DIEP 2014

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  • goldie4040
    goldie4040 Member Posts: 2,280
    edited October 2014

    Cute new pic, Jmb.  So happy for your friends daughter.  I am glad she can enjoy some healthy and fun times.

    Janet, for some reason I thought you had your tummy revised already.  You had your nipples done, right?  I am sure you surgeon can give you your waist back.  I am just loving (sarcasm) my ken doll. Everything just keeps changing.  I wonder why it became more prominent in the last couple of weeks? 

    Georgie, did I miss something?  Were they mean to you while you were getting your tests?  Not acceptable!!!!!

    Teacher, sorry your lump hasn't resolved.  I had one above my right foob near the top of my cleavage after stage 1.  During stage 2 the PS improved it, but not 100 percent.  It is kind of sore when I press on it.  It is not that noticeable now as it was before.  I am hoping with stage 3 he will finally make it go away completely.  He said something about inflammation.  I don't think they really know when something out of the ordinary happens, and they manufacture explanations.  LOL.  When I asked what he did to make it go down a bit he really didn't have an answer.

    Tomorrow I have physical therapy and "mental" therapy again.  I really hope she doesn't try to make me sit through another meditation video.  I can do that at home.  I need to talk, vent, get feedback. The best part about her is that she has had so much botox her face get's all screwed up in weird expressions when she smiles.  I try really hard not to show my horror. I think it's interesting that a person that is supposed to make you feel good about yourself no matter what has happened to your body has had such obvious plastic surgery and botox. So much for self exceptance.

  • smd3
    smd3 Member Posts: 15
    edited October 2014

    Hi all. So I'm going back to nola today.  3 weeks post and my left breast opened up 2 days ago. Emergency surgery tomorrow.  I'm not prepared mentally for this hiccup. I've been in so much pain. More than just the 3 week slump.  Getting on a plane in 2 hours. I just want to scream but been too busy crying.

  • jbdayton
    jbdayton Member Posts: 700
    edited October 2014

    Hang in there smd3.  I had the same thing happen but we did not surgically suture it back.  I hope the surgery will work for you.  It is hard right now but it can be fixed.  My prayers are for a good flight, lower stress level, lower pain level and successful surgery.  

  • lonnie713
    lonnie713 Member Posts: 236
    edited October 2014

    thanks jmb5 and teacher64.

    i agree that it is the best procedure especially for my radiated breast.  I just need to get over the fear of the pain.  I had a hysto in June and it wasn't pleasant.  I guess I can look at it as a positive in knowing what to expect being that the cut is similar.   How long before either of you was able to stand upright? I'm thinking ten days????

  • Janet_M
    Janet_M Member Posts: 1,068
    edited October 2014

    Goldie - Nope. No surgery yet. I'm still a Spongebob until October 14 when I lose the dog ears and get some nipples. 

    I've almost cancelled this appointment many times. I've gone as far as picking up the phone and dialing - and then hanging up. And I don't know why. I really want my waist back, and I've heard the nipples are enjoyable, but I just don't want any more life disruptions. I'm trying to summon some excitement about crossing the finish line but I'm just thinking 'Ugh' most of the time. I just don't want anyone touching me - even if it is my handsome surgeon.

    Ridley - I'm a week behind you with Dr H. 

  • LAstar
    LAstar Member Posts: 1,574
    edited October 2014

    smd, so sorry to hear about this.  No wonder you have felt so bad.  Hopefully, you will be feeling better very soon and be on the road to healing.

  • Ridley
    Ridley Member Posts: 634
    edited October 2014

    Hey Janet - do you know what Dr. H is going to do to give you your waist back? 

    I have what I will describe as mini muffins at the end of my ab scars.  He called them dog ears, although they are really chubby ears.  Anyway, he said he could extend the scars, but if we don't remove the chubby part, I think I may end up more squarish.  He is going to do some lipo to fill in a flat spot on one side, but he said he would take the fat from my upper abdomen.  I'll talk to him again the morning of surgery, but was just curious.

  • sky78
    sky78 Member Posts: 24
    edited October 2014


    Thank you for the responses.  I am feeling better. I also talked with the nurse at the PS's office this morning, and she calmed me down a bit.  I do know that this is the right choice....it's just cold feet.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited October 2014

    Ridley - My dog ears are muffin-ish as well. Dr H said he was going to extend the scar and remove the chub with lipo. Something about cutting a small oval, removing the fat, and then sewing me back up. I'm only having the left side done, as he says that the right side isn't too bad.

    And the nipples too.

  • Ridley
    Ridley Member Posts: 634
    edited October 2014

    thanks Janet - I will ask him the morning of.

    No nipples for me yet - will do them after as he said we may do one more lipofilling to the left side.  I can do both of those procedures together in the office if I'm brave enough!

  • MEG2
    MEG2 Member Posts: 114
    edited October 2014

    smd ~ so sad to hear about your set-back but from what the other ladies are saying it will be temporary.  Best wishes for a safe and calm flight, a positive surgery and a quick and speedy recovery.  Keep us posted, we all know what it feels like to want to scream, cry, kick inanimate objects and all other sorts of things to get out the pain and frustration of BC.  

  • MsW2012
    MsW2012 Member Posts: 226
    edited October 2014
    Georgiegirl, thanks for the comments about the summary I put together. Maybe I will start a thread so a bunch of us can do the same thing. I think it's helpful for people considering DIEP or in the early stages. Enjoy, it's interesting what you said about gaining weight in different areas. Some women have said they definitely do and others say they see no difference. Maybe it's just that since the tummy got re-set to zero, it just doesn't show there for a long time, so the other places stand out more?
    Right now I am still just post-stage one. I have slightly mixed feelings about finishing up and getting those fab ultimate results some people get but the great thing is there's no rush! I'm good with girls that look ok in clothes and not awful otherwise, just soooo glad to have that implant gone! Not in any hurry to spend more time recovering. I have an opinion I wonder if many share. I feel like the breast cancer took a toll on my body and it will never be the same no matter what any surgeon can do. It's all about attitude. I feel like no matter what, we all (post-mx) have a loss that won't ever be fully restored. You can't sugar-coat that. DIEP helps an awful lot, but I think the sooner we can accept the loss and go through a mourning process, the sooner we can get back to living happy productive lives.
  • LAstar
    LAstar Member Posts: 1,574
    edited October 2014

    It would be great if you could start a thread on this!  Then it will be easy to find!  Thx!

  • pzercher
    pzercher Member Posts: 51
    edited October 2014

    MsW: I could not agree with you more. For me, having realistic expectations has been really important. I mostly wanted to look symmetrical in my clothes and to not have to ponder others' reactions to my appearance, and to be done with reconstruction for good (didn't want to have to replace implants every 10-15 years). My outcome so far has been pretty good, especially my flat tummy (I haven't had any swelling...), but even so, I mourn what my original body felt like. As much as we complain about our muffin tops and tummy bulges, a woman's body naturally is soft, curvy, and beautiful. It pisses me off that I have been carved up! I am also pissed at my left breast for betraying me. For those of you who underwent chemotherapy and radiation, I know there are other lasting changes to the body. But God bless us and our poor battered bodies: I am proud of us ladies for soldiering on and taking each day as it comes. There is much to be thankful for, and to look forward to.

  • enjoyevrymoment
    enjoyevrymoment Member Posts: 334
    edited October 2014

    Georgiegirl- my onc is having me do MRI this month then one in March again then annually.  At least that is what he said last time. ;)  I am so sorry you ran up against one of the compassionless in our masses.  There seems to be no rhyme nor reason why people can be that way, is it that they can't handle the emotion of a former cancer patient and realizing their own vulnerability, or are they just selfish?  One never knows.  Sorry you felt sad there.  Praying all tests are negative.

    The abdominal issue I cannot say enough about how very much better the SpongeBob Squarepants belly is now at 6 months out.  I do think everyone is different, I am not a hottie by any means as I am still more overweight than I would love but dang!  It is nice not to have my stomach sticking out like it did.  I am happy to be well and especially happy not to have cancer, far as I can tell!

    I am sorry your left breast was not nice to you, pzercher!  I am telling you, our bodies on revolt is just not what we signed up for!  I am glad you are doing better, it sure wasn't always fun and yes, like someone else said, there are still emotional things that puke out when provoked.  

    I have had the clinical supervisor of the nurses at the practice where I work just ride my behind for every little thing, many of which are just her preference and not a protocol at our office.  I finally talked to her and I hope she backs off.  I shouldn't let her bother me but she is seriously someone I would have tolerated in the past---- but my bs meter just doesn't tolerate things like that like I used to.  She is outright degrading and I am not letting her get away with it.  I am a nurse practitioner, she would not talk to the male doctors that way of course!!!  And I know you don't know me but my patients love me and I work like a dog there and did not do anything wrong.  

    Lonnie- I think I stood up straight within about 10 days, granted I kept slouching when I was tired or having pain..... best wishes! 

    Smd3 oh sorry to hear about your incision opening, maybe it just needed to drain and I am hoping they can fix you all up soon!  We are all there with you in wishing you the best outcome!

    JbDayton, glad you are through the fire, hope healing is in your very near future, you are definitely a superstar going through another procedure, hope all continues to go well.

    JerseyMom, glad your experience went so well!

    JMB Love your new hair, you are such a little hottie!

    Well poo I was going to try to be like GG who always impresses me with her remembering everyone, but I have to run to practice at church.  Hang in there everyone, hugs!

    Cindy

  • Teacher64
    Teacher64 Member Posts: 840
    edited October 2014

    Lonnie - I stopped the lowland gorilla walk around day 12 with the last drain removal. I would find I stooped more at the end of the day due to being tired.

  • lonnie713
    lonnie713 Member Posts: 236
    edited October 2014

    Teacher64,

    I'm cracking up at the "lowland gorilla walk" comment. I swear I never thought of it that way but you are soooooo right. Hahahaha!!!!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited October 2014

    Janet, I can almost guarantee you that your stage 2 will not be much of a life interruption. Notice I am not promising, but the nipples are really no biggie, except that you will probably love having them, and they make the incision to remove the dog ear an oval so when they sew it back up it won't pucker.  This is how I envision you on New Years Eve this year:  tight form fitting black dress that accentuates the waist, something glittery around your neck, and a plunging neck line!  Oh, and that good looking man of yours on your arm!!  I really don't think stage 2 will have you down more than a long weekend, and you should just use that to catch up on some bad TV watching, and let somebody pamper you for a couple of days. 

    smb, I hate that this has happened to you.  Please keep us posted on how it's going.  We will be keeping you in our prayers. 

    Lowland gorilla is right!!!  I looked like that for 4 weeks. 

  • Teacher64
    Teacher64 Member Posts: 840
    edited October 2014

    Today I attended an In the Pink luncheon because my PS was a featured speaker. A breast surgeon with whom he works also spoke, as did a survivor. I nearly lost it when she spoke. The speakers spoke about education and options. It was a great presentation and helped me move beyond the idea of Pinktober's commercialism.

  • JerseyMomOf3
    JerseyMomOf3 Member Posts: 96
    edited October 2014

    I also had dog ears on the sides of my ab incisions. They were removed and the scar extended a bit. Still swollen right now ....the right side was very sore after the surgery and the left didn't hurt at all. Now they are just itchy!

  • Teacher64
    Teacher64 Member Posts: 840
    edited October 2014

    When I went to a luncheon today, I had to change twice because the right side bump is still so prominent and makes my waist larger than before stage 2. I'm hoping working out will help.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited October 2014

    Georgie, any word yet on test results?

    And, no...I haven't heard anything from Lemon.  I am hoping that is a good thing.  But, I wish she would check in.

  • iowagirl1
    iowagirl1 Member Posts: 130
    edited October 2014

    My Dr. didn't call mine dog ears.  She referred to them as cones!  I can't wait to get rid of them. I try to keep them below my waistband but they always pop out.  Looks like the last inch of an ice cream cone stuck on the ends of my incision.  Okay that was a bit of an exaggeration but they do show under some clothes. Will be glad to get rid of them next week.


  • sky78
    sky78 Member Posts: 24
    edited October 2014

    I'm up at the crack of dawn to get ready and head to the hospital!!! I'm doing fine.  My six year old got kind of upset last night about me being gone for these four days so fingers crossed he just gets over it. He doesn't even know what cancer is as I've  tried to only give him the information he absolutely had to know. My goal is for him to never know until it's a medical benefit to him or his future children!! Alright, gotta run. Thanks for all your encouragement the last few weeks.

  • annieb4
    annieb4 Member Posts: 106
    edited October 2014

    Good Luck to you Sky. Take care and Happy Healing..

    iowagirl...I see you had Dr. Lemaine as your PS. That is who I am having do mine. Were you happy with your experience with her? The few times I have talked to her, I did really like her.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited October 2014

    Goldie - Thank you! You said the most perfect thing, at the most perfect time, and I went to sleep with a big smile plastered on my face. xo

  • LiLi-RI
    LiLi-RI Member Posts: 291
    edited October 2014

    Sky78 - Best wishes for an easy surgery and fast recovery. We are all here for you!!!!

    SMD3 - I am so sorry to hear about your situation. You are in my prayers and thoughts!

    I am preparing for my gallbladder removal today...I am just praying it can be done laproscopic and not an open surgery which will be a much longer recovery.....unfortunately due to all the DIEP surgery in June - there is probably a lot of scar tissue. I am very nervous, but what can I do at this point. Just sit back and enjoy the ride.

    I will catch-up with all the posts as soon as possible.

    You are all my thoughts and prayers.

    Lisa

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2014

    The decision to reconstruct or not is very personal. There is no “right way” to approach mastectomy and reconstruction (or lack of it). There is only the way that is best for you, your preferences, and your healing.

    We are looking to hear your stories and/or quotes on this topic. What is the experience of your diagnosis, treatment, and reconstruction process? What helped guide you in your decision, and select the option that was best for you? What were your feelings leading up to reconstruction, if you chose that route, and how have you felt since the surgery? If you opted against reconstruction, have you been satisfied with that decision, and what led you to that choice? Your experiences will help others newly diagnosed get through their journeys - do you have any advice for those considering reconstruction, or deciding not to reconstruct?

    Please share your age, country where you live, type of reconstruction you selected, inspiring messages, and a high-quality image of yourself or something that represents you.

    We'd love to add your story to this section: Acknowledging our Members

    Send to us in a Private Message! Thank you!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited October 2014

    sky, you are in my thoughts today.  I know you are worried about your 6 year old and him not understanding, but it might be for the best. If he was a little older he would have fear which could carry forward for a lifetime.  This is better.  Mommy has a boo boo, and we have to be careful of her for a while, and then it will be forgotten.  Hopefully, for you and for him!!!   Prayers and hugs today. 

    Janet, glad I could help a little bit.  

    We had a horrible storm here yesterday afternoon.  I had cancelled my appt with the "mental" therapist and came home early after physical therapy.  For once my instincts were correct.  I made it home just before it hit really hard.  There are still people with no power.  Trees are down everywhere, and the schools are closed in my town.  I have been going outside to try to clean up the debris in short spurts.  Normally, I would have had this done!!!  I hate this physical restriction.  

  • MsW2012
    MsW2012 Member Posts: 226
    edited October 2014
    pzercher, thanks for sharing your feelings about this journey that has been imposed on us. It is tough, but we can get through it! Goldie4040, I am so sorry you had to experience a major storm so early in your recovery. I am glad you are ok! Be very careful not to do too much, it's not worth a setback in your recovery. Heal well! <3

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