Starting Chemo in April 2014

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  • Longislandl8y
    Longislandl8y Member Posts: 145
    edited September 2014

    Hello warrior sisters! I haven't been on here in weeks.  I'm 6wks out of chemo and three weeks into radiation.  I honestly thought I'd be feeling much better at this point.  I'm still getting mildly nauseous during the day, and experience a lot of fatigue.  The radiation isn't terrible but it's trying in it's own right.  I thought I'd magically get back to my active lifestyle after chemo, but have been reminded to slow down and give it time.  I am anxious to lose the weight I put on but it will be a little while before that happens.  Hoping everyone else here is doing well.  Thinking about you all.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited September 2014

    It took a long time for me to recover from CMF.  But radiation is exhausting in itself.  Hang in there!

  • EverForward
    EverForward Member Posts: 242
    edited September 2014

    Today I had a few girlfriends over to say goodbye to "the girls" before my BMX on Tuesday. It's been forever since I socialized with more than one friend at a time. It was great.  I feel mostly human now I hope everyone is enjoying the weekend with minimal. SEs.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited September 2014

    Well I was supposed to start Rads on Monday but due to a NP that didn't listen I will be delayed some.  They are not sure how long but possible a week.  I am NOT happy about this but nothing that I could do about it.  

    As far as feeling better I am getting there.  i managed to do a session of T25 today, photograph my son's football game, went to dinner, processed pictures and I am finally getting ready to relax some.  You know it sounds like a lot but I honestly felt some what normal for the first time in a long time.  I do have neuropathy and some questionable nails but all in all I think I am gonna recover :).  I am now preparing for my busiest season of the year all while going thru radiation.  Yes, it's gonna be trying but I have to get it done.  

  • clarrn
    clarrn Member Posts: 557
    edited September 2014

    Wow!  Way to go Jaimieh :)  I can't wait to do T25 again but I am nowhere near that this week.  3km walk for me.  I have to remember to be patient.   I had chemo 3 days ago but feel terrible and so discouraged.   I know that it takes time but I just want to fit my pants again!   Little by little we'll all get there :)  Go team April!

  • clarrn
    clarrn Member Posts: 557
    edited September 2014

    Wow!  Way to go Jaimieh :)  I can't wait to do T25 again but I am nowhere near that this week.  3km walk for me.  I have to remember to be patient.   I had chemo 3 days ago but feel terrible and so discouraged.   I know that it takes time but I just want to fit my pants again!   Little by little we'll all get there :)  Go team April!

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited September 2014

    clarrn you will get there just some time and you will feel like working our again. I am following the modifier but that is still movement. 

    Does anyone have any good fingernail solutions. ?  I gave one that is lifting and leaking   :(

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited September 2014

    What is a NP?  

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited September 2014

    NP is a nurse practitioner

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited September 2014

    Ah!  thanks!

    Drs make enough errors.  I do not like nurses taking on so much responsibility!

    The system should have more safeguards, especially if you're giving so much responsibility to nurses.

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited September 2014

    I don't mind NP normally but this one spoke to me like I was an idiot. She looked at me and said your recurrence was in you skin. I said no it wasn't you need to look at the pathology report and she just said "oh your right". The she started talking about how the radiation could hit some of my heart and I sit there looking down at my right breast and I finally asked how because my right breast is the one that had cancer.  She was talking about radiation to the left one. I left feeling more confident after I spoke with the RO but now I a,d back to feeling less than confident. 

  • Footballnut
    Footballnut Member Posts: 742
    edited September 2014

    good morning all!

    Football has started. Woo hoo! May sound nuts but I had been so looking forward to this since starting chemo April 30. I always knew that when football started chemo would be done!

    I have what I consider to be a discomfort on my left side near my lower ribs. It's been off and on for 3 weeks. Feels a bit like a pull - when I lie on it at night I can feel some sort of pressure and then within 15 minutes of waking up it is there. Not a pain. More like a dull ache. Called my nurse today to see of dr might want to see me. I don't think that it's anything serious but just curious why it's there. Hubby suspects a pull or maybe chemo liked that spot. I have a few aches left from taxol but this is the only consistent spot

    I have some peach fuzz growing on my head. It started a few weeks into taxol. It's coming in mostly white but I'll take it!!  I think I have two eyelashes left on each eye and it seems that my eyebrows continue to fall out but I'm getting good with the pencil!!

    :-)

    Now for brekkie, gym and practice the geetar!! Rock and roll!

    Have a great day all!!

  • jhodro
    jhodro Member Posts: 240
    edited September 2014

    Good luck Mame on your new treatment. I hope it treats you really well!! 

  • SharonDe
    SharonDe Member Posts: 222
    edited September 2014

    MameMe - thanks for the update, and wishing you the best with the new treatment.  

    Longisland - it will get better.  Congrats on finishing chemo and soon to finish rads!

    Everforward - sending good thoughts for your surgery tomorrow.

    Jaimieh - you are certainly getting lots done and keeping active.  Good luck getting rads sorted.

    Footballnut - you are another who amazes with your activity level.  And, nice work with your charity efforts,  you're making a difference that will help others.

  • Footballnut
    Footballnut Member Posts: 742
    edited September 2014

    Thankyou sharonDe!  I'm certainly trying!  I was going to hit the gym today but decided to listen to my body as I feel tired. It's a beautiful day so I'm outside reading which is nice to do as well!

  • clarrn
    clarrn Member Posts: 557
    edited September 2014

    Not so nice outside here today.  I woke up to SNOW! !!?     Yikes.   Hope it melts before I drive to Calgary tomorrow.  Brrr.

  • MameMe
    MameMe Member Posts: 425
    edited September 2014

    Good luck to you Clarrn, driving in tomorrow and in the procedure as a whole. You have been through a lot! FBNut, yay for peach fuzz! And for your sake, football season. The Pats took a big loss yesterday, leaving my husband and others bleak and forlorn.  He got over it, but it was hard to kick off the season with that. Hope you can clarify what the feeling near the ribs is. Best of luck. 

    Thanks to Jhodro and others who have been so supportive! I super appreciate it. Hugs.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited September 2014

    Well, another day another problem...  Saturday I got a mosquito bite on my left hand, the mastectomy side.

    Last night I started feeling nauseous and noticed that the mosquito bite looked red and inflamed.  So, at ll pm I went to the ER.  I'm on Clintomyacin.  The nausea is gone.  i think the skin looks better.  But my nerves are shot!  

  • MameMe
    MameMe Member Posts: 425
    edited September 2014

    ....and, Everforward, I will be thinking of you tomorrow. A big step and hopefully one that brings some relief. 

  • Footballnut
    Footballnut Member Posts: 742
    edited September 2014

    clarrn snow?  Snow?

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited September 2014

    Just got back from my internist.  He says I have Lyme Disease and put me on a different antibiotic.

    It's been a lot!  He said it was lucky i came in.  I never used to go to doctors but now I don't hesitate.

  • SharonDe
    SharonDe Member Posts: 222
    edited September 2014

    Lyme Disease - oh man, Timbuktu, you can't get a break.  But, that's so great that you got in a got a quick diagnosis.  Smart thinking on your part to go to the doctor.

  • clarrn
    clarrn Member Posts: 557
    edited September 2014

    Timbuktu- so glad you went in!!!  

    Football- yep SNOW!!!  My daughter is singing "Do you want to build a snowman?"  from Disney's Frozen...lol   I hate winter.   Not ready for it to start.  Thursday is supposed to be like 23C  so I am just going to hibernate for 3 days!  And I picked myself up a Skinny Pumpkin Spice Latte... made the mistake of looking at the calories!

  • ColdInCanada
    ColdInCanada Member Posts: 95
    edited September 2014

    Hello Ladies!

    Just wanted to pop and and say BEST WISHES to EverForward tomorrow as she says "So Long" to her Girls. I've said it before and I'll say it again: the mastectomy is so much easier than the chemo. You've got this Girl! Thinking and Praying for you tomorrow!

    A little something that helped me out: Remember how I complained of some serious MUSCLE PAIN? It just was NOT letting up, so I asked a friend, who is studying to be a Naturopath, what she would recommend. She suggested Glutamine supplements - 1mg, 4 times per day. So I tried it. I took my first dose this past Friday (Sept. 5), and today, just 4 days later, IT'S WORKING. Seriously. Last week I had to brace myself on a wall or table in order to sit in a chair. This afternoon I SAT CROSS-LEGGED ON THE FLOOR. And then? I got back up. ALL BY MYSELF. This is miraculous, Friends. Truly. :)

    In other news, I had my first post-surgery/chemo screening today. And everything is CLEAR. Woo hoo! :):):) Next screening will take place in December. Isn't it amazing how many medical appointments we now have? Whew.

    Oh, and I will also CONFIRM clarrn's report of SNOW in Southern Alberta. Calgary is now under a Heavy Snowfall Warning. True Story. And I can't even say it's a Shocker. This is kinda the norm here - you just never know when the snow will show up. Keeps things exciting. ;)

    image

    Wishing you all a wonderful week Ladies! :)

  • nancybel
    nancybel Member Posts: 81
    edited September 2014

    Congratulations Cold on the all clear results.  I have to say, that snow looks wonderful, especially with these hot flashes. :) Thank you for the tip on the Glutamine.  I will be trying this, as my muscles feel as if I just work out, even though I haven't had the energy to do so.  Glad you are feeling good.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited September 2014

    Cold, how long after treatment stopped did you get your physical?  My Dr. said I should make an appointment for 3 months after, which seems like a long time.

  • clarrn
    clarrn Member Posts: 557
    edited September 2014

    Cold-  What did the screening involve? Tests or symptomatic? 

  • EverForward
    EverForward Member Posts: 242
    edited September 2014

    Thanks, Cold! Congrats on your clear results. Must feel good. My muscle ache is slowly subsiding on its own. But it is taking forever or so it seems.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited September 2014

    thoughts and prayers are with you Ever.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited September 2014

    Internist just called.  He says my calcium is high.  Has anyone else had this?  I looked it up and it says that if your parathyroid is normal (mine is) it can be a sign of mets.  I have to see him again in two weeks.  He told me to take half of the calcium I am taking.  

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