Starting Chemo in April 2014

Options
1838486888995

Comments

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited August 2014

    I think you're right Mommy, what's to say that the new hair would grow in evenly after it's shaved?

    Anyway, it's hard to part with any hair!

  • MommyQ
    MommyQ Member Posts: 117
    edited August 2014

    Exactly! There's so little hair, I'd feel bad shaving any of it! So I'll just cover up my stubbles and give my hair a chance to grow. 

  • SharonDe
    SharonDe Member Posts: 222
    edited August 2014

    I wanted to share a milestone. Yesterday, after 8 weeks PFC, I finally felt good enough to plan an evening activity and drive myself.  One of the local towns was having a Festival and were shooting fireworks.  I had about a half hour drive there, an hour at the fireworks, and then drive home.  Normally this would be no big deal.  But for months I haven't had the energy to do anything - even laundry!  I guess part of me was also worried energy would never return.

    image

  • ColdInCanada
    ColdInCanada Member Posts: 95
    edited August 2014

    That's awesome Sharon! Just AWESOME. Thanks for sharing. :)

  • EverForward
    EverForward Member Posts: 242
    edited September 2014

    I'm almost 5 weeks PFC and I feel mostly human again! My muscles still ache when I use them or do even mild stretching, but I'm not letting that stop me. I'm not running a marathon anytime soon, but I do feel up to getting out and about more. My attitude has changed for the better as well. Maybe it was my vacation in California, but I'm so much more positive about moving forward. I know I still have months to go before I can feel like this is "over," but I'm bold enough to envision a future where I feel healthy, am able to exercise (and lose 10-15 pounds), and have great new boobs!

    All I need is a full head of hair!

  • Tinkerbells
    Tinkerbells Member Posts: 211
    edited September 2014

    I'm done! I'm done! Clarrn, you are done tomorrow! Ok, when do I start feeling like myself again? Timbuktu, Sharon, cold, ever, mommy, Linda, anyone I've missed, thank you for continuing to come and update us on how it's been going PFC. Anyone hear from footballnut?

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited September 2014

    I was 6 weeks PFC yesterday.  Still napping almost every day but feeling better when awake!  ;-)

    I find the mornings are ok, almost normal.  Around 1 pm I go downhill fast.  Mostly just fatigue.

    Congratulations on finishing up now every day in every way things will get better and better.

  • clarrn
    clarrn Member Posts: 557
    edited September 2014

    Congrats Mscaruso!!!!  You did it!

  • MommyQ
    MommyQ Member Posts: 117
    edited September 2014

    Congrats, Mscaruso! Like Timbuktu said, every day gets better! I'll be 3 weeks PFC tomorrow and I feel pretty good. I don't need to nap anymore, although I still need to stop to rest several times when I walk the dog around the neighborhood. But it feels good knowing chemo is over!

  • linda505
    linda505 Member Posts: 847
    edited September 2014

    Congrats Mscaruso!!!    Footballnut is doing good - i think tomorrow is her last taxol.  she is very busy planning two fundraising events for breast cancer with her band!!  She is a super hero lol.     I have my herceptin treatment today  #7  - I am now 9 weeks PFC and feeling pretty good - RBC and HGB finally back to normal so the muscles have stopped burning.  Stomach is still a little po'd but getting much better and my fuzz is getting more visible  Here it is today 

    image

  • Footballnut
    Footballnut Member Posts: 742
    edited September 2014

    Hello sisters!!!

    As you may have noticed, I have been away for
    awhile. NOTHING IS WRONG - I AM FINE! I apologize if I have caused
    any of you to worry. As you may recall, I am organizing two fundraising
    events. The first to be held Saturday Oct 25 in support of the
    Trillium Health Partner Foundation - Credit Valley Hospital, Cancer
    Services; the second to be held Friday, November 21 in support of the
    Canadian Breast Cancer Foundation. For the past several weeks, I have
    been devoted to this. Both will be held under the banner name - ROCKING
    IT BALD. I have created t-shirts using my hubby’s design, bought the
    domain name rockingitbald.com (the site will be up shortly - I have been
    working on it for weeks!!), trying to get items for door prizes and
    silent auctions, meeting with representatives from the Trillium Health
    Partners Foundation, updating my ROCKING IT BALD facebook page and
    trying to get volunteers for the events.

    On top of this, I have
    been rehearsing with my AC/DC tribute band BARE RUMP and classic rock
    band LEFTY AND THE GOONS as both will be performing at the events in
    addition to the Relay For Life, Friday, Sept 12 in Norval, Ontario.

    On
    top of this, I participated in a video to share my story sponsored by
    Scottie’s in support of the Canadian Breast Cancer Foundation. I have
    another video shoot this Friday for the cancer centre at the hospital
    where I am being treated - Credit Valley.

    In addition to this, I have been trying to go to the gym 4-5 times per week, and have been continuing my treatment.

    Needless to say, I’ve been crazy busy so again, do apologize!!

    Tomorrow
    is my last chemo treatment of taxol. DONE!!!! Can’t wait - I’m too
    busy for this! I can’t complain about the side effects. I had 3
    treatments in a row then was off for a week, then the last 3. I am
    starting to feel some needles and pins in my finger tips and have an odd
    ache in my left rib. I’m waiting for swelling due to water retention -
    after my first 3 rounds I gained 6 pounds of water. It was awful!!
    I’v also had ringing in my right ear for WEEKS but this started off and
    on last year. My mom calls it “age”.

    lol

    I will also get round 4 of herceptin tomorrow which will continue every 3 weeks until the end of June 2015.

    If
    anyone wants to keep in touch, I would suggest hitting me up on
    Facebook if you haven’t already. I’m Angie Sandow and you’ll see a
    picture of me in a beanie. I will continue to pop in but for now, I am
    soooo busy that I hardly have time to reherase with my bands!!

    I
    would also appreciate if you would “like” my Rocking It Bald facebook
    page. As I mentioned above, my website will be up shortly. In the next
    few weeks, I will start volunteering at Wellspring and hope to commence
    my volunteering with the Canadian Cancer Society. I hope to use this
    and my Rocking It Bald site to network in the hopes of starting a career
    in public speaking down the road.

    I hope that all are well!!!!

  • Tinkerbells
    Tinkerbells Member Posts: 211
    edited September 2014

    football you ROCK! Congrats on the last one- FOREVER!

  • SharonDe
    SharonDe Member Posts: 222
    edited September 2014

    Comgrats, Mscaruso & Footballnut on finishing up!!!

  • clarrn
    clarrn Member Posts: 557
    edited September 2014

    image

    I did it!!!!!   Can't say enough thank you's to you all for sharing this journey with me and giving so much of yourselves when you, too, were going through so much!!!!   Off for my benadryl/post chemo nap!  Big Hugs!

    image

  • Tinkerbells
    Tinkerbells Member Posts: 211
    edited September 2014

    CONGRATS CLARRN! was waiting for your post today!

  • MommyQ
    MommyQ Member Posts: 117
    edited September 2014

    Congrats to Footballnut and clarrn! Woo hoo! 

    Wow, Football, you're making me tired just reading about all the stuff you've been doing. Rock on!

    Linda: Yay, fuzz! :)

  • clarrn
    clarrn Member Posts: 557
    edited September 2014

    Congratulations to you too FBN!!!!

  • nancybel
    nancybel Member Posts: 81
    edited September 2014

    Congrats Clarn! and Congrats to FBN.  

  • SharonDe
    SharonDe Member Posts: 222
    edited September 2014

    AND ... Drumroll ... Congrats Clarrn !!!

  • Footballnut
    Footballnut Member Posts: 742
    edited September 2014

    image

    good morning all

    Well I rang the bell hard and loud yesterday - twice and will do so again once herceptin is done next June!!

    Congrats clarrn!!

    image

  • linda505
    linda505 Member Posts: 847
    edited September 2014

    congrats clarn and footballnut!!!  you both look great!!

  • EverForward
    EverForward Member Posts: 242
    edited September 2014

    Have you seen this video of a young cancer patient who made a video parody of a rap song based on his chemotherapy called "Bald So Hard"? It's awesome! It manages to capture some of the crappy stuff that happens with chemo, but in a playful, funny way.

    https://www.youtube.com/watch?v=BHpz3UEmvQg&feature=youtu.be

  • jhodro
    jhodro Member Posts: 240
    edited September 2014

    The video is awesome. 

    Congrats to FBN and Clarrn and anyone else finishing up!! So much closer to moving on for all of us.

    I'm on day 12 of 33 of rads...getting there!!

  • MameMe
    MameMe Member Posts: 425
    edited September 2014

    Sharonde, I was so glad to hear that you were able to capture a little time at the fireworks and that driving felt ok finally. Its just astonishing how much this stuff can take out of us. I have enjoyed your droll sense of humor and very balanced view of things. Enjoy your remaining time in Maine, if you are still here. My best to you.

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited September 2014

    Congrats Clarrn, Footballnut and Mscaruso!   It's a great feeling knowing you're finished, isn't it?!!!

    You guys look great!  I'm still waiting for my hair to grow.  It's still just peach fuzz...

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited September 2014

    clarrn, how did you keep your hair?

  • clarrn
    clarrn Member Posts: 557
    edited September 2014

    Timbuktu- that's what's growing back.  I did lose it all on AC.  My last few doses were reduced and it's growing fast I think.   Also have to shave legs like before.   But eyebrows just fell out last week! 

  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited September 2014

    clarrn- I have hair envy. :)

  • SharonDe
    SharonDe Member Posts: 222
    edited September 2014

    MameMe - I hope you are doing well.  I've missed seeing posts from you (and from Brigadoon).  We plan to enjoy Maine until January, with a trip back to Florida in 2 weeks to see Mickey Mouse and a follow-up with my oncologist (guess which one I am looking forward to?).

    Lilyrose - I'm with you in the peach fuzz club!  

  • MameMe
    MameMe Member Posts: 425
    edited September 2014

    Its so great to hear about the people who are finishing up chemo! Milestones really help me get through the hard stuff. I am now stopping Taxol and starting a different chemo, Xeloda. the Taxol did all it could, and the oncology team thinks this new one will knock things back a bit more. The ponies in all this xxxx are that I will take Xeloda orally twice a day at home, and that it seems to be well tolerated by patients. PLUS, my hair will grow back! It never all fell out with Taxol, but got thin and weird. Its already starting to fill in some, as are my brows and my itty bitty micro lashes. I got really sick a few weeks ago and that threw me off of my BCO time. It was a virus, probably, but laid me up for much of two weeks trying to get over the darned thing. Much better now. I have a few more days of no tx until I start Xeloda, so am enjoying the time like a kid on vacation!  Hugs to you all, Mame

Categories