Anyone diagnosed after being told to follow up in 6 months?

peacejen
peacejen Member Posts: 40
edited September 2014 in Just Diagnosed

Hello,

I have not been diagnosed and if this is an inappropriate question to ask here please let me know and I apologize.  My radiologist saw a spot on my mammogram after a cyst aspiration. He took another look on ultrasound and said it looked okay but to return in 6 months to check for stability. I am trying to decide if I should push for a biopsy now, or be content waiting six months. 

Thanks,

Jen

Comments

  • PoppyK
    PoppyK Member Posts: 1,805
    edited September 2014

    Hi Jen,

    My situation is different from yours in some ways, and alike in others. Calcifications were seen on my mammogram. I was given the option for a 6 month follow up, but elected the stereotactic core biopsy. During the procedure, the doc had difficulty isolating the area that needed to be biopsied and again offered the 6 month follow up as an option. I insisted at this point that I could handle her maneuvering around and that the biopsy be done. At the time of my biopsy, it was only a 3% chance that the area of interest was cancer. I am glad I did because I was diagnosed.

    That said, it sounds like your radiologist is following protocol. It is most likely nothing. You need to decide what you think is best for you.

    I hope I haven't added to your anxiety, but thought I would share my experience because I was also told I could wait... but I'm thankful that I didn't.

    Poppy

  • nowheregirl
    nowheregirl Member Posts: 894
    edited September 2014

    I don't want to scare you but my first oncologist did tell me to be back in a year for follow-up. I found nipple discharge and felt a lump in my breast. Immediately I went to this oncologist. He did a mammogram along with an ultrasound then even a biopsy. After all these, he decided it was cystic mastopathy and nothing to be concerned. But since I was 39 at that time and he thought that women around my age should do a yearly check-up, he suggested that I would come back for follow-up a year later. Then a year passed and boom it indeed was cancer. Of course I ditched him and went to the new oncologist but my tumor was measured nearly 4cm when I was finally diagnosed by this new oncologist, which put me in the stage IIb cancer world. Except for few rare types of breast cancer, it doesn't grow that fast. From the size of the tumor my new oncologist found, he said that my cancer should have been big enough to be found during my first test a year earlier, not too tiny to be missed to say the least. Actually he said he had no idea why it had been missed.

    If they wanted major surgery to see if your cyst was anything bad, then I wouldn't push you to let them do it. But if it's just a biopsy, I would say go for it. I understand it's not a piece of cake but it's certainly not a huge deal. Don't be too scared. Most lumps turn out to be benign. 

  • mdg
    mdg Member Posts: 3,571
    edited September 2014


    I was told I had a fibroadenoma based on the radiologists assessment of the ultrasound.  This was at a NCI hospital.  They did not push me to biopsy at all.  I went back in 6months and they said it looked like cancer and did the biopsy immediately.  It was cancer.  I am mad that I did not biopsy 6 months before.....bottom line is if it looks suspicious in 6 months, you will get a biopsy anyway....you may as well just get it now and be sure.  Just my opinion based on my own situation.

  • savgigi
    savgigi Member Posts: 376
    edited September 2014

    One question - how much anxiety will you have for the next 6 months if you decide to wait and how will you handle it? I just had my 18 mo mammo on the affected breast in Aug and they saw new calcifications in the lumpectomy site. Rad gave me to option to re-check in 6 months but I know I could not have tolerated the anxiety. I went ahead with the biopsy and it was fat necrosis, thank goodnexx.

  • MeToo14
    MeToo14 Member Posts: 493
    edited September 2014

    Do not wait!  I did and wish I hadn't.  Back in January I found a very small lump and went to see my OBGYN she told me it was nothing and that I was probably pregnant.  I told her I wasn't.  She was pregnant herself and I think she just had baby on the brain.  Anyway, she said that I need to let my body reset it's self and it should be gone in a couple of months.  I took her word for it because she was a doctor, but deep down knew something wasn't right.  So I waited and it grew.  So at the end of March I bought health insurance and then wait some more for it to go into effect and then waited another month and  half for to been seen by a doctor.  I wish I didn't wait.  Give yourself piece of mind and don't wait. If it is something then you caught it early

  • jenjenl
    jenjenl Member Posts: 948
    edited September 2014

    Get the biopsy, you'll have peace of mind.  I did the 6 month follow up and was then told i had cancer.  That one day was the biggest regret i have in my life.  

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited September 2014

    The problem with asking your question on a breast cancer discussion board is that everyone has cancer here. All the thousands of women who have benign findings like yours, have a stable follow-up & go back to their regular mammogram schedule are not here to answer your question. Insisting on biopsies for low risk lesions when they are not recommended causes scarring in your breast that will make your mammograms more difficult to read for the rest of your life.

  • Kcscared
    Kcscared Member Posts: 43
    edited September 2014

    I was told I had fibroadenoma and told to come back in 6 mos even though I had pain at the lump site . Waiting the six months caused me great anxiety I wished I had just biopsied it right then and there especially after I had the biopsy and it was such a simple procedure I did not have a fibroadenoma however I did have a benign abcess and ended up having surgery to remove all my affected ducts I would have the biopsy put your mind at ease 

  • april485
    april485 Member Posts: 3,257
    edited September 2014

    I did the 6 month follow up and then was diagnosed. I would not have done anything differently. I agree with Melissa Dallas. I was convinced I had BC after the first finding but after reading about the 80% benign findings on a Birads 4 and knowing I was just a 3 at that time, I know I did the right thing. Please take a moment to breathe and know that MOST of the time, it will be benign! As Melissa said, this is a BC board so most of US have been diagnosed which skews your perception! Hugs and best to you whatever you decide.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited September 2014

    peacejen, I've never been in your position;  you can always seek another opinion, go to a trusted Breast specialist/surgeon and/or ask if a Breast MRI would be helpful...of course, the only sure way to tell is by doing a biopsy. Do you have a family history? Sometimes you just have to follow your gut. Only you can decide if the waiting is bearable. Wishing you the best! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2014

    jen--radiologists are the first ones to recommend a biopsy if anything looks suspicious to them.  I have been in your position; the anxiety takes over and you just want it taken care of and resolved.  but at some point, you do have to trust the medical professionals who do this every day. If there was no red flag for the radiologist, then a 6 month follow-up is probably the best thing to do. 

    anne

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2014

    Jen:

    I feel as if you'll primarily get responses from people who did ultimately end up with a cancer diagnosis, because those are the people who are on this site.  Whereas, if you asked a lot of random people at any given imaging center, probably you would not end up with the same answers. 

    It has seemed to me as if most everyone has had imaging that looked fine and then later turned out to be "something" to worry about, or "nothing" to worry about.  If your radiologist felt anything more needed to be done, that's what they would have recommended.  Some doctors tend to fill you in and let you help decide whether you want to be more aggressive or less. Others try to guide you a bit more.  I'm the type who, when a doc says "I think it's probably fine," -- I run as fast as I can to the door.  Maybe it's all the procedures I've been through, but I trust them to have passed their statistics classes and know how to calculate my odds.  I've never, ever had any imagining on my breasts, since my very first one, where I as just sent on my merry way and told "nothing to look at here."  I've always had a slew of additional imagine and tests, never really knowing what they were looking at or for. But, no matter what "finding" they're looking at--I tend to listen to their advice because I certainly don't know how to read those images.

    That said, I was indeed sent away to come back after two months (so some menstrual periods had passed) to watch for changes in a finding. It was something my tech argued with my doctor about.  Sometimes I wonder if my doc ordered the biopsy just to show the ultrasound technician. She was quite surprised when it turned out to be cancer.  So, we never know. We just let our docs do their job, add in our own feelings, and do what we've got to do.

    Best of luck, but please don't squander the next six months with worry that won't help anything.

  • smd3
    smd3 Member Posts: 15
    edited September 2014

    Hi, that was me too.  Back in December 2013, I had an abnormal mri and told to redo.  The redo happened immediately along with an ultrasound and after three hours concluded just dense breasts and told to follow up 6 months.  So in August went for my follow up and two spots were visible immediately on my left breast.  Biopsy the next day. No family history.  Age 46. And here is where I started my journey.  I was just released from surgery and understand your concern.  The problem is that the docs have to see something to biopsy.  With that being said, my surgeon told me that when she compared the films the tumors were there and really there was no change since December.  Maybe hindsight is 20/20.  As everyone else is saying, we are all dealing with BC.  Do what you feel you need to do.  Don't be afraid to get a second opinion.  Good luck and thinking good thoughts for you.

  • PoppyK
    PoppyK Member Posts: 1,805
    edited September 2014

    I just wanted to reassure everyone that Jen also posted on the Not Diagnosed topic. On that thread she is getting info and support about the wait 6 months standard of care. I know I wanted to make sure that she wasn't just getting info from those of us who were diagnosed after being told to wait.

    I am amazed by the wonderful people on this site, who offer their experiences and support to others. You are kind and so helpful!

    Gentle hugs!

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