I cry at EVERY appointment!

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jovigal
jovigal Member Posts: 41
edited October 2014 in Just Diagnosed

I always thought I was a fighter and brave.  But now that I have BC I can't stop crying.  I'm scared every time the phone rings that it's somebody telling me more bad news.  I tried to go to my "happy place" during MRI and started crying because I realized my happy place was anytime before I had this tumor in me.  My surgeon called me during my onc gene appointment and the MRI results were confusing and worse than I expected so I lost it right there and felt humiliated.

I feel like I'm not handling this in my normal put on a "brave face" and march forward style.  I hope to get my fight on soon but right now I just feel defeated.

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Comments

  • Holeinone
    Holeinone Member Posts: 2,478
    edited September 2014

    jovigal, 

    Sorry you need this website. Getting diagnosed, being tested, all the Dr. appts in the beginning are a nightmare. I am not a crier, but I think maybe it is a good thing. Dealing with it, crying when you feel that emotion is ok. 

    Once the surgeon & oncologist come up with a treatment plan it does get easier. Dealing with the unknown is hellish. 

    Be kind to yourself, there is no correct or perfect reaction to the roller coaster of breast cancer. I did not have any emotion until 6 months into it, during radiation. If you need anxiety meds, ask for them. I did not, cause I had confidence that I did not need them. I regret that, they help. 

  • Sunny_Girl
    Sunny_Girl Member Posts: 111
    edited September 2014

    Jovigal -

    It is such a horrible time and I agree with the post above - be kind to yourself right now.   Cry when you want to & just figure at this moment if your life you are going to do what you need to do, when you need to do it and everyone around you can accommodate to that.

    Hug whoever you want to, try to get outside, look at something beautiful and for a few moments find a little peace.   

    Many will tell you it gets a little easier as everything irons out and you have a plan - it did for me.  Plus anxiety meds are perfect.  I was worried that I would feel different & the only thing that happened was my tears didn't flow as much when I looked at a card or heard a country song!

    Keep posting - you will find supportive & wonderful people here - 

    Patty

  • Lily55
    Lily55 Member Posts: 3,534
    edited September 2014

    Crying at appointments is fine, its not humiliating, all the TV ads say how devastating a cancer diagnosis is......

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

    Hi Jovigal, 

    ((Sending big hugs to you))

    The ladies are so right, there is no shame in crying and letting it out. 

    We are here for you

    Keep posting if you can. 

    The mods

    xoxo

  • jeanelle
    jeanelle Member Posts: 179
    edited September 2014

    Jovigal,

    It is hard, but know that you aren't alone.  Even a month after the diagnosis, I still cry at the weirdest moments sometimes.  I broke down crying in my BS's office when he saw me at my follow-up and said the next step was to meet with the MO.  For some reason the word "Oncologist" sent me over the edge.  Even though I knew I had cancer, the fact that I was seeing a cancer specialist just hit me like a ton a bricks.  I think it is very healthy to cry.  *big hugs* and take deep breaths.  You can do this.

  • shoppygirl
    shoppygirl Member Posts: 694
    edited September 2014

    jovial

    I was you in Jan 2013. I cried so much at every appointment that the BS asked me if I had OCD because I was so obsessively worried about everything. She even had a councillor come in and speak to me at the beginning of each appointment. It was such a hard time. 

    I went to a councillor but I was crying so much during the appointments that I could hardly listen to what she was saying. 

    I want to let you know that as you go down the road and deal with all the treatments , it does start to get better. It is very normal to be this upset as everything is such a shock. 

    Please be kind to yourself and don't listen to all the idiots that tell you to be strong , positive or brave! They have no idea what it is like to go through this. 

    Big gentle hugs to you. 

  • mrenee68
    mrenee68 Member Posts: 383
    edited September 2014

    Jovigal - you are in titled to react however you react, if that means crying then cry, if that means being angry then be angry. I cried on the way to my Dr. appointments, cried at the appointments, every time I turned around I was crying. The first time I met my PS, I just cried and cried and I felt like a fool when I left. You will get through this, it may not feel like it but you will. Take care of yourself and take lots of deep breaths. Do what makes you happy and remember this to shall pass. ((Hugs)) 

  • Janet456
    Janet456 Member Posts: 507
    edited September 2014

    At my pre op assessment they told me I had high blood pressure (no big deal in the whole grand scheme of things).  I cried and cried and cried and I just could not stop - the nurses were so very kind to me, and that just made it worse.  I could hardly breathe through the tears.

    It's perfectly normal, so be very kind to yourself xx

  • Nel138281
    Nel138281 Member Posts: 2,124
    edited September 2014

    Crying, to be expected and if you were not - then I would say there is a problem,    You will adjust over time, and there will be great days and sad days.  

    Gentle hugs

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited September 2014


    Hi Jovial,

    I cried all the time too ... and at the most inappropriate times!  I was so emotional when I was first diagnosed and before treatment started.  I was full of anxiety and just a wreck.  My surgeon prescribed some anti-anxiety medication for me during the time between diagnosis and my lumpectomy.  It really helped.  Once you get a plan, things will settle down and you won't be so weepy.  I, too, was obsessed with Dr. Google.  That really scared me, but at least I was prepared with knowledge for what was ahead.  Just try to focus on the facts and that will help.  Your U/S scan showed a relatively small tumor, as did the MRI and the pathologist graded it a 1.  Those are good facts to focus on.  I also had IDC, DCIS, and LCIS in the same biopsy.  It's not uncommon to have more than one type of tumor.

    I wish you all the best.

    Bren

  • formybunch
    formybunch Member Posts: 19
    edited September 2014

    Hello Jovial,

    I'm so glad you decided to reach out on here and post about how you feel. I am not yet diagnosed (still trying to make my way through all the appointments and a future surgery for a final diagnosis), but ever since this all started two months ago, I find myself crying a lot. And I mean a lot! Puffy eyes, hard to breath and stuffy nose. I look terrible most of the time!

    This morning I dropped my son off at the bus stop and was going to work out, but turned around, came home and spent a good hour crying in my bedroom. Besides crying a lot at home, I cry in my car in the garage, in parking lots and any where I think it's hard for others to see me even behind my sun glasses! So you are not alone. As a mental health therapist, I can tell you that crying is normal. Your world has been turned upside down and you have suffered a loss- that peace of mind and sense of control over your own body that was there before all this started. You have to mourn and allow yourself to pass through this time. Shoppygirl is right, don't think you have to be brave and face this like it doesn't affect you. I'm right there with you as are all the other women on here. You are never alone.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2014

    I am not a person who cries much, but I have a good friend that is.  She was diagnosed last year, and is single, so I went to all of her appointments with her - she cried at every one.  Then she had the first surgery - and she stopped crying.  Once her treatment plan fell into place and more of the unknowns became knowns, and the way forward became more clear, she calmed down considerably and has done very well since then with managing her emotions, throughout surgery/chemo/recon.  I think because the beginning is such a shock it is hard to get your feet under yourself, once you know what is up it gets a bit easier.  Good luck!

  • ml143333
    ml143333 Member Posts: 658
    edited September 2014

    Jovigirl - It is okay to cry.  It is okay to laugh.  It is okay to be angry.  It is okay to feel whatever you are feeling at the present time.  Give yourself the time to grieve.  Once you have a treatment plan in place, it really does get easier. 

    If you want to, you can call your doctor, he or she will be glad to prescribe something to help with the anxiety.  I haven't gone that route, but know people that have and it really does take the edge off.

    October is coming up and you know what that means - Breast Cancer Awareness Month.  A friend of mine that is a survivor gave me some great advice about it.  She said since everything is still so new for me that it is okay to disengage this month.  Just because I have breast cancer doesn't mean I have to embrace the month and wear everything pink.  Take her advice - move through the month at your pace and forget about breast cancer awareness.  You are fully aware already.

    Please be good to yourself. 

  • jovigal
    jovigal Member Posts: 41
    edited September 2014

    Thanks everyone.  It's good to know I'm not alone in this fight.  The unknown is so scary.  Two weeks ago when this all started everyone was telling me that it's early and small and that's good.  Now it's looking bigger and like there's more...I just want it out, not all these tests!

    Shoppygirl- I'm sure they're all thinking I'm OCD too.

    Oh and I'm on anti-anxieties but it's only for taking at night!  How dumb is that?

  • ganzgirl2010
    ganzgirl2010 Member Posts: 235
    edited September 2014

    Jovigal....when I was diagnosed in July with a 5 cm tumor I had myself buried. Cried all day everyday, still do a lot. Just like you..I thought I was a tough cookie, could handle anything..but even the toughest of the tough get knocked down. AND WE HAVE THE RIGHT TO CRY, KICK, SCREAM..WHATEVER WE NEED TO DO !
    When I went in for my BMX (4 weeks ago) the tumor turned out to be much smaller than they thought !!

    I hope this helps you. The women on this site ARE AWESOME, very very supportive so don't give up and come here as much as you can because like I said..even tho I don't post everyday, I try to come here everyday just for support..its good to have a place to go where your not alone :)  (((((hugs)))))

  • ganzgirl2010
    ganzgirl2010 Member Posts: 235
    edited September 2014

    Jovi...can I ask about your bc ? What were you diagnosed with ? Sorry.hope Im not prying but I didn't see any of your stats ..

  • fujiimama
    fujiimama Member Posts: 800
    edited September 2014


    jovial- I've. Cried more times than I can count. It's overwhelming and confusion rules the day. I even threw a tantrum like a three year old on my bed one night. It took a few weeks for things to quiet down. Now I have been doing this for a while. Sometimes I still get emotional, but it's not an all consuming thought anymore. Let people know you're hurting. They'll never know exactly how to react unless you show them. Even then they'll get it wrong. Take as long as you like. Cancer sucks!!!!!!!

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited September 2014

    I too cried a lot in the beginning.  For the first two day after diagnosis I think I cried nonstop.  I cried so many times after that I can't even count.  It's ok to cry it relieves some of the stress.  I finally went on lexapro and have done much better plus I am halfway through chemo.  It does get easier hang in there.

    Nancy

  • AmyQ
    AmyQ Member Posts: 2,182
    edited September 2014

    I cried when a pharmacist who filled my pre-chemo drugs, touched my hands tenderly and wished me good luck with all this.  So you see you are not alone with crying.  Don't be too hard on yourself and remember, crying is much like a stress-reliever.  I feel better after a good cry and I hope you do too.

    Amy

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    jovigal - I think part of what makes it hard is that so many books and sites and articles talk about getting through this with grace and finding the good in the situation and a lot of other garbage. It subliminally puts pressure on all of us to be 'strong', to not fall apart, and to keep smiling. What rot! 

    Nobody expects that of AIDS patients, or diabetics or people diagnosed with heart failure! It's ok to cry, until you get to the point where you're just tired of your eyes being red and sore and your nose matching. Then you need to find other ways to deal with your grief, fear, anger and mourning or you'll be blind and lose your sense of smell along with everything else :) 

    I like to use focused deep breathing techniques. I don't like to cry as it messes up my eyes too much - but I sure practice a lot of patterned breathing! I also exercise every afternoon, which helps, and I read escapist (i.e., NOT books on breast cancer) books in bed at night. It gives my mind a break from dealing with reality. 

    You'll find your own way and you'll claw your way through this eventually. In the meantime, don't worry about crying. We would worry if you were jumping up and down and saying, 'oh, whatever. It's just another new experience.' (Although you might try that someday and really give your family or doctors something to worry about if you want to mess with their heads.) 

    Hang in there.

  • jovigal
    jovigal Member Posts: 41
    edited September 2014

    Hopeful- that was actual my first response.  I thought "I'll just power thru this like I do everything else!"  That was before all the tests, appointments and heart stopping phone calls.  I even joked with my husband that I could get finally get rid of my old tired boobs and get new ones.  Again, that was before the tests and the reality.

    Ganzgirl asked my stats.  I haven't entered them in yet because I don't have "final" results but here's what I know.

    Left Breast

    IDC grade 1 1.8cm (on ultrasound)

    DCIS low grade cribiform

    MRI on 9/23 showed 

    known cancer 2.5 mm (huh?) with 3-4 3mm satellite masses

    AND

    non-mass enhancement with linear distribution and clumping (probably DCIS) which is 2.8cm

    Together the mass and non mass are 4.5cm

    MRI showed no lymph node enlargement 

    They tried to u/s the second mass but it couldn't be seen so they are doing another MRI on monday.

    I appreciate them being through but at this point I just want this out so I can start treatment!

  • Tedi15
    Tedi15 Member Posts: 6
    edited September 2014

    I cried too all the time! The I would get my husband going cause he hates to see me cry 

    Had to start zanex to get my heart out of my mouth and could breath and think. That lasted two weeks while waiting for surgery...chose double mastectomy due to cancer in both breasts. Was considering lumpectomy until 2nd cancer discovered during MRI prior to lumpectomy. Too scary that it never showed in mamo nor soon. Once surgery was over crying stopped, breathing returned to normal (except waiting for node result day). I honestly don't think I would have made it to the table without anti anxiety med. 

    ask for help....waiting for oncotype results to see what's next.  Can cope now that it's out.  Best. 

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

    Hello to all and welcome to all. This is an interesting Topic as it is so important to discuss that time from first being told that 'C' word, when you almost go into shock.

    It is an incredibly emotional time as it bring your mortality to the fore and "why me?" is a big statement. It is OK to cry and probably healthy to do so as it releases some tension (to a small degree). If your husband, relatives and friends cry with you it is because they are worried about you too. We Mods get emotional reading your stories too.

    The interesting part that so many above have stated, is that it gets better. That is so important for newbies to read - it is statements by those who have been through this that mean so much. It is possible, that initially you have no control over anything but just having to wait for a progression of test results and appointments. Then, as stated above, once a treatment plan is developed and surgery you can start to regain some sort of control again and there is light at the end of the tunnel.

    We wish you all the best and always consider that all the people on this forum have been there too and are willing to help you through the process. The level of support you give each other here is so fantastic to see.

    The Mods

  • Devine16
    Devine16 Member Posts: 11
    edited September 2014

    Hi I am newly diag also 6 weeks ago have had surgery and results now waiting on treatment plan. Feel like I'm living a nightmare. Cry all the time but am slowly climbing the steep mountain. My BC nurse told me that crying is a sign of strength and also we develop two brains during this journey. Yr cancer and rational brain and it's the cancer brain that causes the crying. Be easy on yrself. 

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    Hi, Devine - Just wanted to wish you well as you heal from surgery and refine your treatment plan. I'm new at this, too. Surgery's in 2.5 weeks, won't know the rest of it until after that, although I do know I have 1 positive node. (Ugh.) Take care of yourself. Good luck with all the rest of it.

  • mdg
    mdg Member Posts: 3,571
    edited September 2014


    I was a crier too.....I am sure the doctors/nurses see that all the time.  It is hard to wrap your head around something so scary and unbelievable.  Don't worry about crying.....who cares.  They have most likely not been in your shoes.  You will get to a point where you don't cry....that day will come.  I promise.  Have hope and faith.....take it one step at a time.  You will get through this.


    Hugs!

  • NurseShark
    NurseShark Member Posts: 176
    edited September 2014

    xoxox. I cry anytime someone tells me they are praying for me! I have no idea why? 

    Don't be embarrassed about crying . It's freaking scary and overwhelming to be diagnosed with cancer.

    I was diagnosed in July of this year. I am a registered nurse and am so uncomfortable being a patient, but I think of all the patient s I sat with as they were told their diagnosis and cried with them.it's okay and it's normal

  • jovigal
    jovigal Member Posts: 41
    edited September 2014

    Thanks everyone.  It is scary!  I have a second MRI/biopsy today to look at another suspicious area and my 2nd opinion BS consult.  Hubby will be with me this time so hopefully I can handle any bad news better. 

  • bethq
    bethq Member Posts: 311
    edited September 2014

    For the first time in my life the cancer diagnosis was something I had NO control over and I was but a passenger along for the ride. I am a big control freak due to childhood "issues". I made sure my husband came with me on appointments but the first one he did not attend I called him in tears from the waiting room. Couldn't stop crying. Luckily I was the only patient in the waiting room but all of the office staff kept peeking at me. 

    I agree with what one poster said about seeing certain words that NOW pertain to you. When I first entered the Cancer Center I looked up at the sign on the building and said "oh my God".... I could not believe that I was the patient. I am a hospice nurse so I have a distorted view of cancer.

    The tears still come, for so many different reasons...after surgery is another emotional time. You are not alone, keep venting here....it is so helpful.

  • bobogirl
    bobogirl Member Posts: 2,777
    edited September 2014

    Devine, that nurse of yours sounds like the best person ever!  Thinking of all of you guys.  I was not a crier at diagnosis -- I was stunned into total shock -- and felt I couldn't cry in front of DLLP because I would upset her.  I didn't want to cry in front of doctors because I was afraid of what they would think of me (stupid). However, whenever I was alone for a procedure with a nurse, I would immediately start crying for no reason.

    Sending you all hugs.  It is totally normal to cry.  It's better for you, in fact.  And I just wanted to let the Mods know -- you guys are completely awesome.  XXXXXXOOOOOO

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