How did you find yours?

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MamaM
MamaM Member Posts: 80

Mine was diagnosed by a 3d mammo.  Just wondering how everyone else was diagnosed?  

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  • Monis
    Monis Member Posts: 472
    edited October 2014

    Found during routine mammo.  (was not 3D).  I hadn't had one in a couple of years.  I didn't feel any lump, and no doctor could feel it either.

  • Hortense
    Hortense Member Posts: 982
    edited October 2014

    I found mine during a random self-exam while lying in bed one night. I hadn't checked in a while and decided to. It could not be felt when I was standing, only when I was lying down.

  • clarrn
    clarrn Member Posts: 557
    edited October 2014

    Mine was SO super itchy, especially during ovulation and my period that I checked for anything weird.   No lump but weirdly shaped thickening which turned out to be palpable DCIS.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2014

    FIRST mammogram (age 40) involved a "finding" on my left breast. Three mammos and an ultrasound later and it was determined to be nothing to worry about.  But, because I was now a bit "higher risk," I got ultrasounds with every mammogram.

    About 6 years later I'd had my diagnostic mammogram and was in the ultrasound room, where the tech spotted something and sent me to see the doc.  Doc didn't quite see it, did her own ultrasound.  Sent me home to wait for two months.  Still there after 2 months but not "obvious." I could feel a very vague, large area that was  a little different, but I would not describe it as a "lump," and I would never have noticed it if we weren't concentrating on it.  Doc said "Yes, there is definitely a "thickening"." Doc seemed to reluctantly agree to do biopsy, based on the fact the tech felt it was suspicious. When she called me to give me the news, she seemed extremely surprised that it was a cancer. 

    Before surgery I also had an MRI to locate the tumor so I could get good margins, and a second tumor was located.

    So - it was not found by home exam or mammogram. Bottom line:

    One was found by ultrasound, and the other by MRI.

  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited October 2014

    Both my primaries were found by me. 

  • jeanelle
    jeanelle Member Posts: 179
    edited October 2014

    I found the lump myself.  I had it for several months before I had it checked out.  It would grow and shrink with my cycle so I wasn't too worried about.  I had my OB/Gyn check it out when I went to her for my annual pap/pelvic and because I was having terrible periods. She didn't think it was anything to worry about and sent me to have a mammogram and an US if needed as I was 49 and had not had one yet. Mammogram led to another mammogram which led to an US which led to a biopsy and being diagnosed with BC 4 days later.  

    I later had to go in for another US and biopsy on the other side when the MRI showed another spot of concern.  It turned out just to be a fibroadenoma.  

  • tangandchris
    tangandchris Member Posts: 1,855
    edited October 2014


    It was a year ago, on 10/12/13 that I felt my lump in the shower. I was 39 years old and had never done self exas or had a mammo. I went to the doctor and she sent me for a diagnostic mammo. The day of the mammogram I had an US and the radiologist came in and told me that he suspected it was cancer. I was floored. I had never felt the lump previous to that day, it literally seemed pop up over night.

  • Kicks
    Kicks Member Posts: 4,131
    edited October 2014

    I had had my annual mammo in June - was the same as for years.  Very early Aug, one night I found an enlarged lymph node (about the size of an almond) under arm that had not been there the night before.  My PA was on vacation so it took me a week to see her. I saw her at 11 that Thurs, she had me at the Radiology Clinic at 1 that afternoon which immediately went from mammo to US to FNB.  Dr D called me at 8 the next morning (Fri) with the path report - as expected IBC.  The next 17 days turned into seeing my Surgeon on Mon, Rads Dr on Wed, Chemo Dr on Thurs, lots of scans/tests, port implant and startiig neoadjuvant A/C.

  • ml143333
    ml143333 Member Posts: 658
    edited October 2014

    I found it myself when I tucked my cold hands under my arms.  It was at the 11:00 position.  The next day, I went to my GYN.  Ten days later, I had a diagnostic 3D mammogram, ultrasound and biopsy.  3 days later, I was diagnosed with IDC.  I have since had a BMX with immediate implants and the oncotype DX testing.  I start chemo on Friday based on a score of 23.

  • Annette47
    Annette47 Member Posts: 957
    edited October 2014

    Found on routine mammogram.  I hadn't had one in a few years, but decided to go again after my mother was diagnosed, and a good thing I did!

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    Mine was found on a routine mammogram. It was a digital mammogram (2D, not 3D) that was compared to my previous screening. The lump was not palpable and was in a spot that was also difficult to capture on mammogram.

    I had a routine mammogram and dexa on Thursday, got a call back on Monday scheduling me for a follow up mammogram and US on Tuesday. The US didn't look good to me, then the radiologist showed me the images and pointed out the suspicious lymph node as well. That really shook me, badly. Due to a holiday my biopsies weren't until over a week later, got the results 2 days after that, so all told it was two weeks between the first mammogram and the biopsy results.

  • ChemicalWorld
    ChemicalWorld Member Posts: 172
    edited October 2014

    Found my lump after eating something crumbly that went down my tank top.  While brushing away the crumbs, I felt the lump.  It was around 12 o'clock on the right side and I can't believe I hadn't noticed it before in the shower or something. At the point I found the lump and started looking closer, it had a ridge next to it when i put my arms over my head and I could see it when I lay on my back.  My surgeon said it had been there a long time, but to me it was if it popped up overnight.  Had never gotten to the point of my first regular mammogram.  I went from lump discovery, to doctor, to (delayed) mammogram then ultrasound, biopsy and diagnosis. Over a few months, because they cancelled my first mammo (presumably as I was younger and thought to be an unlikely candidate). 

  • KiLin
    KiLin Member Posts: 55
    edited October 2014

    I've had two, 9 years apart, and I found them both myself in the shower.  The first one was 6 months after my first (clean) mammogram; for the second one, it had been almost a year since the last mammo.  Both were high on the breast, as well as aggressive, so I'm not sure whether they were just missed by the prior mammograms, or whether they hadn't been there at the time.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited October 2014

    Mine was found in the final pathology after a preventive mx for ALH and ADH. I'd had two MRIs one three months before the mx, and another two years earlier,  many 2D mammo's, ultrasounds, and thermograms at the high risk clinic I'd gone to for nearly twenty years. I honestly had no idea how ineffective screening can be, especially with extremely dense breasts, but it is all we have - until this disease is "eradicated".

  • noonrider
    noonrider Member Posts: 464
    edited October 2014

    I was woken up in the middle of the night by a shooting pain in my breast. It felt like someone stabbed me and sliced down the outside of my breast. I found the lump in the area the pain started. It was about an inch in diameter from what I could tell. I waited a couple weeks, wishing it away. Finally went for a mammogram (my first) and was told it was nothing. I didn't know I should have pushed for an ultrasound. Why should I have to know that? They're the experts, right?

    The shooting pain continued. It could be several times in one day or I might not feel it for several days at a time. After two years I went in for an adoption physical (my husband and I were adopting our 4th child together) and my PCP found a lump on my OTHER breast, but by its location she wasn't really concerned about it. Just encouraged me to get it checked out when I had time. I had her look at the other lump that was still there. She thought it should be fine since I'd had it checked out previously but again encourage me to get that mammo "when you have time."

    I decided I didn't have time because I was going to Serbia to get our daughter. I came home on March 19th and had my mammogram on the 20th. (brand new daughter home and here I was dealing with this BS!) I went to a breast center this time. In one hour I went from mammogram, to ultrasound to biopsy and "I expect this will show you have cancer."

    Once I had my lumpectomy the shooting pains were gone. Then in August I had the same shooting pain, only in the other breast. I just had BMX 5 weeks ago and finally got my pathology reports back. There was no IDC or DCIS, but there was 'atypical hyperplasia" so I'm sure it was only a matter of time. 

    Crazy how that one day changed my life so.

  • Ariom
    Ariom Member Posts: 6,197
    edited October 2014

    Mine was found during a routine Mammogram on a new Digital Machine. They had my previous analogue film and although they said it was probably there, it could not be seen.

    I had only recently moved to this area, which is a small coastal town, from a big city. Had I gone to the usual mammogram clinic,in the city, mine may well have been missed again. I am forever grateful that I moved here and this area was one of the first to have a new digital and Tomosynthesis machine. 

  • tangandchris
    tangandchris Member Posts: 1,855
    edited October 2014


    noonrider-I had a pain in my breast about 2 months or so prior to feeling my lump. It was one time in the evening and it was painful enough for me to have to lay down. It was a burning feeling, very hard to describe and I remember feeling around my breast and nothing being there. I never felt that pain again and forgot about it until I felt the lump.

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited October 2014

    I went in for my yearly checkup and mammogram.  My doctor found a thickening on my right breast.  I then had to schedule a diagnostic mammogram and ultrasound.  They made me wait 3 weeks for that so I felt they weren't concerned - wrong.  After I had my ultrasound I could see the big black hole.  Soon after the radiologist/dr told me she thought it was cancer.  Four days later I had a core needle biopsy and sure enough it was cancer.  I never even knew the lump was there and had to call my dr back asking where it was.  I was 51 when diagnosed and had yearly mammograms since 40.  I think it was missed on the mammo on July 2013.

  • april485
    april485 Member Posts: 3,257
    edited October 2014

    Routine mammo found a small cluster of calcifications in July 2012. Come back in 6 months. Something told me it was BC so scheduled an appointment with a BS at Yale rather than my smaller town. She agreed, come back in 6 months but come there as they had 3-D so in Jan last year, went to Yale. Mammo showed cluster of calcifications had quadrupled from 4 to 15 so scheduled core biopsy. Sure enough, DCIS but it was smaller than originally thought at less than a cm when originally they said closer to 2 cm in size. Was surprised even though I had a lot of itching and some unexplained pains that came and went cause who isn't surprised when told "You have cancer"

  • hummingbirdlover
    hummingbirdlover Member Posts: 421
    edited October 2014

    I've had a mammogram every year since I turned 40 and this year at 47 I got the dreaded call back.  The mammo showed one spot and the u/s found another and then on the day of u/s guided biopsy they found a third spot so they biopsied all three and all three came back as IDC.  The interesting thing is that my BS told me if he looked at my most recent mammogram today (with nothing to compare to) he wouldn't have even called me back, it was that hidden.  I now know I have extremely dense breast tissue and without the comparison mammograms, they wouldn't have found it.  You couldn't see or feel them from the outside and according to u/s they are about 1 cm each.

  • edwards750
    edwards750 Member Posts: 3,761
    edited October 2014

    On s routine mammogram. Knew it would be bad when they called me back weeks later. Never happened b4. Nurse said one breast was bigger than the other. Game over. I remember thinking that morning I hadn't gotten my all clear card in the mail. Bad feeling then. Sister has BC too - she found her's as did my mother. 

    Never had pain but did have rapid weight loss. Thought it was because I had given up sugar. Obviously that wasn't it. 

    Doing well almost 4 years out. So so far, so good. 

    Diane 

  • aMtn4me
    aMtn4me Member Posts: 34
    edited October 2014

    In the shower, forgot to put washcloth where I could reach it and didn't want to get back out to get it. Felt the lump and talked myself out of it being anything other than "benign" for many months. Had never had mammo and did not do SBE's I'm ashamed to admit.

  • labelle
    labelle Member Posts: 721
    edited October 2014

    Regular annual mammogram. Totally unexpected. Every year I go and they call to say all is well. Not this year. They called to say something looks suspicious, please come in for another. Went in for the second one and the mammogram center said, let's schedule you for a stereoscopic needle biopsy.  Before I know it my doctor was calling me to tell me I have invasive breast cancer. That was Sept. 29th. Since then it has been a blur, met w a surgeon, an oncologist, have an MRI and genetics counseling set for Tuesday-my mother died from breast cancer 8 years ago, but neither of us were diagnosed under 50, so I doubt my insurance will pay for BRCA testing anyway. Just one more appointment I guess. Second visit w first surgeon on the 3rd of November and a consult with second surgeon on November 4th. Then I guess I better choose and start really getting something done. When I'm not going crazy, I'm exhausted just thinking about everything that needs to happen. One foot in front of the other, right?

  • happygran
    happygran Member Posts: 38
    edited November 2014

    I had come back from visiting my MIL in hospital.(friday)........laid on the sofa and had a stabbing pain in my breast.......when I felt it, it was rock hard............I knew instantly..........but it was a holiday so couldn't get to see the doctor until Tuesday............He was great...........referred me & I was seen at the one-stop clinic the following week............

    That was nearly 7 years ago..........I'm here & life is good after 12 months of surgery, chemo & rads.....

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited November 2014

    Sitting at the breakfast table in my nightgown, it felt wet, and I realized there was a huge bloodstain on the front. I was bleeding from my left nipple.

    I'd had annual mammograms for the previous 20 years, all coming back with a cheerful postcard "Congratulations! No sign of breast cancer!" In fact, I'd just had a mammo 7 months prior.

    Even with dense, heavy, fibrocystic breasts, my then-PCP always denied me an ultrasound or an MRI. He insisted they were NOT screening tools.

    The bleeding was a fortunate accident. BS thought it was a papilloma, but Radiologist suspected BC. She was like a pit bull, determined to either find or rule out anything suspicious. After seven different procedures, she confirmed multifocal DCIS, and multifocal IDC..... AND said she could see the beginning of the changes in the past two mammograms I'd had (which were not read by her.)

    Ironically, I never would have felt the tumors - they were 1.5 millimeters, and half a millimeter..... less than a grain of rice.

  • CrazyTC
    CrazyTC Member Posts: 2
    edited November 2014

    How my lump was found is a little funny. People ask me. " If it isn't to personal, how did you find out?" My reply is, " I married a boob man." My husband & I got married last year on Halloween & didn't have time for a honeymoon. So we made plans to go to Disneyland for honeymoon & my 51st birthday. In our double "celebration" ( if you know what I mean ) he found it & helped me find it.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2014

    I found mine while watching a rerun of Sex and the City, where Samantha goes in to have an exam so she can get a boob job, and her doctor finds a lump instead, which turns out to be bc. I decided I hadn't done a breast exam in a few months, and found it. Ironic, right? I never, ever watched another re-run of SATC. True story.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited November 2014

    Claire - Definitely ironic. I believe there are angels on our shoulders whispering to us.

  • Skoolgirljen
    Skoolgirljen Member Posts: 28
    edited November 2014

    I found mine by accident in the shower. It popped up from one day to the next. After neo-adjuvant chemo and careful contemplation about surgical options, I chose to have a double mastectomy. Some people viewed that as extreme, but multiple areas of DCIS were found by the pathologist after my surgery.

    I had a clear mammogram in June and found my lump in November. I somehow knew it was BC from the start. I'm so glad I followed my instincts throughout this entire experience. I feel that listening to my inner voice saved my life

  • annointd1
    annointd1 Member Posts: 6
    edited November 2014

    I was laying in bed and felt a sharp pain in my chest. I touched my breast and felt a lump about the size of a knuckle. I could only find it while lying on my back, but after that night, the pain was constant

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