September 2014 Surgery Sisters

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  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

    Ever and Frost..such good news! We September girls are really rockin' it.

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    Your husband heard right about fat grafting. It is a time consuming process and is injected in tiny amounts in just the right places. Fat grafting can go wrong and you can end up with lumps, some of which turn to fat necrosis - dead fat cells. Slow, small, and steady wins this race.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

    Calling all riders. It's time to get on the Pink Bus again tomorrow. Stasia2 and Noonrider will both be having bilateral mastectomies tomorrow. All messages of support are welcome.

    What are you going to bring to the bus? A cool front is coming so I'll bring pink fuzzy slippers for everyone.

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  • Su-CQ51
    Su-CQ51 Member Posts: 137
    edited September 2014

    Thinking of you Stasia and noonrider!   Wishing you textbook surgeries and speedy recoveries!   

    I think we all need super soft and snugly pink sweaters to go with those slippers.   And I really think we should listen to Pretty Woman on the way!   

  • noonrider
    noonrider Member Posts: 464
    edited September 2014

    Does anyone have a Xanex  on that bus???? Please pass one my way! 

  • Mischief46
    Mischief46 Member Posts: 217
    edited September 2014

    prayers for Stasia and noonrider!  Climbing on the bus with a bunch of party balloons and a crockpot of chili!!

  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    This Pink Bus idea rocks! Will be hanging out at the bar (there is a bar, right?), having a cold one for noonrider and Stasia.

  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    There's a good chance I'll end up in the October group. There was some rescheduling this week, so I won't see my BS until next Friday, 19th, and will find out more about a surgery date at that time. I haven't said much on this thread, but I've been following along and will continue to do so!

  • linda505
    linda505 Member Posts: 847
    edited September 2014

    Brought my Ipod and playing "Love Shack" for noonrider.  Thoughts with you both noonrider and stasia - uneventful surgeries and quick recoveries!!

  • SummerSun
    SummerSun Member Posts: 91
    edited September 2014

    Hi Lilith, I will be in the October group as well. I have been following this thread and all of the September surgery sisters have been in my prayers. 

  • noonrider
    noonrider Member Posts: 464
    edited September 2014

    Hi ladies. Surgery was yesterday morning for my BMX with reconstruction. I have graduated to getting myself out of bed. Yay me. 

  • Ilovecoasters
    Ilovecoasters Member Posts: 199
    edited September 2014

    noonrider, so glad to hear good news. I am getting anxious for my surgery on Thursday. I see the plastic surgeon a second time tomorrow and register at the cancer center.  

  • lovecat3
    lovecat3 Member Posts: 53
    edited September 2014

    Great news very encouraging already up!! Hope you are reasonably comfortable and doing ok

    Continued progress

    Lots of hugs

  • Peanut323
    Peanut323 Member Posts: 5
    edited September 2014

    Hi everybody, I've been lurking here watching your stories for a couple of weeks. I guess I felt like actually joining and posting would make it too real. Time to accept it I guess. I'll be having a bi-lateral mastectomy on Friday 9/19 and am terrified. I'm not so worried about the physical aspect but much much more about the emotional. I'm delaying reconstruction because I don't know for certain yet about radiation and chemo - too many unknowns to feel comfortable starting the reconstruction. So I'll be waking up without boobs and despite doing everything I know to do to help with the grief in advance, I feel like there's just nothing to compare it to. I want to be with my boyfriend sexually while I'm still intact, but when he touched me yesterday I just broke down in sloppy red-faced hyperventilating sobs. I'm just finding this whole experience to be exposing my most guarded parts of myself - I feel stripped bare of all my protection mechanisms. I feel terrifyingly vulnerable. Thank goodness there's a psychiatrist on my team of docs at the cancer center.  She's been very helpful to talk to, and she also gave me buspirone to help with the anxiety.  Wondering what others have experienced from an emotional standpoint? 

  • EverForward
    EverForward Member Posts: 242
    edited September 2014

    It's been 5 days since my BMX surgery and I'm finally ready to check in. The surgery itself went fine, nothing out of the ordinary. There was a fair amount of tightness and pain coming out of the anesthesia, but not any nausea. I stayed in the hospital 2 nights, which was not as bad as I was expecting. I had a small private room with my own bathroom. The day after surgery I was able to walk myself around the halls just to get a little exercise. Before the surgery the acute pain team put in two catheters in my back for a "nerve block," which was supposed to help alleviate the pain. When I went home Thursday, they gave me two mobile balls connected to the catheters to carry around with me. I took out the catheters this morning as they were getting a little annoying. I've only noticed a moderate difference in the pain since removing them. The pain pills I'm taking every 4 hours seem to help, as long as I don't do a lot of moving around. The Valium helps me sleep at night. For those of you having your surgery at a teaching hospital, I suggest you insist they give you your pain meds about an hour *before* they start their rounds early in the morning. One morning I must have had people making me sit up, undo and redo my bandages 5 times within a span of an hour. All that moving around was painful and I wish they had waited until after my pain meds kicked in.

    Even though I had read other surgery threads and had an idea of what I might look like post-BMX, the first time I took off the bandages myself at home in front of the mirror it was still a shock. They keep the bra and bandages pretty tight, which I think makes me look more… mis-shapen than it really is. There are weird lumps, bulges, and dents all over, not to mention the scars and drainage tubes. Not a pretty sight. But the important thing is to keep everything clean to avoid infection.

    My range of motion is surprisingly good. As long as I don't try to lift, pull, or push anything heavy. I'm still mostly sedentary (thank God for Netflix streaming!) with brief walks on my apartment building's terrace 1-2 times a day. I try to move my arms and legs enough to keep from getting too stiff. I tried a shallow bath the other day, but with the drainage tubes, the pain tubes, and my inability to use my arms to push myself up, it was fairly difficult. I'm sticking with baby wipes to keep clean for now. 

    I have appointments with both surgeons tomorrow morning. I'm hoping they will take out at least 2 of the 4 drainage tubes. It's hard to say how long it will be before I can dress myself, walk around the neighborhood, go back to work, etc. One step at a time. I wish all of you successful surgeries with no complications and effective pain meds!

  • armamp95
    armamp95 Member Posts: 44
    edited September 2014

    i had my surgery (MX) on Thursday (outpatient!), and am doing great.  I am a left arm amputee, so dealing with the drain is a bit awkward, but going OK.  My sister-in-law was here at first, so I am just now adapting to how to do things all by myself.  I am a bit bruised and sore, but no significant pain.

  • Mischief46
    Mischief46 Member Posts: 217
    edited September 2014

    peanut323, welcome and sorry you find yourself here...I had reconstruction so I woke up with some foob.  I never had much to begin with so I didn't miss them.   I hope one if these other ladies can help you...

    noonrider,EverForward and armamp95,  very glad you all are doing well!! Praying for your continued healing!!

    I was able to get off the pain meds after 2 days. Very glad to be on the other side of this and that all of you are doing well.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

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    Our good outcomes continue! Could it have something to do with the support we give each other? Maybe it's the rollicking ride to the hospital on the Pink Bus, complete with great music, fuzzy sweaters & slippers, balloons, yummy chilli, and a full bar with snack dishes of Xanex like last week. I'm not asking questions...just enjoying all the positive reports. Mischief, Armamp, Noonrider and Everforward, congratulations on the progress you've made. You all have come through a challenging situation and are managing to figure out how to do tackle day to day post op life.  

    Women ask, "How soon until I get back to normal?" I'm sorry to say the answer is never. BUT you will find your way to what we call your New Normal. As far as initial recovery goes, the majority of women report the 3 week post-op mark is significant in their recovery. Emotions have their own timetable and I find them more unpredictable than the physical recovery. Anesthesia plays a role in that. An anesthesiologist told me it generally takes a week to metabolize general anesthetic for every hour you were unconscious. You may feel fine at home, but upon leaving the house, you feel overwhelmed. I remember feeling sure I could drive after the first two weeks, but when I was a block away I realized my responses were delayed, I couldn't press the brake as hard as I wanted, and couldn't turn the wheel without discomfort. I was a danger to myself and everyone else! Two weeks after that I was perfectly fine.

    Tears come at the strangest times. Before surgery is the worst. Some days you can deal with what's ahead and everybody remarks how strong you are, but the next day you think you will never be able to stop crying. Once you get a surgery date you feel better. After surgery when you see the oncologist and have a plan of action you can go into warrior mode or fall back into a depression. Learning as much as possible, including what kind of complications could occur and how to prevent them, helped me prepare for the BMX. Other women prefer to put blinders on and sing "la-la-la." Please don't judge either ends of the spectrum. We have to get through it our own way.

    Although many of your fears are gone after surgery, I always have very weird dreams in the first post-op weeks. They are usually about finding out my husband has been having an affair with a woman (with perfect breasts) because he couldn't really deal with my situation although he was doing a good job of faking it in front of me. Even though I expect the nightmares, I wake up unsure of my future without my husband because the dreams are so real.

    THIS IS HARD. You have every right to feel what you feel. Doesn't matter that your loved ones expect something different. They can be a terrible burden or a wonderful help. You may appreciate them one day and wish they would go away the next. There is no right or wrong is this battle.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

    Hi Peanut. We'll be double surgery sisters since my surgery and Linda505's surgery are Sept 19th too. Lillith and Summersun...we're here for you no matter when you surgery is. It's not unusual for surgeries to get postponed at the last minute. Stick with us anyway.

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

    Hi Peanut.

    Welcome to BCO as an active member. We have unknown numbers of lurkers (readers not yet joined) as many people just need the information, but don't want to join for a range of personal reasons. That is fine, as we are still providing a valuable service as an educational resource for them and that is one of BCOs primary focuses.

    You will be able to obtain valuable feedback on
    your own concerns now you are a member of the community. You will find
    excellent responses to questions and sisters with similar problems and
    interests that you can chat with in the safety of this forum.

    We wish you the best with your BMx and hope that pathology is great. Until then, it is a very stressful time  and there is only spending time educating yourself on your options that may keep you busy - there is lots to learn.

    You are welcome to contact the Moderators for any questions or assistance and we'll help as best we can.

    All the best,
    The Mods

  • April8
    April8 Member Posts: 65
    edited September 2014

    congrats-that's awesome progress!!

  • Birdgirl11
    Birdgirl11 Member Posts: 51
    edited September 2014

    I've been reading all your posts for weeks now, and they have helped me so much.  Finally decided to join the group.  Had surgery on Friday 9-12, lumpectomy with sentinal nodes removed.  So far recovery is going well.  I've never had surgery before, so not sure what to expect.  Things going well so far, just terribly bored and feeling rather useless while healing.  I guess this all takes time.

  • linda505
    linda505 Member Posts: 847
    edited September 2014

    Hi all - glad to see the september sisters that have had surgery starting to heal - it does get better with each day.  This is our week Sandra, hzzr and Peanut.   I have preop on tuesday - keep me in your thoughts and prayers please - I need to have good liver enzymes so that they can do the surgery.

    Peanut - this is a tough time and you have come to the right place to be able to express how you feel.  One thing is we all get it.  I had and still occasionally have some pretty emotional days.  Although they are getting less and less frequent.  Just remember our breasts do not define us - you will still be you.  I hope you find peace with the journey you are about to begin.

    Birdgirl - welcome and happy to hear that your recovery is going well.  With your her2 status are you going to be doing chemo and herceptin?  

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited September 2014

    I'm scheduled for lumpectomy on Sept. 23.  I'm a little confused about what I'll need post surgery for that as opposed to mastectomy, if anyone has any advice, I'd really appreciate it.  I don't want to spend a ton of $$ on front hooking bras, silk/satin pjs, front buttoning shirts, etc. if I don't need to.  I have a pre-op appointment on Sept. 16, so hopefully I'll get some information there.  My tumor is in my right breast, not quite under the arm, just at the top of where my bra covers.

  • Flannery
    Flannery Member Posts: 68
    edited September 2014

    Hello ladies,

    My right UMX was done 9-12 and I was discharged from the hospital by 11am on 9-13. No problems with the anesthesia, but I slept for around 18 hours after recovery. Felt GREAT when I finally got up - had zero pain because my surgeons used Exparel at the surgical sites. BUT I may possibly have done a bit too much with that arm on post-op Day 1 as a result, which I wanted to mention in case any others are getting the Exparel. Definitely had more pain on post-op Day 2, which was well-controlled by oxycodone and Tylenol. Sadly those drugs always make me feel super-crappy (headaches, light-headedness, nausea) so for Day 3 I've gone to ibuprofen only and already feel better with that except for residual narcotic headache. Most of my pain originates from one of my drains/drain holes - it does not look infected so perhaps it is biting some nerves along the drain tract. Really hoping this improves over the next few days - I have Alloderm so am likely to need my drains for quite a while!

    My TE was placed over the muscle rather than under it, so I may have less pain and muscle spasm than many of you. My husband was planning to take 2 weeks off, but by Day 2 I was doing all my own drain dressings/stripping so he has gone back to work. I don't think I could do the wound/drain management very well if I'd had bilateral mastectomies, though. I hope you BMX-ers and the woman with the same-side arm amputation are doing well and have some support with the drain care.

    I was not originally planning to have a nipple-sparing mastectomy but ended up going that way on the last-minute recommendations of my BS and PS - so my first view of the poor mangled thing was a bit less traumatic than I expected with the incisions being almost invisible in the inframammary fold and under my arm.  As another September sister mentioned above, the poor boob's shape is a bit of a train wreck - lots of odd dents, bumps, etc. Nipple is going through the unhappy oxygen-deprivation period so more blue-black than pink right now. With luck it will get with the program in the next few days and not choose to die after going to the trouble of saving it -I am applying nitroglycerine to it for improvement of blood flow. The parts I hate most are the numbness and a chunk of C-shaped foam that is supposed to be confining the top, side, and bottom of the boob. It tries to fall off whenever my vest is loosened, and it is difficult to keep it in place when trying to maintain aseptic drain care. But this too shall pass!

    Best wishes to the rest of my September peeps!

  • jbdayton
    jbdayton Member Posts: 700
    edited September 2014

    Hi all, I am officially joining the Sept. Ladies.  I will be having surgery on Sept. 29.  This will be revision #1 following my  reconstruction flap surgeries.  

    I will be having fat grafting to get some symmetry .  I lost a lot of bulk in my right breast due to some healing issues.  

    I will be jumping on the pink bus for hzzr, lindad505 and Sandra this week.

    Hzzr and linda505 I pray your exchanges go perfect with no complications.  

    Sandra I will be praying this revision will be your final one needed to repair everything so you can do fat grafting soon and get to the end of this road.  

    I will read up on all my other Sept. Sisters and get up to date so I can share in your journeys.  It was so great to have others to share our ups and downs.  

    Have a great week to all.

  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    Sjacobs, I've had a good few lumpectomies, and to be honest, each one has been different in terms of level of pain and range of motion. I've decided it probably depends at least in part on how much tissue is removed, how deep the incision is, and possibly its location as well. My very first was for a "giant fibroadenoma" that measured 5 cm x 7 cm. That was the worst. I was able to wriggle into a sports bra and baggy T-shirts, though it wasn't exactly pleasant. Other lumpectomies have been better for me, but I'd recommend a sports bra of some sort as it gives better support and at least some measure of compression.

    Chance are, your surgeon will tell you that you also need to sleep in your bra for at least the first few nights. With my last surgeries in July (bilateral excisions), I wore my sports bra constantly for at least a week, except for showering of course. You may have difficulty raising the arm on the surgery side, so you could try putting on a loose T-shirt without raising that arm too much. That might be plenty. If you can find a sports bra that hooks in the back, that might make it easier than one you pull over your head. I got my last one from Target. Just turn it around so you can fasten the hooks in the front, then slide it around to the back.
    Best of luck to you, and let us know how it goes.

  • EverForward
    EverForward Member Posts: 242
    edited September 2014

    I had my follow-up appointments with both BS and PS this morning. Pathology report looks good so my BS said I am officially cancer free! They also removed 2 of the 4 drainage tubes and I removed the two pain tubes yesterday so I feel less like an octopus and more like a human being. I also switched the annoying surgical bra for a more comfortable camisole. I've been on pain meds virtually non-stop since my surgery a week ago; I'm hoping to wean myself off this week but I'm not pushing it. Will decide later when I feel up to going back to work. Both surgeons are pleased with how I look, even though I think I have a long way to go reconstruction-wise. But no sign of infection or dead tissue, so I'll take it. All in all a pretty good day!

  • Su-CQ51
    Su-CQ51 Member Posts: 137
    edited September 2014

    Awesome news EverForward!   Congrats, so happy for you!   You've had a long journey this year but Xmas came early for you!   Wishing you continued speedy recovery!

    Thanks for info Lilith!   I was also wondering about Lump recovery time and post surgery supplies.  I did buy 2 Genie bras and they're pretty comfortable.

    Welcome Peanut, armamp, Birdgirl, sjacobs, Flannery and jbdayton!  You'll find that we're a great supportive group!

    Thanks sandra!   It's so true!   I thought I was handling things so well until the past few days.   I'd made arrangements for someone to stay with my DH on my surgery day but they changed.    While trying to make other arrangements I found I couldn't get more than a few words out before breaking down in tears!   Maybe it's because surgery seemed so far away but last Thurs. I got phone call about my pre-admission app'ts this week with nurse, anaesthesiologist and PT next week?    

    Will be thinking about you for your preop tomorrow linda.  Hope you get good news about your liver enzymes!

    Take care everyone!   

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

    Those dreaded pre-op nerves kicked in as we arrived for my pre-admission appointment at the hospital this morning. The situation did not improve when they told me (1) I was not on the surgery schedule for Friday and (2) my plastic surgeon had not sent his paperwork telling them what he was going to do. No big deal, my husband scolded, but it doesn't take much to go wrong during the days before surgery...no matter how many you've had...to lose your patience. Fortunately my surgeon was paged and his "minion" sent the required paperwork, also confirming I was indeed on HIS schedule. His assistant had failed to notify the pre-admin people. (Then why the heck did the pre-admin section schedule this for today if they didn't have....aw, shucks. There I go again, stressing myself out over nothing.) Within 10 minutes everything was fixed so I joined the parade of other pre-op people cycling in and out of different offices for vital signs, EKG, to sign lots of papers, to receive the anti-bacterial sponges and instructions, to see the anesthesiologist, to get a chest x-ray, and finally the blood work. This is my 5th surgery in a year. You'd think they wouldn't have to do all this every single time, but I guess in the age of medical errors, it's necessary.

    Thursday I'll have another PICC line put in (I get these the day before a surgery) and find out which case number I am for Friday morning. First case is always good although I have to get up at Zero-dark thirty to go to the hospital. I don't sleep much the night before anyway. If I'm second or third case, my nerves take me to a place where I'm checking out the exit signs and contemplating an escape.

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  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

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