Starting Chemo October 2014

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  • Becca9800
    Becca9800 Member Posts: 79
    edited October 2014

    Naaaannnnncy!!! Did you mean to make me laugh with your 'tale of woes'? It was the anti-pychotic meds that made me laugh right out loud. A laugh that was surely needed. God that was funny! So glad your first treatment wasn't too traumatic. Thanks for sharing, you gave me some peace of mind. Stay well, Friend.

    Taxotere.....stuff sounds ummm...... AWFUL! Hair loss, brown staining of skin, cracking fingernails and fatigue. Ugh! Can't wait. 

    speedcat, prncesmommy, and efeuer will be thinking of you tomorrow. Wishing you all only the best. 

    kerensa, no chemo start date yet, MO is waiting for surgeon to give go ahead. 

  • Mulligan
    Mulligan Member Posts: 205
    edited October 2014

    Speedcat, I'm going to do a combo of putting tea tree oil on my nails  (what my Onco recommended to prevent chemo nails) and I've made a makeshift chemo gloves and socks. I plan to make more and give a few of them out for feedback on how it works but for now I'm the guinea pig. I basically created pockets to snap on top of cotton gloves and socks and made icy gel packs to put in them. We'll see how they hold up on Fri.

  • speedcat88
    speedcat88 Member Posts: 37
    edited October 2014

    Thanks Mulligan, great idea!  I didn't know about the tea tree oil.  Well I'm off for the first infusion in about 15 minutes (hour and a half drive).  Didn't think I'd sleep last night, but I did.  I woke up about 20 minutes before the alarm went off.  Ah, Breast Cancer awareness month.  I told my hubby I was very aware that I have breast cancer this morning, no extra reminders needed.  I'm missing one of my nausea meds.  I think they just missed it when they were calling in the others.  I'll ask about it this morning when I meet with my MO.  They can call it in and I can pick it up on my way home.  Let the journey begin and I'll let ya'll know how it goes today. 

  • wendeeB
    wendeeB Member Posts: 40
    edited October 2014

    Speed Cat, I am sending you positive happy loving thoughts right now and hope you are feeling great. I'm going to get the tea tree oil too. I had read about the ice pack for the hands and feet. I wasn't quite sure how to do them but with all of these great suggestion I think I'm just going to take the baggies and dish pans first time and see what happens next time.

    just finished my second dose of the dexamethasone. No side effects noted. But it is just day one. I don't go in for my infusion tomorrow until a215 and I guess I will give you a heads up as to how things went. I'll be taking my claritin and my anti nausea med around 1,  I guess.

  • kerensa75
    kerensa75 Member Posts: 83
    edited October 2014

    Where does one buy tea tree oil?

  • 70charger
    70charger Member Posts: 963
    edited October 2014

    Hi Ladies.  BIG HUGS to all.  I'm almost 1 yr since last Chemo.  I did 4 x TC ( Sept-Nov) every 3 weeks then 16 rads.

    Your 1st infusion is the longest, After that mine were 3hrs long.  It is just like getting a bag of saline. At least for me, no port, just IV. Please make sure to get a side effects sheet, sometimes they forget.  This sheet you rate your side effects on a scale from 1-10.  You give it back to them before your next infusion.  They use this info to adjust the meds.  So if you have a bad side effect after the 1st one, don't panic.  Just make sure that sheet is filled out.  It makes a world of diff when things get adjusted. If your center doesn't do this sheet make a list & give to them a couple of days before next one. I lost all hair on my head, most on body. I lost eyelashes but only half of one eyebrow.  Like I cared at that time.  Least of my worries.  Good news is  .. It's Winter, everyone is wearing hats, they'll never know. lol  Unless you live somewhere warm.

    I did not ice hands & feet but did chew ice.  Some women take a cooler with bags of frozen peas, just shove hands/feet in them.  At least you wouldn't have to worry about ice melting. Chewing ice was really helpful, I didn't do it 1 st round & suffered. Time goes by fast & you will all be done this s##$T in no time.  It is doable.  Any questions please feel free to ask.

    Tree tea oil is avail at pharmacy or natural store.

    Take care all.

  • Prncesmommy
    Prncesmommy Member Posts: 3
    edited October 2014

    Well,  made it through first  a/c treatment. Hubby was with me to hold my hand, dry some tears and keep journal of medications given. Feeling a bit weak/tired and like my insides have the jitters. I'm also having trouble focusing my eyes which I think is starting a headache . Had a wonderful nurse, treatment took about 5 hours but she made sure I was comfortable and warm. Appt tomorrow for Nulasta injection and IV hydration. 

    Hope you all have had a great day, I'm going to take a nap 

  • Kazzy115
    Kazzy115 Member Posts: 122
    edited October 2014

    hi all!   I wanted to stop in and let you all know you can do this!   

    I had dose dense ACT which began May 1. It was a long summer but I worked 8 of every 10 day each cycle and managed to have fun with family and friends.  Even a short vacation to the desert in June.  

    You'll find strength and it will be done before you know it. Try to find small things throughout that you can look forward to, it'll help. 

    Sending love and light and healing energy to each of you.  

  • kerensa75
    kerensa75 Member Posts: 83
    edited October 2014

    great to hear Prncsmommy! Enjoy your nap :)

    Bummer on the headache though

  • speedcat88
    speedcat88 Member Posts: 37
    edited October 2014

    Thanks 70charger (love the pic).  I forgot to look for teatree oil when I picked up my Zofran.  Good to see you made it through, too Prncesmommy.  My hubby was also there with me and took care of everything I asked, including getting more ice for me as it melted.  WendeeB the ziploc bags for my hands worked great, the dishpan was a little big and their ice melted too quickly.  Take a hand towel or 2.  That was the last med I got and took the longest because they titrated it.  I had my fingers and toes in ice for an hour and a half with time out to thaw.  They were freezing, but so far I've felt some minor tingling no numbness or change in my nails.  I've got 3 weeks to find a better way for my feet.  My hubby suggested freezing wet hand towels and they could be bent around hands and toes with no melting ice.  He's just cooked me some scrambled eggs and grits, having problems with a mouth sore that was healing before the chemo.  Magic mouthwash helps.  I think the adriamycin aggravated it.  I kept ice on it, but its still a bit painful.

    I had all my meds by IV.  Nurse was great even though she had to stick twice.  She told me that the vein had bruised (it didn't blow) and normally they would have used it anyway, except for the first med going in, the adriamycin.  Well the second one was a go.  First came the premeds then the adriamycin.  Nurse Leigh sat right by my side slowly pushing 3 large syringes colored red into the IV (I was already peeing red before I left the chemo room).  Never felt a thing.  Then more nausea meds, a little Benadryl followed by Cytoxin.  No problems with that one either.  Some flushing, some fluids, then the last, Taxotere.  They used the generic for me since it has just been approved.  Other than freezing fingers and toes no problems from that one either.  Finish the fluids, remove the IV, and go home.  It took 4 hours.  

    I stopped to pick-up Zofran.  Then stopped to check on my parents, both in their 80's.  I had called my father to let him know that I was okay, but he needed to see me for himself.  Headed home after that.  About halfway my stomach felt "unsettled" and I took a Zofran.  Not nausea, just unsettled.  Nothing so far except a minor headache.  I'm a little tired, but I had to let ya'll know how it went. 

    Hugs to all.   

  • speedcat88
    speedcat88 Member Posts: 37
    edited October 2014

    One more thing

    Hugs and prayers to you hyphencollins and wendeeB as you join us on this journey tomorrow.  My thoughts will be with you.

  • 70charger
    70charger Member Posts: 963
    edited October 2014

    Thanks speedcat88.  Here is the baby of our stable. You into cars?

    image

    image

  • gypsie44
    gypsie44 Member Posts: 1
    edited October 2014

    I went through chemo for a year and a half and lost all of my ling beautiful hair. But I had two other chemicals besides that one.

  • hyphencollins
    hyphencollins Member Posts: 109
    edited October 2014

    Glad to hear from you Speedcat and Prncesmommy!  One down!!!  Effeur - hope you are doing well, too.

    Wendee, I'll be thinking of you tomorrow!

    I think I've seen tea tree oil at the Body Shop, too.  Are nail problems primarily a side effect with Taxotere?  My MO didn't mention anything... I'll be on Taxol (down the road doing AC->T).

  • speedcat88
    speedcat88 Member Posts: 37
    edited October 2014

    Beautiful 70charger!  We appreciate classics, but don't have any.  My father has a 1964 Corvair Monza convertible that he bought in 1963 new.  It still has the original top and leather upholstery.  Repainted the original yellow, the pale variety.  I'm more into stockcar racing and my MO OKed our trip to Charlotte next week for the fall races.  Leaving a day later than usual, but that's ok.  

    Gypsie44 I'm looking at about 2 weeks and mine will be gone.  I'm sorry about your beautiful long hair, but our lives are worth so much more. I'm going to enjoy my wig and some cute little hats and caps.       

  • efeuer777
    efeuer777 Member Posts: 5
    edited October 2014

    Dear Journal, I enjoyed watching the KC Royals get into the pre-season last night for the first time in 29 years. The game lasted until well after mid-night which kept me from worrying about my first chemo treatment today. Today I met with my doctor who answered all my questions, got to sit in a comfy recliner ,was taken care of by competent nurses, and had 5 1/2 hours of TCH infusions while I used my laptop to catch up on work. At the end of the day, I feel woozy-almost like a cheap drunk.  My tastes are a little blurred and I'm tired.  But no nausea. I'm not ready to kick up my heels but I am planning on my 2 mile walk in the morning. I know it will get a little worse each treatment but there are only 5 more of the long day treatments to go. My goals for the next 18 weeks are to do something normal everyday, to appreciate something new every day and to read the breastcancer.org forum every night.  Key word read not monopolize!! I'm already loving everything about these special ladies. Ellie

  • BookLady1
    BookLady1 Member Posts: 253
    edited October 2014

    Hi everyone - so happy to find all of you! i am finished with all pre-treatment appointments and start chemo on 10/7.  Oh, yeah, wig shopping this weekend with my 22 year old daughter. There's a sentence I never thought I'd type! Linda

  • kerensa75
    kerensa75 Member Posts: 83
    edited October 2014

    hyphencollins and wendee...good luck tomorrow!

    Efeuer, so glad things went well today, that awesome! 

    Welcome booklady :)

    ....tomorrow is the last of my "pre" appointments...I got summoned for jury duty for the first time ever, and have to get a medical nite from my MO tomorrow (it's like being in school- needing a drs note). Haha

  • Trekgirl
    Trekgirl Member Posts: 7
    edited October 2014


    This is my 1st time posting. I see my oncologist for the 1st time tomorrow, that's when I find out if chemo (I believe that will be a yes) and what drugs will be used. My husband passed away June 19th after being sick for only 24 days. This whole summer was a nightmare and I am so glad it's over.  My husband dying and me having bc seems so surreal. I feel like I'm in someone else's nightmare. My lumpectomy was on Aug. 26 so I would think that they're going to start things moving pretty quickly now. Will stop by tomorrow and update. This site has made things easier. Thanks to all of you.

  • Mulligan
    Mulligan Member Posts: 205
    edited October 2014

    Welcome trekgirl, so sorry you have to join this club and losing your husband, but there are such wonderful caring ladies on here that is here for you.

     I got my tea tree oil (Jason's)off Amazon since I have Amazon prime, but Kerensa I've seen it at Safeway too (at least the one off petrovisky). If you could find a nail polish with the tea tree oil in its better, but I have yet to find a nail polish that does or that doesn't cost $25 for it.

    My portacath wasn't bad at all, I tend to fall asleep with the twilight sedations so I basically fell asleep looking at the vitals on the big monitors waiting as they were prepping for surgery and the next thing I know I'm being woken up. I will say that now that I'm home the area where the port is, is very tender and sore. The tagederm they used is so taut against my neck I had to pull the top part a bit off as it was pulling my skin so much I could barely move my neck. Otherwise not too shabby. I'm getting a final me day tomorrow with a mani/pedi and I'm taking my tea tree oil and asking them to put it in before they apply the polish to my nails and toes. 

    Good luck hyphencollins and wendee tomorrow!

    Speedcat, I've heard some people freezing a wet sponge in a ziplock or freezing dishwashing soap (this is more pliable since it doesn't freeze into a block)in a ziplock (since that is liquid I would double bag it in case of leaks)

  • kerensa75
    kerensa75 Member Posts: 83
    edited October 2014

    Trekgirl, I am sorry you have found us under such poopy circumstances. Hugs to you my dear. You have definitely come to the right place to find caring people.

    Thanks Mulligan, I will check out Freddys this weekend :)

    I like the idea of sponges or dish soap. I go see my MO's nurse this morning, so going to ask her about tips.

  • hyphencollins
    hyphencollins Member Posts: 109
    edited October 2014

    Hi everyone.  I'm here and in the chair.  I've ordered my lunch but havent started tx yet.  You know, taking care of the important things.  Still have hair:).

  • 70charger
    70charger Member Posts: 963
    edited October 2014

    Just a short note on the nail thing ladies.  Some ladies use a dark nail polish to help.  Not sure how that works.

    Also not all nails turn black if you are going to lose them.  I lost all but 3 of my toenails. I noticed my nailbeds going opaque white, as if the moon part was growing all the way to the end.  Then my nail would just pop off. Nothing gross as a new nail was under it.  When doing chemo your nail goes thick, like acrylic nails.  My new nails were thin like paper.  I lost my nails 6 months after my last chemo!

  • speedcat88
    speedcat88 Member Posts: 37
    edited October 2014

    Best of luck hyphencollins.  You're going to do great.  Told my hair yesterday morning that it was going to start dying today, but better you than me:).  Took a Promethazine this morning around 12:05 and slept pretty good.  Haven't taken anything for nausea since getting out of bed this morning, but I took my Omeprazole, Dexamethasone (just a little jittery feeling), and Loratadine (for today's Neulasta shot).  Oddly enough had a little reflux last night before I went to bed even though I am taking Omeprazole.  What's bothering me the most today is the mouth sore, which was already there before the chemo yesterday.  Got a call in to my MO to see if it's okay for me to use Colgate Orabase paste along with the Magic Mouthwash.  It was working really well in covering the spot and staying put. 

    Oh!  My fingernails and toenails look good and no tingling or numbness noted.  I will pickup some tea tree oil today.  Mulligan the sponge idea is great.  We have a lot of sponge material that we get packed around some of the outboard motors coming in from the factory.  I think they might be perfect.  Thinking about you Wendee.  Trekgirl, glad you're here.  We're all in this together and you will never be alone.  Extra prayers and hugs for you having such a devastating summer.  Make sure you are comfortable with your MO and try to take notes if you need to.  

    See you all later this being one of the highlights of my day.  Hugs to everyone.

  • ml143333
    ml143333 Member Posts: 658
    edited October 2014

    Hi ladies! 

    Can I join you?

    I start 8 tx of CMF every 3 weeks on 10/17.  I am waiting on my appointment for port placement.

    My MO said today that the only fly in the ointment is the Oncotype score of 23.  Other than that, he said I was good...stage 1 grade 3, 1.3 cm tumor (removed 8/27 all margins clear) and no nodal involvement.  He said I am in that grey area and could go either way.  He said if I was deadset against chemo then he would recommend tamoxifen (which I knew I would take) or tamoxifex and ovarian suppression.  Having chemo further reduces my chances of distant recurrence and with the BMX/chemo/tamoxifen I have an 11% chance over my lifetime.  I will take those odds.

    I don't know much about chemo other than he said he would recommend CMF for me rather than TX because I am working through chemo and the side effects are not as severe and long term.  I'm okay with the treatment set for me and actually almost happy/excited to get it started.  I know that sounds weird to most people, but probably not to you all.

    Thank you.

  • kerensa75
    kerensa75 Member Posts: 83
    edited October 2014

    Nancy6540 what were you told about hair loss on Taxol? I have been told I probably wont lose my hair all the way to it will fall out by treatment 4. I want to plan ahead but don't seem to know what to plan for. Can you tell me what you were told?

  • Mulligan
    Mulligan Member Posts: 205
    edited October 2014

    Welcome ml143333! The ladies here are great with lots of tips to help and avoid SE. :)

    On a rant note about my portacathe yesterday, it all went well except that I'm allergic to any and all types of adhesive
    tape and I made sure they knew before surgery and informed them that
    tagederm was the only thing I'm not allergic to, it is also in my file that I'm allergic to all tape. I
    didn't notice til I got home that I had tagederm and a different
    cotton type adhesive on. Last night my whole body itched like crazy and I
    couldn't sleep. I woke up to hives all over my body and redness around
    the cotton bandage, I seriously thought it was from my new sports bra I was wearing. I had an appt with my PS this morning so I didn't
    want to bother calling the Onco office(the nurses
    yesterday specifically told me not to touch my bandages even even if I
    had an allergic reaction and to call my Onco if I had any problems).
    Luckily my PS knows about my allergies and saw the hives and
    redness and offered to remove the dressings and redo everything with tagederm.  When he pulled off both the old Tegaderm and cotton adhesive you could
    see where the tagederm area was fine but the cotton adhesive material was on my skin was puffy and red and upon closer inspection tiny blisters formed along the outline of where the adhesive was. Ugh, it makes me mad when they don't take me seriously when I say I'm allergic. Ending on a positive note, the nurse called me to check up on me and I let her know how my allergy issue was ignored and now I have hives and blisters. She apologized and promised it would be noted to ensure stuff like this doesn't happen again.

  • wendeeB
    wendeeB Member Posts: 40
    edited October 2014

    @kersenia75  you can see my tx below and my MO told me my hair should be mostly gone before tx 2!  I'm furiously knitting!

    @ml143333  welcome! Sorry you're here, but it's a great site.

    @Jules, that really bites about how they didn't listen and now you have to suffer.  I hope they calmed your allergies down.

    Had my 1st infusion today.  Originally scheduled for 1415, but got called to come in at noon because they didn't realize it was my first and it would possibly take longer.   So, I had to cancel *my* patients.  On the bright side, I got to see hubby and 2 of my 3 kids again before I headed out.  Got there, they took me back, weighed me, vitals, cbc, sent me with 3 vials to the chemo room (kinda antsy for a second walking in there) where one RN started my IV.  Ugh, she sucked.  I almost passed out!  Got it in, back to my room to talk to the MO.  I ♡♡ her.  She talks to me...not at me...not over me...TO me.  Get done with her (the se, sex, etc convo) head back to the infusion room, sit in my chair.  2 hours later I got up and went home.  THANK YOU speedCat about mentionimg taking your zofran.  I wasnt nauseous,  but my tummy felt gurgly.  The zofran settled it down.

    Drove home, stopped at the library to pick up my sons Minecraft book, came home, ate some lentils with green beans,  onions, and garlic.  Cooked the kids dinner.  Figured I should update. 

    Blessings to all my sisters here. We're here for a reason.  

  • Nancy6540
    Nancy6540 Member Posts: 50
    edited October 2014

    Kerensa, they didn't say when it would fall out. From the Herceptin/taxol group I am figuring about the fourth infusion. I had to have mine cut short when I tore off my shoulder because you can't style hair with one arm! So it won't (shouldn't) be as traumatic in three weeks if I do have to shave it off. I plan on buying a wig this coming week, along with some scarfs for PT.

  • kerensa75
    kerensa75 Member Posts: 83
    edited October 2014

    welcome ml143333 :)

    I must say, this group rocks for support. 

    Mulligan I really hope they don't use any more tape on you Hun! I would be livid if I were you.  After my surgery, I had an allergic reaction to the stuff they washed me with :( that crap is NO fun. 

    Wendeeb glad to gear your 1st infusion went well! 


    I need to go look at wigs next week. I wish I could knit or crochet. I mailed my mother a pattern to hopefully crochet me some hats. Since her last stroke though she has a hard time remembering how sometimes :) but she said she wanted to try.

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