Anyone from Boise, Idaho with Metastasis Cancer?
I have lived in Boise, Idaho for going on 2 yrs this March 2015.. orginally from Wisconsin born and raised...I took my 3 children in 1998 and moved to California where....I was first diagnosed in 2010 with Breast Cancer Stage 2b....I had a tumor that I left go for almost a year...(due to not having insurance) and was told that the lump was inconclusive...so they told me that it was probably a infection in my milk glands...which I have had previously in my life...so I had a bout with Diverticulitis and went to the emergency room where I showed my left breast to the ER doctor..and the faces when they saw my breast is a lasting memory in my mind...I was immediately admitted and given a biopsy...in which they found the cancer...I had chemo right away to shrink the tumor...then my left breast removed along with 13 lymph noids which were all cantankerous... more chemo...and then to complete the process radiation...then was put on the 5 yr drug Tamoxifen...went back to work in late 2011 in remission "I thought"...July 2012 started bleeding and I haven't had a period for years...went in found I had Uterus Cancer...had a total hysterectomy... healed 6-8 weeks went back to work...then my youngest daughter and her hubby asked me to move to Idaho...because her hubby's family lived here and he got a transfer from Bakersfield,CA Auto Zone to here in Boise...I of course wanted to join them because she had my first grandson...so we came to Idaho...I found work right away and we all lived together the first year to get on our feet...In Sept 2013 I started to have severe mi-grans....every day and it was on bearable...went to my primary doctor..."strained neck"...had a MRI of my brain...nothing...no stroke...no tumors...continue on 6mths like this until I had enough of going back and forth to the doctors and emergency rooms for pain management...I ask the doctor to preform other scans...March 27 2014...I had a CAT scan..within 24 hrs...I was given the news that I have CANCER and now it has Metastasis's into my bones...one tumor on my "BRAIN STEM"...hmmm...one on my spinal cord bone...and one on my hip....started rapid radiation...along with oral Chemo....April 28 2014...all most died...due to side effects of the chemo....the diarrhea had caused me to have a bowel rupture...which they had to end up taking 2 ft of my colon...and a colostomy bag...I'm now going through weekly chemo treatments...my tumor markers are down in the 80's...had a recent PEP scan no NEW tumors and the tumors I do have...have dissipated significantly... I'v lost 53 lbs since April...which i needed to loose..but not this way...I am dealing with the fear of dying ...because I don't want to die...I'm not ready...I want to see my grandson's which I now have 3 grow up and graduate from High School at least...I hate this disease...I am lonely...very lonely..i have caretakers 3 times a week...but my family...they do what they can...and friends...a support group...nothing...i need people to care...and at least check in and find out what's up with me...I lost a great friend Aug 29 to a massive Stroke...OUT OF NO WHERE...she's gone...and that scared the hell out of me....we talked weekly...I got a card from her weekly...Facebooked me with inspirational comments...and she is gone...I just want to talk to folks that have something in common...and be with others....Hope to here from you...Thanks for taking the time to read...
Comments
-
Hi Freebird, I'm not from Boise but just wanted to give you a virtual (((hug)))
You've certainly had a rough ride. I hope someone will come along from your region. You might want to look at the Stage IV section for people going thru similar things too.
Does your hospital/cancer center have support groups? Or someone (nurse navigator or similar) to help you find support?
Hope you feel better soon
kt
-
So sorry that you're going through this. Come on over to the stage IV forum. Even if we can't find you an Idaho pal, we can all be your virtual pals!
-
I'm not from Boise either, but my heart goes out to you for all you've been through and are going through. I'm so sorry about your friend's sudden passing. That would be tough no matter what, but being kind of new to the area you're living in and not having a lot of other support would make it especially hard. I'm so sorry. But I'm so glad you've found BCO now!
As far as local support and contact, is there a breast cancer support group where you're being treated; or is there a patient navigator or psychologist or anyone there who could direct you to additional support groups or services? Some hospitals run classes like art or yoga, for example, for cancer patients, and assuming you can get out, those would give you the opportunity to meet new people. I'm also wondering if you reached out to the local American Cancer Society office if they have any programs that would help you connect with others? Just some thoughts...
It's wonderful that you have no new tumors and the ones you have had are improving! That's great news! I hope whatever treatment you're on continues to work well for a very long time! (((Hugs))) Deanna
-
Freebird we are so sorry to hear all you have been through. We are reaching out to you virtually and assure you that this community is made up of an amazing, inspiring, and supportive group of women and men who can understand and relate to you and can support you and your journey.
Here is a link to the stage IV forum that exbrnxgrl suggested to you: Stage IV where you can join current threads or start your own one.
Here are some active threads that you might like to join in.
Sending you big hugs
From the moderators.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team