Anyone taking strontium for osteoporosis?

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whippetlover
whippetlover Member Posts: 17

I have been taking biphosphonates for the last five years for osteoporosis that has worsened after Tamoxifen and Aridimex. My doctor has prescribed strontium ranelate which in Australia is marketed as Protos. It's in granule form that is mixed with water and taken daily. I've been on it for three months and haven't had any unpleasant side effects as yet but I have read that it is not recommended for anyone with high blood pressure or heart issues as it may put users at a higher risk of stroke! That's a little frightening to me as my blood pressure can jump around if I'm under stress. I'd be interested to hear from anyone else who is on it. After years of Zometa infusions the endocrinologist thought it was worth a try.

Comments

  • Momine
    Momine Member Posts: 7,859
    edited January 2014

    I have not taken it, but I have read about it. To me, it sounded a bit less scary than zometa, but all these drugs seem to have potentially unpleasant SEs. I hope someone weighs in.

  • peggy_j
    peggy_j Member Posts: 1,700
    edited January 2014

    I'm not, but I remember members discussing it a year or two ago. You may be able to find the threads using the SEARCH feature.

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited January 2014

    I was on Fosamax for almost 3 years; quit due to problems swallowing and jaw pain.  My doc does not recommend any other treatment - doesn't like any of the products - just wants me to take vitamin D


  • GrammyR
    GrammyR Member Posts: 702
    edited January 2014

    Whippetlover- I am one of those too- whippets I mean..ha..I am a retired RN and I always thought " Strontium" was a type of substance used in radiation? I have been on all those hormone blockers you mention and did not do well on any of them.

     

  • Texas357
    Texas357 Member Posts: 1,552
    edited January 2014

    I've been taking strontium citrate for several years now, while also taking Femara. I started this journey with osteopenia from a completely unrelated problem a few years earlier, and my oncologist wanted me to start on a biphosphonate but she changed her mind when I was able to show her a chart that demonstrated I've been able to maintain my bone density for the last 6 years and even improve it slightly. 

    In addition to the strontium, I also take 5000 IUs of Vitamin D daily. I drink skim milk with two meals a day. On those days when I don't have skim milk with dinner, I also take a calcium supplement. Calcium interferes with strontium absorption so you have to space it out by about 4 hours. 

  • corky60
    corky60 Member Posts: 726
    edited January 2014

    Lara Pizzorno in her book "Your Bones: How You Can Prevent Osteoporosis and Have Strong Bones for Life--Naturally" recommends taking strontium citrate and vitamin K2 among other things.  My naturopath recommended this book but I am leery of the recommendations in it.  There is nothing natural about ingesting strontium.  "Naturally" means no prescription drugs in this case.

  • Texas357
    Texas357 Member Posts: 1,552
    edited September 2014

    Actually, if you research strontium in foods, you'll find that it's present naturally in many foods from grains to vegetables and seafood.

  • Momine
    Momine Member Posts: 7,859
    edited September 2014

    What is the difference between strontium ranelate and strontium citrate? Does anyone know?

  • anniealso
    anniealso Member Posts: 16
    edited September 2014


    Hi again, yes I know.  Strontium ranelate which is the form that is available by RX in Europe has ranelate added to it. This makes it slightly more bio available, but more tough on the gut.  (Those are the major SEs, the stroke stuff, well if you took tamoxifen, that's worse for you for sure.)  Same with arimidex.

    Strontium citrate is the natural form, available right on amazon or a health food store.  I'm no health food nut, nor see a naturopath.  But my doctor is not only European, but she's also highly educated on this supplement.  Strontium citrate is a deal safer to take and much easier on the tummy.

    Thanks to Texas, that's really helpful!

    So is femara also a bone drug?  I'm unclear what it does, exactly.  I don't think that they recommended concurrent use of a bone drug and strontium.  It was one or the other.

    Going to find out just how bad things are tomorrow.   No one called me back on DEXA and seeing onc for 6 months.  Since I have shrunk in height,  have a bad feeling the bones are lousy.  Although I just received an email from a buddy mentioning that it is common for women to shrink up to 3" post menopause!  YIKES!!

  • Momine
    Momine Member Posts: 7,859
    edited September 2014

    Annie, thanks for the info. 

    Femara is an aromatase inhibitor. One of its side effects is often bone loss, due to the fact that the drug starves the body of estrogen.

  • anniealso
    anniealso Member Posts: 16
    edited September 2014

    Thank you for the info, Momine!  I was 5 years on arimidex, so same thing I guess.  I did v well, but it looks like my bones not so much.

    A friend just sent me current info on strontium.  link below:  In short:  if you have existing heart conditions, are elderly or have uncontrolled HBP, it's not for you.  For the rest of us, it's fine.  I want to say that this is off the net, not substantiated by a dr. yet, and is only a publication but at least it is recent.

    .http://www.ncbi.nlm.nih.gov/pubmed/24322475

     


     

  • anniealso
    anniealso Member Posts: 16
    edited September 2014

    In no way am I saying that someone should or should not take this.  You have to make these decisions with your own onc or GP or naturopath.  I am tending to trying it as my GP is in favor.  My onc may not be, but he's a biophosphate fan.

  • anniealso
    anniealso Member Posts: 16
    edited September 2014

    Ooops!  I forgot to qualilfy; this study is on strontium ranelate the stronger, dr. prescribed RX.  The study did not take into account strontium citrate, which is an OTC supplement and has not been studied.

  • Momine
    Momine Member Posts: 7,859
    edited September 2014

    Annie, thanks. 

  • anniealso
    anniealso Member Posts: 16
    edited September 2014


    For whippet lover: my blood pressure goes sky high when I'm under stress.  Out of the onc office, back to normal.  I tend to "white coat fever."  If your lower number stays  good (80 or lower) my drs. have told me it is not a concern.  If you take a blood pressure med., I would surely mention this to your doctor before attempting strontium.  The study I posted was also all elderly people.  I am 58 and my GP has green lighted it.

    Despite my jumping blood pressure, all of my doctors so far have give strontium the thumbs up vs. bone drugs. 

    I hope this is helpful for you.  We're all trying to figure this stuff out.

  • anniealso
    anniealso Member Posts: 16
    edited September 2014


    Reporting back ladies...onc has nothing to offer but the usual biophosphate stuff.  Knows nothing of strontium

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,847
    edited November 2014

    Hello everyone, I think we should try to update this thread and keep it going.

    I have been taking strontium citrate for a few years to treat my osteoporosis. I buy it on line.

    I would not touch bisphosphonates or strontium ranelate.

    I would love to hear from others.

    Best wishes,

    Sylvia.

  • Moderators
    Moderators Member Posts: 25,912
    edited November 2014

    Hi Sylvia,

    Thanks for reviving this thread! We hope others will chime in with their experiences

    The mods

  • Texas357
    Texas357 Member Posts: 1,552
    edited December 2014

    Femara is known to rob bone density. I've now been on it for 5 years, while also taking strontium citrate. My bone density has actually improved slightly. Strontium is not a miracle pill. You still need to exercise and follow a good diet.

  • windingshores
    windingshores Member Posts: 704
    edited May 2015

    Thanks so much for posting this. I have been taking strontium. I am surprised that none of my MD's, who are at major teaching hospitals, know much about this. I am now on Femara and have already had osteoporosis for 5 years. I am unable to take biphosphanates, calcitonin, or Forteo so far (though I would retry 1/2 Forteo dose).

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