Pinktober Revolution

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2014

    bump

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Still waiting for the call back from the school board. LOL it's the Community Relations department. Typical.

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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

    Hey All, 

    We want to hear from you about what you think and feel approaching this month. We will share the compiled answers with the Community at the end of October. Take the survey now >>

    Thanks! 
    The Mods

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Bump This is a survey(above) that allows you to say what you think. Keep bumping it.  The more we say what we think, it CAN make a difference. Spread the word on the boards. The link below is to this page Copy and paste on your home threads. Hopefully, it will bring people here to do the survey.

    It's asking relevant questions. Maybe not the best questions, but it's better than zero. AND they're are enough boxes for your opinions.

    :) sassy

    https://community.breastcancer.org/forum/102/topic/791442?page=55#idx_1628

     

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  • Warrior_Woman
    Warrior_Woman Member Posts: 1,274
    edited September 2014

    Moderators - Thank you very much for posting the survey.  I have a suspicion of how the results will turn out.  Please make the data available to us when you have it.  I think the world will be surprised by our responses.  

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  • Mini1
    Mini1 Member Posts: 1,836
    edited September 2014

    I added my two cents!

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  • 208sandy
    208sandy Member Posts: 2,610
    edited September 2014

    Feeding program alive and well at Joseph Brant Hospital in Burlington, Ontario - staffed by very well trained volunteers - a very small hospital (getting ready to expand) with 600 Volunteers!!!

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014

    Sandy, when did it start? "A pebble thrown in the waters makes rings that we know not where they end"-----may be original, Lol may be from reading something that is seared into my mind. Lots of Canadian relatives. I pontificate allot. But many have ideas that coincide in the space of time :)

    So, happy someone started it up your way.  Started successfully in one place They have tossed the pebble into the pond.  As an aide at one time I knew how long one feeding could take. It wasn't a few minutes. For the type of patient that needs a feed, it's in the range of 20 minutes.

    A side affect of making all employees vested into the program was a greater involvement in their job. Everything they did revolved around the well being of their patients. Again the plan was once or twice a month per employee.  By helping with a feed, it was real. Versus, I fixed that sink in 405. Not to devalue anyone's job. But the human contact makes the functioning sink in 405--different. They have the vision of a person that they directly helped. All after they are thinking "A person", not a function.

    I had what I call one killer chemo. Admission: 104.8 temp, wbc 1.5, Neuts 0.5. Tues am admission, Fri discharge. The staff, some I had worked with, none of the aides I knew. But I knew all the staff manning the computer consoles for dietary, they would call and say " Want can we do?". I bleerily would say--????---I remember the questions, don't remember my responses.  They knew I was in trouble They kept sending trays. I woke up with all theses over the bed tables around me, but never remember anyone offering me anything. 

    This was years after trying the Feeding Corp concept died. Now I was on the flipside. Oh so knew the value.

    Sandy thank you for coming here and taking time to read. Bless you. I'm in post thyroid cancer. Not a biggy cancer versus the rest. The RAI-131 therapy has done more harm than the cancer. Way more harm. Check in on Rectal Issues thread.

    I see this is a place for ideas. One idea can change the world   :) sassy

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014

    Mini and Warrior Thanks

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  • juliaanna
    juliaanna Member Posts: 1,043
    edited September 2014

    my 2 cents has been given

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014

    Thanks Julianna :) Hope things are good with you?

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited September 2014

    got my first phone call for donation!  Grrrr

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    smarrty, let'er rip  girl!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2014

    got my first call for donation last week. Wish I had Blessings great response

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  • Warrior_Woman
    Warrior_Woman Member Posts: 1,274
    edited September 2014

    Posters are up at the college where I teach.  Support Breast Cancer RESEARCH.  They're raising $ for Komen.  They know exactly where I stand on this and I appreciate that they will change things for next year.  I'll be doing my own little FB awareness blitz to vent my frustration.  

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Warrior, drop back a page or two until you find a post by KayB. She describes what Komen has done locally. Then if you go to the Komen web sit and work through the links to see where the research money has gone.

    Brinker erred. The Komen Foundation erred. Haven't looked this year to see what they have changed, but you mention they have changed.

    Please, Warrior write at length here what the change is. It's important for those that follow, so, they don't have to go to another source to figure it out.

    Look at Ruthrubs' analysis of STU2C. She did an excellent analysis last year. The key to the relevancy of STU2C is b/c of the administration of the foundation, they show no administrative costs. How unique in the 501c3 world that is, I have know idea. BUT IT IS FRIGGEN BRILLIANT. Someone gets paid a wage. Materials are paid for etc.  Apparently, the way it's set up, it's legal. Work on it  sassy  :)

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  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited September 2014

    I started educating my Facebook family and friends a few weeks ago. (Please forgive me if I've posted this here already... brain fog!)

    My first one:

    Someone
    had posted a video of a mom dancing with her son at his wedding. She had
    battled MBC for so long, and hung on to be able to dance with him. She passed
    just three days later.

    I posted the link, explaining it this way:

    Dear Facebook Family and Friends: as we get closer to October (or
    "Breast Cancer Awareness" month - or "Pinktober" as many in
    the breast cancer community call it) I wanted to share this video to bring
    awareness not just to the issue of breast cancer or the need for mammograms. I
    wanted to put a face to Metastatic Breast Cancer, or Stage IV Breast Cancer.
    Every year, more than 40,000 women die of MBC. Sadly, this number has NOT
    decreased for at least 15 years, despite all the "Awareness"
    campaigns. The truth is, we don't need more "Awareness"... we need a
    CURE!

    https://www.facebook.com/ktvu/photos/a.170555017060.132233.20980557060/10152317057212061/?type=1&fref=nf

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  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited September 2014

    My second one, posted this morning:

    ~ ~ ~ 

    Dear Facebook Family and Friends:

    October (Breast Cancer Awareness Month) is just around the
    corner, so I wanted to post this now.

    In September, 2011, I was diagnosed with Invasive Breast
    Cancer. I underwent a double mastectomy in December 2011, with final
    reconstruction in August 2012. From the bottom of my heart, I thank all of you
    who supported me on that path. Today there is no evidence of cancer in my body.
    God is good.

    As many of you begin to participate in the Annual “Breast
    Cancer Awareness” activities coming up, I just ask you to please consider these
    things:

    1. Does the activity TRIVIALIZE breast cancer? NOT GOOD! This
    is a very serious issue.

    2.  Does the activity SEXUALIZE breast cancer? NOT GOOD! There
    is nothing sexy about breast cancer.

    3.  Does the activity generate income to be donated to a reputable
    organization that provides direct services to women in need? GREAT! Low income
    patients need all the help they can get.

    4.  Does the activity generate income to be donated to a
    reputable organization that funds research for a breast cancer CURE? GREAT! We
    all have “awareness”… what we need is a CURE.

    5.  If you put a “Pinkwashed” product in your shopping cart,
    have you checked to see exactly how much money from that sale is donated, and
    the name of the organization where the proceeds are donated? GREAT! If it is
    not stated, then the MANUFACTURER is making money off the misery of breast
    cancer patients everywhere. NOT GOOD! Pink ribbon advertising is not enough.

    Again, I thank you all so much for your love and support
    when I was going through this. As ONE IN EIGHT women will be diagnosed with
    breast cancer in their lifetimes, I also thank you on their behalf. xoxoxo

    ~ ~ ~ 

    I need to be sure I don't embarrass or shame any of my loved ones who are just uneducated about the things they post. Their hearts are in the right place, and I do appreciate their love and support. I just want to get the word out to them, before they start posting some of the offensive, gimmicky things.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Blessings, What a great post!. Thanks. I'm sure there will be allot of coping and pasting. I tried to use the questions from Breast Cancer Action(BCA's) for the companion thread to this. The intent of the thread was/is to evaluate organizations

    Your questions are BETTER than BCA's !

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Blessings, wow, I started crying the second the video started, knowing she passed three days later. At the end the kiss by her husband when she was back in the wheelchair. whew...............

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2014

    Excellent posts Blessings.  No one should be offended, and if they are, something's wrong with them!

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  • Wren44
    Wren44 Member Posts: 8,585
    edited September 2014

    Just saw a tunic sweater with 6 or 8 rows of pink ribbons. UGH!

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  • Meow13
    Meow13 Member Posts: 4,859
    edited September 2014

    I saw this on another tread! I am going to tell my husband if he buys this for me I will find a way to come back and haunt him.

    imageAn urn for ashes. I hate Breast Cancer I don't want my name associated with it.

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2014

    YUCK

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  • Warrior_Woman
    Warrior_Woman Member Posts: 1,274
    edited September 2014

    Sas - When I mentioned changes I was only referring to my place of employment.  They heard me loud and clear and next year BC awareness will be one much differently.  The money raised will go either directly to research or directly to service to assist women with BC.  Thank you for the information because as I discuss this with them, I need to be as informed as I can be.  There is no point in making a fuss and being proven wrong.  

    Blessings - AWESOME posts.  I am struggling for the right words.  Would it be OK if I friend you on FB and share your posts or if you prefer borrow your wording?  Whatever you're comfortable with.

    Meow - That urn is the grossest thing I've seen since I last stepped in poop.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited September 2014

    WW,

    I know I can't think of anyone that would want their ashes in it.

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  • Wren44
    Wren44 Member Posts: 8,585
    edited September 2014

    I prefer the Rubbermaid container, myself. Overheard this at the store:

    Clerk: May I help you?

    Woman: I'm trying to find something to put my husband's ashes in, but I'm not sure of the size.

    Clerk: That one will do. We used it for my mother.

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    Some of these really cry out for a 'Like' button! 

    Honestly, that urn is about as disgusting as anything I have seen (excluding acts of war and terrorism, of course).

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  • pipers_dream
    pipers_dream Member Posts: 618
    edited September 2014

    I"m glad this thread is still going.  I had my own personal crisis moment last night during the girls' volleyball game.  I'm a high school teacher and I had to go down to the gym for something (I work into the evening sometimes) and it was decked out all nine yards in pink ribbon shit and all the girls had on pink ribbon t-shirts and there was a cupcake sale with a bunch of pink sweets, and I'm convinced that sweets contributed to my BC in a major way.  It was surreal and no one said anything to me, mainly since I'm still new, but all are aware that I have BC and have had for 10 mo now.  But, since I've chosen the 100% holistic route, I really felt left out, and like people think I'm "not doing it right."  In other words I felt the opposite of supported and I'm sure the other teacher in the HS who has colon cancer didn't feel too good about it either.  I kept my mouth shut b/c I don't want to offend people who honestly think they're helping, so here I am blasting off where I feel safe.  Glad I'm not the only "curmudgeon" out there.  I hate Pinktober with a passion.  There, I said it.  

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    I certainly hope the gym won't be pink all month - ugh. What a waste of resources, energy and true awareness. Blast away here anytime, Piper.

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