So confused

Ilovecoasters
Ilovecoasters Member Posts: 199
edited September 2014 in ILC (Invasive Lobular Carcinoma)

Hi Friends, 

I am currently 5 days post bilateral mastectomy. My doctor just called to review the path report and I am shocked and so confused. Diagnosed with IDC after biopsy has now changed to ILC. So disappointed to learn 2 of 7 lymph nodes had cancer. The emotions going through me are so raw again. She said neither the ct scan or mri picked up several of the large masses. I don't know what to think or how to feel. I have done no research on ILC. I have no idea what this means now. 

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Comments

  • yogamama
    yogamama Member Posts: 39
    edited September 2014

    llovecoasters.  I'm so sorry you are feeling confused.  Take it one day at a time.  No matter the cell type, you have more treatment ahead of you…that fact doesn't change.  The most basic difference is that you have cancer in the lobules as opposed to the ducts.  With ILC, you'll find as read through many of the posts, that many of us had mammos, MRI, CT that didn't detect our cancer.   Please, come here often for support.  I know that I have found comfort, laughter, and perspective here when I needed it.  I hope you do, too.  ((hugs)) 

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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

    Dear Ilovecoasters, sorry to hear of your unexpected result. You have joined a terrific group of supportive and
    knowledgeable people who can offer wisdom, information and their own
    experiences.

    While you are waiting for some responses please
    know that we are sending along warm thoughts and hugs. You may wish to search
    our main site for more information on ILC here is a basic search as there are many documents there on ILC treatment for you to read.

    Wishing you all the best.

    The Mods

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  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited September 2014

    Thank you both. I am so glad I found this board.

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  • vlnrph
    vlnrph Member Posts: 1,632
    edited September 2014

    Actually, the nomenclature is confusing because lobular is different in the WAY it grows, not just where. Ductal tumors form a more solid lump which is easier to feel and see on scans. 

    ILC cells don't clump together as much: they string themselves out in sheets or lines which means they can escape biopsy needles and become the surprises we do not anticipate. That is also why many lesions are larger when found and manage to grow for enough time that the lymph nodes become involved.

    All that being said, effective treatments are available: chemo & radiation are no fun but we do it. Estrogen positive status lets you take advantage of receptor blockage with tamoxifen or hormone suppression via aromatase inhibitors.

    So, hang in there - educate yourself and know that you are stronger than you think!

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