The Hermit Club

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  • SallyS70
    SallyS70 Member Posts: 947
    edited October 2014

    Lily ... we are here to listen ... keep posting ... you are in my thoughts ... sending you hugs.

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  • Teka
    Teka Member Posts: 10,052
    edited October 2014

    https://fbcdn-sphotos-c-a.akamaihd.net/hphotos-ak-xap1/v/t1.0-9/10006937_10152437613597621_276986821100236648_n.png?oh=ba93a1a96f739e43fab5908b8484de3d&oe=54C745D9&__gda__=1420690400_c54ccbe4553088940b1db144bbd8f08b

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Lily-please stay. You don't need to feel you have to be positive. It is very hard to do sometimes to deal with all this stuff, and you need a place to share and we are it.

    Bippy- just a word of caution on unemployment. The way they treat that is that you have to be actively looking for work. If they wind of your cancer, then they will make the case you are unable to work and could take away the benefits. Nothing wrong with working the system, we have all paid in to those funds for years, but just be careful what you tell them. 

    Long day and relaxing with a scary movie (does that make sense?) More tomorrow and rest well friends.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited October 2014

    Lily,

    don't leave. We do understand what you are feeling. Let us be a shoulder to lean on.

    Arthritis acting up again. More rain on the way!

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  • Bippy625
    Bippy625 Member Posts: 890
    edited October 2014

    lily, stay. You need to vent and we are here for you!  This is not just for the good days, and don't worry about feeling like you need to be a certain way for us. If you read some of my posts, they are similar at times on different boards....and believe me, I am sure to continue to post all the negative things as I go on this road.....hugs!

    Jazzy thanks for the advice, and you are right. Thing is, they already know I was fired for being unavailable to work full time due to dr. Appts and chemo!  Now, IF my boss had worked with me on that, I could still be there.  Hahahaha. They approved me anyways. Theoretically, my onco says I can work though!  Which really makes me giggle, but I can use that if they screw with me. And, I should say that IF I found an employer that would not mind me never being there and sucking at my job, well....then I am hireable in theory!  Yesterday was a joke, they just make you appear and hand out useless flyers. Not one question was asked of me. I learned not to show up for an interview in fuzzy slippers and a bathrobe. Yes, really, they actually have to tell people that!  

    And, turns out I may take advantage of their retraining opportunities, perhaps for a new career. Will be checking it out.  I would love to get the hell out of the legal field.

    Anyways, TGIF hermies! Off to get a chemo cocktail, yum yum and screw you, tumors!

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  • Lily55
    Lily55 Member Posts: 3,534
    edited October 2014

    collected blood analysis results ahead of appt next week, they look really bad, 13 of them are way out of normal range, and around 6 out of range by over 100....when norm is up to 20 or less..........

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Bippy- sorry you lost your job because of your bc. However, I think you may have some outplacement services through your termination, so you use those when the time comes to find new work. Perhaps you will find your way into something new you enjoy more, many of us have found new ways of living and working post BC.

    Lily- I am sorry to hear the blood work results are of concern. Please remain here with us so you have a place to talk about your doc apt next week. 

    Mommy- sorry you are not feeling well. Hope the rains pass through. It has been rainy here end of the week, and I feel it in a few places too!

    Teka- this photo is for you of the blood moon this week. Taken in northern NM in the location made famous by Georgia O'Keefe.

    image

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  • Lily55
    Lily55 Member Posts: 3,534
    edited October 2014

    i have looked up all the worse blood results and all are related to liver function, my GGT is 220 and should be between 5 and 40, GOT(AST) and GPT(ALT) are both 100 above the maximum......anyone any idea what this means in cancer terms? I dont drink much alcohol yet this is by far most common cause of high GGT......

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  • Lily55
    Lily55 Member Posts: 3,534
    edited October 2014

    everything points to liver cancer or mets.........

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  • Lily55
    Lily55 Member Posts: 3,534
    edited October 2014

    extreme tiredness is also symptom ..........

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  • Teka
    Teka Member Posts: 10,052
    edited October 2014

    Jazzy, Thank You, lovely blood moon photo!

    Lily, little understanding of blood work, like Jazzy will be here to help you pass the time until Doctor appointment next week.

    Finally, after 3 weeks of waiting got a new pair of glass frames with trifocals!   *distance - computer - reading*Nerdy

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  • Starlover
    Starlover Member Posts: 61
    edited October 2014

    Wow, Jazzygirl! That is a marvelous pic...I watched the eclipse all night, thinking to myself that this may be the last one I ever see. I love the night sky. 

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  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited May 2015

    deleted

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Onco- yes, very spiritual place. Someone once told me the "heart of the earth" is in New Mexico.

    Lili- well, I hope that is not true about your liver. Fatigue can also be residual from your terrible infection and the surgeries. 

    We will be here with you as you go to see your doctor next week. I know you are scared, I would be too.

    Teka- contracts on the new glasses. Rose colored frames, right?

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  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited May 2015

    deleted

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  • Starlover
    Starlover Member Posts: 61
    edited October 2014

    ((Lily)) I can relate to the shock of the numbers. Mine are sky-high too. 

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  • Teka
    Teka Member Posts: 10,052
    edited October 2014

    Starlover, 

    Welcome!

    Jazzy, 

    Yes, rose!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    And yes, welcome StarLover. You would love the skies out here where I live.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Onco- my suggestion for traveling with dietary restrictions (I have them too) is to scope out the grocery stores in advance and be sure you have a hotel where you can prepare your own meals. I try to avoid eating out a lot when I travel if I possibly can. Many hotels offer breakfast as part of your stay these days, and you can check that out in advance to make sure they have things you can eat.

    Maybe we will have a visit together here some day!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Saw this on line today. Someone talking very openly about the whole pinktober/foctober thing we all have to listen to this month as BC survivors. I thing she does a create job of talking about what this really feels like be the bc patient and survivor. 

    http://www.washingtonpost.com/posteverything/wp/20...

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  • Lily55
    Lily55 Member Posts: 3,534
    edited October 2014

    the only other possibility is rare side effect of taking ciprofloxacin, my third course finished three weeks before blood test 

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  • camillegal
    camillegal Member Posts: 16,882
    edited October 2014

    Good Morning Ladies---

    Lily please don't leave us, I never have much to say but u know we all care about  so we are here for u. U know I know next to nothing about cancer but I do remember when my liver was a mess and the Doc told me it was like a lifelong alcoholic and I don't drink, but the liver has the qualities of rejuvenating itself somehow--so let's just wait this out.

    Welcome Star and Jazzy takes beautiful pics, u'll enjoy all of them. She's our really active one and we always look forward to her adventures.

    Mags I hope u feel better now--what a time in the hospital, glad it's over ad I hope u'r having a nice visit.

    Teka I don't have much energy but I would sit and talk to you and have good coffee and just get to know you.

    Bippy when u go to unemployment I know exactly what u are qualified to do-Tell them u can be a politician, show up when u want, send proxy votes in, have long lunches and naps and tell people what to do via text., I know that's what I would say.

    Blondie another thing that is happening to you dammit, I just want u to feel better Damn cancer.

    And all who are going thru treatment I wish u all could feel better, but it is different for everyone and it's usually crap.

    I started my 3 newist meds today bringing me over 15 different kinds f meds.  This is just plain silly, I'm sure they are all  working against each other--remember the old let's all go to the lobby cartoons, well I picture lets all go to the meds stand and all these pills are dancing along. ooo my SIL just brought me some coffee, he always does when he's home. Sweetheart.

    Everyone try to have a decent day.

    xxxoooxxx

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Good morning hermits! Despite being the active one, I sort of hermitted yesterday and did some final work for the client for the week, also did some home organization. Could not get motivated to go out into the rainy day and evening. 

    I have dinner with some friends tonight I have not seen in a year. The person hosting it lost her son to cancer earlier this  year. He was in a decline since 2012, rallied for awhile, but lost his battle in the end. I just found out not all that long ago, and sent her a card, but going to find a nice mum to bring her today as we see one another again. 

    Cami- good to hear from you and hope you are doing okay with your work and can kick back and relax this weekend. How is Joey doing?

    Mags- I think your company is in town now and enjoy being taken care of and continue to get better from all you are going through.

    Wishing everyone a peaceful day, especially those here in active treatment.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited October 2014

    Still raining here this morning

    Finally able to turn my head this morning without any pain in the neck! Got some laundry to do in a bit and I'ma gonna have to hang it up on my clothes racks to dry. Rain is supposed end sometime this afternoon but won't clear up til overnight, so I can't hang it outside to dry!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Mommy- glad you are feeling better. We had rain here for a few days too, but it is gone now and it is beautiful out today. I love clothing hung out to dry, the fresh smell after you take them off the line. Can't do that where I live now, but was able to do it when I lived back east!

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    The balloons were able to do some "splash and dash" this morning where they touch down on the Rio Grande. 

    image

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited October 2014

    Fabulous video from this morning from the mass ascension. About 12 minutes long, but think you will enjoy it! Nice music to go with it too!

    http://www.kob.com/article/stories/S3587264.shtml#...

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited October 2014

    Didn't get to the laundry today.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited October 2014

    .
    Lily don't leave

    Cammie lucky to have a nice SIL, mine sucks big time...

    Mommy it will be there tomorrow, I did laundry today, feel like I accomplished something....have jeans to hang out but raining so maybe tomorrow unless DS does it....I also changed the sheets on the bed, went and picked up the z pac and the pain meds, got a shower, damn that sounds like alot, lol...didn't do the dishes tho, lol

    Jazzy as usual gReAt pix.....

    Rained this morning we were going to get the tattoos but was so not feeling well, the chest was hurting and coughing so went and picked up the meds and am feelling better now, going to do illegal stuff after I am off of here...Andrew has football tomorrow at noon so I hopefully will go, hate the winter...Have nothing to do this week, but dr. next week and the following thing I am going down the shore to cousins house for a couple of days away from here and the drama, no phone calls and they better not show up, which they have done...

    HAPPY WEEKEND..

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  • Bippy625
    Bippy625 Member Posts: 890
    edited October 2014

    hi Hermettes,

    Been down for a few days post tx 4. Depressed mainly, trying to rally but just the effort of staying cheery has exhausted me. So, i quit trying to be and let the crappy wave of sadness wash over me. Oddly, feeling better now!  I figure that surviving will be good enough, I do not have to be happy! It takes too much effort.  I promise though to still be funny :)

    today i get the dreaded neuplasta shot and that usually heralds the worse SE's to join the party too. It is like an invitation for the Big D, nausea, fatigue, and of course no party is complete without bone aches.  This hermit keeps reminding herself that someday soon, like November 28th but who is keepin track, chemo will be over.  

    I shall be very hermit like this round, already i had some car sickness yesterday and could not wait to stop moving. That means, no driving!  Prepare yourselves for my fascinating diatribes ladies. 

    Hope you are all doing well, jazzy love the pics!

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