INSOMNIACS place to talk in the wee hours

1…570571573575576…1503

Comments

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014

    The question you have to ask yourself is. If it identifies something questionable or it states a malignancy is seen,  are you prepared to read that by yourself. ?

    · Share on FacebookShare on Twitter
  • tangandchris
    tangandchris Member Posts: 1,855
    edited September 2014


    No I'm not ready for that at all...I just left a message again for the doctor to please call me. I was telling myself earlier that "no news is good news". But now I'm thinking maybe they haven't called because MO is busy and wants to the time to talk to me. IDK, I just hate this shit.

    Tech told me Friday morning at scan that reports are back by that afternoon, so I'd hear either Friday or today. After the scan I told me to wait there, he wanted to know if doctor wanted to see me before I left. That scared the shit out of me, but she wasnt even there.

    Sometimes I just want to pretend that none of this ever happened.

    · Share on FacebookShare on Twitter
  • Alyson
    Alyson Member Posts: 4,308
    edited September 2014

    Pages to read again. Last week just got too much for me with the death of my friend's daughter. Daughter was 24. It really impacted and I have some appraisals to finish before Friday because we are off to Australia on Saturday.

    Had MRI yesterday and will get results tomorrow.

    I am so tired this morning but never mind. Might improve once I have had coffee.

    image

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014

    Tang, If the doc doesn't call and you want to make a point of the fact. Call the answering service and  tell them he said she'd call you today. OR if that doesn't strike your fancy , then tomorrow it  may be. Hugs

    Aly, sorry again about your friends daughter. There's nothing to say except I'm sorry. It sucks. HUGS . Have a great time in Australia! Are you going to see Chrissy? IF so you hug each other and pretend it's me hugging you BOTH. :)

    · Share on FacebookShare on Twitter
  • Enerva
    Enerva Member Posts: 3,162
    edited September 2014

    tang sending you hugs, it's terrible to be waiting :( on results hang in there, fingers crossed all ok

    · Share on FacebookShare on Twitter
  • Wren44
    Wren44 Member Posts: 8,585
    edited September 2014

    Tang, It's probably something stupid like the doc who was supposed to read the results left early on Friday. But you should hear by end of day today. I know it's impossible to keep your mind off dire things, but do your best. Hugs.

    · Share on FacebookShare on Twitter
  • dutchiris
    dutchiris Member Posts: 855
    edited September 2014

    image

    Sorry, new phone huge picture.  Been busy hiking, walking, and riding.  My scooter isn't as impressive as Enerva's bike but it's fun. I had a 3 month on appointment and I seem to check out ok.

    · Share on FacebookShare on Twitter
  • tangandchris
    tangandchris Member Posts: 1,855
    edited September 2014


    Heard back from the MO, she was consulting with PS about my scan that was the reaosn for the delay. I have soft tissue inflammation and they don't know why. Her words, we've never seen this before. How comforting....

    She said that they are waiting to get scans from my hospital stay in June to compare, but I know that this is larger than it was in June. She then made mention of a possible "open biopsy", not sure what that is. I'm freaking out, mostly because in her words she can't rule out cancer. MO said that she hasn't seen it present like this before, but it can't be ruled out. She told me that it is very unusual to have this inflammation after mx, but that it could be because of my infections. She said the length of inflammation is about 3.8 mm.

    I'm thinking of getting a 2nd opinion about all of this crap. My anxiety is really high right now and I'm so devastated that this has happened on my non-cancer side. I've had all I can take and I'm tired of putting my family thru this roller coaster too.

    Thanks for listening.

    · Share on FacebookShare on Twitter
  • dutchiris
    dutchiris Member Posts: 855
    edited September 2014

    Crap Tang,  more waiting and more worrying.  It has to be named to be treated.  Not likely cancer but can't be ruled out with the info they have so far.  So they need more info.  Do something nice for yourself and remember to breath.  You're due for some good news.

    · Share on FacebookShare on Twitter
  • Smaarty
    Smaarty Member Posts: 2,951
    edited September 2014

    tang, so sorry to hear of the latest troubles. Hang in there girl. It's nice to hear from you, everyone understands about taking a break. No sweat.  Hopefully you'll get some answers soon.  Many hugs your way )))))

    · Share on FacebookShare on Twitter
  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited September 2014

    Tang as Dutchy said remember to deep breathe. One day at a time, one meeting at a time. We live in the moment.That moment may seem crushing. Then we get to the next. Been there so many times. I've learned the deep breath. I've learned the thought. I've learned, we can do it through so many hard things.

    I've felt the hollowness, the despair. I have learned we CAN go on. One more step, it's hard. There is a reason to hold on to every life minute. B/c we never know what the next life minute may give us.

    Hang on. Believe. 

    · Share on FacebookShare on Twitter
  • Holeinone
    Holeinone Member Posts: 2,478
    edited September 2014

    Tangadang......not fair, so sorry. I have no medical advice but hope they do whatever needs to be done quickly, & give you some answers. Your anxiety is certainly understandable. Has your daughter started school ? 

    Dutchie, Sharon... great photo....You look young, happy & carefree. 

    · Share on FacebookShare on Twitter
  • Nettie1964
    Nettie1964 Member Posts: 759
    edited September 2014

    So sorry to log in and read of tangs troubles, I certainly understand the fear and frustrations.  my thoughts and prayers are with you. 

    · Share on FacebookShare on Twitter
  • blondiex46
    blondiex46 Member Posts: 5,712
    edited September 2014

    Checking in tango sorry n no worries come in whenever,  we r in ur pocket

    · Share on FacebookShare on Twitter
  • Enerva
    Enerva Member Posts: 3,162
    edited September 2014

    tang me too I amino your pocket. Hope it's only inflammation and nothing else :( 

    Big hugs to you

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited September 2014

    Oh Crap Tangeroonie!  We don't like to hear what is going on with one of our own.   I mean we don't like to worry with you, but of course we will.

    So can you call someone back and say like WTH?  And tell them you would like some answers, and not next week!  Can they just say "okay, come in, let's get this team working on this, and see what is wrong.....  I mean worrying drives us all nuts.

    You want me and Cammi to come out there and get those Docs straightened out?    Sass could drive us.... wait.... WHERE do you live? Oh, Okay Texas....  Spookie could supply us all with drinks and snacks.  We could  camp out by your bedside until we get some answers.

    Don't worry Kiddo....  See?  All the gals are pulling for you....  Like the Sass said, just take it easy until you get some answers instead of all this "It could be's"....!   

    Like me and that Tax "issue"....  DAMN!  I fretted for 2 weeks, just wondering WTH  happened, and now it looks like it was some sort of CF, and the gal said no problem, and she is going to straighten it out.....  Okay.... you and I can worry together....Damn people.

    · Share on FacebookShare on Twitter
  • tangandchris
    tangandchris Member Posts: 1,855
    edited September 2014


    Chevy, I'd love for ya'll to come down here and put these people right!! :)

    My pockets are big so there is room for everyone. Thanks ya'll.

    I'm worried about dh, he seemed so defeated last night. He's angry at God and everything else that things just keep happening. I know I can't fix him, but I want to.

    anyway, love and kisses ya'll. I hope to talk to my PS today. Thinking of getting a 2nd opinion too, I feel like I'm "cheating" on my docs though lol.

     

     

    · Share on FacebookShare on Twitter
  • Pawprint
    Pawprint Member Posts: 464
    edited September 2014

    Tang, so sorry you are going through this uncertainty and pain. I am thankful you got that CT and now they can start the treatment. We are all in your pocket and surrounding you with lots of hugs. 

    · Share on FacebookShare on Twitter
  • Enerva
    Enerva Member Posts: 3,162
    edited September 2014

    i am on the bus, going to the go train station to take the train to go to the hospital. I will let you know how it goes. My stichts come off today ;) 

    Hope I can get lots of answers today. To send wheeptmom and Smarty ;) 

    · Share on FacebookShare on Twitter
  • Nettie1964
    Nettie1964 Member Posts: 759
    edited September 2014

    Wishing Enerva and Tang best of luck today!  I sure hope you get answers Tang!  I may have to join Chevy and come over and crack the whip!  But I will def be in your pocket!

    Enerva, hoping for a smooth appt. for you today!

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited September 2014

    Tang!  Take care of that DH of yours!  It's like when my Husband is really down about whatever, I just try and pay attention to HIM, and then I feel better also.  Do everything you can for yourself, and if you have to wait to do something, just get it off of your mind, and think about it when the time comes.  

    It's just hard to carry so many worries on our shoulders....    Just stress over one thing at a time....  

    Okay Enerva.... where does the plane come in?  Good God where do you have to GO to get this done?    Let us know if/when you ever find your way BACK!

    · Share on FacebookShare on Twitter
  • 3rdtimenow
    3rdtimenow Member Posts: 256
    edited September 2014

    Praying for good news for Tang and Enerva.

    · Share on FacebookShare on Twitter
  • Enerva
    Enerva Member Posts: 3,162
    edited September 2014

    hi ladies I am behind I will go back to read today's post but wanted to share how today went. I saw my genius ps lol so he took my stichts out and said he see everything ok. I asked him if he encountered many problems when he opened me up since the change in sensors are mayor now. He then said nop nothing irregular, he said he realesed the internal contraction and just replaced the implants with the better fit and that was it. So now I am not sure I feel like it all had to do with the wrong implants?  I am just glad he fix it.I will request my surgical records in order to check if any specific is mentioned. I am glad it's all over now. :) 

    Hope you are all asleep. It's 12:28 now 

    Good night 

    · Share on FacebookShare on Twitter
  • Smaarty
    Smaarty Member Posts: 2,951
    edited September 2014

    that's great enerva, now, go to sleep!

    · Share on FacebookShare on Twitter
  • JWoo
    JWoo Member Posts: 1,171
    edited September 2014

    Hello Lovely Ladies! 

    I got about half way through all the backlog, then realized that I will never catch up with everyone. :/ my brain isnt big enough! Sorry I have been so out of the loop. So much has been happening and I have been on a roller coaster of feelings for what feels like forever.

    Pls forgive me for not going back through everything. 

    I hope everyone is doing all right.

    Enerva- glad you are feeling better

    Tang- in your pocket with everyone else. 

    LE is being terrible, I am so ready for cooler weather. I think it really aggravates it. And when that acts up, the nerves in my chest start firing and I feel like I've been hooked up to a car battery. Anyone else get that?

    My diet/exercise is still going, but slower since the flare. I have not really seen any results either. I seriously cut about 90% of my sugar intake, and nothing much has changed. I think the tamoxifen is really throwing a wrench in things. I bought a dress to wear to the wedding in England in November. If i id not eat a single thing till the day we fly out, and worked out 5 hrs a day, I still would not make it. I just dont know why it is so hard. It just isnt moving no matter how much i do. 

    I did start a flamenco dance class this week. Very excited about it. I lived in Spain when I was a kid and wanted to learn so bad then, but we could not afford it. A friend of mine plays guitar with some of the people that play at a Spanish restaurant in Austin, and told me about it. I am really excited to learn. It is very physically taxing, but I love it so far. 

    My friend is doing really well. Got all of his staple and stitches out, and his bones are healing nicely. Still has to watch out for infection/rejection, but his surgeons are confident that he will do great. 

    I'm off to sleep. <3 you all

    - jeni

    · Share on FacebookShare on Twitter
  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited September 2014

    Good Morning gals!  Hi JWow!    Good to see you posting again....  And what's this about you being on tamoxifen?   I think taking any drug like that will screw up our natural endocrine system, and metabolism workings.  SEE?   I sound like I know what I am talking about.....  But you know what I mean.

    It probably inhibits your regular set of regulators that determine weight gain? or loss!  So just be aware of what you are eating, and how much you are doing.  Taking any kind of dance classes sounds fun....  

    Okay, tell me again.... WHAT friend, and what stitches and bones....?  What happened to him?  Was it something you DID to him?  (just kidding)....  

    Enerva.... glad things are looking good again!  Won't be long, and you'll be up and running all over hell on that bike of yours!    You GO girl!  Ride with the Wind!

    That tax thing is almost straightened out...  We go this morning to sign some papers, and mail it in again....  There were mistakes made, by a FEW people, and I don't think I'm going to be taking my taxes to AARP anymore.... I've been doing that for YEARS, but not anymore.   So we don't have to think about owing no $7000 again!  MAN, what a screw-up!  

    Guess you are all sleeping...... that's good, cept' I don't have anyone to talk to!

    · Share on FacebookShare on Twitter
  • Smaarty
    Smaarty Member Posts: 2,951
    edited September 2014

    morning Chevy, glad your tax thing was taken care of, I'm sure thats a big relief. 

    I'm sure almost everyone is awake by now. So have a good day if possible. DD is coming over to do my hair, then I won't look like an old lady! It helps a little. 

    image

    · Share on FacebookShare on Twitter
  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited September 2014

    Awwwww, that's looks like Spookies friend Punkin

    · Share on FacebookShare on Twitter
  • Smaarty
    Smaarty Member Posts: 2,951
    edited September 2014

    ok, I'm all prettified now!  (My color is a little darker :). We have our after pictures taken tonight in the weight class. Maybe I'll post them later. Haha.

    image

    · Share on FacebookShare on Twitter
  • JWoo
    JWoo Member Posts: 1,171
    edited September 2014

    hahah Chev- I can always count on you to make me smile!  

    whoa! your tax mess sounds crazy! I hope it all gets worked out. 

    I was gone for a bit as I was trying to do what I could for a really good friend get hit head on by a truck- on his motorcycle. He is in Ohio, and I was helping set up some fundraising and collecting donations for a few benefits they are having up there.  Shattered his heel, broke all 3 bones in his leg (7 places total), his forearm bones broke and left his body- (they still can't find them)- so he got an internal prosthesis put in and so far so good with it all. No organ or brain damage, so he was really pretty lucky. Guy drifted into his lane too close for him to react. It could have been so much worse.  But, he is a tattoo artist and owns his own shop, so not working for several months = he could lose everything. They guy that hit him had minimal insurance and owns nothing, so he will not really see much help there. 

    So- everyone make sure you watch the road when you are driving!  

    · Share on FacebookShare on Twitter

Categories