Orlando Chemo ladies?

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  • lbrewer
    lbrewer Member Posts: 766
    edited July 2014

    if you get a metal taste during chem, try lemon Popsicles.  another reason for my dry ice!  a lot of people find using plastic silverware when they eat helps too.  google miracle berry

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited August 2014

    Do the real forks and spoons really add to the metallic taste or is it a mental thing? I wonder.

    It seems to all go away 3-4 days before my next treatment. yay.

    Is this what you're talking about:

    Miracle berry tablets

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  • lbrewer
    lbrewer Member Posts: 766
    edited August 2014

    i bought then ones in the yellow box   1 dollar cheaper and prime.  not sure about the silverwear thing.  lots of people swear it works.  my father and 2 brothers died of cancer and they thought it helped.  for good or bad  almost all food tastes good to me.  maybe berries would improve salad and grilled chicken.  

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  • lbrewer
    lbrewer Member Posts: 766
    edited August 2014

    http://eatocracy.cnn.com/2011/11/28/miracle-pill-takes-the-bitter-with-the-sweet/comment-page-1/

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited August 2014

    Can you get them locally? Like whole foods or GNC ?

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  • lbrewer
    lbrewer Member Posts: 766
    edited August 2014

    never tried

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited August 2014

    If it gets rid to the mild metallic taste in the back of my mouth, making chicken taste like nothing, then I'm going to find them.

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  • lbrewer
    lbrewer Member Posts: 766
    edited August 2014

    I was hoping chicken would taste like chocolate!

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited August 2014

    From your lips to God's ears!

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  • ucfmom
    ucfmom Member Posts: 127
    edited September 2014

    Hello Orlando ladies!  I haven't been on much lately as my life has been a little crazy but I have something I want to share with you all.  A few months back I was reading the bra thread and saw people commenting that if we have a prescription, we can get bras covered under our insurance. I met my out of pocket max when I had surgery so I decided this was a good time to look into it.

    A friend told me she was fitted and got some bras at Eden Spa in the Florida Hospital Cancer building on N. Orange Ave so I made an appointment there with Selene, the fitter.  She made a copy of my DL and insurance card so they could call and check on my benefits.  Barbara called me the day before the appointment and confirmed that my insurance would cover the bras.  They told me to have my doctor write the prescription for 12 (!) bras because a script is good for a year and I can get 4 at a time. My MO's office faxed it directly to Eden Spa.

    My fitting was last Thursday and Selene is great!  My gummy bear implants are wide so I'm a little bigger size than I was before but don't have a lot of projection so any bras I've tried on this year have not fit right.  I've been wearing Genie bras mostly because they're stretchy. The first bra I tried on had a little extra space in the cup so Selene put silicone enhancers in the cups.  All the bras there have thin pockets for enhancers or prosthetics.  I'm happy to say I walked out of there with 4 bras, a pair of enhancers and paid nothing out of pocket.  They all look and feel great - soft and comfortable, which is what I told her I wanted.  She's going to order some other colors in the bras I liked so they'll be there for me next time I go in.  It was so easy, so I just had to let you all know in case any of you need bras.

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited September 2014

    ucfmom thanks for the info, I was just there on Friday morning for a PT session. I won't have my surgery until early next year, but I will keep that in mind. I was actually told by Dr. C's office (PS) that I can go to Neiman Marcus in The Mall of Milennia and get bras that would be covered under my insurance. Kind of weird if they do it in the same building!

    I did discuss the type of bras I can wear with the PT who is a Lymphedema expert. She said I shouldn't wear underwire yet she said the prescriptions are for underwire. I know you didn't have the ALND but do your bras have underwire?

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  • ucfmom
    ucfmom Member Posts: 127
    edited September 2014

    No underwire in any of mine and all 4 are different styles.  Dr. Shroff is the one who wrote my prescription.  No one said I couldn't wear underwire but I don't want to.  I can't imagine it would feel OK on me - I need super soft and comfy!  :)

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited September 2014

    I have an appt with Dr. Shroff on the 26th, I'm confused, I thought Dr C would have to write that one. I've gotten used to no wires, so that works for me!

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  • ucfmom
    ucfmom Member Posts: 127
    edited September 2014

    I would think any of your doctors can write the prescription.  I'm just impressed with how easy it was.  I didn't know about Neiman Marcus; I knew Nordstrom did it, but I think the ones around here closed. 

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited September 2014

    Chemo brain alert - It's Nordstrom in the Millenia mall!

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  • ucfmom
    ucfmom Member Posts: 127
    edited September 2014

    Is it still open?  I thought it closed? 

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited September 2014

    Well, that is where they told me to go. It is still open I do believe

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  • lbrewer
    lbrewer Member Posts: 766
    edited September 2014

    according to their website the closed the millennia and Florida mall stores. 

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  • ucfmom
    ucfmom Member Posts: 127
    edited September 2014

    I thought I heard they closed in August, but didn't pay much attention at the time.  It's too bad, it would be nice to have another option, although Serene said she'd order some styles she thinks I might like.

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited September 2014

    That would make sense then. I was at the doctors in April when they told me I could go there. Life has been a blur since then

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  • lbrewer
    lbrewer Member Posts: 766
    edited September 2014

    I know the blurred feeling, homemom.  I didn't think I would ever finish with chemo and radiation.  It is still all pretty blurry  all you can do is go from one day to the next  

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  • ucfmom
    ucfmom Member Posts: 127
    edited September 2014

    OMG this whole year has been a blur for us.  Just when I thought we were on the other side of this damn cancer thing, my husband was diagnosed with lymphoma.   Both of us with cancer in the same year, I still have a hard time wrapping my head around it all but we have both been lucky as it could have been so much worse.

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  • auroaya200882
    auroaya200882 Member Posts: 942
    edited September 2014

    wow ucfmom I'm sorry that both you and your husband had to go through this but glad you are coming along in your recovery. July 17 was my "cancervisary" for my stage IV dx and coming up in Nov will be a year since I left the hospital. Things have gone well for me. When they found the cancer had spread to the bones they gave 6 months to live now thanks to my onco and /arimidex and zometa last ct scan show regression. So happy anniversary to me! I hope you and your DH continue to get better and kick C to the curb.

    Aurora

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited September 2014

    ucfmom - life seems to give us bunches of good stuff then through the crap at us all at once too. It sounds like you both have a great attitude which as well ALL know is important. I was worried about my son and his esophagus, but that turned out ok. You can take things happening to you, but your loved ones not so much

    Congrats auroaya! That is such good news. Who is your MO? They sound like they didn't take no for an answer! :) 

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  • auroaya200882
    auroaya200882 Member Posts: 942
    edited September 2014

    HomeMom my MO is Dr. Stefani Capone in Florida Hospital Cancer Center in Winter Park and she is awesome. Last week she called me herself on the phone to tell me to go to the E.R. because the radiologist that read the CT said I had a fracture! Well that turned out to be a false alarm and actually the CT shows regression/healing in the bones! Yey!

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  • jbokland
    jbokland Member Posts: 890
    edited September 2014

    congrats Auroya!!  Wonderful news.

    UCFmom- so sorry!  This whole cancer thing is exhaustive. Stay strong!

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  • lbrewer
    lbrewer Member Posts: 766
    edited September 2014

    Been gone a while.  UCFMom,So sorry to hear about your husband.  It is so stressful.  Awesome news Auroya.

    I dont konw how to stop being afraid,

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  • lbrewer
    lbrewer Member Posts: 766
    edited September 2014

    sticking close to home in November. My grandson is due!

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  • HomeMom
    HomeMom Member Posts: 1,198
    edited October 2014

    Wow congrats lbrewer! I'm not sure when or if I will be a grandparent. Strange how I never cared about that before. My son and his wife have only been married going on 2 years, so no hurry. :)

    Anytime anyone wants to get together for lunch I have off on Fridays and Saturdays now. Not sure when I start Rads, but chemo is OVER! 

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  • auroaya200882
    auroaya200882 Member Posts: 942
    edited October 2014

    HomeMom great news for you been done with chemo!! I would love to meet for lunch either one of those days is fine with me, but I would need help with transportation, if you or one of the other gals could swing by and pick me up. I'll let the rest of you work out the details.

    Aurora

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