I'm taking the recon plunge! Help. Scared.

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Jesusisthekey
Jesusisthekey Member Posts: 14
edited September 2014 in Breast Reconstruction

Hello:

Long story short, I was diagnosed with atypia back in February of 2011. Because my mom had inflammatory breast cancer when I was in high schooI I opted for a prophylactic bilateral mastectomy without recon. Now I believe I am ready to do recon .I am going to go the route of TEs and implants. I have a consult with a PE on Friday of this week.

I have to admit I have my fears.The biggest fear is how I’ll feel when I wake up from the TE placement. I guess I want to hear from those of you who have been here and if there are any who did delayed like I did. It’s been three plus years.

Here are my questions (and I apologize because some are whacky, I know):


1.  How do you feel when you wake up from the TEplacement?Excruciating?Is it doable?

2.Howlong before you can function without being in pain?

3.Whenwill I be able to lift my arms over my head?

4.Dothe fills hurt?

5. Whenyou had your TE placement and/or swap surgery – do they put the IV in your handlike normal?They put my mom’s in herneck and I’ll never forget that as long as I live. Blech!

I think that’s it for now. I just really want to know how bad this is going to hurt, particularly the TE placement surgery.

Comments

  • sarahjane7374
    sarahjane7374 Member Posts: 669
    edited September 2014

    I had PBMX with immediate recon, so I can't speak to the issue of delayed reconstruction.  But I did have TE's and swapped to implants about 4 months later. 

    I woke up from the surgery in a lot of pain.  For some reason, this really surprised me.  I guess I thought the meds in the hospital would take it away - they didn't.  I had a morphine drip and that helped some, but really only took the edge off.  I remember feeling like a grenade had exploded in my chest.  I felt shredded, with a lot of pressure - like a weight on my chest.  I had bilateral SNB as well, so that could have increased the pain I had when I woke up.  Taking a deep breath was hard, moving around was difficult. It sucked. Really sucked.  Is it doable?  Yes. Would I do it again?  Yes.

    The pain didn't last long at that level.  Once I got home, I quit the narcotic meds within a couple days.  They weren't helping me and were making me really constipated.  My PS prescribed flexeril and ibuprofen, which worked well for me.  I didn't do much for the first couple of days - just laid around and watched a bunch of movies.  My PS was adamant that I not spend too much time lounging though, and wanted me to get up and move as soon as possible.  I started taking short walks around the block within a few days (at night, so my neighbors didn't gawk at my drains), and on day 6, after I had my drains pulled out, I walked 5 miles.  I went back to work 10 days after my surgery.

    I was able to raise my arms above my head right away.  I didn't have full range of motion that way until about a month or so after surgery.  I could tell I was unable to reach as high as normal because at first I wasn't able to stretch up enough to hit the button on my air conditioning units, but I was definitely able to raise my arms without a problem.

    For the most part, my fills didn't hurt.  I equate it to getting braces tightened, if you've ever experienced that.  There was some tightness and mild achiness at first, but it would subside pretty quickly.  The last fill was the worst, and I was sore for several days.  My PS had told me the last one is always the worst - I guess it's because of the overfilling process.  But even that one was bearable.

    You'll have a rough few days.  Expect that.  Everyone is different - some have complications, and some don't.  I was one of  the lucky ones that didn't.   It's a lot easier to find horror stories than success stories, especially here. 

    I'm almost a year out from exchange now.  I feel great and I have no regrets about anything.  I love my results and if I could do it over, I can't think of anything I'd change.  Oh - and I always had my IV's in my hand.

    Best of luck to you.  You can do this.

  • Jesusisthekey
    Jesusisthekey Member Posts: 14
    edited September 2014

    God bless you for your candor.  I wish you health and happiness!

  • Camillia
    Camillia Member Posts: 185
    edited September 2014


    Hi! I had delayed reconstruction. I went a year without it as I originally did not think that I would want it but I changed my mind after a summer trying to figure out bathing suits and summer dresses ;-) I too chose the TE route. My experience was very positive, it went great all the way through and I just had my exchange surgery a little over a week ago to the implants. When I woke up after TE placement, my ps had put 100cc in them and I was in very little pain. Pain medicine took care of what little plain I had and I took those for only a few days. The drain was really the worse part for me, I was so happy when it came out! I did get my IV in my hand (so sorry for your mom and that horrible memory!). I had full range of motion from the moment I woke up, that part was much easier than at MX. As for the fills, I had no problem either. We never put more than I could tolerate at a time. My ps preferred doing smaller fills. We stopped when it felt tight and I went back 2 weeks later for more. I would feel tight and slightly uncomfortable for 2-3 days after a fill but than I was back to "normal". I say "normal" because the TE's are not comfy; they are hard and they got in the way of sleeping, hugging my children, etc. But it was not painful, just annoying. I was scared too to start the reconstruction and had read so many negative stories. I was lucky that everything went well for me and I certainly would do it all over again as I am very happy with the final results! Best of luck to you!

  • Jesusisthekey
    Jesusisthekey Member Posts: 14
    edited September 2014

    Camillia, thank you so much for the info.  Oddly enough, my ps has on her website that "delayed reconstruction is usually easier than immediate".  I have a consultation on Friday so you bet I'll be asking about that statement.  I am going to ask her if she fills slow.   I've been without breasts for 3 years...I am not asking to wake up as Dolly Parton.  :-)

    You have given me hope.  Thank you! 

  • Camillia
    Camillia Member Posts: 185
    edited September 2014

    I completely agree with your PS' statement! I had both delayed and immediate reconstruction and delayed actually was easier for me. I originally had a UMX. Then I decided to do reconstruction a year later and half was through the process, I decided to have a prophylactic on the other side with TE placement. The TE bothered me more at first on that side than it had on my original side. I always thought it was just me, so thanks for sharing that info!

  • Mich71
    Mich71 Member Posts: 45
    edited September 2014

    thank you for your wisdom Camillia.  Scheduled delayed uni reconstruction in Dec and have wondered if I will regret not doing it at the time of mastectomy.  Your experience is comforting and reassuring. 

  • Camillia
    Camillia Member Posts: 185
    edited September 2014

    I dont know about wisdom LOL!

    But I am glad to have been helpful.

    Best of luck to you!

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