March 2014 Surgery

Options
16970717274

Comments

  • Frostecat
    Frostecat Member Posts: 447
    edited September 2014

    Starting to get nervous/anxious!  I did ask my PS about having drains with anatomical versus round, and he said it doesn't make a difference as far as the drain goes. I will be having a drain, and I am getting an anatomical.  

    I keep wondering when they "set you up" that is all well and good, but what about bending over?  I have a huge dog ear on the inside of my breast and when I bend over it looks awful.  No more wearing low cut/halter tops for me.  Even if he does fix it, my scar travels far inward.  Going into surgery, I am going to tell him that is the area that concerns me most.  Maybe he can do some type of fancy stitch to reduce the scar.

    Anything different this time around that I should prepare for versus the initial surgery?  I think my decision to have the lipo is almost freaking me out more than anything else.  I just keep telling myself, in LA they do this all the time haha!

    Glad to see you gals are on the mend - can't wait to be there too!

  • LovebeingNana
    LovebeingNana Member Posts: 134
    edited September 2014

    Hi everyone! I have been MIA for a bit….just trying to deal if you know what I mean. Just wanted to chime in…my exchange is scheduled for the 16th and at my pre-op yesterday my PS said that drains are really important with anatomicals because they can actually turn and end up in the wrong direction :(  so the drains keep extra fluid out of the way so they have less chance of floating to the wrong direction. Yikes. He also said for the same reason, my restrictions will be more than they were with BMX!. I will be glad when all of this is done.  

  • Sailon
    Sailon Member Posts: 55
    edited September 2014

    Hi March Ladies -- So much is happening. Exchanges on 2nd, 9th and 16th.   Julie so happy things are going well.  Sorry about the complete breakdown -- but it likely was a good thing -- eh?  Ya gotta honor the stuff inside or it will eat you alive.  I have the stuff in side tooooo -- never know when it is coming out exactly.  One wants to be strong and positive and forward thinking and all -- but letting it all come out and be out regularly is important.   I get the never be normal again thing.  I think up until the exchange occurs and you see what you have, "IT" (the whole flipping year) does not become real.  I am nervous about that - almost more than the actual act of the surgery itself. I have amazing support and love - around me -- but I think it is me that wants it all just like it was.  Getting beyond the exchange will help the "getting it all behind me" happen. 

    Sounds like all exchange surgeries are going well - with and without drains.  I am not having any kind of lipo or grafting - so am not versed on that.  I agree with trusting your PS.  They do this all the time.  If you have come this far with them, unless they are talking crazy stuff - listen, question and let them lead -- at least this is how I am approaching it.   I have 4 prep appts. between now and 10/2 Exchange surgery.  Going with anotomical.  Discuss size etc… and all else on Monday morning with PS. I have 550CC in now. So we will see.  I have yet to let my boyfriend of 6 years see the scared expanded tissue expanders in the flesh yet.  He wants to come with me to the PS on Monday morning and I want him there too, so I think he gets to see them at home today or tomorrow.  We had both agreed he just didn't necessarily need to be left with the not bad looking in clothes and bathing suit, but profound image of the alien looking large mounds with the pretty pink scars.  But maybe Monday that will change.  

    On your recommendation Julie I have planned to take two whole weeks off and then work from home for 2 weeks. I am glad to hear that it is not as challenging as the BMX recovery.  

    Advice? Do I need the same kind of surgical bra -- but bigger -- as you did for the BMX?  They will probably tell me, but just wondering what you had to bring with you on Exchange day.  

    I have been staying in touch on Facebook with Footballnut.  She just finished her Chemo and has done very well.  She is ready for Football and over the worst of it.  So that's an update from Facebook.  

    Frostecat - I am thinking calm, good, healthy, thoughts for you this weekend and through all of next week.  Bon Courage.   

  • Sailon
    Sailon Member Posts: 55
    edited September 2014

    PS -- I did medically flip out a few weeks back.  I think I mentioned I had a few tests -- with uterus and unary track. It all came back negative.  I am just so easily freaked out -- when anything feels and or seems not exactly perfect and normal.  I have to get beyond this -- or my Dr.'s will want to fire me.  No, seriously they get it, but damn I put me and my family through the ringer -- that is for sure and hopefully in time will stop doing that. 

  • Juliecc
    Juliecc Member Posts: 4,868
    edited September 2014

    it definitely feels good to have the exchange behind me. Good luck to all of you with your exchanges. It really is easier!  I actually walked to a diner with my family for dinner after I got home.  If any of you would like to friend me on Facebook, just search Julie Cochoit Chambers. I'm the only one!

  • Frostecat
    Frostecat Member Posts: 447
    edited September 2014

    Hey Julie - I'll be sending you a friend request.  I tried to PM you on F/B but they wanted to charge me a $1 to do it - I didn't know they started doing that.  Well at least you can put a face to my posts - because all along I've been trying to remain somewhat incognito, as I never announced my BC on F/B, nor do I plan to.

    Diane

  • Juliecc
    Juliecc Member Posts: 4,868
    edited September 2014

    I got it, thanks!  I won't mention BC on your page.  I did put it on mine but just after I had my BMX and the day of my exchange surgery.

  • Frostecat
    Frostecat Member Posts: 447
    edited September 2014

    Thanks Julie - it's great to see all of your great pics and fun times - outside of BC and this board for sure!

  • FrannyM424
    FrannyM424 Member Posts: 55
    edited September 2014


    Hello March Sisters!  First time checking in since July I think.  Happy to hear about all the exchange surgeries that went well! But sorry to hear about those having medical issues and husbands having medical issues too.  Stay strong!  No fills for me since R mastectomy in March.  PS filled to 350cc max at time of surgery.  Was debating what to do next.  Was opting to just exchange te for implant on R and leave L alone.  PS kinda freaked me out wanting to do lift & reduction on left and use 1/2 of L nipple to create a nipple on the R.  But she said the lift would only last about 2 years and the scars on my "good" breast would look awful from what my husband & I could tell from pics. So, was planning on just a simple exchange surgery on Oct 29.  But guess what?  Went on that cruise to Bermuda that I was telling you about (which was wonderful!) soon after returning home, large area on my mastectomy breast turned a little pink, then reddish, then kinda reddish/brown.  PS says it looks like radiation burns with underlying infection.  They think I must have gotten sunburned through my bathingsuit top.  Who knew that could happen?!? But I guess the skin is just so sensitive.  So now I'm on antibiotics and applying a special crème.  Please send some positive vibes my way that this clears up.  Needless to say, my exchange surgery is unlikely to happen end of next month.  Even if the abx do their work, the skin will probably need more time to heal than that.  I'll try to post some pics.  Feeling so sad and frustrated.  Thanks for listening Sisters.  Take Care - Fran

  • Juliecc
    Juliecc Member Posts: 4,868
    edited September 2014

    I'm so sorry to hear that, Franny.  I'm going to Arizona to hang out with my old college roommates in a week and a half.  I'm thinking I need to wear major sunblock and maybe a shirt on top of my bathing suit!

  • FrannyM424
    FrannyM424 Member Posts: 55
    edited September 2014


    Thanks Julie.  Now I know to apply sunscreen under my bathing suit top and wear a cover up the majority of the time over my bathing suit top.  Nurse also recommended swim suit such as Coolibar which is made of ultraviolet protective fabric that blocks 98% of UV rays that hit the fabric.  Just wish I had been warned about this before going on vacation August 1st. Have a wonderful time in Arizona!

  • Frostecat
    Frostecat Member Posts: 447
    edited September 2014

    Hey March sisters - It's done.  I posted on the Exchange City thread.  Doing a lot of popping pills and sleeping.  I am having a great deal of pain under my breast where the pocket work was done.  I am trying to move this tight bra down and move the compression stuff I have from the lipo to give it some room - I am in pain from this.  The order of my pain is pocket work, followed by the lipo - I'm not gonna lie that hurts, followed by the lifted breast which doesn't seem to be bothering too much right now.  Where he did the fat grafting on the reconstructed breast looks like the reddest sunburn I've ever had in my life, and I have lots of bruising from the lipo.

    Has anyone else experience a lot of pain from the pocket work?

  • KLJ
    KLJ Member Posts: 284
    edited September 2014

    Frostecat, I hope you feel better soon. I know my PS told me he had to do some pocket work but it has not caused me any pain. I feel so bad that you are going through this after everything else you have been through. Hopefully this will pass soon and you will be pain free. Get lots of rest. This too shall pass. Hugs!

  • Frostecat
    Frostecat Member Posts: 447
    edited September 2014

    Thanks KLJ. The percocets really help.  How are you doing?

  • Juliecc
    Juliecc Member Posts: 4,868
    edited September 2014

    Frostecat, I hope each day gets better.  I'm 4 weeks out and fnally the tightness is subsiding.  Also, the burning skin feeling in my cleavage area is much better.  I think your extra pocket work and fat grafting made it harder.  I had pocket work and a biopsy of my red bumps but not the at grafting.  That will happen later if I need it.  Hang in there!

  • KLJ
    KLJ Member Posts: 284
    edited September 2014

    Thanks for asking Frostecat. I can honestly say that I feel the best I have felt since my BMX on March 17th. I have zero pain, the drains came out quickly, and I am happy with the results. I feel like that in clothes I look exactly like I did pre surgery and that is what I wanted. I think my PS is a pretty amazing man!

    I hope your pain is subsiding and that in a few short days you can feel your best too! We've all been down long and winding roads that have taken us all to different places. My hope is that we all end up happy, pain free, and most importantly, cancer free :)

     

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

    Hi March Sisters,

    I'm back after a fantastic vacation to Alaska. It was at the top of my bucket list and I booked the cruise last year at this time, just after my second surgery - fourteen days after the BMX with direct to permanent implants. I should have known bad luck wasn't finished with me after "acquiring" the infection in the hospital. Sure do wish I knew who my "donor" was...someone in the OR for sure. I'd like to give him or her a poke in the nose! In the past year there have been so many ups and downs. I too had the post-op meltdown others have reported. In fact, I've had that happen several more times but survived each so they don't scare me so much now.

    Next week I go in for surgery #5 - and yes, there will be a surgery #6 after all. My PS now wants to delay the fat grafting on my chest until after we are sure we're finished with the lingering repair issues that still plague me on my left side and have caused the left implant to misbehave...again. Of course I'd hoped to get it all finished this time, but I understand his point...best to wait until swelling is gone and everything is settled so he can be sure the fat grafting is placed where it belongs. I don't want to have to do it more than once.

    So on Sept. 19th he will once again work on the left side. He's repaired the muscles as best he can already, but there are some remaining soft tissue problems that have meant a certain level of pain 24/7. He will also once again re-excise the left pocket. He did a capsulorrhaphy last time but it has not been good enough to resist the tension caused by the missing soft tissue and shortened muscles that pull the left implant out of place. Today I e-mailed him to ask if we should go with smaller implants. I wouldn't mind. Just want this to be over.

    Sorry I haven't been here to offer support to my fellow sisters, but I was having the time of my life!

    image


     

  • Frostecat
    Frostecat Member Posts: 447
    edited September 2014

    Thank you for the well wishes - I keep telling myself all I need is time.  The worst part for me is trying to get out of bed.  I sleep pretty will with one of those bed rest things, propped up. But unless someone pushes me from the back to get up, it hurts!!

    Sandra - your pictures are wonderful.  Glad to see you are living your life to the fullest in spite of everything!

  • jbdayton
    jbdayton Member Posts: 700
    edited September 2014

    Sandra so glad your cruise went well.  Hope you were able to put your medical thoughts aside during the trip and now that you are home you can prepare for the rest of your reconstruction journey.

    I actually got surprising news yesterday.  I think I am still in shock.  The PS says the wound looks completely healed and the gallbladder surgery punctures and incisions are completely healed.  He is amazed how fast they healed compared to my prior wound issues.  Now he doesn't want to wait until next year to proceed.  He wants to do fat grafting to build up what volume I lost in the healing process and get me some symmetry.  The NP is looking for a date.  This will just be an hour long surgery.  

    I finally planned a few things thinking no more surgery this year.  Now I have to work around my commitments.  

    Congrats to all getting their final implants.  

    Frostecat hope each day results in less pain and swelling.  Keep us posted on your progress.

    Franny thanks for the sunburn news.  My oncologists keeps telling me sunscreen, sunscreen, sunscreen.  Maybe I better listen, I love the sun and spend time on the beaches.  My husband still surfs.  I am good at applying it to my exposed skin but I better start lathering it on under my clothes as well.  I hope your burns did not cause an internal infection.  Hope it is getting better quickly and you will be able to proceed with your exchange surgery sooner than later.

    Hugs to all.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

    What wonderful news Jbdayton!!!!!!!!! You have been through enough for ten women and truly do deserve a break for a change. Congrats, girl.

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited September 2014

    I'd love to stay in touch with everyone. If you have Facebook, send me a friend request. I'm Sandra Pruett Asher. Smile

  • FrannyM424
    FrannyM424 Member Posts: 55
    edited October 2014


    Hi March Sisters!  Feel like I'm bringing up the rear here but I've finally been cleared for my TE Exchange!

    It'll be one week from today, October 29th.  Has been a long wait since my R mastectomy in March. Was a tough decision,

    but have opted for no lift/reduction on my L breast.  This will be my 4th surgery in 9 months and my husband and I both agree

    that we want it to be as uncomplicated as possible.  My last posts mentioned that my  R breast had gotten sunburned through my clothing while on vacation in August.  They did 2 skin biopsies to rule out IBC.  That was a scary week waiting for those results for sure!  But thank God came back benign.  Biopsy results stated: Superficial Pervascular Dermatitis related to Hypersensitivity Reaction.  My PS still thinks it was triggered by the sunburn.  So please continue to be very careful in the sun!  The skin over our mastectomy breast is just so thin and sensitive.  Hope everyone is enjoying Fall.  Looking forward to getting this last surgery behind me and then not thinking about it again until the implant needs replaced in 10 years right?!?

     

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited October 2014

    Hi Franny. Your story is an important one so I hope you share the info about the dangers of the sun on lots of threads. So glad your news turned out to be good.

    No need to worry about getting another implant in ten years. My PS said that was the case years ago with less sophisticated types of implants. Women who got breast augmentation often ended up with capsular contraction which distorted the implant and required repairs. My doctor says I should assume my implants are permanent and will never need to be changed.

  • Frostecat
    Frostecat Member Posts: 447
    edited October 2014

    Franny that is good news.  Fellow UNI here, I encourage you to join us on the Unilateral Mastectomy & Reconstruction thread under the Breast Reconstruction forum.  Not too many of us UNI's out there so it's nice to have others to share experiences with.  I went ahead with the lift, but it my case, it was a necessity if I was ever to have any kind of symmetry.

    Hello March ladies - our posts have all but vanished, but like I said before, this is still my favorite thread as you all helped me through the darkest hours and for that I am thankful!

  • sandra4611
    sandra4611 Member Posts: 2,913
    edited October 2014

    March Surgery Sisters,

    image

    How is it going now that you are six months out?

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2014

    Pretty much the same - still no implant on the left side.  My PS will do a fat graft, like they are now doing for radiated skin, in November.  Will assess in 90 days after that, and continue to fat graft prior to putting an expander back in.  Fat grafting is supposed to increase vascularity and suppleness of the skin prior to stretching.  So, depending on how many grafts he does - and he will only do them every 90 days, I may not have an expander until the spring of '15, and exchange maybe by the end of next summer.  That is a long time for this considering how long ago I originally exchanged.  My repair that made me a March surgery sister has bought me two additional surgeries, being half-flat for a year minimum, and the potential for five more surgeries before this is done.

  • linda505
    linda505 Member Posts: 847
    edited October 2014

    oh my specialK - such a journey - I sure hope things go well and as fast as possible for you!

  • linda505
    linda505 Member Posts: 847
    edited October 2014

    I am doing pretty good - exchange surgery went very well, still doing my herceptin and still have liver enzyme issues that now concern my MO and my GI doc so I am now schedule for an MRI - GI doc thinks I may have sludge in my bile ducts.  I am hoping it is something like that and not mets related.  This and the triple postive thread have been my life lines through all of this - hope you all are doing good

  • Juliecc
    Juliecc Member Posts: 4,868
    edited October 2014

    Yikes, Special K.  I'm so sorry you have more surgeries ahead.  Linda, I hope all is ok with your liver.

    All is well with me.  I had my exchange 8/8 to 550cc Allergan style 20.  I have a slight dent still and slight rippling  when I lean over.  Otherwise I am happy with them.  I see my PS on 11/6 and will discuss the pros and cons of fat grafting.  My foobs are also cold sometimes so maybe fat grafting will help that.  I just need to get more information and decide if it is worth going under again or not.  

    Franny, I had 2 areas biopsied during my exchange.  I had some red bumps that wouldn't go away for over 2 months, and then a hard bumpy area.  All was ok.  Then about 6 weeks after exchange, about 8 hard bumps appeared out of nowhere under the skin.  My surgeon checked them and thought they were just undissolved sutures or scar tissue.  They are getting smaller, thank goodness.  I guess we will always have to be hypervigilant.

    I hope all of you are doing well.  We are 7 months out from our March surgeries!

  • Frostecat
    Frostecat Member Posts: 447
    edited October 2014

    Good hearing from you all - I've seen most of you on other threads as we move along this journey, so try to keep up there.

    SpecialK - I think you get the award for the most lines in you signature, my goodness.  Let's hope things start turning around for you sooner than later.

    Linda - Hoping all is well with you, and hoping that it is nothing.  I don't envy you with the MRI, I HATED that, but maybe you don't have to do the upside down one, then it isn't as bad.

    Julie - cya on f/b!

Categories