2-Year Her2+ Cancer-free Roll Call

Alice, thanks for the info. It gives us all a lot of hope.

Maria, I saw a woman at the doctor's office yesterday and she is doing accupunture for her lymphedema.  You may want to ask your doctor about that. It might be a clinical trial that your doctor may be able to check into.  Good luck and hope you are feeling better! 

Mary

July 12, 2014 is 2 years passed surgery day for me...I am NED..feeling pretty good..praying it continues..feeling good enough to do a half marathon (timed hike) on August 9th...

Bearcub,

Good luck to you in the marathon!  You are an inspiration to us!

Mary

I will be 3 years NED on July 28th. That was when I had my mastectomy....:)

Sunny_Girl, congratulations. BTW after 3 years on Anastrozole (generic Arimidex) I developed really bad back,neck and shoulder pain as well as depression. I switch to Generic Aromasin… and I am pain free and happy. Not sure what your issues are with the drug but you might talk to your onc about this. BTW this August 31st makes 4 years NED for me. So you gals are right behind me. 

I love this thread...just had to say it. I'm 1 year out. I'll catch up:) 

awesome news!!!!

Last time I looked at CancerMath, it still wasn't taking Herceptin treatment into account. 

Looking at the recurrence graphs (actually Disease free survival) for the BCIRG 006 trial, the line for ACT treatment gets shallower (i.e. recurrence risk decreases) at 24 months. 

From those same graphs, Herceptin treatment both delays and reduces recurrence risk - the line gets shallower around 36 months instead of 24 months.

There is also some variation in those inflection points between the node negative, node positive and >3 node positive graphs. The more advanced ones seem to tend to recur earlier. The node negative participants were a small part of the sample with much fewer recurrence events so it is harder to draw conclusions from that graph. There were probably very few stage I participants - when I was treated 6 years ago, many weren't even getting chemo with stage I. The guidelines have changed since then to more strongly recommend it for stage 1 >1cm HER2+.

I'm approaching 6 years out.

I just had my mammograms and are NED for two years (officially Sept.).  I did 32/36 rads; 4/6 chemo; 6 mos herceptin; 1 year 5 months Tamoxifen.  Just stopped Tamoxifen because of the onset of fatty-liver disease; can't live without a liver and it's reversible early on.

Several problems with digestion system since ending the chemo, this past fall, at the end of Oct. 2013.  Recent cat scan with contrast revealed the "fatty liver"; did NOT show up in the blood-work- blood work shows no cancer and organs working perfectly?!

I feel alive for the first time since this difficult lesson began two years ago; there is hope and life after treatment.  My hair is growing in nicely (curly and thick).  

Love to all. XOXOXOXO shari 

Diagnosed 4 years ago this month.  3 yrs. 4 mos. NED.  

yeah Mariasnow!! That is just fabulous:) tomorrow is my 14 month cancerversary but who's counting? LOL!! I hope you are enjoying life. I am so thankful every.single.day and find myself smiling and laughing at the smallest blessing. Yesterday my big hurrah was that I could actually feel my hair blowing in the wind. Today I'm celebrating being 100% active; no naps needed...stamina is just about back to normal! Still on Herceptin and have another reconstruction surgery ahead, hair is regrowing....I'm getting there. 

Hi everyone, two years ago today I found the lump and was diagnosed just a few days later. Doing well and love to see this thread grow

Hi everyone

October 18th I celebrated my 2 year noncancerversary! Woohoo!!! I decided to not use my diagnosis date as I see no reason to celebrate that horrible day. Instead I'm celebrating my surgery date as that's the day they cut this nasty sh*t out of me. So far NED. Good luck to all and I hope we'll be posting for many, many years to come