a good idea of what I was going to do.   The beginning is the hardest part.....it will get a little easier when you have a treatment plan in place.  Hang in there.....hugs!

     

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  • Irishgal1963
    Irishgal1963 Member Posts: 2
    edited October 2014

    it is healthy to express your feelings! Good for you! Take really good notes and keep good files of everything. It is very hard until you have been given more info and choices. We understand. Meditation helped me so much. I had never done it before but was grasping at straws to relax and feel good mentally after my dx. Just google meditation music or beginners guide to meditating. it is free and you just need earplugs:)) I just had my exchange (implants after double) mastectomy on Friday! I feel great. Time to continue healing. Everyone here is so helpful and have experienced most of the feelings you are so keep coming back. Hugs!

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  • bettysgirl
    bettysgirl Member Posts: 938
    edited October 2014

    The beginning is indeed the most scary time. Waiting, waiting and more waiting. BC.org helped me so much to put things into perspective and to learn more about my pathology. It seemed that once i met with the doctors and had a plan I felt better about the whole thing. The only thing I MIGHT have done different was to have the chemo first and surgery after but I was more interesting in just getting it out. The pros to having chemo first (if needed ) is to know that it is responding to the protocol. Once I had the bi-lat, It was just a matter of choosing the best protocol for my dx and going from there. Best Wishes to you.

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  • Lisamarie6864
    Lisamarie6864 Member Posts: 24
    edited October 2014

    Hi Nursie. (((Hugs)))))

    I am so sorry you are going thru this but you found a awesome place for info and support.  We can say we know what your feeling. By far the point you are in is the hardest. I was in a fog for that 1st week of not knowing what  my diagnosis was exactly and WAITING for results. Gather info slowly only on sites like this one and know everyone of us will have different journeys. I have a bracelet that says "trust you journey". I am trying to do that.  You will get thru this...everyday a little easier....one day at a time.  We are here for you and you will be surprised if and when you tell friends and family, how much they will help you along. 💗trust you journey

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