How are people with liver mets doing?

Going home.  Praise The Lord!  Thanks for all your prayers.

:-) Penny

Chichimaine--  I've been on xeloda since last November, and finishing up round 16 pills tomorrow.  I've been lucky with the se's.  I didn't have stomach problems with chemo, either, so maybe that's a predictor for future chemos?  Who knows.  Be sure to take it within 30 min. of eating, with a large glass of water.  Keep the lotion on your hands and feet.  There's a xeloda thread with lots of helpful tips.  Good luck to you, and I hope works well for you!!  

Woodylb- glad to hear you've survived your first day!  Stay hydrated and keep up with the moisturizing.  (((Hugs))) to everyone, and sweet dreams!

Lolllll Hollander, i actually survived it, but i will wait one week and reserve my judgement ! For the forst day i didn't much of an appetite , i ate less than normal so it must the ice cream . Thnx for all your support though and your encouragement. Hugs. 

It's my third day on Xeloda and so far no se...a little nausea this morning, but I thinks it's mostly because I am not a breakfast person.  Had a waffle with syrup and strawberries an blueberries.  Apparently my stomach did not like it.  Felt better after lunch.  Can't find the thread on Xeloda, but might not be looking in the right place...is it a different discussion board?  Gla dyou are still doing well Woodylb and thanks, Hollander for the encouragement.  Fight on!!

Thanks, Woodylb!  I did find the thread - All About Xeloda.  And thanks for your encouraging words of wisdom.  I agree...I'm usually better off not knowing the SE's.  It just makes you think about them and sometimes bringing them on.  I'm doing well...I've called the pills my torpedos and I launch them one by one at the mets and any of those stinking little C cells.  Hoping It will "sink C's battleship!" lol  Blessings to all and keep up the good fight!!

Hi leftfootforward,

I hope you stay on xeloda for a long time. Thank you for the tips as i mainly feel sleepy most of the time, so take a long nap in the afternoon. But i have been on it only sinve the 24th of this month. Are you taking something for her2+ besides xeloda? Like herceptin ? I am not her2+ but when they did my liver biopsy her2 showed borderline , FISH was done it came back negative. But since i am doing an intelligent genomic testing in germany they had to redo the pathology in another hospital and the her2 came back +3 a deffinite positive so they are retesting the FISH because of the previous one. The results will be out this week. My MO says if it is positive my whole treatment will change. It is very rare for an ILC to turn positive . Any ideas? 

Woolylb-

I take Tykerb for the Her2+.  I had brain mets and this was thought to give me the best chance of treating the cancer in my brain.  I am not on a herceptin derivative at this time.  That is because on my initial treatment A/C followed by Taxol/herceptin, followed by Herceptin, I suffered some heart problems.  My EF fell from 6-% to 34%.  They took me of the herceptin all togehter early before ai finished my year on it alone.  it has bounced back to around 45% now and is stable.  My cardiologist suspects that the damage is from both the Adriomacin and Herceptin, but my oncologist is avoiding all Herceptin derivates until we really have no choice. They don't want to risk the possiblitly of further heart damage.  I thnk the red devil had more to do with my heart issues than the herceptin and am hopeful that when the time comes, I will be able to tolerate the herceptin products.  

there are many new drugs to target Her2+ and for that I am thankful.  Tykerb and Xeloda are doing their job so well right now that I hope to stay on them for a very long time.

i hope they find the right combination for you.  Once you have a plan it is always a litle easier.  I hate the waiting to figure it out stage

Bestock, 

If the pain is caused by a progression and they put on a new med , the pain will lessen , otherwise you should talk with your doctor about this burning so he dan refer you to a pain doctor or he himself can prescribe something. I have liver mets but so far without symptoms with a little discomfort n the right side  and sometimes a dull pain in the liver area. But it is rare and i prefer not to take anything. Each cancer however is different and my advise is that you tell your doctor how you feel . I wish you pain free days and peaceful nights . 

My next scan is in november, I was dx out of the gate in 2008 with TNBC Stage IV with mets to liver and lungs.  I have been off Chemo since oct 2009 after 2 NED scans was suppose to be short lived according to the doctor's that was like 5 or 6 years ago.  I was dx with an Auto Immune disorder as soon as my immune system came on line called Sjogren's.  I am however taking an old chemo drug Methotrexate but in low dosage  8 2.5mg pills every week to somewhat help the flares caused by Sjogren's. 

thanks to all for prayer. Will be going to dr today. I most likely will be on new treatment after scan..9which will show me what causes the pain). My tumor makers are up.  will let you all know.

becky

Prayers for you Becky and best of luck. 

CT found liver mets today   After I get over the,shock and disappointment, I will dry my eyes and read all this info.  I will be on Taxol now  Wilsie

Wlisie2,

So sorry you got this news, i cannot tell you it will get better, but i can tell you will learn to live  with it. It is not easy but believe some ladies have been ,living with it for quite sometime. I hope your doctors will succeed in finding the right combination for you which will halt this cancer and keep it at bay. Hang in there , taxol will do a good job in shrinking it. My prayers are with you. Keep us posted. 

Thanks all of you for prayers,Dr not too worried, about the mets as i have grat liver function on bloodwork.... I will have a scan next weeek, pain on side and back concern me.I will let you know after I get results.

Hello everyone......l have been reading this thread, but hadn't as yet posted.  I think I have been waiting to see how I am doing before jumping in or sometimes just trying  not to think about it.  

bestock.....I had some pain too...on the right side that would radiate around to my back, it seemed worse at night. My onc has me taking a low dose pain med and it is pretty well controlled.

I have been getting treatments every 3 weeks of taxotere, herceptin, and perjeta...although after my 4th treatment, she cut off the herceptin and perjeta because of heart issues. Like leftfootforward, my heart was affected by A/C chemo during my initial diagnosis back in 2010.  I did get a year of herceptin in at that time, although my ef got to a low of 42.  The number got back up to close to 60 after treatment though....so I am hoping to be able to continue with the herceptin and perjeta....especially after reading this week about how perjeta and herceptin together is showing such good results. I am a bit worried that they might not let me continue with it although a follow up heart echo showed that a month after stopping it, the number did not drop any further. They want to do another echo in Nov to check it again.  As it goes, the taxotere seems to be doing a number on the liver mets, and on me too!  After my 3rd treatment...the spots were almost 75% gone....I just had my 6th treatment last week so will have scans again next week. So hoping that it's still working even with stopping the h & p!  Scan time comes around so quickly now!  

It is encouraging  to see that there are many different chemos that can fight liver mets....although I wish none of us had to be here.  Hugs and prayers to you all!

judy