For those who had nipple discharge prior to diagnosis...

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Erica14
Erica14 Member Posts: 19

Could your DCIS be seen on scans?  My mammo was negative 10 months ago and the BS sees an enlarged duct on ultrasound, but otherwise said, "I don't see anything sinister, but cannot rule out DCIS without sending duct to pathology".  Just wondering how many saw some "red flags" prior to pathology?  I'm super worried.  I just left his office with more questions. Also, on the ultrasound, there was some "lit up" white area.  I asked if that was inflammation and he said yes. Does that sound right?

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  • Beesie
    Beesie Member Posts: 12,240
    edited February 2014

    DCIS most often presents as calcifications that are visible on the mammogram (but usually not on an ultrasound).  Usually there are no symptoms.  

    Nipple discharge is very common.  Most often it turns out to be a benign condition such as duct ectasia or a ductal papilloma. I believe that only about 5% of cases turn out to be anything more serious, such as DCIS. 

    It doesn't sound as though your breast surgeon thinks you have DCIS, but he simply wants to rule out DCIS. 

  • Erica14
    Erica14 Member Posts: 19
    edited February 2014

    Thank you, Beesie.  I appreciate the info, especially about the 5%, because I've heard anywhere from 4-20%.  So, the bright white "lit up" area on the ultrasound must indeed have been inflammatory tissue, if calcifications don't show on ultrasound.  That makes me feel better :)  

  • Jelson
    Jelson Member Posts: 1,535
    edited February 2014

    No nipple discharge! but one month after a clear mammo, felt something was odd, primary doc gave me a breast exam and said he felt something, had an ultrasound which showed an enlarged duct, chose to go to a breast surgeon who coudn't feel it but said have another ultrasound in three months which I did, at that point it was plugged up with debris - core needle biopsy showed dcis. From first doc visit to core needle biopsy - 7 months. When I researched it at the time, an enlarged duct is something to watch. 

    good luck to you - good chance all benign.

  • redsox
    redsox Member Posts: 523
    edited February 2014

    I had nipple discharge. No calcifications showed up in imaging and an ultrasound guided biopsy of one area came back benign.  Since there was no explanation for the discharge a ductal excision followed which showed DCIS as well as a bunch of abnormal but benign stuff. 

    Discharge can be DCIS and should be investigated but the probabilities favor benign. 

  • Erica14
    Erica14 Member Posts: 19
    edited February 2014

    Thank you, Jelson.  I have looked at my ultrasound picture for "debris", which has only increased my anxiety because, of course, I have no idea what I'm really looking at haha.  I was kind of surprised the BS gave me a picture to take home.  If only he knew how many times I've examined it.  Ugh.

  • Erica14
    Erica14 Member Posts: 19
    edited February 2014

    Thanks redox.  What was your discharge like?

  • redsox
    redsox Member Posts: 523
    edited February 2014

    My discharge was milky/clear, one duct on one breast only, a drop or two only but it did increase in amount over the time the process took. I could not get any by trying to squeeze it but the doctors all could easily get a stream of it going.

  • deb1973
    deb1973 Member Posts: 96
    edited February 2014

    I also had discharge (bloody) with nothing showing on ultrasound or mammogram. The MRI, however, lit up everywhere. As everyone has said, the odds greatly favor a benign finding. However, in my case the discharge was a blessing because there is no other way they would have caught the DCIS since they ordered the MRI only after the discharge occurred.

  • codysmom
    codysmom Member Posts: 1
    edited March 2014

    Two years ago I sought medical help after discovering blood in my bra and experiencing severe pain in my LB. The radiologist did US, magnified mammo and ductile mammo and still couldn't figure it out.  I kept telling her that my breast felt warm and I experienced relief with hot compresses but she did not listen and told me to consult a BS.  The BS diagnosed mastitis which cleared up (particularly after the stress of thinking I had some horrible form of BC was lifted).  I am now dealing with an abnormal mammogram (microcalcification and some shadowy areas in same breast).  Since calcifications can be caused by inflammation and trauma, are there any studies tracking radiological changes in women who have had mastitis?  There is a fairly large (8mm) calcification that has very smooth edges that did not show up on the last two annual mammograms and one other more nodule shaped lesion plus microcalcifications.  My BS and radiologist are intent on biopsy but I am concerned that I am just another victim of a biopsy epidemic.

    I cannot find any literature for how many microcalcifications constitute a "cluster."

    Based on my research after the screening mammo, I tracked down a 3D mammo and had both the 3D mammo and US.  I highly recommend doing 3D mammo if you have fibroidistic breasts - imagery is very clear. 

  • ww3354
    ww3354 Member Posts: 18
    edited March 2014

    I had a bloody discharge. Nothing showed up on my mammogram. I am very thankful I had a persisten ultrasound technician as she was determined to find it and after a very long time she did find what she believed was a papilloma. I was sent for a biopsy and that time they could not find the spot and didn't seem to try that hard, so I was sent for an MRI which did not indicate anything suspicious. After discussing with my BS we both agreed that something is going on so I had a lumpectomy. Everyone was shocked when the biopsy showed DCIS, as they were very certain it was just a papilloma.

  • dree2014
    dree2014 Member Posts: 16
    edited March 2014

    deb1973 & ww3354, I recently discovered a bloody discharge in my left breast. It only occurs when I squeeze. The discharge comes from only one duct. I had 2 US & 1 mammogram in the past 6 wks! No lumps were seen. But several ducts in the right breast are mildly dilated. I'm scheduled for a MRI on 4/2. Are any of my symptoms similar to yours? 

  • ww3354
    ww3354 Member Posts: 18
    edited March 2014

    dree2014 - I noticed a small stain in my bra didn't think much about it. A couple days later there was another stain, so I looked at my pajama top and sure enough there were very small stains on it. The discharge stopped after that but the doctor could express it. Everything pointed at a papilloma, which might be what you have. Mine was contained to one duct and there were no lumps. Nothing was found in the other breast. If I did not have that bloody discharge I would still have DCIS. My GP actually told me where he thought the discharge was coming from. When they couldn't find it with the ultrasound I told them where my GP pointed it out and sure enough they finally found it right where he had said. Unfortunately, the Doctor for the biopsy ultrasound would not listen to me.  I go next month for my first mammogram (which I have no faith in) since the lumpectomy and I am going to insist on an ultrasound. I know how frustrating and scary the waiting process is - so I send you my best.

  • MemereL
    MemereL Member Posts: 44
    edited October 2014

    Hi ww3354 and Erika14

    If you don't have confidence in that radiology place, then you should go somewhere else.  That is what capitalism is all about.  Do you live near any large cities? Most larger cities have Breast Care centers in a larger hospital.  In those places, they have people who only deal with breasts all day long.  And Breast surgeons that only do breasts.  As opposed to some that do all kinds of surgery.  I just got fed up with my local providers and called a Boston hospital. There is an amazing difference in the way that they listen to you and really seem to care.  I have an appointment next week and think it is the best move.

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