Just my opinion but ....
I would NOT do reconstruction if I'd known what I know now
I hate these foobs. They are not worth the trouble and pain.
Comments
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Hi Sunny, I am sorry to hear your reconstruction did not turn out as expected. My reconstruction turned out pretty good despite subsequent radiation and I would do it all over again. I do not regret the decision I made.
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I know I'm only one week out from my exchange....they actually look terrific! But, the iron bra is just as bad as it was with the TEs...not sure I would do it again either
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Sorry to hear you are unhappy. I am very happy with my reconstruction, both cosmetically and physically - I do not have any pain issues, I find mine very comfortable and they feel like part of me - but it is not for everyone. I also was fortunate to have a rather smooth and very do-able reconstruction process. And after my own research I really was expecting and prepared for the worst given my more cynical nature!
There are members around these forums who have deconstructed either by choice or by circumstances, so you may be able to find some of their experiences.
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DiveCat,
I was reading another members story about deconstruction. If I run into any issues that require a 'revision' surgery or any other reason to go back in, I am right behind her. However, an elective surgery to remove these isn't an available avenue for me.
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muska and teachermom
Mine are the permanent, expandable type. They just make me want to cry every day.
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SunnyC I am so sorry this has been so awful for you. Have you spoken to your ps about what you are experiencing? It is so early after your mastectomy perhaps things will get better with time. I had TEs after my bmx and they did get better after about 2 months. There must be options for you!
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Hi Sunny - My little voice said don't reconstruct and I did. Cosmetically they are great but physically - the pec action- is not so great. What specifically do you dislike?
Do you think you might learn to live with it? I promise the pain does get better. Now I only notice the implants after a lot of upper body exercise or if I think about it. No pain now at all. In the beginning it was excruciating and I have a very high tolerance for pain.
In life I often give myself a deadline - ex: if I am still unhappy by Jan 1 I'm going to do something about it.
I also wonder if I have "the grass is greener" syndrome.
Is it BettyBoops you are referring to? If you haven't read her posts you should. Likewise there are ladies who chose no recon and then changed their mind and did it later. One thing's for sure. There is no perfect solution and we are all changed.
Watch out for the end of active treatment blues. An oopherectomy on top of everything else is brutal. Oh my dear.
Nothing is set in stone. For good or for bad we'll probably be able to make a change down the road. At this point I may deconstruct if something comes up. However I have this weird loyalty to the tissue that is now my breasts and I am grateful for the event free healing.
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Sorry to hear about your issues. I did go to a physical therapist that was a breast specialist. She did wonders for me in just a couple of appointments to alleviate my pain and increase my range of motion. I learned some techniques I could use at home also and within three weeks felt better and could move more freely. I would highly recommend it for any discomfort you are having. I think my reconstruction is as good as anyone's, but I was not opposed to going flat to start with so I am not sure if I would do again either. I look different now than I used to and it took me six months after my last surgery to get used to it and comfortable with the appearance of my body.
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I'm more than two years out from my reconstruction surgeries. I was very unhappy at first. Most of all, I missed my old ones. I decided to withhold any judgement for six months or so, just not even think about whether I was happy or not I'd chosen the reconstruction (it was so much harder than anyone made it sound). I remember around six or nine months out from getting the permanent implants, I caught a look at my self in the mirror and thought "those look pretty good"! today, I'm quite happy with the results and my decisions about reconstruction but it took awhile, plus, I still miss my old ones.
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Teachermom, I have told my PS every time that something doesn't feel right on the left side. It's like there's something else, a wad of gauze, or a golf ball, jammed on the outer edge. It's painful and tight, on top of the pain and tightness that is normal with each fill. He says it's the sentinel node removal, it's expected. But, the left side also had to be drained and re-stitched. I need to try to remain positive and give it a lot more time than 3 weeks but it's really weighing on my brain.
Farmerlucy, it's the iron bra discomfort feeling and the stupid fipples. Again, I know I need to give the appearance time and that really isn't the worst of it, it is the pain and tightness and a nagging feeling that the left side just isn't right. (no pun intended lol). I too have a very high level of pain tolerance. And yes, it's BettyBoops story that caught my attention.
Staple, when did you do your PT? Although neither my BS or PS offered PT, I asked the PS today. I was told call the BS so I will give her a call but I don't want to do it too soon either.
Golden, I don't really miss my "old ones". They were nothing to write home about. I just think that I would feel 100% better at this point had I not reconstructed. That debate of whether it's really worth it or not is weighing on me. Plus they do look horrible 3 weeks post op.
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I started PT when the drains were pulled. I had the iron bra feeling, cording in my arm on the side they took the nodes, and pain when I tried full range of motion. I had lifting restrictions during the PT, but it didn't matter because I wasn't working on strength problems anyway. They did myofascial release which worked wonders, and they also worked on my cords. I went 3 times a week for two or three weeks and I was fine. I continued to stretch and do things at home for a couple months so the tightness wouldn't come back. After those first couple sessions of PT the iron bra was gone and I was comfortable with my expanders. I got the PT tip from someone on this board who said it was the best thing they ever did and I completely agree. I had to ask for it also.
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ugh .... Ok, that was 2+ weeks ago for me (drains out) and last Monday I expressed all of my concern to my BS. She gave me a short list of exercises to do. They've not made a difference.
Will need to call her and let her know I believe I need some PT
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sunny - it does sound like something funky on the left. When I had my one and only fill and found out it would be 4 more months to the exchange I found a PT (who is also a BC survivor). I told myself if I was going to live with the f-ing expanders for four more months I damn well was going to get some PT. She helped me tremendously both physically and emotionally. I had this weird numbness in my arms and she did something called a nerve cleanse and it was like magic. I also had a lot of trouble with my neck and back from the stretching pecs. My PS is not only an artist she is a wise lady. She said the pain was something I'd have to endure until the exchange. Somehow her laying all the cards on the table like that really helped and endure it I did.
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I'm sorry Sunny, I feel the same way right now. (((((((Hugs)))))))
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lipgloss, my August sister, how are you? Love your avatar
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Sunny-,it's been a while, how are you feeling now? I feel great and my flap that survived is looking good. I def felt back to my old self 4 weeks out. I go in on tues to fix my failed flap, I'm getting a latt dorsi flap w expanders then implants. I hope all is well and things are settling now.
Kisses
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hi Sunnyc hope things are getting better for you. If the left still concerns you I wonder if you could get a second opinion. I am somewhat distrustful of doctors after some of the experiences I had....you know your body and what you are feeling & they should take your concerns seriously (you would think they could do some tests, maybe ultrasound). I really wish you the best.
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