Bone Mets Thread

Terre I had my second knee replacement just three months ago and while it is still healing it is so much better than having bone on bone!  I sure hope that cortisone injection works for you to relieve some of the pain.

Love n hugs.   Chrissy

dunesleeper,

I'm a little behind in my reading. I hate when anyone is in pain, but especially at stage IV, which is enough emotional pain itself. Have you seen a pain management doc yet? 

Caryn

Thanks, Terri and Chrissy.  I've talked to my MO about switching AIs. He's reluctant to change me if I'm still stable and if we haven't exhausted other pain relief options.  We'll see what today's bone scan says.  Assuming I'm stable, then we're going to try non-generic Celebrex (or similar) and see if that helps.  The generic stuff works to an extent, but I am sure queasy on it.  One would think that being queasy would help me lose weight, but sadly, eating helps ease the quease.    I've asked my GP about a knee replacement and he basically laughs at me.  There's about a 3 year wait here, and that's if you're on crutches or in a wheelchair, so my pain threshold isn't high enough to warrant it according to the health system.  The cortisone shots do help quite a bit and I'm overdue for one.  May see if he'll do both knees as my right one is now bothering me as well.  

Dune - hope you're getting some relief and seeing a pain management specialist.  Mine isn't debilitating, just enough to make me slow and grumpy and wake me up at night about every 2 hours.  Annoying!

Hugs to all,

Terre

dunesleeper,

Celebrate, even when it seems like a small victory!

hi ladies I was reading another thread and thought id come here with my question. I see many women who had bone mets but are now Ned. My confusion is my Onc says that with bone mets the scans will always show something. So my question is how is it determined that someone ned of bone mets?  Thanks 

Margie 

The scans will always show where the mets were, but if you are NED, they are not metabolically active. Similar to how a broken bone, even when healed, is visible on imaging.

thanks ex for your response. Last question, so will the radiologist that reads the scan known if mets are active?

LOL @ Dune.  I hear you!  Of course, with antianflammatories, constipation is not my issue.  Don't know which is worse.

I have been taking my pain meds way too liberally exbrnxgrl. I do like how they put me to sleep at night. However, I hate the constipation. I hate it because it is uncomfortable, but also because it screws with the feedback poop gives me. A proper poop lets me know I am eating the way I should be. I know it is funny to be talking about bowel movements, but it really is not so funny  when that is not working right.

I will take some pain meds with me tomorrow, but I'll see how I do with some ibuprofen and hemp oil. I wish I could get some good instruction on how to take it. I took one tablespoon twice today. Then I read elsewhere about taking drops of the stuff. They are probably talking about a different kind of hemp oil.

Where do you get hemp oil?

I got mine on amazon, from Canada. It seems to be working. I told the onc about it today and she said maybe the hormone blocker is doing its job. That would be quite a coincidence, but as long as the pain is gone I don't care. I wish I knew more.

YAY!!!!!!!!  So  happy for you!

Party time!!!! I'm totally happy for you!

Thanks Dune and Kite!  I'm more relieved than anything; have had a lot of hip/leg/back pain lately, right in the cancer former "hot spots", so I've been a bit tense (understatement of the year!).  Your support here on these boards is a huge help in getting me through!

Hugs to all,

Terre

Happy and hopefully it is just degenerative disease. However, I had a bone scan a year ago, which showed degenerative, arthritis/otho  ... but, while doing the scan I stayed twice as long at the imaging center cause they weren't sure if it were bone mets or arthritis. Afterwards I was asked to do a few regular x-rays and they concluded I had nothing more than arthritis. I was also told that both arthritis and mets are similar on a BONE SCAN. Both show activity. Now...looking back it is obvious every area they weren't sure about being arthritis or cancer was wrong. Most of it was bone cancer that could have been caught a year ago, and possibly I would not have cancer now in my organs. Also...during the bone scan I complained of the pain and pressure I had around the sternum. They concluded a year ago...arthritis ... now bone mets. I never heard of arthritis in the sternum. Plus it was the hiler lymph nodes that was pressing against the esophagus.

It is water under the bridge now. Because of the mis-dx I've decided no more bone scans. If they can't tell the difference between arthritis and bone mets it seems useless scan.