Choosing nonreconstruction on the BCO web site?

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  • Moderators
    Moderators Member Posts: 25,912
    edited March 2014

    Thank you all for your comments and suggestions, which we will certainly pass along to the editorial team!

    • The Mods

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2014

    Thanks Melly and all -- we've passed along your thoughts to the editorial team!

    Melly, once you have gathered the rest of your ideas, could you please send us those in a PM and we'll be sure to get those to editorial as well, for their review?

    Thanks again all -- we appreciate the team effort here in making this content as appropriate and accurate as possible!

  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    Thank you to everyone involved in getting this sorted out. I joined the site back in July, I think. I've been high risk for many years and my mother is currently a 19-year survivor of DCIS and a UMX without reconstruction. When I had surgical excision of ALH in July, my risk factor jumped to "very high" and I started to consider PBMX. Having had many years with the possibility of BC in the back of my mind, I had never imagined myself going for reconstruction, should the need ever arise. It just doesn't fit for me. On my very first visit to this site, there in the left column was a tab about forgoing reconstruction, and I immediately felt a sense of peace. That tab is there thanks to all of you--special thanks to MT1 and the Moderators!

    I have since continued to investigate my options. Needless to say, I've had very little outright support when I express the desire to go flat. I understand that. I was truly taken aback, however, when my BS shared her opinion with me. Surely I'm not the first person who's opted out of reconstruction! At her insistence, I've consulted with one PS this week and will see another next week. I understand that she wants to be sure she has provided me with all the options, but in return I'd really like her acceptance of my choice as absolutely valid.

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    I feel your pain!  I never discussed recon with my breast surgeon, cuz I knew I didn't want it,, so why bring it up?? Surprise,, he left excess skin for my "recon".  OH,, you aren't having it?? Are you sure??  Well, let's wait 6 months and see how you feel then.  So I have excess skin that still needs to be removed.   If you want flat,, be very clear,, show pics,, so that you get what you want in one surgery.  I don't know why they don't understand that some of us do not wish to go thru all that surgery.

     If you decide to go flat,, you will have plenty of support over here on this forum.

    glennie

  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    Gennie is so right! Do make sure your surgeon is very aware, of what you want. Take pictures with you. Go to Breastfree.org or take a look at the Scar Project, very powerful stuff.

    I too, had a Mother who had BC, but for me, they said, just about a 12% familial link. I would have assumed more, but here I am. She didn't have recon either and I believe it was her grace and dignity, not to mention the wicked sense of humor she had about it, that has made it a fairly easy transition for me.

    I was lucky, my Surgeon was fine with me not wanting recon, he just said that the door was not closed, I could have it later should I decide to do it. I knew it was never going to be something I wanted, but I still ended up with a "Dog Ear", which is a bit of extra flesh, under the arm. It bothered me enough, to have it removed about 15 months after my Umx. Best thing I ever did. I am flat and no longer have any zinging nerves in that piece of flesh. 

    The great thing about this site is that no matter what your question or issue is, there is always Someone who has experienced something similar, who is willing to jump in and share. Ask away, there are many of us living completely flat, half flat and many with every kind of recon available!

    Take it easy and let us know how you're doing!

  • Lilith08
    Lilith08 Member Posts: 163
    edited September 2014

    Glennie and Ariom, I've just posted over at "Rockin' Flat Like a Badass" and feel like I know you both, having read the entire discussion (9 pages at this point). Seeing your support here, for the very first time I actually feel a little choked up, and in a good way. Thank you, everyone!

  • Ariom
    Ariom Member Posts: 6,197
    edited September 2014

    Lilith, I just read your post on the other thread and then came over here and here you are!

    I am sure I can speak for Glennie too, it is a pleasure to help!

    It's such a mine field out there and I know, I found it was easier to bounce things off others who had been in the same, or similar situation. People mean well, but unless they, themselves, have faced the decision, they really don't know, what they would do.

    The accumulated knowledge here, is breathtaking, we are all women reaching out to each other and paying it forward. 

    Let us know how you get on, it is a huge decision that you are making, but you will know what's right for you, don't allow anyone to try to tell you, what you "should" do.

    Hugs from me to you!

  • glennie19
    glennie19 Member Posts: 6,398
    edited September 2014


    Always happen to help with my limited experience. Whatever your question,, you can most likely find someone on here who has been thru it before you and will have helpful advice.

    and Ariom is the goddess of all knowledge with bras and foobs!!  She has a foob-moire!!  And there is a whole thread about that too. If you go flat and want help with that,, we are here for you.

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