Brace yourself, September is slipping, inexorably, to Foctober

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2014

    well,I got in touch with the sista who posted it

    She tagged it from someone

    Sooo if u want to make a statement u have to find another way

    I'm sure there r places that will put anything u want on any kinda shirt

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2014

    I am not as vehemently anti-pink as some, as I rarely get angry over much (stage IV goes much better without anger for me) but, I just saw a piece in my local news that had me saying "Really?. The Ritz Carlton in SF is serving a pink cocktail this month called "the girls". It appears to include two nipple like floating raspberries. Really?????

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited October 2014

    Exbrnxgrl, I just shot off a blistering email to the Ritz Carlton in San Francisco.  Like you, I'm appalled. 

    "The Girls."  Oh, please.  Next month, will we have deep-fried "cojones" in honor of testicular cancer? 

    Sexualized.   Trivialized.  We are now a cocktail.

    My hair is on fire.

  • DiveCat
    DiveCat Member Posts: 968
    edited October 2014

    jeez, now cocktails and shots often have some pretty sexualized names (and there are a few that use slang for breasts in their names already) but they could have done without tying it to breast cancer/Pinktober. I definitely also have some higher expectations for the Ritz Carlton compared to some some campus or dive bar.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2014

    I am on my way out the door with my Focktober shirt on

    I'll be lookin very carefully for anything that will annoy me

    I think registrated letters to the Ritz Carlton is due here

    Let them sign for it...

    I'll be back

  • Juliecc
    Juliecc Member Posts: 4,868
    edited October 2014

    Blessings, I used most of your post and put this on my facebook.  Thank you!  It is being very well received:

    Breast cancer 101 time. Feel free to share this post. Breast cancer is a very sneaky disease. I was diagnosed earlier this year with IDC (Invasive Ductal Carcinoma) and had a bilateral mastectomy and reconstruction. Unfortunately, I will always live with the fear of metastasis. During my last reconstruction surgery in August, I had 2 areas biopsied and they were ok. Now I have several new hard bumps we are watching that are probably just scar tissue or dissolvable sutures. I am checked every 3 months and will be on Tamoxifen for 10 years.

    "Approximately 5% to 10% of breast cancers are metastatic at diagnosis; of these, approximately one-fifth will survive 5 years. Depending on prognostic factors, up to 30% of node-negative and up to 70% of node-positive breast cancers will relapse."

    Yes even stage one, node negative breast cancer can recur as stage 4. There is no cure for metastatic breast cancer. So breast cancer is always on my mind, every hour of the day it pops up in my head. Hopefully that will get better as time passes. I really appreciate all the love and support from my friends and family this year! You have all been amazing.

    Remember 1 in 8 of us will be diagnosed in our lifetimes so please check yourselves often. The earlier you are diagnosed, the better your prognosis.

    We are now in breast cancer awareness month and we will be seeing pink ribbons everywhere, from our bucket of KFC chicken, to our box of cereal. Here is a post I'd like to share from a fellow breast cancer survivor:

    As many of you begin to participate in the Annual “Breast Cancer Awareness” activities coming up, I just ask you to please consider these things:

    1. Does the activity TRIVIALIZE breast cancer? NOT GOOD! This is a very serious issue.

    2. Does the activity SEXUALIZE breast cancer? NOT GOOD! There is nothing sexy about breast cancer.

    3. Does the activity generate income to be donated to a reputable organization that provides direct services to women in need? GREAT! Low income patients need all the help they can get.

    4. Does the activity generate income to be donated to a reputable organization that funds research for a breast cancer CURE? GREAT! We all have “awareness”… what we need is a CURE.

    5. If you put a “Pinkwashed” product in your shopping cart, have you checked to see exactly how much money from that sale is donated, and the name of the organization where the proceeds are donated? GREAT! If it is not stated, then the MANUFACTURER is making money off the misery of breast cancer patients everywhere. NOT GOOD! Pink ribbon advertising is not enough.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    Julie, would you mind if I asked the source of these statistics? Thanks. (This made my blood run cold...)

    "Approximately 5% to 10% of breast cancers are metastatic at diagnosis;
    of these, approximately one-fifth will survive 5 years. Depending on
    prognostic factors, up to 30% of node-negative and up to 70% of
    node-positive breast cancers will relapse."

  • Juliecc
    Juliecc Member Posts: 4,868
    edited October 2014

    I got it from here.  Am I posting inaccurate information?

    Journal article

  • 2Tabbies
    2Tabbies Member Posts: 984
    edited October 2014

    Julie, being stage III and node positive, I'm praying it's inaccurate! But your source is certainly a reputable journal.  The next time one of my docs gives me a "don't worry, be happy" speech, I'll show them those stats.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    Being stage 2 and node positive, I too am looking for a loophole in those stats. It doesn't appear to me that the info on relapse is nation or region specific, so it may not apply equally to those of us in highly developed nations. I certainly hope not. 

    Still, it's extremely sobering (try terrifying).

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited October 2014

    The source is a reputable journal, and the date is recent--2012.  Here's the direct quote from the article:

    "Approximately 5% to 10% of breast cancers are metastatic at diagnosis; of these, approximately one-fifth will survive 5 years.   Depending on prognostic factors, up to 30% of node-negative and up to 70% of node-positive breast cancers will relapse. The prevalence of metastatic disease is high because many women live with this disease for several years; there is however, a major lack of accurate data on this prevalence in the great majority of countries since most cancer registries do not capture relapses. As there are significant variations in outcomes of early breast cancer among different regions, the burden of metastatic breast cancer (MBC) may differ from that of early disease." (Italics mine.)

    There is no data in the article that relates rates of recurrence according to country, region, age, treatment, or any other variable.  Yes, the quote is terrifying.  Yes, I worry about recurrence.  But when I plug my stats into CancerMath or PREDICT, they sure don't give me a 70% chance of relapse. 

    I would be interested to know exactly from what population the 30% / 70% statistics were culled. 

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    I, too, would be interested in more specifics on the populations studied. It's interesting how frequently that info is missing, once you start looking for it.

  • Juliecc
    Juliecc Member Posts: 4,868
    edited October 2014

    It does say "depending on prognostic factors" and "up to" so I hope it is lower. There are so many variables with cancers and treatments so maybe those numbers reflect very aggressive tumors and little treatment?  It's hard to know.  Each of us will have a different ballpark number for our recurrence rate.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    All I know is that I can't handle thinking about that topic any more at this point. It's certainly one I'll take up again with my MO after surgery but it's just too grim to grapple with right now.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited October 2014

    I just emailed the address listed on the article and asked.  I'll post if I hear anything back. (Correspondence to: ESMO Guidelines Working Group, ESMO Head Office, ViaL. Taddei 4, CH-6962 Viganello-Lugano, Switzerland; E-mail: clinicalguidelines@esmo.org)

    Hopeful82014, one day at a time, and you're right...none of us, regardless of where we are in treatment, should spend time "there."  I use a mental "DELETE" button when my thoughts wander to the dark side. 


  • Lily55
    Lily55 Member Posts: 3,534
    edited October 2014

    I was told 70% within ten years, chose to forget it until this reminder! Scary stuff........

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    Thanks, Elizabeth - it will be interesting to see how they respond. In the meantime, I'll practice using the delete button. 

    Take care, and enjoy the beauty of October.

  • Juliecc
    Juliecc Member Posts: 4,868
    edited October 2014

    I don't think you should worry about the 70%.  We all have different tumors and treatments that affect our recurrence rate. I'm sorry I scared people with this article.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited October 2014

    Don't worry about it, Julie. Hopefully that garnered some attention when you posted it on FB. I think there's a tendency among the general population to think of breast cancer as something that most women are cured of. It's good for people to know that it DOES recur and that we do need more emphasis on research and spending funds intelligently. 

    Thank you for posting that and thanks for the follow up discussion here.

  • 2Tabbies
    2Tabbies Member Posts: 984
    edited October 2014

    Julie, don't be sorry you posted this information. I, for one, appreciate getting it.  All our situations are different as has been mentioned, but it's still good to know the big picture.  I won't spend my days obsessing about a quote from a journal, but it might motivate me to reassess my priorities. That's not a bad thing. 

  • peacestrength
    peacestrength Member Posts: 690
    edited October 2014

    I ordered a new flat iron from my stylist and thought it would be similar to the plain black one I ordered before...but I was surprised to get the following.  She had an innocent smile and so happy to hand me the pink one in honor of breast cancer awareness.   I bit my lip and said thank you...I didn't want this flat iron but she made a special trip to purchase it.  

    Ugh!

    image

  • Ariom
    Ariom Member Posts: 6,197
    edited October 2014

    Uggghh, peacestrength, you'll have that one for a long time. Not a limited edition, you'd really want!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited October 2014

    Peacestrength, a friend at work came to me today with tears in her eyes, saying she was going to buy me one of the breast cancer awareness pink tee-shirts that another department is selling.  She was so kind, loving, and concerned, I just had to hug her and say thank you.

    What else could I do?  If you don't understand, you just...don't understand.  I don't want to throw people's compassion back in their faces.

    I bet if you wrote the manufacturer and asked to exchange it (tell them you're allergic to pink) they'd do it.  Your stylist wouldn't need to know. 

    You want a pink tee shirt to go with that hairdo?

  • peacestrength
    peacestrength Member Posts: 690
    edited October 2014

    Sbelizabeth - you just made me laugh...hard :) I agree, my stylists heart was showing compassion and I knew that.  She's been cutting my hair for over 10 years and is a kind person.   

    But...I still would like to snap the pink flat iron in pieces...yes, I should look into exchanging it.  

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2014

    still have not seen any displays

    I'm not blind,really I'm not

    And I'm lookin

    Someone is watchin over me cause I really don't want to make a scene

    My FB is full of all that PINKWASHING .....

  • kar123
    kar123 Member Posts: 273
    edited October 2014

    It's a fine line we walk not looking like jerks yet trying to protect our feelings too.  Sometimes we just have to let it go.  However, when it's something you are going to use everyday, I would definitely contact the manufacturer to see if you can exchange it.    Firecracker, I have noticed too that the pink is not quite as bad this year.  Maybe our message is getting through.

  • riverhorse
    riverhorse Member Posts: 126
    edited October 2014

    Regarding the stats in the journal article -- for each of us the reality of MBC is either 0% or 100%.  No one gets 30% or 70% MBC.   Stats can give us a false sense of security (say 10% chance of MBC) or perhaps unwarranted fear (70% chance of MBC).  But the fact remains that none of the stats are 0% or 100% for any group, even stage 4 (1-2% Get to and remain NED)

    .  The emphasis must be on a cure.   No one is cured until everyone is cured!!  

  • peacestrength
    peacestrength Member Posts: 690
    edited October 2014

    Ariom - limited edition is right...thanks for making me laugh too:)

    Kar123 - ((hugs to you))

    The stats make me panic when I think about them...I've been told many different stats and it's confusing. I try to focus on all the long term survivors. 


  • Juliecc
    Juliecc Member Posts: 4,868
    edited October 2014

    Well said, Riverhorse.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2014

    I like that

    NO ONE IS CURED TILL EVERYONE IS CURED..

    I would wear a shirt like that

    There is a stor a few blocks away from me...they do that kinda stuff

    I just have to get there

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