Summer Rads 2014

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  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited September 2014

    lyzzysmom, how funny I was chatting with someone yesterday about that hotel and checked it out on line. She lives in Cape Elizabeth, Maine  and we were talking about where we could get several woman and dogs together next year. It looked fabulous. 

    Never kew Amazon had deals on travel or hotels. 

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited September 2014

    Barbara, it was fabulous. At least I thought so. The dogs can go everywhere in the grounds on leash apart from the pool, main restaurant (but you can eat in the lounge) , and the spa. The grounds are beautiful and the food a little pricey but good, especially if you want to take your dog to dinner!! We had plenty of room and a door that opened right onto the back lawn area which was great for taking the dog outside. The dogs can't go on the beach until October but we found a dog park in South Portland that had a great swimming hole. Here is a photo of the grounds and also Lyzzy at the pond in the dog park.

    image

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  • rettemich
    rettemich Member Posts: 369
    edited September 2014

    Izzysmom, The photos are wonderful. Looks like So much fun. Good for you!!!!!

  • RaiderGirl
    RaiderGirl Member Posts: 419
    edited September 2014


    Mortmain  I have 16 of 35 to go. For me the fatigue has been sporadic. Sunday I did a million things in the house. I work full time and Monday was like any other day but the following day I crashed. I took a nap in the conference at 2:30 only to wake up an hour later even more fatigued. I made it to 5PM but I went to bed at 8, fell asleep at 9 and woke up this morning like nothing happened.

    So frankly it has not escalated for me but there is a great deal of ups and downs. I have not yet missed a single day of work. I have left early. I am 2nd in command here so no one prevents me from leaving other than my sense of responsibility.

    This rad thing is weird but I am grateful everyday that the technology exists.

     

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited September 2014

    Hey ladies, sorry I haven't been around! I found out my husband has been in some sort of inappropriate relationship with a person we do business with.  

    Needless to say, I'm heartbroken.  Cancer and now this all in the same year.  What have I done to deserve it?!?!? 

  • Deblc
    Deblc Member Posts: 479
    edited September 2014

    Sunshine, just want to say I am so sorry to hear you have to be dealing with this on top of all the other CRAP we go through. It's really hard not to ask "why me" when life keeps piling  *#%* on top of us. Thinking of you and sending prayers that you will continue to find the strength to deal with this.

  • jhodro
    jhodro Member Posts: 240
    edited September 2014

    Sorry sunshine. No words. But it's definitely not you. Ugh. :/

  • Rosiesride
    Rosiesride Member Posts: 513
    edited September 2014

    oh sunshine...I am so sorry about this...wtf?  So sorry. Rosie

  • jbokland
    jbokland Member Posts: 890
    edited September 2014

    oh Sunshine.  So very sorry to hear that whole you are so vulnerable, you are also betrayed.  I bet at some point he will intimate he is a victim of your diagnosis and this may somehow justify his action. Hugs lady. you are brave for sharing and I am glad you did.  Lean on us when you need us

  • rettemich
    rettemich Member Posts: 369
    edited September 2014

    OMG Sunshine, I am so so sorry. How devastating.You did nothing to deserve this. It was HIS actions not yours. Don't let him turn it around and blame you.  I am here for you girlfriend.  Stay strong. Hugs, hugs and more hugs.

  • DiabloMom
    DiabloMom Member Posts: 19
    edited September 2014

    My last radiation treatment was Aug 21.  I was lucky and didn't have any serious skin reactions.  Last week my left breast [tissue removed at the 2 o'clock position; surgeon said the margin wan't clear near the surface] began to ache on the opposite side of the surgery site [9 o'clock].  Another lump [biopsied before lumpectomy - fatty tissue; not removed] hurts;  My chest underneath the breast hurts as well as my upper back [both on the left side].  

    I told my MO about it at my last appointment and she ordered a mammogram and ultrasound [I have very dense breasts and the initial lump was almost missed on the mammo].  My MO said we aren't going to panic but we should definately check it out.   

    Is this how it feels when there's a recurrence?

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited September 2014

    Sunshine, I am so sorry!! What a b*d to do something like that especially with everything you have been going through. It's just so unfair. ((((HUGS)))).

  • Amelia123
    Amelia123 Member Posts: 96
    edited September 2014

    Sunshine, so sorry to hear that. Please know we all support you!

  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited September 2014

    Hi friends.  I just completed my 25th whole breast radiation and begin the first of 8 boosts tomorrow.  Is there anything different you experienced with the boosts as opposed to the whole breast radiation? 

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited September 2014

    Diablo, hopefully its just a hangover from the rads as the tissue may still be affected. I know that some of us have experienced shrinkage after rads has finished and I had a pain in the side (ribs) on the radiation side that eventually just went away. I am keeping my fingers crossed for you  that everything will be just fine.

    LongIsland, for me the boosts were the easiest. The rest of the breast got a chance to begin healing.

  • OK4Now
    OK4Now Member Posts: 4
    edited September 2014

    Longislandl8y--

    Boosts are quicker--that was it for me.  So glad you're almost done.

  • MJ1966
    MJ1966 Member Posts: 8
    edited September 2014

    I'm done! Booked a cruise for November 30. Hope I have some hair then. Hang in there everyone. You can get through this!

  • rettemich
    rettemich Member Posts: 369
    edited September 2014

    Congrats MJ!!! Can you pack me in your suitcase......LOL...........Enjoy! you deserve it.

    Diablo, I had a lot of inflammation from rads, had bumps and lumps, it seems to be settling down. Hope that is all with you. Another crossed fingers here!

    Longisland, Boosts are much usually much faster. Did get a little more "tan" where the boosts were, and I am still having some soreness. But skin is fine. 

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited September 2014

    Diablo I still have lumps mostly on the underside of my breast from rads.  I'm not sure they'll ever go away! 

    You ladies are so kind!!! We've been married 21 years and thankfully it was caught early.  I traced it back on the cellphone bill with the help of a very sweet guy from AT&T ! I'm back home, it's rough I'm not sure what's going to happen but as my granny used to say, "it'll all come out in the wash".  

    You all would be proud, I didn't beat the snot out of either of them! 

  • MomMom
    MomMom Member Posts: 523
    edited September 2014

    Sunshineinky,  I can tell from your photo that you are a beautiful woman.  Only you can say what will happen down the road, but I can tell from your post that you are just as beautiful inside. 


     

  • Crazywabbit
    Crazywabbit Member Posts: 563
    edited September 2014

    Sunshineink. Sorry to hear you have another hurt in your life.  You survived breast cancer your will survive whatever comes of your marriage. 

  • Swissmiss
    Swissmiss Member Posts: 111
    edited September 2014

    Sunshine...I'm sorry you have to go through this.  I like your grandma's philosophy though :) 

    I'm still dealing with very red, sore skin under my arm.  The Silvadene and Aquaphor I apply twice a day is just barely getting me through...it's so painful!  And that's saying a lot since the entire area is usually numb from my original surgery. Only three more treatments...crossing my fingers the skin stays intact through Wednesday!

    My radiation oncologist never mentioned boosts.  I see many of you are getting boosts, but I'm curious if I'm the only one not getting this type of radiation.  Is it true the boosts are easier on the skin? I wonder why my center isn't offering this particular treatment in my case?  

    Wishing you all a great day!

  • rettemich
    rettemich Member Posts: 369
    edited September 2014

    Sunshine, Just know that we are here for you. Only the 2 of you can decide what will come of it. Just remember to take care of yourself. And, I don't know if I could have been so good. I probably would have beaten the snot out of him, my guy. My Granny always use to say "everything comes out in the warsh". LOL I still say warsh. I always get asked how to spell that. Little bit of Oklahoma in me.

    Swissmiss, hopefully, they aren't offering because they feel you don't need it. And usually it's easier. Just depends on where it's being targeted.

  • daft
    daft Member Posts: 1
    edited September 2014


    I am appealing my  CIGNA insurance right this moment.  My radiation oncologist's administrator is supporting my case as best they can. They let me know q mere 10 days before my scheduled surgery. I was floored. I meet all criteria, otherwise healthy, over 50. post menopausal  Stage 1 IDC less than 1 cm and  all the pathology is  he way my breast surgeon wanted it to be. She said I am lucky to qualify.  Two doctors that treated my sisters cancer have faith in the IORT.  I trust them but made my own decision of course. The expedited appeal can still take longer than I have to wait. So I am paying for the IORT about 1300 dollars and if they ( CIGNA)  don't cover the hospital  services and physicians fees I guess they will get whatever we can afford to pay over the years when the bills start coming in 30 days from September 24, 2014. My life is my choice over their insurance collaborators decisions.  Wish me luck. 4 days.

  • Amelia123
    Amelia123 Member Posts: 96
    edited September 2014

    Swissmiss - I ended up not needing boosts either.  The RO said it depends partly on where the incision is, and where the cancer was. Somehow my combination made the boosts unnecessary - among other considerations too, I'm sure. Hoping your skin will survive the last 3 doses, and thinking if you've come this far you can finish on time! I was worried too, but the last week there were no real changes. Once it got red/hard/dimply/sore it just stayed that way and did not get worse. I wish the same for you. Afterwards, it took maybe 3 weeks to get back to relative normalness. 

    Sunshine - kudos on your restraint. I think we board girls would beat him up for you.  You've always been so sweet and positive here, and seem like a very genuine person. Plus, I've always thought your picture is very beautiful. Hang in there!

  • Amelia123
    Amelia123 Member Posts: 96
    edited September 2014

    Daft, good luck.  I hate this whole insurance mess. They love to play around with women's lives, don't they? I'm sure if it was their family members in this situation they would approve it. Common sense would dictate paying early and getting treated early, rather than deny coverage and then have to pay much more for a more advance stage of cancer.

    By the time all our family deductibles, etc were met, and insurance covered everything else, we still amassed quite a large debt. We will be paying it for years.  The scary thing is if we didn't have insurance we'd probably end up losing our house and declaring bankruptcy. The charges for one day of chemo were astronomical.

  • Louanne
    Louanne Member Posts: 101
    edited September 2014

    Hello ladies, I have been missing in action, and a lot has been happening! My work load has doubled in the last two weeks, hope it dies down soon. I don't know if this tamoxifen brain can handle it.

    Mari, congratulations on finishing!!! And to all I may have missed who finished!

    Sunshine, I'm so sorry to read what you are going through. So much during the last 7 months, and now this also. Please take care of yourself, you need to be healing. You ARE beautiful inside and out just as Mommom said! 

    Take care all you wonderful ladies! 

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited September 2014

    Sunshine, I too have always thought how lovely your photo is. I think I would have shown less restraint! You need to look after yourself, put yourself first and do whatever is best for you. 

    Daft, I hope your insurance works out. Denial of coverage for cancer treatments just seems plain evil to me.

  • jbokland
    jbokland Member Posts: 890
    edited September 2014

    every once in a while, I get this heat sensation under my ribs on the radiated side.  Does anyone feel something so strange?

  • mripp
    mripp Member Posts: 106
    edited September 2014

    so I am 11 days post rad and skin is healing nicely. Some itch and zingers now and then. I have appmt w MO tomorrow. Not sure what it'll consist of since he told me before no post hormone therapy as I'm ER- PR- and had DCIS. Probably more coaching on diet and exercise, which I've been trying hard to change. I dropped 20 lbs but during rad they wanted me on high protein which really = higher calories too. The result was 10 lbs back. Argh!

    Sunshine, hugs and thinking of you. You know what's best.

    Jbok, love the new deco spots!

    Louanne, I hear you on workload! I made it through annual audit with good report, got rating upgrade on our bond rating done, now working on responses to strategic plannjng and 2015 budget prep. My 1/2 days working w 1/2 days off are about done I fear!

    I went to our annual medical ins renewal/rate meeting and learned more on how ins companies are setting rates for Rx and also high cost claims. Guess I contributed to this category. Seems weird.

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