Bone Mets Thread

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited September 2014

    KiwiCatMom, doin' the Happy Dance with you!

    Leah

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  • goldie0827
    goldie0827 Member Posts: 6,595
    edited September 2014

    Great news Kiwi, what a relief that has to be for you.

    I've been reading, just quiet. I get my scans end of the month. Trying not to think about it!

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  • Maureen813
    Maureen813 Member Posts: 2,893
    edited September 2014

    great news 

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2014

    Good luck Lori!  Hope your scans bring you good news as well .

    Love n hugs.   Chrissy

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  • birdlady222
    birdlady222 Member Posts: 276
    edited September 2014


    Great News!!

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  • macyhen111
    macyhen111 Member Posts: 754
    edited September 2014

    So Happy for your good news Terre!!!

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  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited September 2014

    I'm getting my pet/ct scan next week, so I'm starting on the obsession road.  I need a lot of netflix to combat it. 

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  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited September 2014

    Netflix good. support system better. You know we're with you. So what do you like on Netflix?

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  • KiwiCatMom
    KiwiCatMom Member Posts: 2,553
    edited September 2014

    Thanks for all the good wishes!  It means a lot.

    Those with upcoming scans - my heart is with you.  Sending light, love, good energy, and hugs your way.  I do think we should adopt Tom Petty's "The Waiting is the Hardest Part" as our theme song related to scans.  I just warn everyone around me to be patient, understanding, and basically ignore me if I seem to be losing the plot due to scanxiety.  

    Hugs to all,

    Terre

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  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited September 2014

    Dear dune--I'm presently on an Elizabeth I tear.  I think I've watched four versions of her life--one on netflix and the others on Amazon prime.  I could pass a test, but only if tested very soon because you know how the memory goes.  

    And I agree that this discussion board is the best medicine for anxiety. 

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  • Aoibheann
    Aoibheann Member Posts: 555
    edited September 2014

    Delighted for you, Terre.  Hope everyone else is stable too.  Hugs

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  • KiwiCatMom
    KiwiCatMom Member Posts: 2,553
    edited September 2014

    Thanks, Aoibheann!  

    Hugs and good wishes to all,

    Terre

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  • Garlikbread
    Garlikbread Member Posts: 181
    edited September 2014

    hi Ladies,

    Just curious to know how long have you/were you diagnosed with bone mets only and during that time what treatment were u on?

    Thanks 

    Margie

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  • WinningSoFar
    WinningSoFar Member Posts: 951
    edited September 2014

    Dear garlik,

    I have only bone mets (well, I had my lymph nodes light up but does that count?) and I have been on Abraxane (taxol).  I take that back, I was also on Avastin for 3 cycles on a clinical trial, along with Abraxane. 

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2014

    Hi Margie, I was dx with bone mets back in May 2009 and I have been on Arimidex and currently on Femara.  I'm NED at the moment and have been for almost four years.  

    Love n hugs.   Chrissy

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  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited September 2014

    Arimidex. I was diagnosed about a week or two ago. I don't know. Time is weird. I may go for another opinion because I think we should be more aggressive. This cancer is aggressive. Stupid bloody cancer.

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2014

    Dunesleeper, give the AI's a chance as they are indeed pretty powerful little pills.  The standard of care for stage IV is different to being just dx as they are no longer looking to cure but to extend life so starting with meds that are gentler on the system is better for us and can definitely get us to NED.

    Love n hugs.   Chrissy

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  • KiwiCatMom
    KiwiCatMom Member Posts: 2,553
    edited September 2014

    Dune - what Chrissy said.  I know how you feel; kept thinking we should be more aggressive with it, but after a while, I kind of figured it out.  Give yourself time and be gentle with yourself - this is very new for you!

    Margie - I was dx with bone mets and one lit up lymph node in Feb 2013.  Been on Femara ever since and nothing active on the latest bone scan.  Seems amazing that one pill can keep everything in check, but it seems to be working for me.

    And..I have really good news for myself! :)  I get a cortisone shot in my horribly arthritic knee tomorrow afternoon before I go on leave for a few days.  And I see my MO day after tomorrow.  

    Hugs to all,

    Terre

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2014

    Yay Terre for cortisone!!!  I had four injections into my hip yesterday and today I am going up and down my stairs with very little discomfort......the healing knee replacement is giving me more trouble.......lol.  Hope your leave is a nice restful one for you and you get relief from your painful knee as well.

    Love n hugs.   Chrissy

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  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2014

    Margie, I was dx'd w/scattered diffuse bone mets in January of this year -- one month shy of my 6 year cancerversary.  I have been on Arimidex since January.  My onc also wants me on Xgeva, so I am getting some dental work done prior to starting that. In fact, oral surgery on Thursday, 9/11, yuk.   I am also following a methionine-restricted diet, something I heard about from an integrative onc. 

    Terre, so glad you're getting something for your knee.  Hope you can enjoy your leave now!  And good luck at your upcoming appt.  

    Dune, I totally agree on not rushing into more aggressive meds.  Skipping the A/I's would cheat you out of seeing if the A/Is will work for you, as they do for probably the majority of us, with far less toxicity to our bodies than chemo.  

    And Margie, congrats again on the half marathon (another thread for anyone who hasn't seen it)!  When I saw your post, I actually had to come back to this thread to be sure I didn't have you mixed up with someone else!  From sliding down the stairs on your rear end (I think that was you) to a marathon is nothing short of amazing and very inspiring!      Deanna   

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  • Garlikbread
    Garlikbread Member Posts: 181
    edited September 2014

    yep Deanna that was me back in May!

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2014

    Margie,

    Just celebrated 3 years since bone met dx. I had been on Arimidex for most of the time and recently switched to Femara. I also had rads to my upper femur and have been NED since then. 

    Caryn

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  • saskie
    saskie Member Posts: 205
    edited September 2014

    Wildchild I sure hope you are doing better.  Thanks for the info.  I have been really sick since the beginning of Aug.  Finally get to see my oncologist tomorrow.  She went away for a months holiday and I have been battling with the gastritis, now a probable bladder/kidney infection too.  Have not been able to eat a lot - nothing seems to sit on the stomach and everything causes major stomach bloating and gas. Local doctors haven't wanted to deal with stuff because of the cancer drugs and the cancer centre kept telling me to see my local doctor because my oncologist was away.  Sure hoping to get some answers and medical attention tomorrow.  How long will the faslodex stay in your system, do you have any idea?   Hugs

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  • ibcmets
    ibcmets Member Posts: 4,286
    edited September 2014

    KiwiCat:  Congrats on the scans. Glad it's only arthritis.  I have arthritis in my shoulders & knees.  Femera was hard on them and I find Aromasin easier.

    Terri

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  • KiwiCatMom
    KiwiCatMom Member Posts: 2,553
    edited September 2014

    Thanks, Dianna and Terri!  Terri - I may ask the MO about aromasin when I see him.  I'm happy this is just arthritis, but I'm tired of being so sore all over - knees, hips, foot, shoulders, and now my hands...

    I'm gonna call Gralikbread Marathon Margie. That's awesome!!

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  • teacher911
    teacher911 Member Posts: 853
    edited September 2014

    Terre, I was so happy to read that your scans were stable.  I hope the cortisone shot gets rid of your pain.

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2014

    Terre, grit your teeth this afternoon when you get those cortisone shots!!  They hurt somewhat but feel soooo good after for me so I'm hoping they are the same for you as well.  Thinking about you today.

    Love n hugs.  Chrissy

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  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited September 2014

    Thanks all for the encouragement about the Arimidex treatment.

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  • KiwiCatMom
    KiwiCatMom Member Posts: 2,553
    edited September 2014

    Thanks, Chrissy.  It did hurt.  I've had them before and know that it stings, and it did.  But what really hurt was that the physician trainee (very nice person) had ICE cold hands and was pushing down on my kneecap with her icy fingers.  That hurt more than the shot!  All done and dusted; they put litocane in with the cortisone so the knee is blissfully numb at the moment. :)  I just want enough relief in the knee to be able to start exercising again without intense pain.  Even if the pain isn't awful when I walk, if I do walk or use the exercise bike, the knee then wakes me up at nigh because it's so sore.  The kind thoughts are much appreciated!  

    Hugs to all,

    Terre

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited September 2014

    Wow Terre!  I think I would have told her to warm her hands and not press so hard!.....that was just cruel!  At least my doc apologized  when he hurt me when he was finding the spots.  I'm so glad you are felling 'blissfully numb'........lol.

    Love n hugs.   Chrissy

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