Lumpectomy today. Not what they thought

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so so glad I found this site!  Discovered tumor about two months ago, same time as they found uterine cancer.  Both surgeons felt uterus issue was more important so did laproscopic hysterectomy 4weeks ago,....

Cancer was stage 1. Barely invaded uterus. Not in nodes, tubes, ovaries.

Lumpectomy and SLB this morning. Doc thought it was contained, planned on putting balloon in.  Not the case.  Apparently has spread to axcilarry glands. Removes those.  Pain was awful today. Had to move up to Percocet.  Drain in

Going back Thursday.  he did say chemo, and would lose hair.  I am not only the major breadwinner of the family, but in the public eye. Devastated 

Any chemo not make you lose hair?  DH is great. Twins in college. Did not tell them yet. They expect just radiation. 

Reeling here 

Comments

  • Maureen1
    Maureen1 Member Posts: 614
    edited September 2014

    (((Tobycc))) so sorry you've had to join us...we know what it feels like to be blind sided by this beast. I remember how shocked and devastated I felt when I heard it was in my lymph nodes and that I had to have chemo. It may be hard to believe right now but knowing what I was facing and having a treatment plan helped me feel better. I found so much good advice on these boards.

    I lost my hair with chemo and I am also the breadwinner and have a very public job but I got a wig that looked so much like my real hair that a lot of people never knew it was gone...and it did grow back. Hang in there...we'll be here for you...(((hugs))) Maureen

  • April8
    April8 Member Posts: 65
    edited September 2014

    so sorry-I had two lumpectomies last week and have to have chemo bc 1 tumor is HER+. Don't worry re the hair-they make awesome wigs now. There are some people who use cold packs during chemo to try to preserve their hair.I have a college age daughter too-just tell them that the chemo will kill off all the cancer and you will be better than ever. You are obviously a strong person so keep on being you and you will be ok!

  • Tobycc
    Tobycc Member Posts: 789
    edited September 2014

    I am already so thankful for you!!!!  I will obviously know more Thursday at follow up.  How many rounds of chemo?  Will start wig search, and hubby and I will tell boys when we know the plan. I planned on visiting one in Tennessee in late October. Wonder if that is an option. 

  • momand2kids
    momand2kids Member Posts: 1,508
    edited September 2014

    Hi

    I also was in public- working full time-- my recommendation-get a human hair wig-- more expensive, but honestly, it looked exactly like my real hair-- had to wear it for about 7 months total--I have thick hair and the wig really was great--- 

    I had 4 rounds of chemo -kids were 7 and 12 at the time--worked pretty much throughout--- you will get through this....

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

    Hi Tobycc, welcome to the BCO forums and we feel you'll get great feedback regarding how others have coped. Chemo reacts differently with each person.

    We
    understand that it is confusing, often overwhelming and there is so much
    information to read and consider but there is no easy way as YOU have to make
    the decision as to what is done to YOUR BODY.

    We wish you the best in finding a great wig to make you feel better about this retched time. Remember that a wig will need to fit comfortably over your hair (if you decide to keep what you can) or on a shaved head as they will be different sizes. A good wig fitter is like a good bra fitter - makes a lot of difference.

    We wish you the best

    The Mods

  • muska
    muska Member Posts: 1,195
    edited September 2014

    Hi Tobycc,

    I went through 6+ months of chemo while working full-time in an environment that requires business attire every day. Nobody ever guessed I was wearing a wig. I got one that matched my natural color and when the time came just had my head shaved and switched to the wig the next morning. I have never gotten as many compliments on my hair style as while I was wearing the wig - for about 10 or 11 months.

  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited September 2014

    I have a number of wigs that are great.  I get compliments all the time (far more than my own hair) and they aren't even the same color.  When I wear reddish, I'm complimented.  When I wear blonde, I get complimented.  Sometimes it's even the same person.  I wouldn't worry about looking funny in a wig. 

  • Tobycc
    Tobycc Member Posts: 789
    edited September 2014

    thanks so much to all of you. There is much learning ahead.   Tomorrow I go get drain out and discuss action plan. 

  • Lily55
    Lily55 Member Posts: 3,534
    edited September 2014

    Tobycc - remember all treatment for cancer is only a recommendation, you choose whether to do it or not.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited September 2014

    tobycc, sorry to hear of your recent DX. American Cancer Society offers a free wig. You can also check in to the cold caps.  Supposed to prevent hair loss. My half-sister did chemo 15 yrs ago and hardly lost any hair. I want to say it might have been CMF..or FEC? But not certain. I didn't care for wearing a wig and did a lot of hats and bandanas. I did wear my wig when with clients though, because it looks like the photo on my business card, website, etc. I chose a synthetic with the weave on top that looks like your scalp. I don't think many people knew it was a wig. Human hair is pretty, but I was told it may get out of line when exposed to the weather. It might be harder to keep up with styling, etc. Good luck with your upcoming treatment! Sounds like you have a lot going on. You will find many threads on the forum that pertain to what you are going through and lots of support to get you through!

  • jc254
    jc254 Member Posts: 439
    edited September 2014

    Toby, I finished chemo about 14 months ago and was able to keep my hair using Penguin Cold Caps.  Please check them out- search for the very active thread on here called "cold cap users past and present".  Like you, I am a professional who is the family breadwinner.  I was able to work throughout chemo with some days off here and there when I was wiped out.  Chemo was not nearly as bad as I imagined and looking back, I'm glad I did it.   Keeping my hair and looking like myself was a real bonus.  I also had two daughters away at college at the time.  I waited until I was over the initial shock of my chemo recommendation and had all the facts and dates surrounding my treatment plan before talking with them.    I hope you'll find this site a great source of support and inspiration.   

  • Tomboy
    Tomboy Member Posts: 3,945
    edited September 2014

    I do wish you the very best of luck. but i would like to say that having breast cancer is nothing to be ashamed of, you did nothing wrong. i don't know, but for me, i thought it was a teaching opportunity, especially for you being in the public eye, i would think. because people really need to see the faces of breast cancer, and how it is right there in the neighborhood, and more prevalent than they think. Although i also do understand people's wish for anonymity.  I told literally everyone, from the woman at the gas station i frequent, to the checkers at my grocer's, women at yard sales i would stop at, everywhere! many women knew nothing about it, really, even i didn't know that there were many different kinds, and i had no idea about lymph nodes, or lymphedema! Some of those women i have gotten to know very well, and many have thanked me, especially ones who have avoided mammograms on account of being too busy. But your life is very important, and i do hope you have an easy path, and there are many good women here to help you. you can do this!

  • MusicLover
    MusicLover Member Posts: 4,225
    edited September 2014

    Did anyone say to lookup Penquin cold caps to prevent hair loss.  See if your cancer center has them or you will need to purchase them yourself.  You need dry ice and more then one cap and you keep switching them while getting your chemo. 

    Best Wishes to you!

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited September 2014


    Toby, hello and big hugs.  I am the sole breadwinner in my family and have an executive position, very demanding.  For me, losing my hair was an issue of privacy.  I did not tell "everyone" that I had cancer and didn't want to.  So what to do???  I ended up working throughout chemo, taking off only on the day of the infusion, every 3 weeks, 6 cycles.  I lost my hair right before my second infusion.  It usually goes on day 14-17.  What I did was to find a wig that matched my hair color and then I cut my hair into that style so that by the time I buzzed my head everyone was used to me having a different look.  I also worked from home during the transition to the wig so that I could practice going out in public with the wig on.  (What I found out is that no one noticed!)  I didn't do cold caps because I just didn't have time to get that set up and as it turned out, the chemo made my hair so dry and ugly that by the time it fell out, I was happy that it did. 

     As hard as it might be to believe, no one that I worked with knew I was wearing a wig or that I was going through chemo.  Maybe we think people notice us a lot more than they actually do.

    My husband took such good care of me during my treatment.  He took care of the household duties, shopping, cooking, etc.  I worked and slept, basically.    I'm not sure if I would have been able to work through chemo without his awesome support.   Make sure you ask for help while in treatment.  Your loved ones want to comfort you.

    Love, MsP

  • Tobycc
    Tobycc Member Posts: 789
    edited September 2014

    you have no idea how thankful I am to all of you!  Right now only one person in my office knows I had the lumpectomy. Pharaoh, what did you tell your team?  I am not ashamed, but am CEO of a non profit....we all know it's a dog eat dog world at times.  I don't want my board or team to think I cannot handle the work.  I have friends and incredible support from my church.  I do rely on them. And hubby has been great. I guess tomorrow when the drain comes out I will be referred to MO.  My surgeon is the one who said yes, I need chemo, and yes, will lose hair.  I am grateful I am not on this journey alone.  Blessings 

  • Janetanned
    Janetanned Member Posts: 532
    edited September 2014


    Toby - I have to agree with what everyone said.  I worked (high school teacher) throughout chemo and radiation with very little difficulty.  I bought a good synthetic wig that was very similar in color to my natural hair.  I had my hair styled to match the wig before starting chemo.  When I began to shed I had my husband buzz my head and began to wear the wig.  No one knew!  Co-workers that I worked with for 22 years did not realize I was wearing a wig until I told them.  I got so many compliments too.  My daughter (college age) wanted to help me pick out a weekend wig.  We actually had some fun trying on different styles.  We picked a real sassy style.  She felt part of the whole process and she felt useful.  We had some great conversations as we looked at wigs and scarves.  My sons (also college age) were a little uncomfortable at first having a bald mom.  But soon got used to it and were certain to complement me when wearing a new hat or scarf.  My new hair came in better than my old hair and I decided to keep the 'wig' hair style.  I should also mention how easy it is to care for a bald head!  My morning routine became so simple - no hair to fuss with.  Just put on the wig and go. It was all very do-able.

    Good luck!

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited September 2014

    Janet, funny...I also had a weekend, sassy wig that I wore on dinner dates with hubby.  My daughter told me repeatedly how awesome my wigs looked, so much better than my old hair that I had to keep colored and conditioned.  I am 12 months since chemo ended and I have maintained a pixie hair do that I love.  It was definitely a shock to my coworkers when I showed up with my pixie, but to be honest with you, it is all about the confidence and I was determined to rock the wig, rock the pixie, etc. 

    Toby,  the way I handled work was to tell my boss and the owner of our company.  Both were very supportive.  I also had to tell hr because I did fill out FLMA just in case I needed it.  (Didn't). The most important thing is to make sure the people you tell know you expect them to keep your health situation private.  They are required to, so that helps.  I always kept them informed along the way.  As far as my staff, I told one of my direct reports because I needed his help to set up my workstation at home.  And I told a coworker who I considered to also be a friend.  She was the absolute best friend I could have ever had.  If anyone "guessed" that something was going on, they never bothered me with it or probed.  The nice thing about being the boss is that people don't gossip with you.  LOL

    I had my surgery on a Monday and was able to work from home during my recovery.  I worked from home about 2 weeks because I needed to be healed enough to wear a bra.  When chemo started, I scheduled off the infusion day which was on Tuesday, worked in the office on Wednesday,taking an hour off for my neulasta shot, then worked from home on Thursday and Friday because those were the days I was the most tired.  Working from home saved me the energy to get dressed up, commute, etc, and I took a nap instead of a lunch break.  Other than those 3 days every cycle, I was in the office working normally.  I also worked every day during radiation.  Had my treatment early morning close to home and in the office at the normal time. 

    Now, all that said....every one responds differently to treatment, so I will close by saying that you must absolutely put your health first and foremost.  I was not a hero or amazing or anything like that...i was lucky that I did well and my side effects were managed and my husband was pulling up the slack.

    Toby, you got this kiddo.  Your treatment is not to be feared...it 's the cancer that is the enemy. 

    Love, MsP

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited September 2014

    Toby, I had so many compliments on my wig!  It was amazing and very natural looking.  When the time came that my hair would be falling out I went to my hair dresser and she gave me a buzz cut.  I didn't want to have gobs of hair on my pillow.

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2014

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