Help , ! Results are in

Tobycc
Tobycc Member Posts: 789

I love love my surgeon first off.  Going in he thought it was easy breezy, but not so 

Results

Histologic grade III

Tubule formation III

Nuclear pleomorphism III

Mitotic score II

 Tumor 1.2 cm. 

final margins clear

Three lymph nodes examined. Including 2sentinal lobes. 1 lymph node positive

Extra capsular extension and lymphatic invasion

Kind of surreal now. Drain tube out, horrible pain under arm...thinks a nerve was cut...he really had to dig.  Managed by Percocet 

Apparently chemo choices limited by being triple negative whatever that means. I had a coronary bypass in 2012 so all will have to be discussed with cardiologist. 

I anxiously await responses and feedback. I am 52, boys in college , full of faith, CEO of non profit and major breadwinner. Need to work through this ....hubby is just awesome. Works, but not a lot of money 

Hugs and blessings to all of you

Toby

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

    Hi, and sorry you have joined the club. 

    This could be a helpful section to read, to start off: 

    Pathology Report

    Also, if they say that you are triple negative, you may want to read this section:

    Triple Negative 

    We're here for you. Also, you may want to post in the Just Diagnosed forum. 

    Thinking of you, 

    The Mods

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited September 2014


    First of all, there are a whole bunch of BC sisters who have the same diagnosis you do, and over the years I have seen them go thru treatment successfully, and back out to a full happy life.

    What being triple neg means is that chemo will be the right treatment for you --  hormone treatments and HER+ meds would not work - and that needs to be balanced against your coronary issues.

    Good luck -- no one likes this, but you can do this, too

  • Sassa
    Sassa Member Posts: 1,588
    edited September 2014

    You may think I am crazy, but the grade 3 (histologic grade) means you breast cancer is aggressive and fast growing (many cells dividing) and that is good news.  Chemotherapy targets cells that are in the process of dividing which means the chemo will be very effective for you.

    You will be spared the misery of the anti-hormonals.

    Herceptin only works for HER2 positive tumors, so it will not be given to you.

    Risk of recurrence is different for hormone negative tumors than hormone positive tumors.  Our highest chance of recurrence is in the first two years after chemo is finished (that is how my oncologist timed it; some people use the surgery date).   After that, the risks starts to drop, until at 5 years, your risk is down to 2%.  After five years it continues to drop to almost zero.  After 10 years, it is said hormone negatives can consider themselves "cured."  

    Hormone positive tumors are often slow growing.  Chemo may not be as effective or of no use. The anti-hormonals will deprive the cells of the hormones that they need to grow and make the cells dormant, but once the drugs are stopped at five years, chances of recurrence start to rise.  That is why many times when you see someone who has metastasized 10-20 years after the original breast cancer was treated, the cancer was hormone positive.

    So while we get to sweat out the first two years waiting for the possible recurrence shoe to drop, we do get to start relaxing on the "what if" scenarios after two years.

    I am almost 8 years out from chemo, 7 from herceptin, and am healthy and NED.  Your chances are high that you will be saying the same thing in 8 years.

  • Tobycc
    Tobycc Member Posts: 789
    edited September 2014

    Sassanid, you TRULY made my day. I have survived a quadruple bypass, uterine cancer....caught way early no tx necessary.  I usually don't share that cause it sounds so darn whiny

    I am determined to beat this.  While I don't have on rose colored glasses, I plan on doing all I can, and to bring light to others in the treatment room with me

    Friday is big day...first one 

    Hugs!!

  • Sassa
    Sassa Member Posts: 1,588
    edited September 2014

    Tobycc,

    What I wrote to you was the result of the years of reading after my diagnosis.  Like you, I was terrified at the beginning.  However, I am now happy that my breast cancer was early stage and very aggressive.  I am happy that I am hormone negative (also HER2+) and that chemo was very effective.  I am happy that while I had to sweat out those first few years of recurrence risk, I could slowly start to relax and now, my risk is down around zero.

    What doesn't show in my DX status at the bottom of the post was that my tumor was 1.75 cm.  I had no positive nodes.

    I see you are having CT for chemo.  I had 4 AC.  My doctor did not use any of the Taxol family on me because I told her that when I am working in the yard and pruning the yews (taxus family from which taxol is derived), I develop a itchy contact rash.  She was happy I told her and dropped the taxol from the ACT regime she had been planning on.

    Good luck on Friday.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited September 2014

    Toby, just wanted to wish you the best as you start chemo and continuing recovering from surgery. I know you've got a lot to get through to reach full health again but it sounds as though you and your husband are a solid team and that means the world in these situations. Hang in there!

  • Tobycc
    Tobycc Member Posts: 789
    edited September 2014

    thank you both again, so so much. It means so much. I come home from work and go on here before spending time with hubby. Twins home in October from their colleges. We will tell them then. 

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