alternitive is only real hope for stag 4 mets

Inga, in my opinion, most people, as you implied, go to alternative therapy only as a last resort, which is completely understandable. As to what they can lose, the answer is a lot of money. I know it is not an issue for everyone, but for many it is.

Here is the link that I thought I posted:

http://cancercompassalternateroute.com/testimonials-2/stage-4-breast-cancer-metastasized-to-lymph-pancreas-and-lung-healed-with-an-alkaline-diet/

10 years survival after a stage IV dx is very good but her alternative therapy was not a cure so use it as you will.  There are other stories on cancercompass which may be helpful to you too.

I just want to state that I have done almost a full year of research on how to get myself out of this horrible situation since conventional medicine does not offer a cure.  Unfortunately, I have found that almost all of the wonderful alternative stories that I have read online have not ended well.  Many of the stories which end well using alternative therapies seem to be the stories where the person had surgery and then used an alternative therapy to heal their cancer.  I wish that this was not so and I wish that the whole story was always posted.  That does not mean to say that I am discouraging anyone from trying alternatives, I am just saying to do so with caution.  I am still trying other things besides conventional medicine to help my situation. If I have positive results I will let you all know, I stay as hopeful as possible as we all should - what else can we do at stage IV?  In addition, I think it is important to believe in whatever you are using because there is scientific evidence about the placebo effect (at least, I think there is). 

There are some more supportive places to discuss alternatives.  There are some websites dedicated to a particular alternative where you can discuss your situation but I haven't seen anything set up as well as BCO. I believe that the women on here are all caring individuals. No one wants to hear about some one suffering and if they offer help that is opposite to your beliefs you do not have to take their advice.  Best wishes to all of you.

(I just went back and read some of the latest postings on this thread and I apologize for repeating some of what you had stated Inga.  I think I did understand what you meant by the title of your thread but I want to be clear in stating that I feel that conventional medicine can offer you more time too and possibly less suffering but I am respectful of your choices.)

Music Lover, I am suprised that you didn't share the post about the lady w/ stage IV bc that we had PMed about.

http://www.cancerpatientsrights.com/success-storie...

https://www.facebook.com/ldsherman

Quite true that you can't take your money with you. My dd's want me to spend it on travel and fun as long as I'm able. I realize that as someone who has seen their children married,  become a grandmother, still works at a fulfilling career etc., my position is different than someone younger. Not that I want to die sooner than I have to, but if my life were to end tomorrow, I will have lived it to the fullest and had a great ride.

Patients who receive chemo are being taken advantage of too. Patients who receive chemotherapy who are not physically strong enough to endure the side effects are dying because the docs don't have have anything else to offer. Why not allow folks to just look for and choose things that are less harsh if it helps them? why?

I suppose it depends what you consider success. I'd say I'm an alternative success story. I haven't had any conventional treatment since 2010. Still alive and kicking, with regression in brain mets. To be clear, I am not cancer free and my personal view of alternative includes off-label drugs. Alternatives can most certainly extend your life. Not my job to convince anybody...my job is to stay alive as long as possible for my kids.

As for an alternative member posting their treatment choices on the Stage IV forum....perhaps someone new and naive might. Those of us who've been here a while would never, no matter what the title of the thread, for several reasons, not the least of which is respect for someone else's choices. 

Also, to be noted, I did do conventional until all conventional options (but one), were exhausted. I often regret going the distance with conventional because of additional issues it caused, but I try to look forward.

L&W, I was hesitant to offer Laura Sherman's story because it has been only 10 months but if some one has run out of options or prefers the less toxic treatment of cannabis oil, it seems to be working for this woman.  I hope that her story is true, I haven't reached out to her to verify it.  There are two problems I see with cannabis oil, well maybe 3, the first is availability, the second is cost and third is (and the reason that I started the thread on cannabis oil) more positive long term stories.  This is just one of those things that I don't have full faith in, as of yet. 

Unless you can make your own oil, the people who are making the oil have a lot to gain financially by purporting these stories. Given that, this might be a viable option for cancer patients - curative would be wonderful but who knows?

In many states RSO or CO, is not available legally as of yet and if you are able to get it even Rick Simpson states that you may not be getting the proper quality of the stuff you need to be successful  And L&W, I am glad that you mentioned what I have read - that it is dangerous to make on your own, so if anyone attempts to do so you need to take all necessary precautions and then some!
Maybe we need an official waiver - You will be making RSO or CO at your own risk.  (I'm not trying to be funny.)

Inga you don't have to answer that. MD its her Facebook page and you are double crossing boundaries here.

Light, she publicly posted on the board how to find her Facebook page, which I might add is another fundraiser.