No Port
I had my first consult with the MO today. I will be on cytoxan and taxotere. The MO said no port with these drugs. Anybody else not have a port? (She does recommend a port for CAT.)
Comments
-
I had 4 rounds of tc and did not have a port, which is not uncommon.
-
Thanks.
My SO called to schedule port placement, while today the MO said no port. Trying to figure things out.
-
Well, that is a hard one. I had a port for 4 rounds of AC. I didn't know if I wanted one or not, but asked one of the nurses at the clinic who was a friend of mine. She said 'Yes, get one.' Her thought was that chemo drugs can be very hard on your veins, and if you blow out the veins in your 'good' arm, you will be in trouble because we are at a lifetime risk for lymphedema in the other arm & should never get IVs, blood draws etc. from it. So having two bad arms would be very bad! I do know that Adriamycin is a 'harsher' drug on the veins than the taxols, but myself, I'd lean toward getting one.
-
I was on the same drugs. Got a port. SO GLAD I did!!! Not only were there the four treatments, but I developed severe diarrhea and ended up needing to go in for IV fluids several times between treatments, plus a couple of ER visits for fluids and bloodwork. On average my port was accessed 5 times with each treatment. So that's 20 times, which would have all been IV's or blood draws, something I could not have anticipated. Next week I'll be having my BMX and they will use the port, not a regular IV. Not a single regret about getting my port!
-
i got my first round of chemo, red devil was one, yesterday with no port. I don't want one. The head of nursing didn't recommend I get one if not needed because it causes infection, it moves, etc. She had an experience check my veins who said I had pretty good veins. I'm really afraid of the port.
-
until now I would say, don't need one. But this week I wish I had one. It is fine when nothing is going wrong. But when things go wrong with chemo they go wrong. I go neutropenia, Tuesday night and had to have a blood draw, and then and iv. Then another blood draw. Then in morning iv failed, another two pocks and another iv in then another blood draw. Next day another blood draw and another iv. Last night another iv and a blood draw. My arm hurts like a 10, the pain is awful, phlebitis in all four of the iv sites, red flames in all four of the sites, lumps in all four of the sites. No a port would have been much easier.
-
Getting a port is both a personal decision and a medical one. However, most ports are placed without problems. Risk of infection is low and most don't move. If you are having no problem with your port, you are less likely to post about it than those who are having problems. Many ports these days, are power injectable meaning infusions can go in, nuclear trace materials (for scans) can be injected and blood can be drawn from the port. If you've had lymph nodes removed, on one or both sides, you are saving your veins. I've had my port for almost three years and am currently only using it for scans and blood draws . Most of the time, I forget it's there. They are not scary or awful, rather, very useful.
-
I am really happy that I had a port placed. I was told that the AC portion of my chemo would be hard on my veins, which are difficult to access anyway. My port was placed on a Wednesday and my first treatment was the following week. While it was sore for a few days after it was placed, I had no problems with it during treatment. I had it removed after a year and never once regretted my decision to have it. I was able to use my hands during treatment and not worry about the IV line getting in the way. It was also used for blood draws and IV fluids during two hospitalizations. -
I had my mediport inserted on Thursday, I was awake for the whole thing, done under a local and a little sedation, in my experience on the other side of this question, being a nurse, mediports are wonderful tools, especially when patients become dehydrated and veins are difficult to find, I'm glad I got it in, am still a tad sore, they have to create a small pocket in your chest wall for it to sit under the skin, but it will hopefully save me in the long run, and we all know this can be a long run

-
I'm 2 years out from chemo, still have my port. Intend to keep it as long as I can. Made chemo much easier on all concerned, zero problems with it. Gets flushed every 6 weeks, blood draws easier too.
-
Gilesmt, Wow, I hope things go easier from now on. I have had a difficult experience every step of the way, so I am opting to get a port.
Exbrnxgrl, I agree it's a medical and personal decision.
I've decided to have a port. The procedure is scheduled for Wednesday, 9/17. My MO may not have required the port, but she supports my decision. Three of my close friends are MDs. When I told them that I had decided to get a port, they all three (separately) told me that's what they would do. When trying to start my IV for my original surgery, the nurse blew 2 of my veins. For my last C-section, they actually did a "cut down" to find a vein. Every medication seems to make me nauseous. I know the risks of having a port, and do not take them lightly.
I truly appreciate everyone's feedback on this issue.
Poppy
-
I have great veins in my R arm, but I want to spare them and prevent complications. I just had my port inserted Friday night at 5:30 pm. I was asleep, at least it felt like it, and they used propofol and local anesthetic. I feel pretty good. I had some soreness the first 12 hours, but nothing crazy that made me cringe.
As a Nurse turned patient, I am happy I had one inserted.
-
I'd like to add that any invasive procedure carries some risks. If you know the risks and the historical percentage of occurrence, then you can make an informed decision. For instance, the risk of lung puncture during port installation is about 1%. That's quite low, but someone will be in that 1%. That doesn't mean that you shouldn't get a port because of this unlikely possibility. The same goes for infection etc. Also, discuss where it will be placed prior to the procedure. I have a little hollow between my shoulder and upper chest. My port is in that little dip and is only visible if I am wearing strapless or very thin straps.
ps: I was in the 1% club and had a punctured lung. Long story, not fun but still love my port.
-
I had a port inserted in June 2012 and it is my best friend. My veins are really crappy and the port have been a blessing to me. I get Herceptin every 21 days and can't imagine my life without the port. Also, I'm very lucky to never have experienced any problem with it.
Karin
-
I was just browsing and came across your post. I then started reading the responses. And for what this is worth..... I do not have a port but a PICC line. For the purposes of my response let's just say they serve the same purpose so let's say they are equivable ( except that mine has been in my arm since June and is a royal pain in the "a". I so wish I had done the port instead of the picc).
Anyway to get back on topic. I agree with all posts that having a port/picc is not needed if treatment proceeds without a glitch. But if anything goes amiss and additional bloodwork and ivs are required, I personally would never want to compromise my good arm with all of that extra jabbing. It is a difficult decision and certainly a gamble because none of us can foresee the future and what is in it for us. I would go for the port but I tend to take things " just in case". I hate my picc line because it is so limiting but other than that I was so grateful to have it each time the nurses needed to access me. It was just so easy for me and for them.
Let us know what you end up deciding. Chrissy
-
I have completed adriamycin and cytoxan with a port. Now that I am getting taxol, my port has decided to not work right. I have had two rounds if taxol intravenously and it wasn't a problem. I a, going for a port study but have already decided that I will not have a new one put in of this one isn't working. Tired of the surgeries.
-
madedirer,
Not sure if I am correct on this, but I think A/C is the chemo that is SO bad for your veins. That is why the nurses put on the extra protective gear. My SIL went through all the chemo, no port.
I had my port for about 10 months. MO said yank it if I want. I had it removed shorty after. My chest is bony where it sat, such a distressing reminder.
-
All chemo is nasty on veins but according to my Dr the worst is the 'Red Devil' - Adriamycin. None of my RNs ever wore 'extra protective gear' when delivering Adriamycin. Also the A/C was 4 DD 2 weeks apart but Taxol was weekly so would not have allowed for as much healing time for veins and would go on for a longer time frame.
-
I had TC and was very happy to have a port. I mentioned on another thread I have crappy veins to start with so a port was mandatory and I'm really happy I got it. Even blood draws were a breeze with the port...now...sans-port I can expect a struggle finding a vein that willing gives blood. Most of the time they blow or disappear deep into my arm. I agree with Kicks, I don't think there's any chemo that's easy on veins.
Good luck -
Amy
-
I think I already posted this on this thread, but I am so glad to have my port. I had an allergic reaction to the Dermabond used to close the incisions from the port placement, which lead to an infection. So my first infusion was through an IV in my arm. It burned and tore up my veins. Thankfully, the infection was cleared by the antibiotics and my port was able to be used for the second infusion. A very different and easier experience.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team