Faslodex Girls Thread 2014

I go for scans the 29th and pray there is no progression, as I have only minimal side effects from the shots  last scan, my markers were down a bit, and the mass on my uterus had shrunk a bit .  Already beginning to get anxious, guess I always will . Wilsie

adnerb,

I am one lucky outlier to be sure!

*susan*

I have just had my first scan since starting Faslodex, so tomorrow is the day I find out if this is helping me or not. I am trying not to think too much about it right now.. but it really helps knowing there are some of you out there who have had successful results for years!  

Agree with tina! No matter how cool, calm, and collected we are most of the time, upcoming scans seem to make all of us nervous.

Tomorrow is month 57 for me. Will start to hydrate after I get home from my client's office this afternoon. Actually, free seltzer water at this office, so I might start a bit earlier. Just can't spend all their billable hours running to the rest room which is strangely inconvenient from my desk.

This is the time of the month that I have to focus on my health, and I don't really like it one bit. Four night's at my mother's house has triggered "faslodex back." Man do her beds SUCK! :-)

*susan*

Oh, Rina, I am sorry to learn this and that you are leaving the Fanny Pack. Faslodex does take a bit of time to work, so if things are going in the wrong direction, it's probably best to change course. May Xeloda be your solution!

Tina

Rina, I'm so sorry Faslodex didn't work for you, but fortunately you have another option.  I hope Xeloda is the one that works perfectly for you.  We all worry when scan time comes around, but when they help us decide to make a change we appreciate having them.

Best wishes to you on Xeloda!     Birdlady

birdlady,

I had to delay one week in March [about 3.5 years into this sage] and my oncologist had no problem with the delay. She indicated that she would prefer not to make it a habit, but once was fine and would make no difference..

*susan*

Well, today at 12:30pm I will receive my 57th month of Faslodex. Someday I should calculate how many shots that has meant. Just can't remember how many months were single before moving to the double dose. I received a call from Nurse Judy yesterday. Her message was so apologetic and sad as she told me that she has just had to realize that her hands and back can no longer do this difficult injection. So, as of today, I have a new chemo nurse, Nurse Sharon. Nurse Sharon was my substitute nurse two months ago, and did a really good job. Just a bit wistful. Judy and I have been working together for nine years.... and I had come to both trust and like her tremendously.

*susan*

Susan, wow. That's a  fundamental cast change that would give anyone pause, particularly after so many years. I remember the loss I felt when my longtime Gyn retired in her early 40s because her back could not withstand the postures necessary for her work. 

Here's to a relationship with a new character in your ongoing saga of success.

Bottoms up!

Tina

Prayers and healing thoughts for everyone in this group!

Wilsie,  I'm so sorry you have to go through all of the anxiety of scans for your son as well as yourself.  I certainly will be thinking of you and praying for both of you.  When I read about young people having cancer I cringe inside thinking of my own children and grandchildren.  MaryAnne

Thanks to all for prayers and good wishes.  At least the anxiety over my scans will be over tomorrow . Wilsie

my news not so good .  Mets to liver, no more Faslodex  Starting taxol next week . Bummer.  Wileis

Wilsie, yes, that's a bummer all right. I'm so sorry to learn that you have to switch treatments. Go, Team Taxol!

Tina