Rockin' flatness like a bada$s

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  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    P.S.
    Knowing that I will probably still find some resistance from my BS, I'm prepared to do some convincing. I also know I will have to be very clear that I have no second thoughts and don't want any extra skin left back "just in case."

    Questions:
    I've seen scars that are completely horizontal across the chest, and some that are diagonal, each one pointing upward toward the center of the chest/sternum. Is there an advantage to one over the other? I'm wondering whether the diagonal might be better as the body ages. I also am a little heavier than I should be, but not obese. I'd really like to lose 20 pounds, but would be thrilled with 25. If/when that happens, will I then get a little sagging above the scar? Neither of these is a life-affecting thing, but if I have any choice in asking my BS for the best possible result, I could as well ask, right?

  • aunt_paula
    aunt_paula Member Posts: 271
    edited September 2014

    Absolutely do what feels right for you! I'm 44 and didn't reconstruct, and I'm glad I didn't. I think my breast surgeon thought I was just in shock or something, and would change my mind, but I haven't. Go with what works for you.

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited September 2014

    Lilith, I'm not sure why scars are different. In my case the tumor was growing into the skin so that determined where they had to cut and what part was removed. I don't think that's as common. In cases of prophylactic BMX you could ask for nice straight horizontal scars, I would think.  

  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    LiIith, I had a bit of banter going with the team while I was waiting for them to set up for my Surgery. I had already made sure my Surgeon knew I wasn't interested in recon, but I said to him "Now you make sure I have a really nice, straight scar, I have friends who'll want to see it!" When I woke after the surgery, his was the first face I saw and he said "I did just as you asked, you have a really straight scar. I checked it with a spirit level!" in my anesthetic addled brain I said "Oh Wow, really! " he laughed and said "No!"

    I am happy with my scar, but I still managed to come out with a Dog Ear, which I had removed 15 months later.

    I didn't blame my surgeon, he explained how they have to stop the incision somewhere and that area of flesh is usually pulled forward by the weight of the breast, I was older, 59 when I had the surgery, so my skin wouldn't be as elastic as a younger person either. 

    I don't know the answer to the question of why some scars are horizontal and others vertical, I guess that's something you need to discuss with your surgeon. 

    I wish you all the best, let us know how you're doing!

  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    I realized yesterday that the question may not matter much, as my last surgery gave me a horizontal scar (2+ inches) that the surgeon will likely not want to leave there, if possible. That one is really nice--very smooth and perfectly straight! I realize a biopsy scar is much smaller than an MX scar will be, but the straightness does give me hope ;)

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014

    Hi Lillith,, nice to see you again!!  I always knew I wanted to be flat,, I wanted to get a cool tattoo over the scar, so when I was left with excess skin, I was uber disappointed.  Now I have lymphedema (boo hiss) so tattooing over the scar would be a bad thing. But I still have the damn excess skin that I want to get rid of.   So I consulted a PS cuz I figured he would give me the nicest flattest result. He's a great surgeon,, expert with the DIEP,, and OMG, what a salesman. I swear he almost talked me into it.  I, too am ''young",, 55,,, and single so why wouldn't I want a breast made??? But then I realized,, it would take at least 2 surgeries,, 3 if I wanted a surgical nipple,, lots of pain and discomfort,,, (you can read on the recon threads about tissue expanders and fillers, and OMG,,,, too much for me!!) and I'm a terrible patient. I just want to get my life back to normal,, or what is now "normal". 

    The PS told me that even if I had the excess skin removed,, I could still do recon down the line, if I wanted,, it would just be that much easier with the excess skin. So just to let you know, if you do change your mind in the future,, it is still a possibility.

    There are a lot of us rocking the flatness,, you will not be alone if that's what you choose to do.

    BTW,, I live up in Gainesville,,, you ever up this way? 

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    Also,, no idea about the angle of the scars.  It could just be the particular surgeon,, or the way that the breast laid on the chest or something,,, really not sure.

    And like M says,,, even the best surgeon can leave a "dog ear", so if you are not completely flat and straight, it can be fixed.  My whole scar is puffy with excess skin,, ugh,,,, perhaps next year I'll get rid of it,,,, gotta get the hysterectomy done first.

  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    There may be a separate thread to discuss decision-making, but given that I have a work deadline to meet and shouldn't even be on here, I'll post anyway--but please redirect me if there's a better spot for this!
    For the first time since I first made my decision, I'm starting to have a hard time separating other people's reactions/expectations from what I want. Maybe it's just that it's getting closer to reality, maybe I've had too much time to think and rethink. Have others here been through that?

    And Glennie, I've only passed through Gainesville twice on my way elsewhere, but there's no reason we couldn't meet in real life one of these days! Lord knows I may need some support when all is said and done

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    It's not an easy decision to make and it's really hard when people try to push you to see things their way.  I had so many people tell me,,, you are NOT having recon??  **shocked expression on their face**

    But I've also had people tell me that they regretted starting the whole process,, and never went back for the nipple, cuz they just couldn't stand any more surgeries.

    Have you looked at pics of flat chests and of recon chests?  Get an idea in your mind of what you will look like. It's still a shock when it is YOU,, but at least it's not a total shock.  

    This is the MD who does the recon at my hospital and some of his patients before and after pics.  http://www.floridadiep.com/photos.htm

    Just to give you an idea.

    If you have time,, find a fitter and get a look at the silicone prosthesis, and other types that are available. (if you plan on using foobs)  Believe me,, when you are wearing them, no one can tell you are flat, if that is your choice.  If you totally want to rock the flatness, I say go for it.  What other people think is not important,,   it's your body. Your choice.

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited September 2014

    OMG glennie, those pics are horrific, how can anyone think that looks ok???  I had no idea. Seriously. Blown away.  

    Already knew I had zero interest in any kind of recon just because of the added risk of surgeries but that sure seals the deal.

  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    Thanks, Glennie--I actually have been looking at pictures. One of my first sources was breastfree.org. Have also looked at pictures of reconstructions. Some look great, some don't. And I don't fault anyone who feels they need to go that route; I really don't. We each have different needs. But for everyone, I do think it's a good thing that in this age we actually have access to such pictures so that we have realistic expectations.

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    I know,, and the "funny" thing is that he is so proud of his work. After my appt with him, ,he told me to go look at his website and see the pictures. If I was ever wavering behind, that cinched it!  As some call it:  Frankenboob !!  Totally right. There was no way I wanted that.

    But it works out for many,,, so I say if that's what you want,, go for it.   But not me.

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited September 2014

    What puzzles me is why, when you're having the boobs removed because they're diseased and tried to kill you, you would want anything there that might hide, or even camouflage a recurrence. I've been flat for just a few months, but I can honestly say that I never even entertained the idea of recon, and also, that no one has even noticed I'm flat. My biggest disappointment is that my surgeon apparently didn't believe I would never do it and left so much skin it looks like I was just deflated rather than flat. When all my tx is done it's my intention to go back to her and have it corrected, and I don't think I should have to pay for what I should have gotten in the first place.

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    I hear you on that Mags!!  My friend has told me the same thing,, he should do it at no charge. But when I mentioned to him, that he must do a lot of these (meaning removing excess skin, seems like a minor thing)  he said, no,, actually not.   So that did not inspire confidence in me,, and thus I headed to the Plastic surgeon. I figure he will make me as flat as possible,, straight and nice. Yes, I'll pay for it again,, but whatever.   Deflated,, yeah,, that's a good way to describe it.

  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    Glennie and Mags, that really makes my blood boil! How dare these, I call them Dicktors, decide for you and leave behind excess skin, because of their preconceived notion of what you "should" want, that bothers you enough, to have to undergo another surgery to correct their mistake and you have to pay for it, too!  That is just so wrong on many levels.

    I had to have a Dog Ear removed, but I didn't blame my Surgeon for it, he had to stop somewhere with the incision. It bothered me, because it had zappy nerves inside it and when I sat down and relaxed, it formed a bit of a shelf, that my arm would irritate. Best thing I ever did, but I waited about 15 months to do it. There are pics on Breastfree, for anyone contemplating this kind of revision.

    I also asked my Surgeon if he does a lot of these revisions and he said it was rare, because most women don't want to undergo another procedure. I talked him into doing mine, in his clinic under a local anesthetic, because I refused to have another general. It was absolutely painless, but probably not for everyone.

    Although I would never judge anyone who chooses reconstruction, even the work colleague of mine,  who had the same Dx as me 3 years earlier and had had recon. She asked me what kind of recon I had chosen and when I told her I wasn't interested in recon, she shot back at me, "How can bear to you look at yourself?" I was speechless, not something I am usually afflicted with. I was able to return fire with something to the effect of, "I am perfectly happy with the way I look, as is My Husband! Needless to say, she's off the Christmas card list!

    I personally, don't like the look of recon breasts either. I have a strange pride in my own scar and see a real strength in pictures of women who have opted to remain flat either BMX or UMX. 

    When I told my surgeon of my decision to have a Umx and no recon, he told me the door was not closed, if I changed my mind down the track, but to be aware that I would have a "mound" not a breast. I appreciated that conversation because  that was exactly how I viewed it and although I knew I would never want to do it, I don't like to be told I "can't" have something, so it gave me peace of mind.

  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    The last few days have seemed incredibly long and tiring, as I kept flip-flopping between the alternatives. I finally came to realize that I really was only pursuing the reconstruction information to make other people happy. In my heart I've known all along that I didn't want reconstruction. It just isn't for me. I have cancelled the next two consultations I had scheduled--one for tomorrow to discuss the DIEP flap and one on Wednesday for the more traditional methods. I will see my BS on Friday, although I'd like to move that up to Wednesday if possible, just to get this show on the road.

    Now that it's getting closer to reality, I'm starting to feel anxious and a little emotional, too. On Saturday I went to a thrift shop to get a couple of button-up shirts for post-op, as I really don't own any. I think that's when reality hit me--perhaps because it was something so out of the ordinary, and because I know I won't feel like myself in something other than a shirt that I pull over my head. But after all of that, I now know that I can stop trying to please anyone else and just follow my heart. And with that, I'm off to bed an hour early.
    Be well, Everyone!

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    Lillith, I recommend Hawaiian shirts!  They button up the front and are very colorful. They make me happy. Flower prints and such.  I am glad you have made your conclusion,, it helps you to move forward,, you don't feel so stuck.

    M:  the dog ear I get,,, that could happen, and noone's fault, like you said.  Sometimes it's hard when the patient is laying down, exactly how much skin to take off. I could understand that. (I saw your pics by the way, NIce scar!)

    I'm really getting worried about my upcoming HX,, with the LE factor. I've been talking to some much more experienced people on the LE forum about it, and the head down position I need to be in for surgery is quite worrisome as it could make my LE worse!  So yet one more thing to freak out about.   And NO, I don't want another procedure to get rid of the excess skin,, but damn it,, I don't really want it for the rest of my life either. But I gotta get thru this surgery first.

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited September 2014

    Ariom, I'd post a picture if y'all wouldn't be grossed out by it. I've taken a few just for documentation purposes. I really wanted and expected to be completely flat when all was said and done, and if I had ended up that way I'd have been happy and proud of my scars. As it is, I can't bear to look at it because I look mutilated, and that's the only way I can really describe it. And that makes me sad, and angry.

  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    Lilith, we all get what you're saying, we all felt the same. It is the fear of the unknown and knowing that we have to adjust to something very different.

    I don't mean to sound flippant, but you'll be pulling your shirts on over your head again, in no time. The recovery from a non reconstruct BMX or UMX is far less difficult than a recon surgery and although it can be a little uncomfortable at the start and there are strange sensations from regenerating nerves the general consensis is, that it is a much less painful procedure than most expected.

    Glennie, thank you! I now have a scar that curves around the back, it added about 7cm to the Umx scar, but it is flat and not really all that visible now and the total change in how it felt, is just extraordinary. I didn't realize just how irritating it was till it was gone. I did have someone say "OMG, it looks like they tried to cut you in half!" lol

    I totally understand your concerns about your coming surgery and the LE issue. All I can say is I hope your fears are unfounded and it is over and you have a really uneventful recovery. We're all here for you if you need us! You know that!

    Mags, I am so sorry that is how you feel and that the results are not what you expected. That's got to be hard to take.

    I for one, am not grossed out by anything, well, maybe eye surgery, ugggh! I actually watched a Mx surgery on You Tube, after my Mx surgery, because I wanted to know what caused all these strange sensations I was feeling. It is a pretty brutal surgery! We are all, really something, you know! 

    I have to say I can't believe I posted my pics on Breastfree, other than because I wanted others in the same predicament, to know how it can be fixed pretty easily and leave a pretty neutral scar. I would never have put pictures of a naked anything, on the internet before, but I have no shyness or embarrassment at all, about the Mx side any more, I don't really know what it is, perhaps it is that there is nothing intimate about it, any more. 

  • SuC
    SuC Member Posts: 55
    edited September 2014

    just had a look at those photos from the Florida surgeon's website. So glad I have stayed flat - my scars are pretty neat. Like Ariom, I'm kind of proud of them

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    Agree with you M.. The scar is like,, nothing so initimate as a breast. It's just a scar. Puffy excess skin, but still just a scar.   Anything with eyes grosses me out. I can't even put in eye drops. 

    SuC,,,, and the MD told me "go see them, how great they look" he thought it would change my mind and want to have recon.  hahahahaha.. totally the opposite effect on me.  And I've seen other recon breasts on various sites,, and I know it is sooo not for me.  If you are on Facebook,  look for Stupid Dumb Breast Cancer. AnnMarie is a very nice lady, and she really helps with BC issues and does fund raising in her hometown. She has posted pics of her recon breasts,, and I have to admit I cringe when I see them.

    What I wanted was flatness and a tattoo. I had it picked out,, a vine of purple morning glory flowers. There is an awesome tattoo artist in Seattle WA  (all the way across the country!) that specializes in post MX patients, and I wanted her to do it. She does beautiful work. And then I got LE,,,, and tattooing in that area would be a bad thing.  **sigh**

  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    Glennie, I was going the Tattoo route too, but I got so much conflicting advice on how long you had to wait before doing it, and then of course there is LE, I just shelved the idea.

    What is that with eyes? lol

    Oh dear, that surgeon thought he was going to change your mind, with his pictures. I wonder how many actually get put off when they see those.

    I will never understand why these Dicktors can't understand how many of us don't want recon. Seems to me they need to catch up, there is a definite change in the way many women view the whole recon issue.

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited September 2014

    When I think about recon, it seems women who do it mostly say, "I just wanted to look normal." To me, that's just vanity. BC is a killer. Many who get it will never have a recurrence, but there is nothing that guarantees it. My MO says that if you go ten years without a recurrence, they consider you cured. But I've seen posts from women whose recurrence happened farther out than that. And it's not like recon actually gives you breasts. They will never have the function or feeling that real breasts have. If you need bumps on your chest to feel normal, that's just crazy to me.

    OK, I think I'm becoming a militant flatsy.

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014

    I look "normal" in clothes.  I put on a bra and foob and no one can tell.  Outside of clothes, I want to be me.  I had lost a tooth, and due to the arrangement of my teeth, an implant was the only option.  (or a really huge expensive bridge)  it has taken me FOREVER to get used to that implant. The feel of a foreign substance in my mouth,,, eeeeek!  And if I felt like that about a tooth,, I can't imagine how I would feel with either an implant under the skin,, or my body fat being moved around. Totally weird.

    Back in junior high school,, (grade 7 & 8) they showed us all these drug movies to scare us off of using drugs. And I remember that addicts would lose their veins and shoot up between their toes and into the corner of their eye. They SHOWED that on the screen!!  So i'm sure that set off my eye phobia. I still can't stand to see a needle entering my skin even.  I have to look away when they draw blood.

    Mags the miliant flatsy!   Go Mags!!

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    Hey Mags,, have you tried temporary tattoos?  They are a lot of fun. I bought a whole bunch of them to play with. They are really inexpensive and last for a few days. I bought them from www.tattoosales.com

    They have nice flower vines (what I like) that are long and meant to be like a wrist bracelet, but i found them to be almost perfect for covering the length of the scar. Was definitely a positive body image experience for me.

  • magdalene51
    magdalene51 Member Posts: 2,214
    edited September 2014

    Glennie, about having something foreign in me: that's how I felt with my chemo port. I hated it! I've gotten used to it, but it's only an inch around. Don't think I'd ever get used to implants.

  • KiLin
    KiLin Member Posts: 55
    edited September 2014

    Mags, I'm with you!  My port kind of creeps me out, even now.  I'll be so glad to get rid of it!

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014

    I've had the implant tooth almost a year now,, and it still creeps me out from time to time.  I can't imagine having someting implanted under the skin...   ((hugs))  I'm sure you are looking forward to getting that port out.

  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    Magdalene, you militant flatsy! That is awesome...knowing that I will soon be able to sound like a bada$s just made my day. All will be well, clearly.

  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    I can't believe how we all feel the same way about the implants! I understand the tooth one too Glennie, I have 2 of those and although I have had them for years, one is a very smooth gold one, I find myself always feeling them with my tongue because they aren't "real".

    I look "normal" when I go out, I am a Uni too and although I have been known to go half flat occasionally, I mostly, wear a form.  I don't even notice it any more.

    I love the Militant Flatsy Mags! Yep, Lilith, you too, soon!

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