Summer Rads 2014

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  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited September 2014

    Hey ladies!!!! My Internet has been down and I've been having withdrawals from the forum lol

    Shycat I'd do 3 naps and dinner with cake!

    Mripp so sorry about the burns!! Keep the miaplex in mind.  It gave me instant relief.  

    Dee you're almost there so hang on!

    Debster I hate your legs are still bothering you.  Hopefully you can find some relief soon. 

    Woohoo vette! You should be done today too!!

    Rhett, have you read the metformin breast cancer studies? Very interesting and may not be a bad thing to take! 

  • vettegirl
    vettegirl Member Posts: 235
    edited September 2014

    I am DONE!!!!  Woohoo!  Very happy to get this behind me.  Have a hair appoitnment at 4 pm.....and then stopping to pick up some wine to celebrate.  Congrats to everyone finishing today!  What a ride!!

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited September 2014

    Vettegirl, Congrats!!! Enjoy your wine!!

  • ohiofan
    ohiofan Member Posts: 206
    edited September 2014


    Way to go, Vette!!!!

  • Amelia123
    Amelia123 Member Posts: 96
    edited September 2014

    Alright vettegirl! Go celebrate in style. I hope to soon have enough hair to go to a salon too. The bright side: I've saved a lot of money on haircuts and hair products. 

  • Rosiesride
    Rosiesride Member Posts: 513
    edited September 2014

    Yey vette girl! Such a good feeling!!

    I am enjoying my super short , soft easy to care for hair!!  I am off to work in no time with no bad hair days and lots of stylish scarves and dangly earrings!  My kindergarteners tell me everyday how beautiful I am!! Lol....after one little guy blurts out " you look like a boy"!  Haha! But I am going to keep a short pixie...like Emma Watson ....I have already trimmed a bit over my ears too!  

    Forgot to check out my legs until I crossed them while assessing kids and had my specs on to see a lot of stubble! Yeeks!! Funny....have a great weekend! Rosie

  • OK4Now
    OK4Now Member Posts: 4
    edited September 2014

    Vettegirl--

    So happy for you and everyone else who finished this week.  I sure get a big grin on my face when anyone posts this message!  Had my one month follow up with RO & all is well.  He said the fatigue could last a year, but I'm getting better.  Only 3 naps this week.

    Very hot here--my short hair is my silver lining today.

  • MomMom
    MomMom Member Posts: 523
    edited September 2014


    Fatigue can last a year?  I think everyone is different.  My RO said if you were high energy before, it shouldn't take that long to get back to normal. Hoping that is true.  I have noticed some fatigue, but I still do my strenuous work out every morning.

  • Debster
    Debster Member Posts: 82
    edited September 2014

    Congratulations to all that finished Rads this week!!

    Hope everyone has a great weekend.

    Hugs to all! Smile

  • aff
    aff Member Posts: 279
    edited September 2014

    Congrats to all that have finished this week!!!

    Happy Friday to those that are not yet done. 

    Rosie - my "warm flashes" have definitely improved. I never had a real hot flash, I just get warm, but they are not as frequent as they were in the beginning. I started taking Tamoxifen the last week of July. 

  • vettegirl
    vettegirl Member Posts: 235
    edited September 2014

    Thank you everyone-my hubby ended up coming home, so he took us out to eat at Red Lobster.  They are having the all you can eat shrimpfest right now-so we enjoyed that-and I had several glasses of wine.  I wear what is called a hair system.  It is bonded on my head and is real hair.  My hair is actually long, and I love it-get tons of compliments on it.  I actually started wearing it one year prior to BC diagnosis...I had thinning hair-and so called a hair restoration place and started wearing the system...it saved my life during chemo-most people never even knew I was sick.  With working full time, it was important to me.  I go once a month to get it cleaned, colored, conditioned etc...get a brand new one every 6 months...and can wash, curl, blow dry, style it any way I want.  It's pricy, but I am low maintenance otherwise-so I deserve it :)

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited September 2014

    vettegirl. Glad hubby was able to take you out!! Sounds like you had a great time. Mmm, got me longing for some shrimp or lobster now!!

     I have often wondered about hair systems for women,  I can get away with my thin hair when its well cut for the time being but have an area down the side that will never grow any hair due to surgery after an accident (.I survived a high speed rollover many years ago with only bad cuts to the head - saved by my seatbelt). Anyway It only shows if the wind blows but the front is so thin and my forehead ended up so high with the surgery that I often fiddle with it.  When the MO comments on it and I have not even had chemo or started the hormones then there is a problem Lol. I have a couple of wigs that I do not often wear but get nice compliments when I do but they are hot, uncomfy and difficult to look after as they are synthetic. Is the hair system heavy or do you get used to it and can you swim in it? It sounds like a great idea.

  • vettegirl
    vettegirl Member Posts: 235
    edited September 2014

    No-it is not really heavy-feels like a part of me, but maybe I am also used to it.  Yes-you can swim in it.  I also add hair extensions to it sometimes when I want to go even longer.  I really love it.  My hair dresser wears one as she has a disease that makes her hair fall out-so she is so good with working with it.  You also can go longer without washing it -I typically do twice a week, but have gone once a week when I was sick.  I like mine curled the best way but sometimes go straight.

  • rettemich
    rettemich Member Posts: 369
    edited September 2014

    vettegirl, Congrats!! sorry for the delay!! 

    I need a little whine here. Just to add another nail.....

     Friday we found out that as of the end of October my dh will be out of a job. And insurance. Great!! I have surgery scheduled for November. Yes we can do Cobra, but holy cow I don't know how we would pay for it. And it just keeps getting better. They let everyone go, on Friday, in the repair station side (they work on helicopters) except for about 8 of them. Luckily my dh was one of them. They need a few good ones to help wrap up. Ah this just keeps getting better and better.

    sunshine, did you have your consultation on Friday?

  • charusa
    charusa Member Posts: 107
    edited September 2014

    Had #20 today and I knew my underarm was very tender but I haven't really looked at it over the weekend. I now have a very dark area around incision area and it bothers me when I move my arm. It was doctor day, my regular doc is on vacation so I so someone else. He said I was breaking down in that area and wanted to order me silverdine but I am allergic to sulfa so he said to get desitin and also something called domeboro soaks. They gave me samples of something similar to the desitin baby ointment called Smith's zinc oxcide. It really is beginning to hurt and on top of it all I am out of my house until Thursday while it is being tented. Sitting at the campgrounds feeling miserable and worried this will gash open at any minute!!! Have to go to a CVS tomorrow and get the soaks just couldn't do it today with moving so much stuff out and getting to the campgrounds. Anyone else starting to breakdown?

  • MJ1966
    MJ1966 Member Posts: 8
    edited September 2014

    yes,I've had some breakdown in the armpit...red,raw with some open areas. Very uncomfortable. Radl tech advised saline soaks four times a day and aguafor cream. Helping some. Have done 25/30 treatments,so hopefully I won't be uncomfortable for long.

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited September 2014

    Oh Rettemich I am so sorry to hear about your DHs job. Cobra is so
    expensive if its more than one person. Any chance you could get the
    surgery brought forward to October or are you waiting for things to settle down?

    Will you be able to get
    cheaper insurance under the Obamacare for next year. I know in MA if
    your income slips below a certain amount for the expected year they
    discount the cost if you get it through the state health connector but individual insurance is pricey. I
    hope your DH can find something with insurance or they keep him even longer than expected. It just not fair
    especially when sucky things come in multiples.

    Charusa and MJ, Sounds like you are having a rough time with your skin. Hope you get some relief soon. Some of the ladies used something, I think it was called Miplex a bandage type thing that you can ask about at the pharmacy. I think Sunshine used it and it helped.

    Saw a trainer at the gym today who said I was much stronger than I thought which was good although I still feel fatigued so I signed up for 4 half hour sessions over the next month to try and get help on the cardio side as I have no endurance. I do gym and then nap!

  • Rosiesride
    Rosiesride Member Posts: 513
    edited September 2014

    lyzzysmom ...I need to get into an exercise routine...I had thought about getting a trainer but I hate the gym,  and with work schedule and fatigue in the afternoons...don't know when I would go!  But I need to start something,  I keep saying when it cools down...hopefully in a couple,of weeks....good luck! Rosie

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited September 2014

    Yes ladies, ask for Miaplex! It will give you immediate relief.  It literally saved my sanity.  

    Rhett, I had my appointment on Thursday with the MO.  Liver enzymes are still up but my test came back ok.  They think it's fatty liver.  Go figure... I'm a fat girl! 

    I have my preop consults for bariatric surgery on Monday.  I need to get this process started.  I'm freaking myself out thinking about all this extra estrogen floating around in my fat! 

    For those that have finished rads I'm 8 weeks out and I have an area on my breast that itches constantly. There's nothing there.  It just itches.  Anyone else experiencing this? 

  • charusa
    charusa Member Posts: 107
    edited September 2014

    MJ, are you already on your boosts then since you are on 25? I think my last 8 are boosts. I can't remember back to my first appointment when the RO told me where and how many. I know one of the targeted areas is the breast where the tumor was and the other is where the nodes where but I am not sure where exactly that was...I guess where the incision under my armpit is? If thats the case then my skin is surely going to get blasted wide open.....and I don't know why that is freaking my out so badly. I had a huge tumor under my arm pit but PET scan post chemo showed no cancer anywhere...there was however a micro bit in the breast tissue that was removed during surgery but all my nodes were negative and I had clear margins so I really don't understand why I have to do so many rads except perhaps that I am/was triple negative? I am trying to get in the habit of talking in the past tense when it comes to my cancer....I had cancer...I had tumers...

  • Deblc
    Deblc Member Posts: 479
    edited September 2014

    Sunshine I am still itchy over chest area

  • rettemich
    rettemich Member Posts: 369
    edited September 2014

    Yep, still itching here too. Also still experiencing some heat. Not really "hot" but can defiantly feel it. Still get some pain too.

    charusa, don't over due, they will push you to finish now. But if it is getting that bad, and as much as you want to be done, don't do more damage than you need. Especially if your boosts will be in the same area. Take a break and let it heal.

    sunshine, I'm am going to talk with them and see if I can get it pushed up. I was really hoping for Nov. as I still have swelling on on one side. Also, he said he was booked up in Oct. So at first I thought it was going to work out perfect, not so much now. I was asking about your surgery as I was also thinking of maybe doing this. For the same reason. Get rid of the fat!! Now I don't know what the h*ll to do. 

    We are really hoping dh can get another job. Only problem, we don't know what the insurance, if any, will be. Sounds picky but I sure hope it's not an HMO. Never had good luck with those. We are secretly hoping they will keep him until just into Nov. so we can get another month of ins. But not counting on it. I've been so depressed.

  • Amelia123
    Amelia123 Member Posts: 96
    edited September 2014

    rettemich, can your husband explain the insurance situation to his company? Maybe there is a chance that they can give you one extra month of insurance. It's worth a shot.  Good luck.

  • mripp
    mripp Member Posts: 106
    edited September 2014

    MJ and Charusa, I feel your pain! I didn't get the red open weepy skin until about #25-28. Then RO put me on a 5 day break and it helped alot. After using the Silvadene + Aquafor, it is about 1/2 beginning to heal and patchy healing on the lower part. I was amazed what that little break did! RO resumed my last 3 tx yesterday, so I finish tomorrow!! DH said let's go out after and celebrate!

    vettegirl, BIG Congrats!!

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited September 2014

    Rett, I agree with Amelia that it is at least worth asking about extending your husbands insurance a month. It would be the decent thing for them to do given your situation. Definitely no harm in asking and I so wish you luck with this.

  • rettemich
    rettemich Member Posts: 369
    edited September 2014

    We actually were discussing that yesterday. LOL I think he will ask, but wants to wait a week or 2 and see how everything is going. I know, I know I need to be grateful that we had ins while I had the majority of everything done. I keep telling myself that......but you all know sometimes it's just hard to stay positive.

    Hard to believe, going through what we go through, and in my case for an issue less than 2cm big. Crazy.

  • vettegirl
    vettegirl Member Posts: 235
    edited September 2014

    Rette-so sorrry to hear about your hubby's job...hope they can work something out.  Sorry that you have to stress about this now when you should be recovering, resting.

    My masectomy boob is really red now and has lost skin-got worse after the fact-last radiation was friday.  I am putting aquaphor on-not really sore, since that boob is numb.

  • MJ1966
    MJ1966 Member Posts: 8
    edited September 2014

    saline soaks and aquaphor are helping a lot. Start five boosts to lumpectomy site on Monday and then I'm done with this phase!  Just herceptin every three weeks until April.

    Have finally felt well enough and hopeful enough to start travel planning again(had to cancel trips river cruising down the Danube and to Greece when diagnosed). Looking at a cruise to eastern Caribbean in December. Thinking it might be best choice as I can do as much or as little as I feel like. Have never done an ocean cruise before,but hear they really spoil you. Feel like I deserve a little spoiling after all this.

  • rettemich
    rettemich Member Posts: 369
    edited September 2014

    vette, yeah it will peak about 2 weeks out, maybe less. But then it should really start to heal. The soaks will help put moisture in. Good thing you are numb right now. LOL Thank you for your thoughts. I hope they can work something out too. They are a fortune 500 company and we are just a number.

    MJ, Do the cruse. We had a chance to go one one and it was Wonderful!!!! You deserve it!!!!!

  • Sunshineinky
    Sunshineinky Member Posts: 461
    edited September 2014

    Rhett it really sucks about the insurance.  However, if this is any hope at all a lady I knew ended up with coverage through the affordable healthcare act.  Her husband had lost his job and she barely made above minimum wage.  Her out of pocket was zero.  My out of pocket was 3,000.  We got the exact same care from the same group.  She was devastated that morning I met her because she had just found out and had no insurance coverage at all.  I was really glad she (and her family) got coverage!!! Her husband has since found a job that has coverage.  

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