Hospitalization for cellulitis, what to expect

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CherryHill
CherryHill Member Posts: 42
edited November 2014 in Lymphedema

Friday evening my lymphedema got much worse and I noticed some pink blush in the hand. Saturday morning the hand got very swallen and pink, the blush was visible in upper arm as we'll, so I rushed to ER.  The ER doctor  prescribed oral antibiotics and said to come back if things get worse. For the first 24hrs things were stable, but now the hand is super swallen, painful and red. The rest of arm is pinkish. I am home alone with two sleeping toddlers, husband works night shift. First thing in  morning I will rush to hospital. 

How long did you stay in hospital with cellulitis? I am so worried to leave my one year old and two year old girls without my attention even for few hours, and I suspect that hospital stay will be more than a day.

Comments

  • wrenn
    wrenn Member Posts: 2,707
    edited October 2014

    i've had cellulitis a couple of times and was not admitted.  i had to go to emerg for iv antibiotics for 3 days and then took oral.  hopefully yours will heal quickly once you get the iv antibiotics.

  • wintersocks
    wintersocks Member Posts: 922
    edited October 2014

    I was on AB's IV for 6 days. In hospital that long too.

  • Binney4
    Binney4 Member Posts: 8,609
    edited October 2014

    Cherry, please either find someone to come in and stay with them, or wake them and take them with you. Your best chance at avoiding a long and complicated hospital stay is to get to the ER NOW. Cellulitis can spread FAST.

    http://www.stepup-speakout.org/Emergencies_and_Med...

    Sure wish I were close enough to drop by and help!

    Gentle hugs,
    Binney

  • CherryHill
    CherryHill Member Posts: 42
    edited October 2014

    Thanks for the link, Binney! It really looks serious :( 

    I just called my husband, he is coming home and I am getting ready and packing my hospital bag. 

  • Binney4
    Binney4 Member Posts: 8,609
    edited October 2014

    Rooting for you CherryHill! Do keep us posted as you're able.

    Hugs, prayers, chocolate,
    Binney

  • carol57
    carol57 Member Posts: 3,567
    edited October 2014

    CherryHill, good luck!  Lots of women reading this thread will be sending you prayers and wishes, right alongside Binney's.  All that focus on you getting better fast has got to help!

  • aunt_paula
    aunt_paula Member Posts: 271
    edited October 2014

    I am glad you're going to the hospital tonight (though so sorry you have to!), and keeping you in my thoughts for quick improvement!

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited October 2014

    Just saw the link. IV abx for me fir 3 weeks. Followed by 3 weeks oral abx. In the hospital 2 days. Praying you got this covered now and can go home faster. Much love. 

  • glennie19
    glennie19 Member Posts: 6,398
    edited October 2014


    Good luck Cherry. Hope you will not have to stay in hospital for long and can get home on oral antibiotics!

  • CherryHill
    CherryHill Member Posts: 42
    edited October 2014

    Thank you, ladies, for all your kind words and wishes, it definitely helped :)

    I got two IVs in the ER within 4 hrs and was sent home to continue with oral antibiotics. Its all much better now, phew :)

  • Binney4
    Binney4 Member Posts: 8,609
    edited October 2014

    Cherry, hey, hey! So glad you're safely at home and hope you're completely recovered soon. Hug those little ones for us!

    Take good care!
    Binney

  • glennie19
    glennie19 Member Posts: 6,398
    edited October 2014

    YAY!!  Glad you are home and doing ok.  Thanks for the update.

  • Marple
    Marple Member Posts: 19,143
    edited October 2014

    CherryHill, thank GOODNESS, good advice and good care, you are on the mend.

  • pkeiles
    pkeiles Member Posts: 30
    edited November 2014

    Can anyone tell me if the knowledge of  which antibiotic to use for cellulitis in the ER is any better than other medical facilities? I guess I should explain why I'm asking. This is my first experience with cellulitis and I new what it was as soon as I saw red blotches appear on my bicep, even though I had not recently cut myself in that area by the way. Anyways, maybe it was still not fast enough because after visiting the urgent care facility every day for the last 4 days I don't think there is much improvement from its worst, which was probably around day 2 of my visits. The first two days we did an IV with a more agressive antibiotic but it was not as broad spectrum. The last 2 visits I got a direct shot in the butt and have also in parallel been taking another antibiotic orally as well as an antiviral drug. I'm looking forward to seeing what it looks like tomorrow for my 5th visit and third shot, ouch.

    I should mention that I have had three different doctors there but wish I would had the last one first (although I think he is also an ER doctor). He actually took the time to look up online if there was any suggestions for someone in my case with LE!

    Anyways, better sleep and elevate. It just seems like it's taking an awful long time to find the winning drug and I wonder if that happens to others both inpatient and outpatient.

  • wintersocks
    wintersocks Member Posts: 922
    edited November 2014

    pkeiles

    The anti biotic that is used on cellulitis is Flucloxacillin.  This, according to the hospital where I was treated in August. The infection often worsens before improvement.  The extensive infection I got, certainly did. Finally, after approx 4 days IV antibiotics (X4 daily), an improvement happened. I remained on this regime for 6 days. Prior to that I was sent to see a Derm, she said the antis needed changing to something more aggressive. The microbiologist disagreed, he said stay with the Fluclox. He was right. Eventually I was discharged with a course of oral Fluclox for 7 days, and now things are good, although the L'dema nurse says I need compression. To answer your question, On admittance to the ER for this (or casualty, as we call it!) I got a fluclox drip, fluids and IV paracetamol as my temp was skywards.   I hope this helps.      

  • pkeiles
    pkeiles Member Posts: 30
    edited November 2014

    Thanks for your reply Wintersocks, I'm guessing it is not so cut and dry which antibiotics are going to work for which cellulitis infection in each person. In my case I had 5 days of Rocephin injections along with two oral antibiotics. What really messed me up was a poor choice by my first urgent care doctor of antibiotics and two days were wasted where the infection just got much worse. Now I am still on the oral drugs, clindamycin and cephalexin, but the infection seems to be hanging on with a light pink color now. I will probably go back to the doctor I have been working with in the next day or two, and get another cycle of antibiotics. I did manage to avoid the ER, but the infection does seem to be taking forever to completely go away (I'm currently on day #8).

     I will mention Flucloxacillin when I talk to him next, but it sounds like at this point my arm just needs more time for the infection to completely go away.

    What kills me is the major amount of swelling I now have in my arm, basically the worst that it's ever been. I'm sure I can get it back to it's "normal" state eventually, but ugh not a fun process.

    Regards...

  • AmyQ
    AmyQ Member Posts: 2,182
    edited November 2014

    pkeiles,

    Right now I'm going through a significant increase or flare of my LE and although I don't have an infection or cellulitis, I am getting manual massage four times a week by a LE therapist followed by wrapping my arm and hand. I recommend getting into see a specialist to evaluate your arm and begin massage ASAP.  The swelling does not go down on its own without some kind of treatment, so I recommend getting help soon.

    Good luck

    Amy

  • wintersocks
    wintersocks Member Posts: 922
    edited November 2014

    pkeiles,

    My arm remained 'pinkish' for some time, when I saw the L'dema nurse she described it as 'staining' and I was told it would eventually go It did .although there is still some evidence of it, shortly after that it began to look like sunburn with peeling going on  It took much longer than 8 days to improve, so perhaps you need to give it a little longer. You do seem to have been on a lot of AB's. As I say the derm wanted to change me and the microbiologist was adamant that I stay on  fluclox a few days longer and it would improve and it did. My arm was a complete mess with several large patches. It was described as 'atypical' because of this. 

    It's difficult to know why the medics make their choices isn't it?  Maybe they have a different protocols in the UK/USA

    You are certainly right in saying it's not fun. I felt completely washed out for weeks afterwards. I was also told I am likely to get it again...

    Just to end on a 'fun' note there!

    I do hope things improve soon for you.  

           

  • fizzdon52
    fizzdon52 Member Posts: 568
    edited November 2014

    I was hospitalised with Cellulitus from my Lymph node scar and also put on an IV drip of Flucloxacillin. I was in hospital for two nights and three days before they released me. It cleared up fine after that.

  • pkeiles
    pkeiles Member Posts: 30
    edited November 2014

    Thanks all for your input?everyone. I will write the names of all these antibiotics down so if I get it again in the future, I can get on the best medication immediately, but I'm hoping to avoid that if at all possible. I think the cephalexin is similar to the Flucloxacillin in some ways, which is maybe why it is getting better. And thanks wintersocks for the description of the pinkish color after effects, that makes me feel a bit better.

    Hi Amy, thanks for the advice. The swelling is getting better from compression, but I still have to make an appointment to see my LE therapist soon. It's been ages since I saw here, perhaps wishful thinking on my part of being "cured" after my LNT surgery over a year ago. 😄

    Does anyone else get itchy skin from this darn infection? The doctor was going to give me something for it but I don't want to take yet another medication.

  • pkeiles
    pkeiles Member Posts: 30
    edited November 2014

    Wow JoJoy, that sounds scary! I never had any type of liquid or open cut for the doctors to take a sample for evaluating my infection. At this point I basically have some pink coloring still on my arm (which may or may not be pink 'staining' as wintersocks mentioned above). It itches at times, which is annoying, but I will be done with the two antibiotics that I am currently on in a few day, and I don't plan on starting another cycle if I can help it.

    Hey wintersocks I have a bit of that 'bubling and peeling' type of effect on my skin as well. Did that occur for you while the 'pink staining' was still present?

  • wintersocks
    wintersocks Member Posts: 922
    edited November 2014

    Yes, I had both present at the same time. I did not have any itching at all. The 'pink staining' as the L'dema nurse called it, is still not completely gone. She said there was no more infection present when she saw it.

    I am going back to see her week after next, I think it is. I have so many appointments coming up, it's difficult to remember them all!.

    She has recommended that I have AB protection before my diep procedure. I also have to wear a sleeve that she has ordered.

    Hope you can get off those AB's too.


  • pkeiles
    pkeiles Member Posts: 30
    edited November 2014

    Hi wintersocks...last day of antibiotics for me, yeah!!! Fingers crossed neither one of us will see another cellulitis for a long while (or never would be good).

    Good luck on your DIEP procedure! Did you mean that you are going to wear some sort of special sleeve while in surgery? I have an upcoming thyroid surgery in a  few weeks and was going to ask if I could leave my nighttime sleeve on during the procedure, which would definitely make it obvious that I don't want them touching that arm. I wonder if that's allowed, hmmm.

    By the way, I can totally related to a lot of upcoming doctors appointments, sometimes I feel like I'm a little old lady seeing one doctor after the other. :-)

  • AmyQ
    AmyQ Member Posts: 2,182
    edited November 2014

    If they don't let you wear your night time sleeve, they will wrap your LE arm and make a very big deal about not touching that arm for any reason. I know this because that's what happened to me during each of my 5 post-mastectomy surgeries.

    Good luck to you

    Amy

  • wintersocks
    wintersocks Member Posts: 922
    edited November 2014

    Pkeiles and Amy

    4:07 am  here in the UK,  can't sleep at all so here I am replying!. I don't think I will be wearing a sleeve during surgery.. she is fitting me for a sleeve because I have some lymphodema.  

    Are you wearing a nightime sleeve for that reason? I never heard of that.  Will I have to wear one at night too, do you think? 

    With my last gynae op, I just got a red alert band that indicated I was to have no procedures on that arm.  It was 3 days post op that I got the massive cellulitis infection.  the nurse said there wasn't necessarily a  link, but I do wonder.   The  hospital appointments are tedious aren't they? 

     I feel I am faĺling back into a depression again with eveything. I am seeing my GP in a week or so. I will speak to her about it. 

  • pkeiles
    pkeiles Member Posts: 30
    edited November 2014

    Hi Amy and wintersocks,

    I was thinking of wearing the sleeve during surgery mainly just to ensure that they do not try to do anything with that arm while I am under. Since this surgery has nothing to do with my breast cancer (it is for the removal of half of my thyroid due to a large growth), I was even more concerned that the doctors/nurses might not be as used to patients with lymphedema in their arm(s).

    And wintersocks, I only wear a night sleeve because I found that in my case I can get away without wearing a sleeve during the day pretty much if I wear one at night. Fortunately or unfortunately, it seems like ever persons lymphedema is different, and most of what I discovered that works for me is through trial and error. For example, my swelling can be very minimal visually, but I still have a minor ache in my forearm and elbow at times if I ignore sleeves altogether for too long. Sometimes I find it is almost a wash between the annoyance of wearing a sleeve and the slight ache that I feel at times in my arm. Basically things are not cut and dry, but hopefully you won't have too much to deal with if your swelling is very mild and not causing you too much annoyance.

    It is totally normal to go through periods of depression and frustration with this whole thing!!! I personally would rather have had more cancer issues to deal with than lymphedema, although I know this is not logical. Then I also get pissed a lot, especially because I think things would have been different in my case with a more knowledgeable surgeon. But as mad or down as I get, I still try to let my intelligence take over during these times. I do realize that I never know what would have resulted had I gone down a different path, and that I can only look forward not back, I am lucky to have a great family and life still, etc., etc, ... (all the other profound cliches). Alas sometimes my intelligence wins the fight, and other times I sit and fume (or cry a bit) for a while. This is all normal, and if it helps you to vent or exchange experiences with any of us on this forum, please communicate as much as possible!!!

    Alright, back to work I suppose...

    (PS> I miss the UK! I lived in Essex county for 4 years while on a foreign work assignment in the early 90's. I just had so much fun living over there!!!).

  • proudtospin
    proudtospin Member Posts: 5,972
    edited November 2014

    pk, I had sinus surgery a hear ago and was very stressed about my LE, it is in my trunk so not so obvious to docs or nurses but when I did my preop, I told them about my LE and dang but the day of surgery, they put a bright red "do not touch" wrist band on me!  let me tell you I was very relieved to not have that to worry on

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