The news isn't good

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  • Andrea623
    Andrea623 Member Posts: 959
    edited September 2014

    Oh hopeful, that's great news! I'm so relieved for you! Be sure to report back after your doctor appointment. I'll be thinking about you!

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    Dear Mischief and Andrea - thanks so much for your notes. It's good to be able to share the good, as well as the bad. I will update tomorrow. 

    In the meantime, if any of you would like to send some nice, rainy intentions in the direction of Oregon, we could sure use them. I've NEVER seen a September this hot, this late in the month - and very dry on top of it. Wildfires are still breaking out and the air's been hazy for a couple of days with the smoke from 40 miles away. I feel so badly for those losing their homes. :(   We are SO ready for rain!!!

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  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited September 2014

    Dear Hopeful,

    I find it interesting how our goalposts move.  First, we definitely don't want to hear it's cancer.  Once we get used to that, then we definitely don't want to hear it's spread too far.  And that's where you're at.  That's exactly how you get your life and your happiness back--your goalposts move gradually.  You will be fine.  I'm so glad to hear of your MRI results. 

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  • Andrea623
    Andrea623 Member Posts: 959
    edited September 2014

    Hopeful, I didn't think Oregon was ever dry! I'm sending some prayers for rain to your state. Here in Utah, we've had more rain this summer than we had in the spring!

    I'm looking forward to hearing what your doctor says tomorrow. Talk to you then!

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  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited September 2014

    glad all your scans came back clear.  That was really a tough time for me - all those scans ugh.  Good luck tomorrow

    Nancy

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  • Lily55
    Lily55 Member Posts: 3,534
    edited September 2014

    great news Hopeful

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    Thanks, to all of you. Alex, you're certainly right about how our goalposts move, and all of this is very interesting from a psychological perspective. 

    I've got consults scheduled with the MO tomorrow and RO end of next week. At this point it definitely looks as though a lumpectomy and 'modest' lymph node dissection will be the way to go. There's still a chance I may not have to do chemo and a possibility of accelerated radiation. The former would be especially good news, of course. 

    The scans did find one minimal nodule on one lung that will have to be followed up on in 3 months. Until I'm told to do otherwise, I'm not going to worry about it, although I hope it's not determined to be an indication for chemo. 

    I still can't believe how fast our world changed.... The best of it is some of the truly wonderful people I've met (both in life, and here) while embarking on this journey. Words are truly inadequate to express my appreciation of you.

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    Andrea - I didn't think it ever rained that much in Utah!!  If you want to share some of it, I'll sign for the delivery. :)

    We've had an unusually long, hot summer, and the last couple of months have been dry as well. For what it's worth, Sept. and October are almost always the nicest months, and most reliable lovely, in W. Oregon. The rest of the year it can be soggy and/or cold - or not. I never plant seeds outdoors, for example, until after April, as they usually drown/wash away/rot if I do plant them any earlier.

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  • Beatmon
    Beatmon Member Posts: 1,562
    edited September 2014

    Dearest Hopeful, Congrats on the good news! A big Whew! There would have to be convincing evidence of the nodule being cancer, ie proven by biopsy before it could be called a mets. Many, many people have nodules that are nothing at all.I read this week if u ct scanned the entire population of people over 50 at least half would have a B9 nodule of some type.....lots of hope in that statistic.

    Is there any rain going to make it up your way from the 2 hurricanes down at Cabo? Too many people losing their homes in your state and in California. We had a lovely 82 today and 94 tomorrow! 

    Let us know the plan! I'll be in your pocket...oops,I'll be a chemo...oh with the time difference I can make it! Good luck..and prayers.

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    Dear Beatmon - 

    Yes, I've read similar statistics about a the info the new CTs are providing on our bodies. I'm just going to set that aside to worry about if it's changed in 3 months. I just hope it doesn't convince the MO that I should have chemo in addition to hormone treatment. (Do we detect a bit of a control freak here??) 

    Unfortunately, it looks as though all the moisture from the storm is going to stay too far south to do anyone any good, either here or in Calif. A weak La Nina's been predicted for this winter but I sure don't see any sign of her yet! Glad you're getting such nice weather in OK - you go through a lot the rest of the year, I know!

    You'll be in my pocket during your session tomorrow. Hope it ko's any CA cells stubborn enough to still be hanging around. :)

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  • Andrea623
    Andrea623 Member Posts: 959
    edited September 2014

    Hi Hopeful, it would be great if you don't need chemo! I'll keep my fingers crossed for you. I didn't do chemo, but had radiation. My skin held up pretty well through most of it. I think the worst part was just going to the cancer center every day.

    We've been pretty dry in Utah for years. Back in the 80s, we had a year so bad downtown Salt Lake was a river. They even had to put pumps on the Great Salt Lake because it had gotten so high. I've heard prediction of a very wet winter, but we'll see how it plays out. I hope you get some moisture up your way!

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  • Hortense
    Hortense Member Posts: 982
    edited September 2014

    Thinking about you these last few days and hoping you are doing well.

    Be sure you go have your teeth cleaned and any dental work done, in case you might have to have chemo. Go to your OBGYN also, as well as your primary doctor if you haven't already. Each needs to know what is happening. I found mine very informative and helpful. My primary doctor was able to give me the names of a top surgeon at a major cancer center and the person who she felt was the best oncologist in NYC at another hospital.

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  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    Thanks, Hortense - those are on my list. My cleaning is due in October anyway and by then I'll know what my dentist and I need to discuss. I'd taken care of some minor issues earlier this year, fortunately.

    Unfortunately, I've had to tell my primary that I no longer need her services, so I have to find at least a temporary replacement. The only reason I've put up with some of her statements over the years is because it's so hard to get into most practices as a new patient, but I've hit the wall with her and I don't need that kind of heartless negativity in my life right now. 

    The Breast Center here has a really good group of specialists, and I'm starting with them. I may follow up on a referral from a cousin who had breast cancer, but her surgeon's not covered by my plan, so that would be out of pocket....

    Who had ANY idea so many decisions, major and less than minor, were involved in all this??? Not I!

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