Orlando Chemo ladies?
Comments
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Thank you for the warm welcome. Yes, Florida Hospital Orlando. I see Dr. Molthrop this Thursday for a final consult before he sets my treatment start date. I'm just terrified about all of this. I was surprised by the lack of any type of privacy in the treatment area. I'm a crier and being around all of the people getting treatment will likely make me even more anxious. What do/did you bring to treatment? They told me to bring a pillow and a blanket. How bad does the use of the port hurt? Ugh, I have so many questions.
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llovecoasters, it is normal to feel anxious, I don't know what you can do about the lack of privacy, some infusion centers have curtains to partition chairs but from what I read in these last posts I guess the one you go to doesn't have. As has already being suggested hydrate like crazy both before and after treatment. Even though I am not currently getting chemo but I do have a port and go for monthly Zometa infusions (bone strengthener). The only "pain" from the port is in accessing although to me it feels more like a "stab" without a needle. They can numb the area if you want them to but that means another needle so I prefer to go cold. If you have a friend that can come with you to keep you company that might help you distract you from the anxiety. After you are done with treatment make sure you have someone to drive you home as you might feel to weak and nauseus to drive. I wish you all the best and sending (((hugs)))). I hope the others come and offer other suggestions as I am kind of rusty on the subject.
Aurora
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Your doc may prescribe you liticane cream to apply before you come in for treatment. That will numb the port. I put cling wrap over it. The office I went to also had freeze spray in case you didn't have the cream. I have an appt on the 7th for a flush and realized I threw out the cream. I need to call them to get another script.
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I had my chemo at Fl Hosp on the 6th floor. Crowded, awkward, busy. Thank goodness my daughter works in that office! Don't freak out yet, LoveC....this will become somewhat routine before you know it. I would love to chat with you if would like. I think I can give you lots of information... Btw, I am also a nurse! I will PM you my number- jeanette
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Thank you. Jbokland thank you for being so kind. You were on the same chemo cocktail I will have and I see you also had lobular. I'm so glad I found this group. Where can I go in the area for some soft beanies to wear at home?
Michelle
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Michelle - Eden spa carries them (lobby of Fl Hospital.). You might need the warmer variety for "winter" though.
Jeanette it was so nice meeting you today! Thanks for the sassy head!
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nice to meet you too!
Strength in numbers Ladies! Stick together!
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Good afternoon Orlando friends. I'm 3.5 weeks out from my mastectomy and my work is anxious for me to come back. I'm averaging 2-3 dr appts a week, port surgery is 10/21. Did or are you working through treatment? I'm so nervous about returning not knowing how I will react to chemo. If I stay out through treatment, I'm on fully paid leave. If I return and just need a day off for treatment and then for neulasta all are without pay. My job is super intense, 70 hours a week and I'm in and out of 17 different schools. Just need some down to earth advice.
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hi llovecoasters, tough choices...I was a teacher myself but by the time I was diagnosed with bc I had retired as a teacher and was working in customer service which made it easy for me to continue to work through treatment. We each respond differently to treatment, I lost my hair but for the most part I kept my strength and was able to work. I did not have paid leave so for me it was not a choice. If I was you I would stay on leave since that is fully paid. The first rounds of treatments are full of appointments and that may cause more stress for you if you back to work. Just my opinion. Praying for you to have clarity of mind so you can make the best decision for you, (((hugs)))
Aurora
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I worked from home, very few hours per week. You will find you are fatigued easily not as mentally sharp during chemo. My biggest fear was doing something goofy at work. Most importantly you body needs to fight and heal! Added stress and fatigue are not good. Are you going to get AC?
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I worked through treatment. My job is commission only so I was very concerned how this would affect my income let alone my job. I have a great boss who told me to come in when I could and stay home when I needed to. I also had a partner at work that took my appointments and wrote deals for me so I was truly blessed!!
You might consider FMLA - I couldn't because I would have lost a lot of money. 70 hours a week is too much in my opinion especially if you have A/C. It put me on my butt for 5 days easy.
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dr zehngebot said I could take an oxycodone before treatment so I did. Lidocaine cream over the port helps. Florida treatment room is not very private. I did like ORMC better for that. But the nurses were great. I took an electric blanket which they had no issue with. At ORMC I often shared a room so it wasn't completely private either. Personally if I had fully paid leave I would take it. I had the same chem regime and you need to remember your ability to fight infection is impaired.
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Yes, 8 weeks of AC then 12 Taxol. It is not just the hours I'm worried about, I also do a lot of driving. I am hoping my MO will write me a note keeping me out until we see how I respond. As long as it is continuous leave it is at full pay and full benefits. Wish me luck, tomorrow I find out about radiation. my margins were all clear, so I am hopeful....
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Love I would fully expect radiation. It's not clear margins that determines it. It's the size, location, etc. I believe it's also standard of care. Is your AC dose dense ( 4 treatments over 8 weeks?).
My offer is still open
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Oct 25th is Making Strides walk at Lake Eola. Anyone want to do that?
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:-( won't be here, will be in Mexico with my parents.
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Jbok,
I won't know for sure until Thursday. My MO had said weekly AC but I was sobbing the entire time. We will go over treatment schedule when I see him.
I went out to practice driving tonight since it has been three weeks since I've driven. Ugh it didn't go well. I do not have full range of motion with my left arm yet. It's frustrating, I have to take myself to the radiology oncologist tomorrow.
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LoveC. I am so sorry you have to go to the appt alone. You only hear half of what is said! Are you going to see the docs atFlorida Hospital?
I will be under the channel 9 tent at making strides with my Sassy Head..come see me!
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Jbok,
I just have to go to Sanford for this appt. My husband will meet me there. I did the biopsy alone and swore never again. This appt is mid afternoon and he is a teacher, not enough time to come home and pick me up first. Where will you be?
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I have 8:15 am appt at Florida hosp. Downtown
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OMG....I went to the Lake Eola farmers market today. I treated my self to a 30 minute reflexology session. ( my feet are suddenly a mess....Im convinced all the chemo is still settled there. AMAZING!!
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There is nothing, and I mean NOTHING like a foot massage!
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My port is going in tomorrow. Wish me luck.
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best wishes! Mine went in under a twilight sleep but still as an outpatient. You'll do great!
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coaster,
you'll do fine! i had a real bad bruise but thats all. and getting it out is even easier! just keep working towards that day.
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Hi guys! Greetings from Cancun,Mexico, Im here visiting my parents. coaster hope your port went in smoothly and you are comfortable. Everyone I hope you are doing great.
Aurora
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The first 36 hours were rough, doing much better now.
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lovecoaster. What happened? It should have not been that bad for you?
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It has just been super painful. Enough that I had to take a Percocet. Today it's just burning. Of course it is directly under my bra strap and sits right on top of my right expander.
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