Can we have a forum for "older" people with bc?

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014

    OMG Mags" He's my favorite doc after my onco. You know, the kind that looks at you instead of a computer screen." That was one item that I took Endoc doc to task over. He typed almost the whole time I was with him for an appointment. For many of the docs I would get their office notes. With the Endoc, I didn't except for last office note-----I was flabberghasted. One word------FICTION. There were so many wrong things, but the clincher was, I had laundry list of s/s's and after the computer prompt:  Patient Complaints: he documented " NONE." Still not sure what to do. But he's history.

    It will be interesting if you read the historical info on STTM, to see your comments. Your doc is managing you the way docs did before TSH. Med AND listening to how you felt.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014

    Hi Di :) On Insomnia it's 24/7. Someones there almost all the time. Slows down on Friday and Saturday, but many threads do, come visit  ;).  The brain tumor was removed before it turned cancerous. We had done serial MRI's for two years. It was stable until fall of 2011. When the fall 2011 MRI, showed it was starting to grow, out it came. It's unknown if it would have turned cancerous, but they can. Plus, if they just grow , the size can put pressure on other structures. So, there were two justifications to get "Little Bean" out. Yeah, Lol, I named the sucker :) 

    Hope your sleep straightens out. Check out the links I have in Insomiacs topic box, maybe there's a pearl or two to help.

    Reminds me of a study sometime in the last 5 to 6 years. The conclusion of the study was that concentrating on one thing will help b/c it allows a particular area of the brain to become unclogged(Corpus Callosum) and the mind will relax and allow sleep. LOL reading that one. They proved that counting sheep, prayer, the eastern religions  chanting, all work. Your method of self hypnosis uses the concentration of thinking of one thing. :)

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  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

    Sas, I continued to be amazed at your knowledge and encouraged by your victory over too many challenges. In my pm back to you, I somehow thought Dr. Rind was in Tampa. Please ignore. I'll keep your doctor's name in mind in case I need a second opinion.

    Living near the most prestigious military medical center in the country certainly has advantages. It's a research and teaching hospital too so we get a mix of sharp young docs and wise experienced older ones. If you need a check up or a band-aid you might wait forever, but if you are really sick, it's just the opposite. They are on the cutting edge of medicine.

    Thanks for all your help.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Okey-dokey

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014


    Sandra we are all challenged, we just keep moving forward. Sometimes the best we can do is one minute at a time, other times we are like fighter jets moving at Mach3

    Your concern about STTM info as being anecdotal. Portions of it are, but if you read the forward by Janie Bowthorpe M.Ed. She's put the book together as someone that has a Masters in Education would be able to do properly. What's tough about the STTM web site is you can't see how cohesively the info is intergrated. Plus, the web site concentrates too much on patient anecdotal stories. But the technical pages are put together by Janie and a couple of others.

    If anyone is looking at what labs are need, my list wasn't complete. Vita d, folate, iron panel, Cmet, CBC, B12, That along with the FT4,FT3, RT3, TSH, Celiac antibodies, Tg & antibodies and/or TPO. Think I got the list right now. Sandra forgot the CBC in the PM list. Oh Vay, hope that's it

    Dr. Rind is in Washington DC. On his web site he has a mechanism to contact him. The way it's worded, I take it he will answer questions.

    One new learning insight started early this past  week. I was having side effects consistently with the porcine thyroid 90 mg taken once a day dissolving under the tongue. I missed a dose. It turned out to be an excellent miss. The evening s.e's didn't occur, but then occurred in the a.m. Viola or Voila! S.E's are Dose and timing related. Split the dose  Now taking half a pill twice a day, 12 hours apart. The s.e's that were troublesome have minimized.  YAY

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2014

    It need not discourage us if we are full of doubts.  Healthy questions keep faith dynamic. In fact, unless we start with doubts we cannot have a deep-rooted faith.  One who believes lightly and unthinkingly has not much of a belief. One who has a faith which is not to be shaken has won it through blood and tears--has worked his or her way from doubt to truth as one who reaches a clearing through a thicket of brambles and thorns.
     
    Helen Keller

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2014

    Long day, but a good one.  Interesting reads though I had to scan/read quickly.  Work to do before I can go to bed and need to be back to work by 7 a.m. in the morning. 

    Blessings,

    Jackie

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  • Miminiemi
    Miminiemi Member Posts: 340
    edited September 2014

    Sandra I sure wish I had something funny to say to make you laugh.  Changes in  schedule like that are so distressing.  While it's true a test that tells the surgery would not be good for you is wonderful to have available, it is also true they could check the results a little earlier and not put you through all that.  When I was working I would be furious with people actually reading the reports in the hallway before a meeting started.  Hope this is all settled soon.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited September 2014

    http://www.flixxy.com/lion-whisperer-kevin-richard...

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  • SallyS70
    SallyS70 Member Posts: 947
    edited September 2014

    Jackie, Mimi, Chevy, and Sas ... and you all hiding on the last page ... good afternoon.

    Sandra, am hoping you have gotten an appointment to see a doc to help with your thyroid issues.  I think you said the surgeon was rescheduling surgery for a month from now.  My guess is you are anxious to get back on track.

    I was lucky to get an appointment for next Monday for a needle aspiration and possible biopsy.  When I went for my first post diagnosis mammo today, I knew I would probably be getting something.  I have a lump along my lumpectomy scar that my MO has been watching for 6 months.  I was offered another watch period but choose aspiration and possible biopsy.  

    The weather is supposed to cool off here.  Normally, I would attack my yard chores as I love fall in the yard.  However, the smoke from the California King fire is blanketing this area causing alerts for seniors to stay indoors.  I shouldn't be complaining because I think the poor teachers have had indoor recess with their kiddos for a week or more now.  I remember indoor recess ... 5th and 6th graders hated it!  And, of course, I feel very sad and sorry for the many people who have lost their homes ... humans and animals.  Staying inside is nothing compared to what those in the line of fire are experiencing.

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  • MomMom
    MomMom Member Posts: 523
    edited September 2014


    Sally,

    Best of luck with your aspiration and possible biopsy.  So often, these things turn out to be nothing, but wise to get it checked out for peace of mind!

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  • carolehalston
    carolehalston Member Posts: 6,887
    edited September 2014

    My eyes are crossed from reading pages and pages of posts! 

    DH and I are still in Holland, MI, thanks to some truck problems.  But you couldn't ask for a nicer place to be stranded.  We're driving a rental car for a few days and will probably head home on Wed.  We had planned to visit my youngest brother in south Atlanta but I just cancelled those rv reservations.  It will be great to get back home even if we have to suffer through some heat and humidity for a couple of weeks.

    Puffin, congratulations on finishing your chemo. 

    Sandra, what a disappointment to have your surgery cancelled at the last minute after all you went through preparing for it. 

    Mommarch, bad luck with the shop and the house getting flooded.  Wishing you a lot of wisdom in dealing with the complications of adopting your granddaughter. 

    Anne, hope everything works out well with your grandson's health issues.

    Hi to Jackie and Chevy and Cammi and Blondie and MomMom and Mimi and Minus and Wren and Alaska Angel and Di and everyone else whose name hasn't cropped up! 

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  • Anneb1149
    Anneb1149 Member Posts: 960
    edited September 2014

    Happy Birthday OhioFan

    Hope you have a great day tomorrow

    imageAnne

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  • ohiofan
    ohiofan Member Posts: 206
    edited September 2014


    Thank you, Anne !!!!  It's great to add another number......sure beats the alternative! 

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  • SallyS70
    SallyS70 Member Posts: 947
    edited September 2014

    Ohiofan, I hope your birthday tomorrow is a very happy day ... are you doing something special?

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  • Barbarella60
    Barbarella60 Member Posts: 48
    edited September 2014

    Anneb1149

    Barbarella60    My birthday is August 13, 1953.  Would you post them when you have them all?  Thanks.  Barb

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2014

    Every human has four endowments: self awareness, conscience, independent will and creative imagination. These give us the ultimate human freedom...The power to choose, to respond, to change.
    - Stephen Covey

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2014

    Coming in here really late -- Ohiofan, I hope your birthday is super special.

    Photo

    Many, many more all in the best of health.

    Blessings

    Jackie


     

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2014

    Bushed as it turned out an extra long work day.  Can't complain though, got a meatloaf made and baked, as well as a big croc of spaghetti sauce.  Also have a baked chicken ready to go -- so just need sides for three dinners -- not bad  for an afternoon in the kitchen 

    See you all later -- I'm off for a quick wash, pj's and bed.

    Jackie

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited September 2014

    Ohio happy birthday

    Sally good luck xoxoxo

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  • Miminiemi
    Miminiemi Member Posts: 340
    edited September 2014

    Sally and Sandra. I'm sure hoping things are brighter soon. It is always so scared when there are upcoming surgeries and just the unknown. And waiting is so hard. Thinking of you both. 

    I'm happy to report my first post rad treatment mammo went fine and things look as expected.  After three days in a row clowning around I'm feeling sleepy tonight. The hot water heater in the basement flooded the place and now I get the opportunity to buy new carpet and remodel the bathroom.  Do you hear the attempt to spin the flood into a good thing?  God night griends

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  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

    Ohiofan, hope your birthday is full of fun! You are right...birthdays beat the alternative.

    image

     

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  • Teacher64
    Teacher64 Member Posts: 840
    edited September 2014

    Ohiofan - happy birthday

    Second cataract surgery done. Home and had a nap already. I truly am headed to my goal of copays only next year.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited September 2014

    Hey gals!  Leavin' on a jet plane, don't know when I'll be back again!  Ha, ha!  I just KNOW that's a song....  

    If I can maneuver my DD's whatever it is, I'll check in on you.... but I know it isn't a desk-top....   Talk to y'all later!  

    Oh WHEN are you leaving Meemers?  Is it next week-end?  I'll be back on Tuesday.... is that too late to save you?  You mean I have to leave Cammi in charge? 

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  • Barbarella60
    Barbarella60 Member Posts: 48
    edited September 2014


    ******** HAPPY BIRTHDAY OHIOFAN ********

    I hope you did fun things today on your Birthday.  

    Best wishes Barb

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  • termite
    termite Member Posts: 241
    edited September 2014

    Ohiofan, Happy Birthday. Hope you had a great day.

    Puffin, congratulations on finishing your chemo. 

    Sandra, sorry your surgery was cancelled but glad they found the problem before surgery 

    Mommarch, sorry to hear the shop and the house got flooded. Glad to hear you will be adopting your GD  

    Anne, hope everything works out well with your grandson's health issues.

    Hi to everyone and hope you are all having a good week

    Emma

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  • Di2012
    Di2012 Member Posts: 925
    edited September 2014

    Chevy.....THANK YOU!..it is beautiful!!!!....PERFECT, and my colors...love.love.love my boa!  I ALMOST feel like pole dancing....I was in bed when the pckage was brought to my bed and it made me cry...you are a real sweetheart.  Is it hand washable? 

    Have great a great trip!!!!!!

    Tomorrow, back to my PCP and maybe ct scan....ugh

    Happy b-day Ohiofan.....

    As my dad used to say......better "over the hill", than "under the hill"

    Hugs....(from my bed)

    Di

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  • ohiofan
    ohiofan Member Posts: 206
    edited September 2014


    Thanks to all of you for the birthday wishes!!  I really appreciate it!  I had a great weekend with my family watching football, shopping, and BIL grilled the best filet I've had in years.   DH and I took a drive to a lake this beautiful Ohio afternoon (put up auction signs along the way) and had dinner with my mom.  Thanks again!  You girls have really been a help through this journey!!!

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2014

    No bird soars too high, if it soars with its own wings.

    William Blake

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2014

    Long day ( as all my work days will be, but it is not hard work at all ) so I stuck to a short quote today.  Your all such fantastic ladies.  Rest well Di, and Chevy -- have a good time in FLA  --  I'll be thinking of all of you.

    Blessings

    Jackie

     

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