Starting Chemo in December 2013

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  • RobinLK
    RobinLK Member Posts: 840
    edited September 2014

    Scanxiety, is traumatic..... It truly is..

    Trying to post from iPad. I did not do update on it..

    image

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited September 2014

    I wish I didn't do the update on my iPad and iPad mini. It is worse now even with the newer iOS. Argh! Still have iphone 4 so can't update that. Good! Can I go back to the older iOS? Both devices keep freezing up when typing(especially on here) and then I loose everything I've just typed. Hate technology sometimes. 

    Robin, yea for your adorable new puppy. How is your other dog doing with the new pup? I see your lymphedema sleeve folded back at the top. (You're not supposed to do that) Is it a custom or ready to wear? How is your LE doing? I guess I should wear mine for the flight this wknd. Hmm almost forgot about it. ( don't have le but got a sleeve when I took a flight in April as preventative) Occ fingers swell with the heat and when walking and arm is down but this happens to both hands but I should take extra care with lefty, I know.

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited September 2014

    Ok everyone, find a pink limo and take a pic inside lol! There may be lots around in oct. (Ugh...October)

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  • Carol99
    Carol99 Member Posts: 116
    edited September 2014

    Robin, so cute!  Love lab puppies, she's darling:)

    Keep the faith, good luck, it's a good thing for our Dr.s to be cautious.  The anxiety is the worst!

  • RobinLK
    RobinLK Member Posts: 840
    edited September 2014

    Lucy is adjusting, but a tad impatient. To be expected as it is not Spirit, and she is three years older than when we got Spirit. 

    My sleeve rolls a little at the top. It is a "seconds" from Lymphedivas. The diamond band did not adhere properly and they had to cut part of it. It is loose where it curls. My PT saw it and made sure it was okay.

    I don't think Apple products can "roll back" updates. Which really stinks!

  • kjfromca
    kjfromca Member Posts: 283
    edited September 2014

    Robin love the puppy, she's so cute. 

     I just got an email from my MO.  Because I am anemic, I have to get a colonoscopy.  She wants to make sure that I don't have bleeding polyps.  I leave for Talledega in a couple of weeks, I will make my appointment after I return.  Oh and my white blood cell count was down from 4 days earlier...  I am not a happy camper. 

    Keepthefaith - The never ending tests..... sending a hug your way!

    Lisa - Wishing I could meet up with you ladies in Arizona, but the family party was rescheduled, so I won't be headed out there.

    Kim

  • kjfromca
    kjfromca Member Posts: 283
    edited September 2014

    What date are you ladies considering to be your anniversary date?  Diagnosis date, surgery date, or end of treatment date?  

    Kim

  • jbokland
    jbokland Member Posts: 890
    edited September 2014

    Good question  I am thinking my surgery date when the little bastard was removed

  • Mikesgirl17
    Mikesgirl17 Member Posts: 260
    edited September 2014

    Neskir....So great to hear from you!  As far as the question....When do you consider your anniversary date, I'm going with when I actually got the phone call confirming what I already knew.  October 6.  Thank you girls for getting me through the hardest year of my life!  I don't know what I'd do without you all.  Kimie and I are meeting next week :)  She's coming through on her way out of state.  We'll take a picture and show you all.  My mom is thrilled that we have each other to lean on. By the way, my hair is growing very fast.  This is not the norm for me.  I've been using Hair Suge which I found on Amazon after going on the hair, hair, hair thread.  I don't know if that is what is doing the trick or not, but I recommend it.  It has caffeine  in it.  Which is weird.

  • Mikesgirl17
    Mikesgirl17 Member Posts: 260
    edited September 2014

    Well this is disappointing...I just read that if your period doesn't come back in a year, then it probably won't.  It would have been a year in Jan.  I just started :/  Robin, congrats on your new pup!  

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited September 2014

    I know they consider the dx date as the survivor date (ie "I'm a 1 yr, 2yr etc survivor) but that doesn't seem right to me but I guess they figure we started "surviving" from the date of dx. I would say I've been CANCER free from the date of my last treatment (7/25/14) when every little potential bastard has been cut out, poisoned or fried with surgery being the most significant one.

  • RHGSR
    RHGSR Member Posts: 774
    edited September 2014

    a lady on the DIEP board said that she considers her date to be the day she got the mammogram results. She said that since she didn't die that day from the shock then that must be the day she started surviving!! So my mammogram date is Oct.  16.  My biopsy results came in on the 23rd. But I knew it was cancer when the radiologist at the mammogram place walked in before I left and told me it was highly suspicious. I could see it in his face and I knew. My husband and I just talked about this last night. He said he still held out hope until the biopsy results. He confessed when I called him at work and told him they were positive that he had to run to the bathroom because he got sick. Poor guy. :0( but that phone call didn't bother me at all because like I said... I already knew after that mammogram. Plus I knew what questions to ask during the biopsies...

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited September 2014

    Scheduled my U/S and DX mammo for tomorrow afternoon. Scheduler said RO ordered it STAT. They were trying to schedule it for next week and I moved it up, but going to a different location. RO didn't seem that concerned at my appt...please pray that it is just the RO being overly cautious. (*&(*^%%#@!!!

    I consider my one year cancerversary date the day I was DX'd...Sept 17th. We all have something to celebrate. Thanks for being here for me! 

    Kim, thanks! I hope you enjoy your time away and can forget about this for a while. I am going to wait for my colonoscopy until this breast stuff is dealt with. I don't think I can handle another Dr appt right now.

    Holli, thanks for sharing your story. Your husband sounds like a real keeper!:)

    Robin, your new fur baby is adorable!

    On another subject, my DD is 15 wks pregnant. She had some bleeding last night. Will go with her to Dr in the morning before my appt. They are finally having their little girl after 3 boys! I pray that everything is okay.

  • missy6758703
    missy6758703 Member Posts: 218
    edited September 2014

    I also think i'll go by my diagnosis date......October 22nd.  I was wierdly calm....like most of you, i had a sneaking suspicion although i had no symptoms.  My biggest fear in life, other than something happening to my kids, is (was) getting cancer because I had seen both my parents go through it and the devastating side effects it could cause.....well my worst fear became reality and i'm proud to say i've been able to get through it with grace and courage and have done it along with some of the most incredible women out there....all of you. 

    A year ago my best friend Denae made me get an appointment along with her to go in and get our mammograms...i did so reluctantly.  We went in for our mammograms on October 4th.....a week later i emailed her at work and asked her if she had heard anything yet as I hadn't....she told me she had received a letter in the mail the day before, i didn't get one.  I knew at that instant that I had cancer.  I got a call a couple of hours later wanting me to come in for additional tests.  Those were the longest couple of weeks of my life.  I'd never felt so alone and helpless and pissed off at the entire world because this was happening. 

    I head back to the Mayo Clinic for appointments on October 22nd....exactly a year to the date of diagnosis.  This time though, along with meeting with my surgeons, i'm meeting with the Mayo Clinic Breast Cancer SURVIVORSHIP program! Last year, i just prayed to survive....and i did. 

    Happy Breast Cancer Awareness month ladies (said with just a slight hint of sarcasm!) ;)  May our breasts be fondled only with love and no longer by machines, strangers hands, needles, scalpels, ultrasound machines and whatever else has touched em' this past year!

    Love you all!

    Michelle

  • kjfromca
    kjfromca Member Posts: 283
    edited October 2014

    Keepthefaith- I will be praying for you tomorrow.....I will also be praying for your dd.  

    What a Flippin year.   I will never forget my diagnosis date, Sept 12th, but I will use my MX date, Oct 31st as my anniversary date.  This is also my oldest son's birthday.

    Mikesgirl - Bummer re the period, but Happy to hear that you're able to meet up with Kimmie.

    Michelle - Love the bc proverb.  

    I am thankful that I have you all.  Last year, I became a hater of pink....this year if I choose to wear pink, I will wear it proudly, as a survivor and warrior.

    Kim

  • kjfromca
    kjfromca Member Posts: 283
    edited October 2014

    Michelle - I meant to say blessing not proverb....I think, now I am confused....lol

  • chicopeach57
    chicopeach57 Member Posts: 166
    edited October 2014

    Kim, are you going to Talladega, Alabama? I am about 2 hours from there, want to have lunch or something?

  • RHGSR
    RHGSR Member Posts: 774
    edited October 2014

    Keep the faith- praying for you and your DD. Keep us posted. 

    Holli

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited October 2014

    Michelle, beautiful post. I love the last part, that was the best and and what I wish for all of us. 

    Looking back almost 1 yr later, I had my regular mamo and U.S. last yr on 10/9/13 and reluctantly went for an aspiration on the "supposedly" benign cyst which we have been "watching" for almost 2 yrs every 6 months. Well this radiologist said lets aspirate it and just check it although it still doesn't look like anything. That was 10/16 and on 10/18 I got the call from my ob/gyn to come in to review it and you know the rest....

    Hated pink while going through it as I felt it was advertising "I am "sick"" and I hated feeling "sick" but now it advertises that I am well and healthy and surviving and thriving and I am proud of myself. Interesting how we change.

    Keepthe faith, good luck to you and your dd

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited October 2014

    ok my first haircut 5 1/2 months post chemo. He took a lot off the back and sides and nothing off the top or front. More of a shape now rather than like a ball or poodle or top of a bad q-tip, lol, you get the picture. I think I'm going to keep the color for now. It was so good to have the feel of a haircut again even though it's still short. I'm afraid it looks old lady like though. He said once the top is longer we can work on a more edgy style. He worked on it with a small round brush as its not quite 2" long yet (haha just went to measure it, lol!) and that's about it. (The car is a good place to take pictures it seems, there have been a lot taken in cars posted here)

    Oh and I got this cool ear cuff this weekend at a craft fair. Think it looks cool with short hair (pre-haircut)

    image

    Hope all of you are well and those having yearly mamos, scans, appts get through with flying colors. I talk about how much this group has meant to me to everyone that asks how I'm doing or what helped me get through. its girls that really, really understand. We've pulled each other through, kicking and screaming and crying sometimes, but we did it. You are a part of my recovery and I thank you

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited October 2014

    Thank you all for your good wishes and prayers!

    Rad Dr said she did not see anything of concern...:  YAY!!! Hopefully RO will concur.

    One second I'm glad RO is so cautious, the next it makes me wonder...

    DD Dr appt went okay also. Just keeping a close eye on her now. She has been through a lot of difficult times with all of her pregnancies. 

    Lisa, your hair is beautiful. I have trimmed mine up on the sides also, to give it a bit more of a style. The ear cuff is adorable. 

    I am going out with BFF to have a beer now!!! Too much stress for this old lady.

    ((HUGS))

    Terri

  • kjfromca
    kjfromca Member Posts: 283
    edited October 2014

    Chico - I will PM you my info.  

    Lisa - Love the ear cuff, I want one.  Your hair looks great too.  

    Terri - So glad to hear that all went well for both drs. appts.  I will continue to pray for your dd.  What's her name?  

    Kim

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited October 2014

    heres the website for the ear cuffs. That's the small one and it actually came with 2 of them and the small earrings

    http://earcuffgirl.com/smallearcuff.htm

  • DJJ
    DJJ Member Posts: 229
    edited October 2014

    Lisa, your hair is too cute!

    Mikesgirl, no period for me yet either...grrrrrrrr,  I'm getting nervous,  My last period was a week before chemo so the beginning of December will be a year with no period.  My MO said it could take up to two years...sigh

  • RHGSR
    RHGSR Member Posts: 774
    edited October 2014

    I'm posting this on two boards because the irony is just too much!! I apologize for the cross post. 

    _____________________

    ok ladies....

    LOL!! I was killing some time at the Halloween store across the street from the oil change place. I saw this and it just made me laugh. Especially since I won't be having any surgery this year more than likely (due to the steroids and radiation pnuemonitis ). Nipples were supposed to be my December surgery. Takes a whole new tune to "All I want for for Christmas is my two front teeth"!! LOL

    Oh the irony!! Ha ha!!

    I found my Halloween costume!! LOL!!

    image

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited October 2014

    one by one we will be fast approaching or pasted our 1 year anniversary date. I truly wish everyone clean scans, mammograms etc. I just want to forget the past year and start 2015.  Unfortunately I will still have a disabled and worsening husband to deal with.  2015 may be the year of the nursing home, trying to keep him home as long as I can. 

    Gee I would think you younger gals would be happy no more periods.

    Everyone's hair is growing in so nice.  Mine is still thin enough on the top that I use white hair powder on it so the scalp does not show through as much.  

    Terri glad the mammo was OK

    Michelle, love then ending of your post.

  • Lisaj514
    Lisaj514 Member Posts: 719
    edited October 2014

    holli, OMG, really? I don't know whether to laugh or cry. Funny, yet sad. Oh well that's America for you. (Who would really wear this?)

    Barb, how is your dog? Hoping she's doing well with the treatments.

    Heading to sedona on Saturday, and a visit with Robin in Phoenix! Yah! Let's all get together sometime. Wouldn't that be great

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited October 2014

    Lisa, she is  1 week post radiation. Some bladder irritation and not wanting to pee for 12-15 hours at a time but today she is acting more normal and peeing better.  She ran up the stairs to see me today when I was making up my husbands bed this afternoon then ran back down them when I came down again.  It is so nice to see her acting happy again. I guess radiation must be fatiguing to dogs also.  

    Still considering starting the chemo on her in 1-2 weeks. 

    Sedona should be a healing place for you. How fun to meet Robin. 

  • RobinLK
    RobinLK Member Posts: 840
    edited October 2014

    I am excited to meet Lisa! How many people can you oovoo with at the same time? It is similar to skype with video chat. I don't think you can do a multiple person video chat on skype. Are there video chat rooms?

  • kjfromca
    kjfromca Member Posts: 283
    edited October 2014

    Holli - LOL    I could go off on a rant about women wanting big boobs to please men......but I won't.    How is the surgeon planning on making your nipples?  When the time comes, I am thinking that I will have a tattoo.  I just need to find the right tattoo artist with the right criteria.....Good looking and experienced in tattooing nipples.

    Barbara -  Sending a hug your way.  You are an extraordinary women.  Whatever decisions you make regarding your fur baby's cancer treatment and your husband's care decisions, will be the right ones.   We are here for you.

    Lisa & Robin - Excited that you two get to meet. 

    Ladies -  I think that we should try to plan a weekend somewhere to meet up..... in the spring?  

    Kim

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