Has anyone taken theMyriad test?

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lynnetteb75
lynnetteb75 Member Posts: 33
edited September 2014 in Genetic Testing

im waiting on the results of the my heredity ggeneric test..they say it can take up to 3  weeks just curious as to if it really does take that long..3 weeks may seem short but my whole treatment waits in this and the wait and anxiety of it well yall know... 

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  • ells37
    ells37 Member Posts: 14
    edited September 2014

    My test results took about 4 weeks through Myriad.  I hope you have a much shorter wait.  I've heard that tests can be pushed through faster when treatment is pending, although I don't know this for sure.  Fingers crossed for negative results for you.

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  • pam43525
    pam43525 Member Posts: 6
    edited September 2014

    They started my tests August 27th.  I still haven't gotten the results.  You can call them - everyone has a "case worker" who will look up your stuff and let you know what is going on.  They are super nice at Myriad.

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  • lynnetteb75
    lynnetteb75 Member Posts: 33
    edited September 2014

    my doctor had  said he wasn't sure if my insurance would cover it cause  it test  for 8 -different types of cancer and the 25  differ genes not just breast and ovarian  and sometimes that holds up results but I  did contract mt insurance and they said I  was conferred so I'm hoping I  get soon....in  the man time it's hurry up to wait..

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  • AndreaM4567
    AndreaM4567 Member Posts: 83
    edited September 2014

    I got mine done at Mayo Scottsdale. It took about 3 weeks. My sister got hers back within a week because of me, they knew where to look (I  think that is what they said). She was 2+. It also costed her a lot less than it did me. We are now going to test my daughter. 

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  • anneoftheforest
    anneoftheforest Member Posts: 52
    edited September 2014

    I had a full panel test through myriad. It took two weeks. Then my sister did a site analysis based on my specific mutation through myriad and it only took five business days for her results. But my insurance is fast in processing approvals.

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  • lynnetteb75
    lynnetteb75 Member Posts: 33
    edited September 2014

    I had the full panel also anne with the 8  cancers and 25 genes as well my insurance company said I would be fully covered im just hoping the approve quickly..

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  • Mulligan
    Mulligan Member Posts: 205
    edited September 2014

    I had my test done Aug 4th still waiting for my results. I had the extended panel test done. My case worker said they are back logged from Labor Day weekend. I scheduled my follow up/results appt for next Monday. Hopefully they will have the results in by then, she said she'd call me on Fri if they for some reason still don't have it.

    Sorry you have to wait too, ugh it's so agonising isn't it?

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  • Nan54
    Nan54 Member Posts: 93
    edited September 2014

    I was diagnosed last year and had the BRCA 1 & 2 and BART tests at that time (all were negative) - the other components of the current Myriad test were not available then. I would like to be tested for the rest of the genes because of my age, because I have a daughter, and because I think information is power (as if there is any power in cancer, right?!). Anyhow, I spoke with someone at Myriad and my original genetic counselor and it sounds like having this additional testing for people who have already been tested for the BRCA genes is typically not covered by insurance. How annoying! Has anyone been successful in getting coverage after BRCA testing?? I already paid $700 for the BART test as it was not yet covered (I think it is now), so I am struggling with the idea of shelling out over $2000 more now...

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  • anniealso
    anniealso Member Posts: 16
    edited September 2014

    Hi there all...I think I'm in the right forum.  I'm a two timer (evidently they missed a small bit the first time, a lumpectomy and rads) that was held in check by 5 years of tamoxifen, missed by the mammos (not MRIs then) and then found by an MRI in 2007.  Stage 1, no nodes either time.  (2001, 2007) 2nd time full skin sparing mastectomy, implant, chemo (CMF).  Same breast, so couldn't do rads again.

    I had the first BRAC test, even thought the genetic counselor had advised me that based on our profiles (hubby and I) there was little chance of it being positive and it was not.

    My onc now wants me (7 years later and no recurrence and clear tests) to have this "new" genetic test done.  I do not know the difference between them.  Is it all cancer?  Breast specific? 

    Could someone educate me as to what this test does and what info it gives?  Onc. is hopeless at imparting info, just said "get it" and zoomed away.

    Thanks for any info or direction.  I have Anthem and No WAY will they pay for this.  Since I did not test positive the first time, they wouldn't even cough up for a prophylactic mastectomy on my remaining breast.   We fought for the test the first time to get it covered and they did not cover it all.

    Best,

    Annie

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  • Golden01
    Golden01 Member Posts: 916
    edited September 2014

    Annie, Have you been to see a genetic counselor? That visit is free in my state and they often can handle the orders for the tests so it is reimbursed. I think that is especially true for the genetic counselors at research-based cancer centers. My MO was sure insurance would not pay for genetic testing even though my mother and five female cousins have breast cancer. After seeing the genetic counselor, my insurance company paid for BRCA1 and BRCA2, BART, and BreastNext. All of mine turned out to be negative but that helped my sister when she saw a genetic counselor in another state. They decided she did not need the genetic testing. 

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2014

    nan54 - you might want to check this thread. https://community.breastcancer.org/forum/47/topic...

    There are several of us in the same boat, trying to get the additional test. Myriads "makeup" test is coming out this fall. My onco said we'd try again in Nov to get it covered. If not, I think I'll pay out of pocket for the PALB2 only from the Univ of Washington. We have to arm our DDs with as much info as possible!

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  • Nan54
    Nan54 Member Posts: 93
    edited September 2014

    Thanks for pointing me to that thread, farmerlucy! I am trying not to be angry that this is so difficult. Trying not to fall back into my anger about the lack of a cure. Trying to remember to be grateful for the good... Blah. Blah. Blah. I have an appt next week with the genetic counselor again - hopefully she will know something more about the timing of the new test/code. Thanks again!

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  • anniealso
    anniealso Member Posts: 16
    edited September 2014

    Thank you, but I'm still trying to just find out what these tests tell me...I have zero info on them.

    Do they  tell you if:

    You are prone to cancer in general?

    You are prone to breast cancer specifically?  (I've had ovaries removed; my choice)

    I am just looking for info on these tests and what they can tell you. 

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  • anneoftheforest
    anneoftheforest Member Posts: 52
    edited September 2014

    anniealso - I'm assuming your doctor wants you to take the expanded panel of Myriad's that is testing for more genes.  Here is what Myriad says about this new panel...

    "The Myriad myRisk Hereditary Cancer test uses next-generation sequencing
    technology to evaluate 25 clinically significant hereditary cancer
    genes associated with eight major hereditary cancers including: breast,
    colon, ovarian, endometrial, pancreatic, prostate, gastric cancers and
    melanoma."

    For BRCA1 and BRCA2 mutations you are mainly higher risk for breast and ovarian cancer.  Since you have already have had a BM and your ovaries out and you tested negative for BRCA mutations I'm assuming the onc wants you to see if you have some other gene mutation that has caused your breast cancer.  Each of these genes carry different risks depending on which gene a person tests positive for. 

    It is definitely something you should talk with a genetic counselor about.  They can once again look over your personal history and that of your biological family and talk through if and why you should consider being tested.  Since you have had two incidences of BC your insurance may allow additional testing. 

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  • lynnetteb75
    lynnetteb75 Member Posts: 33
    edited September 2014

    Annie.. thankfully my clinic does offer the full span testing with the 25 genetic genes and 8 types of cancer my insurance also covered it due to the fact my grandfather died of colon cancer and I have had several abnormal paps with precancerous cells. It's been almost 3 weeks and i have a appt next week to get my results but I have the same questions as far as when the test exactly tells...I'll be sure to tell u the break down as soon as I get the reault

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2014

    Here is a chart I found on the Myriad site. If you have trouble viewing it let me know. https://www.myriadpro.com/myrisk/why-myriad-myris...

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  • anneoftheforest
    anneoftheforest Member Posts: 52
    edited September 2014

    Thanks for that link farmerlucy. That is helpful to see the specifics.

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